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File: 1501276511199.jpg (40.58 KB, 420x294, spooniemunch.jpg)

No. 362479

OTT Spoonies/Munchausen By Internet 26 days ago No. 345089

Over-The-Top Spoonies/Munchausen By Internet Attention Whores General #7
Previous Thread: >>355530

Discuss people who feign or exaggerate chronic illnesses and medical crises for attention and asspats online. Previous topic focused primarily on Instagram accounts, but posts from blogs and other social media sites are admissible.

Most recent active IG cows:
Eli, aka folie_a_you
kelly.ronahan; me_and_the_mr (has her own thread >>359452 ).
hypermobileguy
chronically_jacquie
MyBlondeVoyage
onemorestep2
endlessvoices

The Munchie Queen of all time is Robyn Brown, who has her own threads (original: >>197138 ). Sadly she is now incognito.

What Is A "Spoonie"?
People who identify as 'Spoonies' are referencing 'The Spoon Theory,' written by a woman with lupus to explain the chronic illness experience to a healthy friend who asked her what it really feels like to live with her medical problems.
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The 'Spoonie' Community is, in general, a legitimate supportive network for people dealing with chronic illness. In recent years, however, it has become polluted with SJW types and has attracted a new breed of attention-seeking catfish: people who lie about, fake having, and/or exaggerate existing medical problems and crises for no benefit other than to garner attention.

What Is Munchausen By Internet (MBI)?
From Dr. Marc Feldman, an expert in factitious disorders including Munchausen Syndrome, first described Munchausen By Internet in 2000:
"…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups.[1] Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support."

LINKS to articles and info on MBI:
https://www.munchausen.com (Dr. Feldman's website)
https://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239
https://www.abc.net.au/news/health/munchausen-by-internet-what-drives-people-to-fake-an-illness/7631990
https://www.theguardian.com/society/2015/apr/29/jules-gibson-munchausen-by-internet-sickness-bloggers-fake-it-whole-pantry
https://en.wikipedia.org/wiki/Munchausen_by_Internet#Characteristics

No. 362486


No. 362504

File: 1501279283055.png (190.69 KB, 346x479, nicolestop.png)

>last night i had a very disrupted night as the ward was really noisy as quite a lot of people ended up unwell

How inconsiderate. Sick people cluttering up hospitals, being unwell and disturbing poor nicole who needs her beauty sleep.

No. 362509

>>362504
Wow. Just fucking wow. That is some serious egocentrism and appalling selfishness. Fuck that. Fuck her.

No. 362513

>>362504

I don't think Nicole is in a hospital, I think she's in an inpatient mental health clinic.

No. 362516

>>362504

You're not having a flare up, you don't have an inflammatory disease. Just everyone fuck off with it.

No. 362521

>>362519

Yep, she's def in an acute bed and they probably won't discharge her over the weekend,

Ladies and gentlemen, this is what my hard earned tax money pays for. I genuinely don't mind it laying for people to get good mental health support but not this.

No. 362526

>>362519
this is absolutely fucking INFURIATING

how can she justify wasting resources like this. I'm not someone who hates her or has been without sympathy in the past. When she seemed to be accepting her somatic illness I respected that and really hoped it would see a change for her. But this pathetic shit just reveals again how selfish she is. It's always about Nicole and what Nicole wants.

No. 362528

For all that it's probably a made up disease and an unhealthy focus, at least the chronic Lyme crowd aren't exploiting the nhs to fund their problems.

No. 362536

>>362528

That's because there is literally nothing the NHS will do for Lyme except give you a long course of antibiotics which in most cases is enough. I'm in the UK and have a few of these popular illnesses, and my mind boggles when I see EDS/POTS munchies having a wobbly day and deciding to trot off to the hospital for some saline. Basically, if they have insurance, they can milk whatever they want out of it.
Here, we at least don't get so coddled (if we're already lucky enough to have healthcare coverage).

No. 362537

>>362528

& while they are constantly petitioning the NHS to take their definitely-real disease seriously, they're also creating obligatory GoFundMes for private woo clinic treatment or treatment in the States.

No. 362541

The whole gastroparesis thing is out of hand with these munchies. Come on, it's literally just delayed gastric emptying and does not have no mean a condition in itself. Yes, yes I know it CAN be but for most of these healthy looking "tubies", that's not the case.

I'm sure if you did an emptying study on a million people, you'd find many perfectly healthy people with slow emptying. We are humans and our bodies don't always react in perfect ways.They probably just belch a bit after meals, call it indigestion and take an antacid…like normal people.

No. 362542

>>362541

Gastroparesis tends to go hand in hand (at least in the IG spoonie community) with EDS. EDS is pretty painful and a lot of these people are therefore on strong painkillers. Guess what strong painkillers do - slow your digestive system right down! Basically I'm sure half of them wouldn't have gastroparesis if they took a gentle laxative a few times a week.

No. 362544

>>362537
Gofuckmes for "treatment" at Breakspear are the worst.

No. 362545

File: 1501286175997.jpg (985.59 KB, 1046x1778, Screenshot_20170728-185250.jpg)

Oh yes, she gets to trade her big bulky tube out for the coveted GJ button. Also, what the fuck is that face?

No. 362547

>>362545

That's awesome. Now, she can eat all the Dairy Queen she wants and purge - I mean vent - it out her stomach.

No. 362548

>>362542

All the opiates and zofran they are prescribed are enough to slow down a healthy digestive system. Plus, if some of them went for a short walk once in a while, they'd get some movement going.

No. 362551

>>362545

She is honestly the picture of perfect health. I know looks can be deceiving with many illnesses but she claims quite serious ones, including malnutrition enough to need a feeding tube. Her hair is glossy, skin looks good and she actually has a good figure, nice and slim.

No. 362553

>>362545

I hope to god someone breaks the dog out while she's in hospital. Look at its poor face. FEED YOUR FUCKING DOG, JAQUIE!

No. 362554

>>362551

If you want to see someone looking unhealthy before getting the tube feed they need for severe gastroparesis, try Mandy Morbid (on Instagram). I've followed her for some years and when she was ill she looked horrendous, gaunt. You could see the difference the tube had made to her in just a few weeks.

No. 362555

>>362554

Sorry, forgot to sage!

No. 362558

File: 1501287066599.gif (1.94 MB, 400x234, tumblr_mzucauvoa11ru72puo1_r1_…)

>>362545
the dogs face is killing me
>you little lying shit I know what you do behind closed doors

No. 362564

>>362558

This is the reason I am glad the service dogs are so strictly controlled here. They have welfare checks to make sure the dog is happy and healthy and being used appropriately. You can't just get your own pet accredited.

Which reminds me of something I screengrabbed earlier…

No. 362566

File: 1501287502253.jpeg (312.19 KB, 1264x1185, misstery.jpeg)

What makes you doubly special and doubly sick? DOUBLE THE SERVICE DOGS! Not only that, but she's recommending all sick people get one because it's nice to have a companion. What she is describing is a PET, not a service dog jesus fucking christ…

Also they're both very small dogs (sorry for lack of photo, it's on her IG tho). I don't think a small dog is a great choice for a service dog unless it's a hearing dog (which this isn't). She just wants to take her pets everywhere cos she's so special.

No. 362571

>>362569

Can dairy allergy even cause an anaphylactic reaction? Srs question.

No. 362574

>>362571
My husband has anaphylactic reactions to dairy.

No. 362577

>>362554
Possible self post. The account in question is full of ridiculous hospitalglam shots (in between the suicide girl cringe) and showing off a shiny pink wheelchair, which she almost certainly doesn't need. She's a bit skinnier than Jaqui but that hardly makes her a sooper srs case of EDS/GP. tbh she seems like yet another melodramatic cow who's playing up some mild hypermobility to cater to kinksters/carve out a niche for herself. Boring.

No. 362583

>>362577
Can't find her, this is an image board. Pics pls.

No. 362591

>>362577

Not self-post. No idea how to prove this, but um… I was just offering an example of someone who actually looked like they benefited from their tube feed.

No. 362623

>>362622

"Daddy pays for my insurance", at a guess.

No. 362642

>>362551

And if you're that seriously malnourished, your brain shuts down, you're not smiling and posting pictures on instagram. And then refeeding and the soon after takes forever and is miserable.

No. 362650

>>362547

It must be nice to have enough money to tell doctors what you want and have them do it. Somehow she skipped every between stage of GP treatment, even though she's still eating solid food. It does not make any sense at all. And no one should be that excited to empty out food and stomach juices, unless they have an eating disorder. And if she can eat Dairy Queen, there's no need for venting or even a tube. I'm going with a mix of special spoonie points and eating disorder.

Sage for rehashing

No. 362667

>>362650

Yup. She OBVIOUSLY skipped the drastically overhauled diet if she's still eating at Dairy Queen. Then there are medications that can help… but nope, tube. All the sick internet points!

No. 362673

Jesus. Jaqui gets at home physical therapy now.

She's training her poor dog to bark on command, so if she goes down in public she can get help.

No. 362678

>>362673

How can you get a dog to bark, when you're too unconscious to signal to it?

No. 362683

>>362678
Why is she unconscious and needing help? She has pots but is in a wheelchair. Most pots patients only faint while standing. Also, most faint and regain consciousness fairly quickly when blood flow returns to the head.

No. 362696

>>362673
As someone who faints regularly, she sure knows nothing about how fainting works? Especially if she needs a fucking dog to "alert" to her fainting.
before you faint you physically feel the blood pressure drop, it's like a huge flush comes over your body, then you start feeling tired and weak and you need to sit the fuck down, or at least that's how it is for me, I don't know if anyone else gets it like that, but either way - your body has a way of telling you when you're about to fucking faint. You do not need a fucking dog to tell you that.

Seizures on the other hand - seeing as though she's "epileptic" I can believe her having a dog for that.

No. 362700

>>362696

But the dog isn't actually trained to detect seizure auras. Kek!

No. 362702

>>362696

I can tell when I'm going to faint most of the time. Even if it's just two seconds of tunnel vision it's enough time to get closer to the floor.

Sage for samefag/non-milk

No. 362733

>>362700
Wait seriously the dog isn't trained to detect seizures yet she goes on about her epilepsy constantly? Then again she uses so many fancy medical terms she's probably tripped up in her own bullshit. I honestly feel so bad for her husband, watch him in their blogs and like you'll see he looks bored out of his fucking mind while she is talking about her illness, looking at her like "please stop" but he's clearly too fucking kind to say anything to her about it because he's a huge ass enabler.

No. 362742

>>362733

I am pleased my partner would just tell me to get over myself if I tried that shit, or got even halfway to that point. Sick people (of which I am one) need practical support, and people with resilience, patience, and morbid humour. We don't need coddling.

Saged for blog/rant.

No. 362752

What is with the voice??

No. 362755

Jesus Christ

No. 362756

>>362752

Lots of anorexic patients stay in their pre-pubescent mentality and voice if they became ill before puberty.

Her voice annoys me less than I'd assumed. She's nicer on video than in pictures/comments.

No. 362761

>>362752
>>362755
Why does she talk like a child?

No. 362762

>>362761

see: post above yours

No. 362790

File: 1501310589814.jpg (564.5 KB, 2896x2896, 20170729_010825.jpg)

>>362667

Just like endlessvoices.
Her GI cant/doesn't know what to do since everything has failed..her GI did 1 GES after begging and fighting for a GES (been chasing it for years) she did everything she could to make sure the ges would show something. And it did and it's extremely mild and not gastroparesis just delayed emptying but her gi jumped the gun and decided to give her a single botox procedure (years ago botox treatment was not used first. Less invasive and less expensive treatment comes first. Botox is a little invasive because you have an Upper GI to get it done)
It didn't help her special gp and her gi referred her to temple.
Wth? There are several treatment plans left since she skipped so many options to go to the big wigs.
This picture is the dr she will be seeing and his about me.
I'm anxious to see how all this will unfold because the testing is thorough.
No doubt something isn't right just not sure what.im curious to see if any of her older illnesses she faked and tried to get diagnosed with something/anything suddenly resurface or suddenly brand new ones with her appts.
Temple is likely going to want a psych eval on her..i just hope they don't override it since she is in therapy and medicated

No. 362797

>>362790

honestly temple is no longer the place to go. the head doc there, besides having a terrible bedside manner, places gastric pacemakers which don't always work, shock the patient with electrical currants, and only serve to reduce nausea and such. i go to a different hospital and have been advised to never go to temple because his methods are archaic. then again, my gp is severe and i'm running out of options so i shouldn't turn down anything - she is a complete joke with her gp. i don't understand why anyone would want this disease, as it took me from a fully functioning almost 30 year old to being bedridden with non stop symptoms, which i'm finally starting to recover from since being put on a GJ tube - and that's only 5 weeks after it was placed.

sage for self-blogging>>362790

No. 362812

>>362752
>>362755
These were posted earlier. Please check up on the thread before posting.

No. 362814

>>362667

THIS. GP patients with a tube are encouraged to eat small quantities if they can, but from things on the GP diet - bland, soft and easy to digest! Not fucking Dairy Queen! And so few of these spoonies have given all the meds - *thromycins, domperidone if available, metoclopramide - an honest try. No, they went straight to tubes, and doctors were all too happy to satisfy them because a PEG insertion is so much more cash than prescribing diet and MCP.

No. 362817

>>362545
Harlow looks like she's rolling her eyes haha

No. 362819

>>362486
Lol puts the epi pens underneath a bunch of shit she grabbed at the drugstore

No. 362823

>>362486

I lost it at Berocca. In case you're unfamiliar: it's an etfervescent vitamin pill.

Fucking hell. She's not even properly epileptic, she has PNESs!

No. 362824

Please kindly kill me now with a sledgehammer.

No. 362851

>>362824
She needs her Teddy bear and soap bubbles for a hospital stay? She's in her 20ies, or? And she often has a special blanket with her. What does she need next? A whole ward for herself? Or homecare?

Why did she delete all her recent posts on instagram?

I also need a sledgehammer for myself

No. 362857

>>362683

I saw many misconceptions from the last thread as well as the linked post. many of you seem to have vague or little knowledge, even if you have POTS. I'm all for you calling peoples' shit out, but ffs do it right.

POTS is one of the most debilitating conditions (though I highly doubt that many of the people in question are actually debilitated by it). it causes many more things than just orthostatic tachycardia since it's a type of dysautonomia, and usually comes along with other forms of dysautonomia (mainly vasovagal syncope) as well. I'm not going to list the symptoms because I don't want to give munchies hints, but please stop being so ignorant if you're going to attempt to hold some credibility.

"my ____ doesn't affect me like this so it can't affect others like that" or "I know when ____ is going to happen so others should too" is just as bad as spoonies trying to compete with each other and is flawed logic.

sage for medfagging / blogging

No. 362861

File: 1501328306738.png (2.39 MB, 1872x1202, Screen Shot 2017-07-26 at 23.5…)

dairy allergy chloe?

No. 362874

>>362857
hahaha @ one of the "most" debilitating conditions

No, it's not. I have really fucking bad pots (sorry for blogging, farmers, it's relevant I promise) and am having intensive treatment, genuinely need a chair (which I don't post about on ig), etc, but no way is it one of the most debilitating conditions. That's freakin laughable. Compare it to actually seriously debilitating illnesses and accept that it's shitty and no fun and certainly not the picnic people have been implying, but it's nowhere near as bad as the most serious shit out there.

Saged because of some blogging

No. 362887

>>362857

> one of the most debilitating conditions


ALS. SMA. Actual mito. Severe myopathies. Transverse myelitis. Spinal cord injuries. Severe late stage MS, especially progressive forms. Brain tumors. HD. Advanced PD. Severe heritable ataxias. A-T. (v)CJD. And so on.

These are severe conditions.

You with your POTS don't experience a fraction of the disability these people do. Sure, measured against, say, having a cold, POTS is super disabling. But to pretend it's on par with actual disabling illnesses is ridiculous. It's a non lethal and relatively limited dysautonomia (if you wish, consider there are autonomic neuropathies that are much, much more severe than POTS, such as AAG and pure autonomic failure.

If your POTS is soooper disabling, you don't know how to treat it properly. With hydration (not always/necessarily IV!), Florinef, some pressors and other meds, hypotensive POTS can be managed just fine. Go look for a doctor that doesn't subscribe to the 'POTS IS SUPER CEREAL!' idea but sees POTS as a highly treatable but at most unpleasant disease.

Sage for medfagging.

No. 362890

>>362861

What the shitfuck. 'Please applaud me, I had chocolate'? Dear fucking Hippocrates, these people make 'do no harm' really difficult. I would expect they would, among others, not have dairy products if they're sensitive to it!

How's your epipen campaign going, Chloe?

No. 362902

>>362900
* judgmental

No. 362910

>>362874
Agree it's not the most debilitating disease but I have hyper pots and can't do anything. I sweat and overheat like crazy which makes my tachycardia worse, and it makes me more fatigued because being hot wears me out. And I unfortunately have electrical issues w/my heart to boot plus a bum valve and a murmur. I make the best of my life and alway try to stay positive but for me it's incredibly
debilitating.

>>362887
yeah, no. not all of us are hypotensive. I have hyperadrenergic POTS and take bp pills and beta blockers, had a failed ablation, etc. I have to eat a low sodium diet and I overheat in the winter and whatever, there's literally nothing that can be done for me other than ICM monitoring, it is actually really difficult to live with.

Being hypotensive is much easier to deal with.

sage for blogging/not contributing(blogging)

No. 362924

>>362910
Fellow hyper here….Agreed it's not the worst condition in the world, but it certainly sucks and makes life much more difficult. I wasn't able to keep up with my career. We got in trouble if we sat and weren't able to have food/drinks unless on break. I also got my license yanked and needed it for work. I was able to work for the first year, but eventually they forced me out. I am doing other things. I don't post online all the time or use a wheelchair, but I don't have the life I did before.(blogging)

No. 362946

>>362900

Karma has already bitten me in the ass three times. That's why I'm so pissed at these kids pretending they're super sick, playing tourist in the world of chronic illness. Maybe you should wish karma on them. I have no idea what many of these would do if someday something were actually wrong with them!

No. 362951

>>362824
Why the fuck do you need all that shit when you're hospitalized? Oh right you don't. The few times I've had to be hospitalized all I wanted to do is to sleep and maybe stare blankly at a TV until I passed out again. Because if you're that sick you're really not up for much of anything.

No. 362957

>>362951

> when you're sick


And therein lies the point, my china.

No. 362963

i have veds and my every day life is pretty normal so i can tell you these heds girls play it up. sometimes i use a walker for long distances and i see my doctors regularly for my heart and joints but otherwise i have hobbies and family

sage for selfpost and sage for blogging slash no1curr

No. 362969

That was before I had the dairy allergy you twats! so piss right off!, oh you do make me laugh, looking though my insta do you not have anything better to do!!!!(USER HAS BEEN PUT OUT TO PASTURE)

No. 362971

File: 1501343968439.jpg (907.07 KB, 1077x1721, Screenshot_20170729-101952.jpg)

That poor dog. I've never heard of diet alone increasing muscle. Geez

No. 362972


No. 362973

why is she not banned yet?

No. 362974

>>362971
IG-ing from the dog's perspective. Almost as annoying as her own account.

No. 362975

I have hEDS, have been diagnosed since childhood. I am in my 20's now. I work a full time job, go to school full time, and keep up with hobbies/social life. Some days are worse than others, but I still do all these things! I need a cane/Walker for longer distances, and it's a good possibility I will be in a chair, but not for a long time! It irritates me to no end to see these spoonies that just decided they had it in the last few years! They don't even know what the real disorder is like! They just think they have it! It's more than being a little bendy.(USER HAS BEEN PUT OUT TO PASTURE)

No. 362981

>>362971
If she is so scared of germs that she needs a mask (that we all know doesn't work) how is she not scared of feeding a dog that is in her face and closer to her body with that open port a raw diet of meat and eggs (salmonella is a scary germ!)

No. 362983

>>362971

is that a whole egg in there, shell and all?

i feel so sorry for that poor dog.

No. 363040

>>362971
Is there any meat in there? It looks like a weeb's ~ ✿ kawaii bento desu ✿ ~

No. 363061

>>362971
It's difficult for anyone to feed a pet a raw, homemade diet (not normal pet food). It's super specific, and from the little I know, she hasn't included enough things to make it complete. And where's she getting the energy to do that? For someone so sick you'd think she'd go with the easiest option, since there's plenty of good, even organic, pet food out there. It's not like they sell goat meat and quail eggs at the grocery store.

No. 363063

>>363061
i've seen quail eggs at specialty supermarkets here in the us but it'll break the bank trying to buy them regularly they're not meant for regular consumption at all. are the shells even edible? i'm stupid

No. 363068

>>362971
"leaner body", you don't say, this dog is verging on underweight if she isn't already.
Also is that bowl mostly fruit? It all looks like fruit, and you don't base a dogs diet on fruit.
They're carnivores. Not obligate carnivores, but for fuck sake, any good dog owner knows that fruit is an occasional treat for a dog

No. 363073

>>363068
Harlow is a toy to her. Like all her medical shit. She's playing "patient" and forcing her unlucky boyfriend to play caregiver.

No. 363079

>>363068
Harlow isn't underweight yet (and this is coming from someone who hates Jacquie a lot and I totally hate people who raw feed to be trendy and the majority of people should not feed raw and Harlow could easily become underweight and have more health issues soon from her incomplete diet) and what most people consider underweight for dogs is actually ideal and what most people consider ideal is usually 10 to 20 pounds overweight.

Sage for dogfagging

No. 363112

File: 1501366894404.jpg (671.55 KB, 810x2128, 20170729_165445.jpg)

>>362790
>>362814
>>362797

Should someone tell her a motility specalist ordering basic motility testing in order to evaluate and diagnose her condition based on her GI referral to the specialist doesn't mean she is actually sick?
I wonder if she realizes she's not going to be able to manipulate him. He works with motility and has seen many many people for it..he knows his sh!t
I find it disturbing that she keeps asking for help on what to ask the Dr..
I dunno..i think it's icing on the cake that she threw in the whole "look at me im so special I have to travel, I have basic tests they listed on their website, I didn't try to tell him what tests to run. He picked them all by himself like a big boy, I can't be faking if I have testing because obviously there is no way on earth any of these tests will show nothing..im so sick my GP is special can't you tell by all my tests?"

Also pointing out she said a week full of testing at least 2 or 3 tests a day.
She listed 5.

No. 363121

>>363112

That's a basic GI motility workup. We order it for everyone whose chart indicates unexplained vomiting and presents a suspicion for GI motility issues. None of those tests are even particularly risky or special.

Breaking news: you're still faking.

No. 363124

>>363112

> I wonder if she realizes she's not going to be able to manipulate him. He works with motility and has seen many many people for it..he knows his sh!t


I am not so sure. Unless he's clued up as to the number of Munchies pretending to have GP, he might not know about their lovely antics involving certain very widely available medicines…

No. 363141

File: 1501369871682.jpg (452.76 KB, 1536x2048, IMG_2732.JPG)

I don't know whether to laugh or cry about the fact that there are so many unethical, easy-to-manipulate doctors. The doctor who insterted a J-tube into Jacqui is totally wacko.

This is her THREE weeks after the surgery. The video only showed her eating a small amount but firstly, not the foods people with gastroparesis should be eating and secondly, no way would she would be well enough to eat at this stage. Her weight looks the same in every video and photo also. Crazy crazy.

No. 363147

File: 1501370848982.jpg (86.15 KB, 373x574, sMF7lJy.jpg)

i hope this speaks for itself but if you're wondering what exactly has me banging my head against a wall i've turned it red for you

No. 363148

File: 1501370870742.jpg (208.04 KB, 372x587, Screen Shot 2017-07-29 at 7.23…)

again milk is in red

No. 363155

>>363141

i had a j tube inserted 5 weeks ago and the only thing i can have are clear liquids. i tried campbell's chicken noodle soup and what i didn't throw up came out my tube. there's absolutely no way this bitch can be sick enough to need a j tube if she's eating anything like that, 3 weeks after placement

sage for blogging(saged blog is still a blog)

No. 363164

>>363148
If (a big, big if) she's diagnosed with autism, maybe that explains her obsession with her health. It's her special interest! No wonder she's so fixated and can't think about anything outside of it. It's unethical of her family and doctors to enable this pathetic and self-damaging behavior though. She may get sick (as in actually sick, not the current factitious shit) with iatrogenic issues if she keeps having nonessential procedures and drugs. She's a selfish spoiled cow but still young, much too young to die of (real) sepsis from unneeded procedures.

No. 363175

Her new youtube video is milky yall..

No. 363181

>>363141
I know it's been said again and again here, but it blows my mind that she has a feeding tube and she eating a fucking sub sandwich. That is not gastroparesis. That's "I'm a special spoonie snowflake" munchie right there. She makes me sick

No. 363184

>>363175
Screencaps?

No. 363192

>>363164

I am on the autism spectrum, and I do not for a second believe her. I think she's just not that bright.

No. 363222

For everyone who doesn't wanna go to YouTube to listen to her garble here's her newest

No. 363237

>>363222

how tf does she have so much energy?!
90% of the conditions she claims to have caused fatigue yet she is radiating energy. and it's not an occasional thing, it's every fucking time she's on video.

No. 363278

>>362971
She sure has a lot of energy to be slicing and dicing and preparing Harlow's meals for him. Not to mention money; i have looked into these raw diets for my own dogs and it can get pricey! But no, still gotta have the requisite GoFuckMe account.

No. 363280

>>363278
Time, energy, money, endless attention and sympathy, and a whole pack of enablers. What else does a girl need?

No. 363281

>>363280

an actual life…

No. 363286

>>363281

Hahaha it's like you're expecting her to be like a (mentally) normal person

No. 363304

Jaquie really is a gold mine. I thought Shelbi was pathetic, but Jaquie makes her pitiable.

The extent to which Jaquie fetishesizes illness goes beyond wanting pity. She's obsessed with medical paraphernalia, clinical settings, and terminology. It's pathetic she's treated to the extent she is while really I'll people who aren't as affluent go without.

If any munchie deserved to die of complications resulting from "treatment" it would be Jaquie IMO. Oh well in the mean time it's interesting to watch her trash her health in the pursuit of being ill.

No. 363312

>>363141
God the fucking sandwich pic. Yes, you have sooper serious GP. She probably only ate a little because she's literally being pumped full of calories. And she can't wait until she can "vent" her stomach. Serves her right if she gets fat

No. 363314

>>363304
If an IG starts with 'chronically' there's a pretty good chance it's a shit show, and Jacque is pure manure. I don't think anyone deserves to die, but she does need a cold hard dose of truth. I hope people realize that's she's full of it and stop enabling her

No. 363352

>>363314
She doesn't deserve to die.

But she does deserve to be exposed as a munchie slash exaggerating dramacow.

No. 363357

File: 1501404205946.png (202.03 KB, 720x936, wp_ss_20170730_0001 (2).png)

I've been following this one for a while now and at first she seemed to be accepting her non-epileptic diagnosis but lately she's been pushing for an epilepsy diagnosis, ending up in hospital regularly. This post really made me feel like there's something weird going on because conveniently the seizures only came once the eeg was taken off.

No. 363358

>>363304

She's only 20. She's young and dumb and doesn't deserve to die. She does, however, need quite serious mental health help.

No. 363359

File: 1501404527190.png (530.36 KB, 720x996, wp_ss_20170730_0002 (2).png)


No. 363360

Am I blind, or did the Kelly Ronahan thread disappear? Wtf?

No. 363362

File: 1501404632598.png (229.05 KB, 720x954, wp_ss_20170730_0003 (2).png)

>>363359
Recently she saw a gynae and got diagnosed with endo from a physical exam. The same day she added #endowarrior to her bio.

No. 363363

>>363359

I've never seen a blanket like that at an A&E.

No. 363364

>>363363
Apparently a kind off-duty nurse bought it for her while she was seizing in Tesco.

No. 363365

>>363359

I only know a bit about seizures but surely she'd not be posting so soon if she'd been in status epilepticus for 45 minutes?!

No. 363366


No. 363368


No. 363370

>>363368

I'm blind indeed. Sage for tardness.

No. 363375

>>363365

Oh yes. Anybody who has spent 45 minutes in status is so fucked up on the Ativan and the phenytoin, they're drooling for the next few hours. Also, a seizure takes a LOT out of one. The post-ictal phase, as it is called, is a tough one. Some experience a spell of psychosis, others are just knackered and need to sleep it off. Few people just go on with their life and instagram.

Sage for fond memories of ER rotation.

No. 363376

>>363362

Mefenamic acid. She's talking about mefenamic acid. It's one of the weakest painkillers you can give. It is also a typical 'dumb medication': there isn't a single RCT that shows that's it's superior to, say, diclo or APAP in pain relief, but because it has some prostaglandin activity, it was marketed in the 1980s as specifically for menstrual pain. So doctors prescribe a riskier and much more expensive drug just because somehow it stuck in the brains that it's great for period pain.

Gah. Sage for medfagging.

No. 363378

>>363376

You can also get it over the counter in the UK and we are quite strict with many medications.

No. 363380

>>363359

She's only 18. Why is she using medical words like "tachy"? These kids spend too much time munchie-ing it up on IG.

No. 363386

>>363222
They wants to be "the frey life" so bad, it's pathetic

No. 363390

>>363386

With the difference that the girl from the Frey Life will succumb to CF one day, while these two are just playing tourist in land of death and pain and hospital appointments. It's easy if you know you can walk out of it anytime you'd like.

No. 363391

>>363365
Exactly. I've been there and the drugs alone make it impossible to do anything but sleep and stare at the wall, never mind the post ictal exhaustion, banging headache and general aching from muscle contractions. This is what made me stop and question her.

No. 363392

File: 1501410313522.png (666.61 KB, 720x939, wp_ss_20170730_0004 (2).png)

And of course she writes articles for the Mighty…

No. 363412

>>363392

Come on. Ambulatory EEG is pretty rare and bound to elicit stares, you cannot immediately ascribe some nasty intent to it and whine on The Whiney. Oh, but you can if you're an internet Munchie.

No. 363413

File: 1501416197888.jpg (449.43 KB, 1680x1260, Phototastic-30_07_2017_3b66bc8…)

I think it was this point that I begin to think she may be slightly munchie. Although there was an earlier post which I'll share in a minute.

No. 363414

File: 1501416443265.png (222.59 KB, 711x974, wp_ss_20170730_0007 (2).png)

>>363413
the older post.

No. 363424

These munchies are young and it's sad. They should be out there, having fun and enjoying their lives, doing stupid stuff that teens and people in their twenties do. They should be studying, working, having fun, being dumb, making mistakes and getting drunk and tattoos - no tubes and wheelchairs.

No. 363425

>>362486

Just LOL at the idea of a "Medpac" in general. Like, I have some health issues and therefore carry medication, inhalers, glucose tablets etc. They just go in my bag or backpack! I guess you can't do a "this is my sooper special medpac" video about that though.

No. 363427

Chloe Leanne/chloeschronicles_of_illness is whining and moaning about her imaginary vaccine injury again. She is really a joke, spreading misinformation about vaccines. I wish ig would shit down (lmao I meant shut down but leaving that as it was) some of these megamunchie accounts where it's obviously at least 95% psychological. They (Jacquie, Chloe Leanne, Nicole) starve themselves for a while to induce symptoms and then demand constant medical attention. eyeroll

The fact that Jaquie and Chloe are ebegging too makes it even worse.

No. 363429

>>363427
Not trying to whiteknight, but vaccine injuries are a thing. Lots of people got sick by the HPV vaccine

No. 363430

>>363425
>>363425
I get it if someone has meds that need to be kept cold - obviously an insulated bag is needed then. But for 95% of pills inhalers etc it's just not needed. Use a backpack!

No. 363432

I don't understand how chronically jaquie gets away with it.

in her video yesterday she said "i had a dream last night harlow and i were running from the law, but i dont get it because ive not done anything illegal"

Oh so faking being sick for attention, donations, and to manipulate your audience isn't illegal?

sounds to me like it's all psychologically catching up to her, i fucking hope she snaps under the pressure and drops herself in the shit, because she fucking deserves it.

No. 363436

>>363432
anyone who demands and gets a j tube and then eats a fucking sub sandwich deserves all the shit karma that catches up to them. i fucking wish i could eat a sandwich and enjoy meals with my family.

sage for ranting.

No. 363437

>>363429
You're whiteknighting. STFU.

No. 363438

>>363430

Exactly. I don't want grit getting into my spacer, so I put it in a sandwich bag. Problem solved.

No. 363442

>>363438
The Medpack is basically a glorified pencil case. So why not just buy a cheap pencil case. Oh yeah, because it wont have the sooper spshal word 'med' on it…

No. 363443

>>363425
I think they're great for school/kids who can't keep track on emergency meds themselves - since there's ID on it and it's easy to find

No. 363449

>>363443

Yeah fair enough. But these munchies are adults. It's like with beads of courage - fine for kids, bit weird for adults…
And you can write ID on a little piece of paper…

No. 363451

>>363449

Adults tend to carry wallets. My medical info is all in there, along with instructions on how to use my blood glucose meter.

No. 363453

>>363446

Same with the "hospital comfort box". JBN like so many others is enjoying the infantilisation their sooper sick status affords them.

No. 363459

>>363375
>Also, a seizure takes a LOT out of one.
oh yeah. My best friend had epilepsy and he'd be fucking exhausted after a seizure. He also worked and went to college part time and still died from SUDEP, so when OTT spoonies get all "i just had a seizure 2 minutes ago" in their IG posts I get a bit bothered tbh.

>>363414
fuuuuuuucksaaaaaaake does this bitch even understand how grave the shit she's depicting is? probs not would rather just lalala blog for pity points on insta.

>>363425
Same but I think the difference between us and this lot is that we've got lives outside of being ill and they haven't? Like I just keep my meds and stuff in a pouch in my work bag. nbd. But if you've got no work and no school and you've constructed your life to revolve around being an illness, then yr gonna have a sooper speshul "medpac" and not just a regular person bag.

No. 363461

>>363453
I understand having a small bag with some clothes and toiletries if you have legit problems that land you in the hospital a lot, but a "comfort box"? What is she, five?

No. 363473

File: 1501427212533.jpg (289.03 KB, 1680x621, Phototastic-30_07_2017_e5a1186…)

She also likes to celebrate the anniversary of her first witnessed seizure (image 1 of 2)

No. 363475

File: 1501427255130.png (228.18 KB, 720x994, wp_ss_20170730_0008 (2).png)

>>363473
(image 2 of 2)

No. 363481

File: 1501427572780.png (719.79 KB, 710x943, wp_ss_20170730_0014 (2).png)

>>363479

I also found this gem while scrolling back through her IG. I haven't searched for any other accounts yet but I'm hoping there's more milk out there.

No. 363513

>>363501

Since you seem to be a rank newfag, here's a tip: the "chat speak" is to mock the munchies, it's not a serious part of our vocabulary.

And no, a lot of us aren't bratty teenagers. A lot of us are adults with jobs and lives, lives which we have to negotiate around serious medical conditions. All without resorting to extolling our heroism for being such special spoonies like the shitweasels we post here.

get a fucking life and find something else to do other than browse an img board for drama. But you're probably collecting welfare for your own gaggle of fake illnesses. What do you have– fibro? Chronic lyme?

No. 363517

>>363513

The sheer number of wk idiots boggles my mind, almost as much as the munchies

No. 363518

>>363473
Lol her seizures are psychogenic/somatic, she's acting like she's going to die. She must be besties with JBN.

No. 363527

File: 1501434354708.jpg (76.78 KB, 480x645, Drawing_170330.jpg)

>>363518
Since you mention it… She follows Nicole.

No. 363539

>>363518

Actually, this is an important distinction. Because her seizures are not the result of electric misfiring in her brain, she does not suffer the long-term effects of antiepileptics (since they don't work for PNES), she is not at risk for 'dead in bed' (sudden adult death in epilepsy), her seizures will not get worse (I assume so far they're mainly t/c though God knows what they are based on the mangled descriptions she gives!), and best of all? She may someday be cured. Epileptics stay epileptic forever. PNES is treatable. She should thank her lucky stars that she's 'only' got PNES, not try to fish for pity.

No. 363540

>>363518

Actually, this is an important distinction. Because her seizures are not the result of electric misfiring in her brain, she does not suffer the long-term effects of antiepileptics (since they don't work for PNES), she is not at risk for 'dead in bed' (sudden adult death in epilepsy), her seizures will not get worse (I assume so far they're mainly t/c though God knows what they are based on the mangled descriptions she gives!), and best of all? She may someday be cured. Epileptics stay epileptic forever. PNES is treatable. She should thank her lucky stars that she's 'only' got PNES, not try to fish for pity.

No. 363541

>>363527

Am I seeing it correctly she has her goddamned PAYPAL in her Instagram link?!

PayPal??!?!?!

How fucking tacky can one get?

No. 363549

>>363430
I have meds that need to be kept cool and I bought a larger cloth pencil case and toss in a dollar store frozen pad thing. That keeps it cool enough in a backpack for a couple hours of errands. There is absolutely no need to spend all that money on specially labeled stuff unless you're a kid and can't yet jab yourself properly with an epi pen or the like.

No. 363552

>>363430
Vaccine injuries are a bunch of bunk. Usually people who are "vaccine injured" have an underlying condition that is ridiculously rare that a vaccine can bring to the surface. But the vaccine itself did not cause those underlying issues that are usually autoimmune or genetic. Plus it's ridiculously rare as in like .5% chance of it happening and even that is probably pushing it.

No. 363578

>>363552
Chloe Leanne does not have a vaccine injury. She has an eating disorder and a tragic case of attention seeking.

No. 363588

>>363541

Surprisingly, it is possible to have a chronic illness (or just pretend to have one, in some cases) and not beg for money. All these munchies and spoonies are capable of working, they're just really fucking lazy and prefer to beg and mooch off of others

No. 363590

>>363552

There are so many studies out there that prove vaccines are safe. Even the chemicals that people (Chloe) say are harmful are in such minute quantities that they have absolutely no effect on us. Also, they're often different compounds than the ones people think of as dangerous (like thimerosal, which is a preservative found in just a couple vaccines; without it, the vaccine could contain harmful or even fatal bacteria). Unfortunately, there are plenty of idiots out there that jumped on the 'vaccines are dangerous' bandwagon without doing an research or even thinking for themselves. And now we have outbreaks of diseases that haven't been see in years.

sage for medfagging

No. 363597

>>363588
Sad thing is, Jaquie would probably be happier if she did get a job and stopped playing "sick little girl". It's likely ruining their relationship.

No. 363599

>>363481
>I may not have sparks in my brain, but my PNES is still hard.

No. 363601

>>363578

I don't know why her eating disorder has been missed. Every photo is her showing off her skinny tummy and her toobz. She loves to show off that tummy.

No. 363602

>>363527
You have 69 followers in common with her? Jeez, anon.

No. 363608

>>363601
This. She's a headcase and it's all being externalized into fantasy physical issues. This has always been obvious to anyone following her with half a brain. She loves medical procedures, loves being in hospital, doesn't want to recover or ever work. I'm amazed they haven't (yet) sent her to the inpatient mental unit in the north for people with sooper serious somatic illness. It's possibly been suggested and she's turned it down, we know she wants to pick her own (non NHS) treatment and have other people pay for it. I doubt she knows that she like Kelly has a substantial number of followers who see through her lies.

No. 363614

>>363602
Ha looks that way. Didn't even realise til you pointed it out. I obviously like milky spoonies.

No. 363630

>>363414
>>363413
Love how the seizures happen in places where she's certain to be the center of attention. The pool where trained people will be on the look out and the doctor's waiting room. Guess it would be a waste to fake seizures at home.

No. 363638

jaquie's 7/28 vlog…this bitch has a j tube and still eats cake how??? someone enlighten me as to how someone who can eat cake even needs a j tube?

No. 363639

File: 1501450935058.jpg (1.13 MB, 1564x1564, IMG_20170730_145502.jpg)

Fucking seriously? They're selling $25 tshirts.

No. 363647

>>363638
Quick answer: she doesn't.

No. 363654

>>363459

TBH I often feel I don't have a life outside of being ill. I can't work a 9-5 (I freelance when I can), but I try to keep myself occupied and don't resort to making Vlogs about my disability :D

No. 363659

>>363541

I see a lot of activists on Twitter with a paypal "tip jar" link, and that's fine. They're doing good, and going unpaid. I'm not going to pay Nicole to take up a valuable hospital bed for her fake illness.

No. 363660

>>363639

Now THAT is tacky.
I can get behind the Chronically Fabulous ones, but how self-absorbed can one person get? She's just horrific.

No. 363663

>>363630
Also the supermarket and in A&E / hospital wards. It's all very indicative of factitious / malingering. It's sad that she's so young and already in a bad cycle.

No. 363669

Seizures are serious and eating disorders aswell!

No. 363678

>>363669

No one is saying they're not, but:

1. You cannot die from a non-epileptic seizure. They are perfectly controllable through therapy to address the underlying psychological issues (trust me, I used to have them).

2. Eating disorders ARE serious, yes. What this board has an issue with is people pretending to be physically ill in order to enable their own eating disorders.

No. 363680

>>363663

Did no medical staff in hospital realise they were non-epileptic seizures?? I don't mean people with NES should be sent away, but the treatment is different.

No. 363684

>>363669

"Seizures" are not serious. Here's a little introductory neurophysiology for you. We differentiate between epileptic seizures and what used to be called pseudoseizures and are now called PNES. In epileptic seizures, it's actually not even the seizure that's dangerous, it's the cause of it. The worst that happens to most people seizing is breaking a bone or dislocating a joint. Rarely, people may choke but there are ways to prevent that. The real damage is caused by the strain a genuine seizure puts on the body and the nervous system. It's like electrocuting the brain, and it's got incredible effects.

PNES is a seizure without epilepsy. It is harmless. Importantly patients with PNES (I prefer NEAD - nonepileptic attack disorder, as many patients get cranky the moment they hear the p-word) are not unconscious during their "seizure". There is no postictal phase. And most importantly at least from my perspective (I see these cases mainly in a correctional setting, I wonder why?): they do NOT respond to any antiepileptics unless they get so clobbered that they can't keep it up (which is why some think that giving them Ativan and phenytoin has 'helped': fuck no it hasn't, it just has made them too tired to continue).

There is a little known, painless and fully reliable test to differentiate PNES from a real seizure: crack an ammonia capsule over their nose. It will sting and they will be revulsed by the smell, but because they're not genuinely unconscious as they are not in a real seizure, they will awaken. I learned this from a correctional medicine blog and I LOVE it, it works really well.

if you have PNES, you do not have a serious illness, you have a form of conversion disorder, where some stress you are experiencing is converted into a physiological symptom. Nobody got better from a conversion disorder by dwelling over it. Most people find that a good approach is to explain to the pt that they're ok, they will recover, and they will have to understand that their mind is the boss here, and it is within their power to control their mind. The more they control their mind, the better they will be able to control their "seizures". For once, in this case at least, it really is mind over matter, and people can become very hard to treat if for some reason they have convinced themselves that they have a serious untreatable illness rather than a stress reaction.

Sage for medfagging.

No. 363687

>>363680

Unfortunately, differentiation is 1) not widely taught, 2) the methods usually taught (sternal rub) are dumb, 3) only possible in the intraictal and immediate postictal phase, 4) in the intraictal phase, providers might not want to wait to confirm which one it is and thus potentially incur legal liability, whereas once they've pushed the Ativan, it's no longer really possible to differentiate what caused the episode, 5) people with PNES have a self-limiting pseudoictal phase, meaning that they do recover without intervention and so doctors may ascribe that to the antiepileptics rather than the fact that they would have gotten better anyway, 6) because PNES used to be called 'pseudoseizures', most people think they're completely fake as opposed to genuine but psychogenic, and doctors who try to test for PNES may soon face angry relatives who will want to know why s/he wasted time on making sure their loved one wasn't faking.

No. 363696

>>363684

Example of someone who has convinced themselves they have a serious illness not a stress reaction: HypermobileGuy and his "I will never walk again" from hysterical paralysis.

No. 363702

I know what non epileptic seizures are

No. 363705

>>363660
Does anyone know which "doctors" are "treating" this greedy fraud?

I know there are rules against action. I'm not saying anything. Just. You know. Just askin'.

No. 363706

>>363702

Oh for the love of Pete…. you only have to press the Reply button ONCE. Though obviously we'd prefer you didn't at all.

No. 363708

>>363702

Oh for the love of Pete…. you only have to press the Reply button ONCE. Though obviously we'd prefer you didn't at all.

No. 363710

>>363702

Lucky you! Then I'm sure you understand nobody here is making light of real epileptic seizures, a very severe and life threatening occurrence. And because you know how serious epileptic seizures are, I am sure you too find #PNESwarrior and other nonsense to be, well, just that. Selfcongratulatory bullshit.

No. 363711

>>363639
Maybe a dollar will go to Red Cross, you know she's just pocketing as much as can. She's acting like she pioneered "chronically fabulous" when it's been around for years. I think she may be the worst munchie on here, which is saying a lot.

No. 363713

>>363639
Fucking "adventure"?? People out there are seriously struggling with the illnesses she claims, and doing their best without turning it into a game and a fashion statement. How self-centered can you get?

No. 363718

File: 1501458758641.jpeg (478.05 KB, 1242x2042, image.jpeg)

ana.ballerina, also has other Instagrams (chronically.emilia and life.will.out.) This girl kills me. Not quite a munchie, but way OTT. She's even jumping on the EDS and POTS train, and has made mentions of rheumatoid arthritis. Funny, she also has type 1 diabetes, but doesn't put that in her bio? But puts EDS in, even though she hasn't gotten a formal diagnosis.

I don't question if she's faking GP, but she's so dramatic about it all. Then suddenly she had EDS because she was "so flexible", and would post photos of her stretching. She talks about how she's a ballet dancer, so of course she's flexible (but wasn't even much for a dancer.) I'm not sure how she danced if all of her illnesses are as debilitating as she makes them out to be.
She shops around for doctors who'll confirm whatever dx she is out for.
Then suddenly she claims to have been subluxations, even though the only thing she ever went on about was being flexible.

Talking to her is like being in a competition, and she's trying to prove she's worse off. I couldn't stand it.

Calls herself a supertubie, is obsessed with grey's anatomy (kek), and says she's "being kept alive by machines" and makes sure to point out there is no cure for her problems when anyone says that they hope she gets better soon. Seems to go to the ER anytime there's a problem that her normal practitioner should be seen for.

No. 363719

>>363711
Jaqui's definitely one of the very worst. Look back at the older threads for more on Chloe Leanne, though. There are screencaps of her money grubbing and excitement over all the attention she's getting. Pathetic. She's a British Jaqui, basically. She used to have a more normal username but of course she's changed it to be more spoonie focused!

She and Jaqui are the worst in my opinion. As bad as KR, or maybe worse even since they're both soliciting money directly (and Chloe Leanne is doing that on top of wasting nhs resources when the nhs is overstretched).

No. 363720

File: 1501458994859.jpeg (419.76 KB, 1242x1992, image.jpeg)


No. 363722

File: 1501459122868.jpeg (187.08 KB, 1241x1213, image.jpeg)


No. 363724

>>363722

It's called a fucking eating disorder bitch

No. 363725

>>363720

She's either really short, or she's not 97 pounds

No. 363726

>>363725

Her bio says 5'4". Skinnyfat?

No. 363728

>>363718
Her life.will.out account is pure milk, someone cap it because I can't. The post where she sees the geneticist and they say she doesn't have EDS and she's like, but I do though ur wrong yoo don't know my spoonie struggle. Milk glorious milk. Sorry I can't cap it.

This woman does not have EDS. Her dad told the geneticist her psych history and now she hates him, kek.

No. 363729

>>363726

Well, her profile name has "ana" and she's showing off full body pictures, so I'm going with eating disorder and lying about her weight. I doubt the GP too, unless it's a result of diabetes (if she's abusing insulin)

No. 363735

File: 1501460318329.jpeg (274.68 KB, 1242x858, image.jpeg)

>>363728

Top kek. "Ridiculously hypermobile" my ass!

So much milk on her accounts, I'm surprised I haven't really seen much about her here.

No. 363744

OMG look at her openly admitting her desire for TPN or feeds. It's a long post on life.will.out

No. 363745

File: 1501460675643.png (229.01 KB, 1536x2048, IMG_2737.PNG)

>>363744
Dropped pic, sorry.

No. 363746

File: 1501460742326.png (229.21 KB, 1536x2048, IMG_2738.PNG)

>>363744
Dropped pic, sorry.

No. 363750

File: 1501460994628.png (664.87 KB, 640x1136, IMG_0474.PNG)

Her GP claim is total shit, 80% is normal, even faster than a lot of people without GP

No. 363752

File: 1501461143912.png (469.8 KB, 640x1136, IMG_0475.PNG)

Here's another, oh-so-hypermobile. Her ankles are stable, and her knees aren't hyperextended at all.

No. 363753

File: 1501461789934.png (261.62 KB, 1536x2048, IMG_2739.PNG)

Really hilarious comment about serious heary disease. Top kek.

No. 363754

>>363746

She is awful, her doctors know she's lying and she just says she's being treated badly. And she went from saying she couldn't tolerate a feeding tube, to doing well on one? She obviously wants to be a greys anatomy episode. What a fucking waste of space

No. 363755

File: 1501461917782.png (240.67 KB, 1536x2048, IMG_2740.PNG)

Gimme TPN, I'm very sick.

No. 363756

File: 1501461963678.png (238.17 KB, 1536x2048, IMG_2741.PNG)

Moar TPN or I pitch a hissy pit

No. 363757

>>363753

There is no immediate medication to help pots, it's taking medication regularly. And if you pass out, you wake up as soon as you're horizontal. It's not a heart condition and no one dies from pots. She should get her facts straight before jumping down people's throats, but obviously we've got a real extra crazy here so that'd be expecting a lot

No. 363758

File: 1501462064629.png (251.89 KB, 1536x2048, IMG_2742.PNG)


No. 363759

>>363756

Anyone surprised she's followed by Kelly?

No. 363763

>>363718

Ugh she's another one who takes photos with her feed tubes dangling out the top of her shirt, with her fucking dog right next to them! Y'all gonna get (actual) sick doing that!

No. 363765

>>363758

Because medical treat is all about what YOU want (not what you need). She's completely delusional

No. 363766

>>363765

*treatment fuck

No. 363770

>>363755
Because screaming is the way to go about things? Wow.

No. 363771

>>363758
Haha she's such a brat. This is Jaqui and Chloe's future - they think it's fun now but see how unappealing it is at 27.

No. 363772

>>363771

TBH behaving like that to medical staff at any age is pretty unacceptable. But the younger you start, the sooner they'll cotton onto your bullshit.

No. 363784

>>363772

It's one thing when one doctor thinks you're fine and it's in your head, but when every doctor you see thinks that? I honestly do not understand how she rationalizes it

No. 363804

>>363784

Yeah, it's suspect. I was talking with another European spoonie this weekend, we couldn't believe how easy accessible treatment is in the USA as long as you have insurance that will pay for it. Here if you have POTS and it's a bad day, you stay lying down, drink lots of water - not go to the hospital for an IV or an infusion! They'd turn you away!

No. 363807

>>363804
Most people don't go to the hospital here either. ER's are mega expensive!

No. 363808

>>363705
If you sift back through her YouTube and instagram she has named all her doctors and stuff before in the past. I guess her neurologist is normally pretty decent. Some of the service dog fb community and one of the chronic illness Facebook groups think Jacquie is full of shit and have mentioned who her doctors are before and are ashamed such a good doctor is giving a faker what she wants.

No. 363831

>>363639
This is the tackiest thing I've ever seen. Nobody wants to wear a shirt with some Instagrammer's name on it. Maybe if she was like five years old and her parents needed money to treat her. Jesus Christ. I am embarrassed for her. Who designed this atrocity? Did she do it herself?

No. 363867

>>363807

I guess these girls have rich parents.

No. 363869

>>363804

For a few years after residency, I used to work for an insurer in what used to be, euphemistically, called clinical policy. What it really meant? Deciding what interventions we will fund and when, like a massive flow chart of 'if weight loss is under x, no tube' and all that. Now, while CP is the biggest cost saver to all insurance companies, it is also hopelessly overloaded. We needed to draw up policies on every single new drug, never mind the gazillion quack treatments that are now part of some gold plated plans that allow you 'alternative choices'. So we went, mostly, by what's costing us the most. For now, spoonies claiming POTS and GP demanding expensive treatments like TPN (one of the most expensive non-curative treatments known to man), IV fluids (IV fluids are cheap, but we have to budget for the risk that they'll develop line sepsis and then end up with an ICU bill that can pretty easily hit six digits, if not more!) are getting their way because it has not come up on the radar as a priority yet (there are bigger items of wasteful clinical spending on the whole). But eventually it will, and then the party will be over, and not their GI's pleas nor their crying fits can change that. They'll be forced to try to go out of pocket, but I don't know anyone wealthy enough to be able to cover the costs of some of this stuff without major financial difficulty.

No. 363888

File: 1501496580131.png (520.08 KB, 720x1045, wp_ss_20170731_0001 (2).png)

She's developing some new super speshul neurological symptoms now. Could we be witnessing the birth of the next hypermobileguy?

No. 363916

>>363867
Jacquie was supposively on state insurance which I am not totally convinced that's what she had and bet she finally got married for that sweet sweet tricare and she falls into the fat military wives in it just for the tricare and the other bennies. I'm also pretty sure just watching the interactions between CJ and her mom her mom is probably MBP. She really eats up the camera time all dramatically.

No. 363934

>>363916

Ahahahahahahahahahaahah she's now on TRICARE? Well, Jacqui, say goodbye to your mommy and daddy's cushy insurance plan, because TRICARE is not going to indulge your shit. It's one of the strictest and worst insurance policies in America, even if she's on the HMO-style TRICARE plan.

Being on TRICARE also means she must go to a military hospital as long as they have a qualified service and enough beds, and if she's sent to a civilian hospital because they don't, she may be 'recaptured' as soon as a bed frees up. TRICARE is first and foremost a public health program, regardless of what it says on the tin, and it does not tend to indulge whiny dependapotamuses with fictitious health issues. She can kiss goodbye to tubes on demand and extensive tests. Here's some MCP, here's some Oxy, next!

No. 363973

Damn, ana.ballerina is gone! Her account had so much milk.

No. 363979

>>363934
She supposedly gets to keep the doctors she has because she's over so many hours away from the nearest military base. It was in one of her stupid you tubes. I don't know how they've changed it in the pass five years since I got out but if you're over so many miles away from a full service base you get to go see any local doctors who take it. It used to be called tricare remote but it was always a pain in the ass to get anything covered.

No. 364038

File: 1501520484945.jpg (369.76 KB, 1120x1680, Phototastic-31_07_2017_e0d5fb5…)

I screen grabbed emisdreamingthroughthealarm's story because it's kinda milky.

No. 364041

>>364038
She blocked a bed for ten days. Fuck.

No. 364044

>>364041
Ikr. The last one sounds like she's accepting the challenge lol.

No. 364046

>>364038
Ugh, I can only imagine the hissy fit she threw to the poor doctors and nurses.

No. 364058

>>364046
Yeah, I imagine them saying 'we have no doubt you'll end up back in emergency' (if they really said that) was in response to her tantrum/saying herself that she'll be back there
Not because they actually think she'll need to go back

No. 364078

>>364058

I think they told her that.
Once it's suspected they are faking or self inducing an illness psych gets called in and one of the more common things they say with a patient who is noncompliant and upset and angry about being called out on faking
Is along the lines of "I'll see you 3-6 days from now when you come back to the er and they will page me immediately."

(specially if you are in and out of the hospital and ER with the same issues or new issues or have a history of dr/hospital/med/dx shopping and
facts just don't match up)

What I don't get (why it's not more common)
is once it's at this point you get flagged to psych in your chart (and of course get medical treatment of needed) why they can't do a psych hold on some of these who come to er at risk to themselves..therapy, detox, proper testing to confirm or deny diagnosis, proper psych and health meds, etc possible transfer or referral to outpatient or inpatient treatment.

No. 364100

File: 1501526962702.jpg (290.79 KB, 1680x1120, Phototastic-31_07_2017_9cc4e29…)

>>364041
She's managed to get herself a longer stay.

I find it bizarre. The longest I've ever been in hospital was like 5 days and that was with an intractable migraine and status seizures. Being in hospital didn't help. It just made me feel worse.

No. 364102

>>364041

My precious tax money. <weeps>

No. 364133

>>364100

Poor thing, it's so unfair that she's not the only patient her physicians have to deal with! :( weeps

No. 364145

>>364038

Ten days in hospital for non-epileptic seizures. TEN DAYS!

No. 364146

File: 1501534076627.jpeg (166 KB, 640x716, mbv14.jpeg)

Here's MyBlondeVoyage's latest. It turns out that the miraculous supplement-prescribing clinic hasn't cured her, so she's asking for other options. No actual medicine, mind… I wonder if she's tried that route before and been told there's nothing wrong with her.

No. 364168

>>364078
It's because the risk you have to put yourself in for an involuntary psych hold is pretty high, as an adult. If you're not coming saying 'I' m about to kill myself' or been caught in the act, you just have to tell them you want to be discharged and walk off. A psych hold is not something frivolous (fortunately) and they exploit that to the maximum.

No. 364169

>>364146
>I can't carry on living being this poorly
What is it with these people and the goddamn theatrics?

No. 364172

>>364146

May I suggest the following two-step plan?

1) Try proper medicine.
2) If that doesn't work, go see a shrink. Possibly compounded by some sweet, sweet anxiolytics and a mouthful of seroquel.

No. 364175

>>364146

Jesus, this Myhill person is a fucking quack. She does have an MBBS but from what it seems no MD?! Quaint. And she is full of shit, like, very full.

No. 364176

>>364168
Even after a suicide attempt in the UK you're unlikely to be kept on a psych hold. The usual situation is that once you're medically stable you're assessed by the psych liaison team and generally discharged to be followed up in the community.

No. 364182

>>364175

She's still got a medical degree but she was briefly suspended from practising:

http://www.meassociation.org.uk/2011/01/dr-myhill-is-allowed-to-practise-medicine-again/

No. 364183

>>363758
I can't relieve she just admits to throwing a tantrum the second she didnt get her way, and her followers are encouraging it. The poor staff at the hospital she goes to.

No. 364184


No. 364186

>>364176

This is true. Only if you're a danger to others.

No. 364191

>>364176
>>364186

I've known of a couple of suicide attempts being kept in because they were having an episode. One went to a petrol station and tried to set himself. If it's a "regular" suicide attempt, yeah they get assessed then let out.

No. 364192

>>364146
She was ME before Lyme. Was meaNt to be going to some ME inpatient ward but swallowed the Breakspear koolaid instead.

No. 364193

>>364191
set himself on fire*

No. 364197

>>364192

I genuinely wonder how many of these chronic/neuro Lyme cases actually recall finding a tick/bite site.

No. 364202

>>364197

Especially the ones who live in cities in the freaking UK!

No. 364205

>>364202

I mean, Lyme is on the rise over here, and we definitely have ticks (as any dog owner will know). But if you check yourself after you've been in long grass/wooded areas, remove any critters properly, you'll be fine!

No. 364206

>>364205

My dog once got a tick and I freaked the fuck out. I dread tick season,

Sage for OT.(no1curr)

No. 364211

>>364206

My pup-in-laws have long shaggy spaniel ears. Luckily they like cuddles because looking for ticks in those takes forever…

No. 364221

>>364205
sorry for ot but I can't ignore bad advice.

If you remove a tick, you need to keep an eye on the bite site for a bullseye shaped rash for the next couple of days, removing the tick isn't enough to guarantee you haven't contracted lyme. Tick saliva has anaesthetic in it so it's impossible to know when you were bitten and how long the tick was attached.

No. 364233

>>364221

Ach I forgot about the rash bit! It's a long time since I lived anywhere that Lyme was an issue. Is it only Lyme-infected ticks that leave that bullseye rash?

No. 364236

>>364233
Because we have such a rampant issue with ticks and Lyme and the bullseye doesn't always show up or doesn't show up for long you can get ticks tested for 10 bucks.

No. 364238

>>364206
>>364211
>>364221
>>364233
>>364236

There's probably a dog thread in ot. Or you can make one.

No. 364261

>>364192
I am baffled by the legit MD's treating "chronic lyme" and "neurolyme" and being allowed to do so. Mustn't there be some indication for treatment, especially with abx? Has all of this super serious IV antibiotics and other special treatment therapy actually cured anyone?>>

No. 364266

>>364261

I was led to believe that lengthy courses of abx WAS the standard treatment for Lyme.

No. 364302

File: 1501553431789.jpg (207.77 KB, 1065x778, Screenshot_20170731-210918.jpg)

Has anyone looked through this account. Her diagnosis list is insane.

No. 364310

File: 1501554580701.png (271.95 KB, 704x1252, IMG_0231.PNG)

>>364302

Yaaas! New cow! Pill porn, self purchased wheelchair and selfies at the ER!

No. 364340

File: 1501558053131.png (97.05 KB, 750x755, IMG_3684.PNG)

Also this girl. She might be a decent example of a "high profile spoonie" with all sorts of people giving her ass pats.
Tons of milk in her older posts. It's crazy.

No. 364341

File: 1501558142327.png (208.05 KB, 750x1058, IMG_3685.PNG)

Unending munchie points for an oxygen selfie

No. 364344

Today on chronically Jacquie,she eats a pile of (cold) processed mac and cheese, dinosaur chicken nuggets, and a little bit of cucumber. But she totally has super severe GP you guys.

Also, I don't know much about EDS, but wouldn't it make your hips and knees super painful? Why can she sit for literally an hour at a time, cross legged on the floor talking about her illnesses? And it's too painful to walk up the stairs (so she has to go one at a time, rest along the way, and have moral support from her dog) but once she's upstairs she can clean while sitting on her knees (legs folded under her) on her walker? This fucking girl I swear to god…

No. 364351

In her newest 50 fucking minute "all about me" video ("all about my chronic illnesses" rather), Jaquie refers to her recent malnourishment as "dangerous" "Severe" and "life threatening". I'm directly quoting that. But she didn't even look underweight.

She's claiming she was malnourished because she couldn't eat, but since she got the feeding tube she can suddenly eat? Or am I wrong about that?

She's also fucking giddy about getting her feeding tube replaced in a couple of days. Who gets that excited about a feeding tube change? Seriously.

No. 364451

File: 1501570349486.png (133.67 KB, 720x627, wp_ss_20170801_0001 (2).png)

I've been looking at Emisdreamingthroughthealarm's Mighty articles and this stood out for me. Why are these munchies always too complicated for regular doctors?

No. 364457

>>364344
Sitting like that hurts your hips really badly and can make your knees lock if you have eds. A big part of eds treatment is learning harm reduction and she's completely ignoring all that and probably TRYING to make her symptoms worse.

No. 364469

I found these threads yesterday and at first I got ticked at the people writing them but now I'm just ticked at the whole "spoonie" community thing. I have EDS and POTS, and yeah they can be life wreckers but they aren't some kind of beautiful tragedy. It irritates me that these people milking it for every bit it's worth destroy any credibility that people who legitimately suffer with these illnesses may have on the off chance they decide to actually talk about their issues. I've been part of various support group systems over the years but Instagram is by far the cringiest I've ever witnessed for the sole reason that it's not a support group at all. It's literally a bunch of people being artsy with their illnesses and posting a play by play of every single symptom they experience, complete with paragraphs sprinkled with emojis and hashtags before random words, and trying to be inspirational. It's all glam. Back a couple years ago, when The Fault in Our Stars came out, so many "spoonies" started putting "Okay? Okay" all over their profiles and suddenly started using words like "infinity" and "oblivion." It's just toxic. It's almost like a lot of these girls are so excited to be diagnosed with a genetic connective tissue disorder, and right after they score a POTS diagnosis they're immediately wanting a central line instead of trying the standard lifestyle changes and medications first. Because you know, actual medical doctors who spent years in school can't possibly know how to treat you. Soon after comes the "I'm thinking about buying a wheelchair" post, and eventually the "I wish my doctor would give me a feeding tube, I'm fading fast!" thing. I was a lot younger when I was diagnosed with POTS and was convinced I had "Lyme" after some time online talking to spoonies and to an extent I got into the whole "documenting every aspect of my health issues" thing but quickly realized I didn't want to have absolutely no life or identity outside of POTS. I mean I don't get why these people want to have an identity that is completely wrapped up in their medical devices and symptoms. Several years later I was actually pretty upset when my physical therapist told me she suspected I had EDS, as a normal person would be when being told they may have a genetic condition that can come with long term implications. But LIFE GOES ON, it's not a death sentence or automatically super morbid thing. I think a lot of the spoonies who have 28 diagnoses in their bios (which incidentally are mostly just "symptoms" that can come from autonomic issues or connective tissue problems, and aren't separated diagnoses at all) are excited to be diagnosed with EDS because it is genetic and genetic sounds scary and therefore more credible and "tragic". They don't realize they are thinking that way, but they are. EDS stinks, but I find that the people I know who are actually effected by it more severely are the ones who don't wear it on their sleeves. They just take it day by day, do what they have to do to take care of themselves, and focus on being as normal as they can. No need to draw excessive attention to your "story" and try to be an inspiration by keeping an hourly online diary of your symptoms. AGHHH.There's a huge difference in talking about your illnesses in a normal context from time to time or trying to connect with people who are like you, and turning it into a full time image to maintain. A lot of the people mentioned here are not going to have a life until they drop the whole "look what a warrior I am" act. I didn't even realize all of this in these terms until reading this website just made it all come together.

No. 364474

>>364469
you'll find a lot of us here have medical conditions that people love to flaunt on Instagram and that the reason we call them out on their shit is simply because we're just so sick of seeing it. Welcome to the farm.

No. 364475

>>364474

Thanks. Yeah, my initial knee jerk "this is cyber bullying!" reaction when this page first caught my attention quickly dissipated when I realized most of the people here are just reasonable people who have these issues and see through the ones who have glamorized being sick and being in medical environments.

No. 364477

>>364451

Complicated, complex, etc are spoonie buzzwords. You know, anything to indicate how rare and serious your case is. I think half the time a spoonie girl says they're going to a new doctor because they were too complex for their old one, they asked for the referral themselves.

No. 364483

>>364341
kek, she probably thinks this is hospital glam.

No. 364485

>>364344
The whole sitting with her knees under her is a bit of a red flag.

I mean EDS is painful, sitting in one position for about 20 mins is enough to make pain start, I sit with my knees up against my chest while at the computer and that hurts after about an hour, but it's comfortable. I however cannot sit cross legged because of the position it puts my hips and knees in, for someone with super serious EDS and claims her hips dislocate a lot, I am going to call bullshit right there.

I've also noticed that she is constantly able to hold the camera up above her head and record constantly, because that doesn't fuck your shoulders up, yet in previous blogs she said she physically can't lift her arms above her head.

Also, there are plenty of videos of her walking, there is no signs of hip dysplasia or rotation in her walk, which is often. Caused by EDS and dislocations, there's no sign of her limping from pain in her hips or knees and she seems to be able to walk a lot for someone who's hips dislocate constantly

Saged for rant and sorta medfagging.

No. 364501

>>364485

Yeah I fucking thought so. I don't have EDS, but I do have general joint problems/pain and I absolutely can't sit like that for more than 2 or 3 minutes. I have no idea how she can sit like that for an hour. If she's so bad that she has to use two walkers (one for upstairs and one for downstairs!!??) and get a wheelchair, she is not well enough to be sitting on the goddamn floor, or sitting on her knees. Let alone for 50 minutes, for several different videos, where she doesn't even appear to be uncomfortable. There isn't even a reason to sit on the floor, she could film from the fuckin couch. Fuck sake man. If you're going to exaggerate your illness so much, at least be consistent. Jesus christ. All this milk is making me sick.

(sage for rage and blogging a bit)

No. 364504

>>364469
>>364475

Thank you for posting and welcome. You have just had the experience that many here have had: coming to the realization that the whole sick-and-pony-show on social media is just over the top and counterproductive. You will find quite a few chronically ill people here and even some healthcare professionals who are tired of seeing the consequences of this illness glamorization in real life. We are here to vent and call out suspicious and annoying cases. These 'illness queens' are making the very real issue of stigma and judgment faced by people with yaknow, legit chronic illnesses, especially young women, even worse. They are not 'raising awareness' except about themselves. They are glorifying, glamorizing the 'romantic tragedy' of being young and ill. FUCK THAT. Everyone has to be sooper severe and too complex and rare and a #supertoobie and #spooniewarrior and have #chronicallyfabulous gear etc. The most annoying thing to me is how much people like this say "I am not my illness." Really? Because that's all we see and hear from you! If you have a spoonie account and then talk about how you are more than your illness, then proceed to discuss every tiny fucking thing about your medikul jerney and that's all you post about, check yoself. Most are reveling in the attention and sooper speshul frajul image. This is a culture of victimhood and overpraising and it is fucking shit up that ACTUAL patient advocates and people who have been sick a long time have fought against. Medicine has come a long way in taking complaints seriously from young people, especially young women, and this kind of shit is reversing some of that progress IMO, sad but true. Stereotypes come about for a reason. It is heartbreaking to see the damage to the reputation and bias against people with certain diagnoses because of obnoxious OTT "spoonie warriors." Then we have the MBI crowd, who aren't even sick but like to play that they are online, or worse actually try to fake or deliberately worsen their medical problems in real life. The damage they do is even worse and far-reaching. I could rant forever but I just want to thank you for posting and seeing things for what they are. We aren't a bunch of hateful cyberbullies who try to destroy people for fun. We're commenting among ourselves on the bullshit we see online, on social media platforms.

No. 364517

>>364504

Yep. This forum inspired me to delete my spoonie account and focus on real life instead of my condition.

We can also point out when someone is being ridiculous and over reacting about their condition like when the OG spoonie Robyn was crying Brain Cancer over a Prolactinoma.

No. 364524

File: 1501581298847.png (454.3 KB, 1266x1795, IMG_0194.PNG)

> dramatic drama is dramatic
> vague hints of DYING!
> lol no, you're not dying

Her docs are discussing to withdraw feeding. That's a polite way of saying 'they're about to tell me I'm a fucking Munchie and throw me out… shit!'. But clever ambiguous phrasing to suggest she's on palliative care, which she is not (doctors don't simply decide to withdraw a life-sustaining intervention from a patient still conscious and able to make decisions, you dramatic fuck!)

No. 364527

File: 1501581457804.png (304.94 KB, 1269x1906, IMG_0184.PNG)

"Adulting" lol.

You're 16. When I was 16, I emancipated myself to put myself through experimental chemo my parents disagreed with. Checking yourself in to labs (= showing your ID and referral/order card) at age 16 is apparently super big let's celebrate adulting for these immature idiots. No wonder they want to spend their lives being taken care of.

(Sage, sorry for blogging)

No. 364532

>>364344
God she's full of shit

No. 364533

>>364351
Yeah, that's not how it works. A feeding tube isn't going to magically help you eat unless you were purposely lying about your gi problems and starving yourself so they gave you a tube. She got her precious tube so now she can go back to eating what she wants. And she's a fucking idiot, so she puts herself online eating shit no one who actually has GP can eat.

No. 364534

>>364524
"I'm sorry, we have some bad news for you…you're actually going to live. I'm so sorry this will screw up your plans of getting sympathy from people on the internet."

No. 364544

>>364533

Err, that's because these fucktards confuse venting (periodically opening G outlet, lay down, gently press on stomach) and drainage (connect a Farrell bag to G outlet and keep it below the approximate level of the fundus, and don't eat anything for fucks sake!) with using the G port for pull-force-draining, an absolutely contraindicated maneuver in which two large syringes, one filled with water or meat tenderizer/tube unblocker/papaya juice, are connected either separately or using a T valve. The empty syringe is pulled to drain what you have eaten out of the stomach. When it can't go anymore, you flip the T valve/change to the other syringe, and first instill about 5ml into the tube, let it work, then you push 10ml at high pressure. And you keep repeating this until you have suctioned your stomach contents off. Basically, they have medically enabled bulimia. Hooray.

No. 364546

>>364544

If anything she's definitely gained weight since getting the tube, and she hasn't had it very long. I'm obviously just speculating here but it seems like she wasn't trying very hard/purposefully not eating so she could get her tube, and now that she's got the tube, she's a lot happier and can suddenly eat. In her video today she looked noticeably bigger. She definitely doesn't have the physique of someone starving and needing a feeding tube, and she's had the tube like, what, a month? She wasn't that thin before, but she's definitely not getting thinner that's for sure. Especially on a diet of sub sandwiches, mac and cheese and dino nuggets. Oh she also eats cucumber because that's her best "safe food". ugh.

No. 364551

>>364546
She is an absolute fucking moron. Vegetables are one of the worst things you can have with GP. An eating disorder has "safe foods", especially something like cucumber (very few calories), just saying. Nothing she eats is close to a GP diet or anything that would be tolerated by someone who actually has GP. I hope she keeps gaining weight and gets fat, it'd serve her right to look like the cow she is.

No. 364555

File: 1501587937934.jpg (75.21 KB, 1280x720, IMG_0491.JPG)

>>364551
So malnourished

No. 364557

>>364517

Ditto.

I, too realized how harmful using Instagram as a health diary was to both myself and others. I came here first thinking "omg this is cyberbullying" but realized that it was more of a reality check. A prior friend had told me to make a separate spoonie Instagram and I thought that was the right thing but I was so wrong and I'm embarrassed for myself.

sage for blogging (sorry farmhands) / not contributing to milk

No. 364558

>>364551

Exactly. And it's FUCKING RAWWW. She loves processed white bread, ham, crackers, cheese, cucumber, frozen fucking peanut butter globs slathered onto chunks of frozen banana (which she scoffed down in one giant bite), broccoli, shrimp orzo, crumbed chicken marinated in ranch (bleurgh) those are just some of the many things I've seen her eat in the few vlogs I've watched. I can't believe her.

I think she said something about how she doesn't want diet suggestions because her body doesn't respond to food the same way someone normally would with GP. But that just seems like a bullshit excuse to eat whatever she wants (because she apparently can?) even though those foods would make even your average IBS sufferer sick and in pain. I know because I have a very simple case of IBS and I can not touch those foods. I don't have GP so there's obviously no way I can speak for that, but there's just no way processed white bread, cheese, processed mac and cheese and fucking dino nuggets are easy on a sensitive stomach.

I mean she claims her fucking GP is severe too. She's infuriatingly stupid, and stubborn, the worst combination.

No. 364564

>>364558

I just watched a vlog where she was making chicken, broccoli and mashed potatoes for dinner, and the next morning she was throwing up for ages because of what she ate the night before, and this seems to happen often with her.

But she's totally fine on this shitty diet and doesn't need any advice you guys.

No. 364567

(Tied to post video with the time stamp but lolcow wouldn't let me. Shot of her meal is at 11:27)

Prime example of what Jaquie can eat… Earlier in this video she was talking about how she thinks her GP is flaring. After she ate this (and earlier that day she had meatball pizza…) she seemed totally fine and happy, outside with her husband/sister in law, and she said "i'm a little worried about my gastroparesis" (I thought she was gonna say because she ate a lot that day, and had a big portion of meat and veggies) but she said "because I ate less than 1500 calories today and I'm worried about losing weight when I get on the scale later tonight". Give me a break. This was earlier this year too. If you have GP you don't eat meatball pizza, then later that night eat a big serving of giant pork chops, green beans and potatoes. At least not without some serious problems. Yet she's standing outside in the sun, laughing, happy as can be (yet still can't manage to share a nice moment with family without bringing her personal illness adventure into it somehow… wearing a vog mask too of course.)

No. 364577

>>364544
Damn dude did you have to give such explicit step-by-step instructional detail? You know munchies will be onto this like flies on shit now.

No. 364585

File: 1501595706364.png (186.94 KB, 744x1098, IMG_3688.PNG)

New milk. How does one take a picture of themselves fainting?

No. 364588

as much as i hate the anachans, i almost wish some of these 'spoonies' would meet them so they can actually see what severely and life-threateningly underweight looks like
like stfu CJ, you arent and never have been underweight kek

sage for being salty and non contribution

No. 364618

File: 1501601121372.jpg (643.17 KB, 1078x1307, Screenshot_20170801-102326.jpg)

She's so happy to go get the coveted GJ button so she can purge through it now. So much easier than throwing it all up!

No. 364620

File: 1501601156512.jpg (615.77 KB, 1074x1296, Screenshot_20170801-102342.jpg)

Caption on the above post.

No. 364622

>>364620

Christ, what a fucking moron! A G/J means there's a jejunal extension, which means it needs to be pushed past the pylorus, through the duodenum and into the jejunum, meaning that (with the exception of the supremely rare RIJ, the radiologically inserted J-stomy) EVERY G/J TUBE HAS TO BE DONE WITH THE SCOPE, you idiot. That's because your anatomy is so special, eh. Moron.

No. 364630

>>364567
For most people with GP getting in 1500 calories is nearly impossible. But this girl just eats pizza with her super severe GP. Kek.

No. 364632

>>364310
Holy emojis Batman. How old is this tit? And how common is it for these spoonies to be excited about "pimping" their "ride"? My response to needing a wheelchair wouldn't be Omg glitter time!

No. 364651

>>364557

Truthfully part of the anger I expressed is also embarrassment because I had started a separate account as well. Now I can't even look at it. I'll be deleting it soon. The whole concept of making a place for you to live blog your symptoms and illness is so over the top and self absorbed and I didn't even see that before. So true that a lot of these girls say they aren't their illness and then obsess over their "journey" and romanticize it. Very damaging for progress that has been made in getting doctors to take "invisible" complaints seriously. It's almost like "spreading awareness" is having a counterproductive and harmful effect because it's created this subculture full of people who looooove the sympathy and attention that comes from harping on every bit of your illness, or even fabricating having said illness.

No. 364657

>>364651

You and other spoonies who had a spoonie account and now feel a little sheepish: please don't be too hard on yourself.

The whole spoonie stuff is like a cult, and it's damn easy to get sucked in. You made it out. It takes emotional strength to say no to being coddled and uncritically adored and yes to real life and recovery. Any shame or sheepishness you feel should be eclipsed by immense pride, because you took the arduous high road over the easy path of a life as a constant object of pity.

You guys/gals rock.

No. 364661

>>363365
I was like that for fifteen and could say nothing more than "blr;sdfhasdafl" while post-ictal. to take my epilepsy seriously.

Benzos make me climb the walls but not enough to post anything.

No. 364693

>>364657

Thank you for this. Here's to starting a real life.

No. 364717

>>364622
You can actually do it without sedation, it's uncomfortable but cuts time off the procedure. Although that's doing it in radiology, not with a scope. But she's sooper speschel so of course she's getting sedated. She doesn't have severe GP (if she has it all), she doesn't need that fucking tube. She is beyond ridiculous.

No. 364719

>>364620
Sedation is not anesthesia. Dumb bitch has to exaggerate everything.

No. 364722

>>364622
you can actually have it done with a scope and no sedation too, at least here in the UK. I know for a few with EDS sedation is ineffective so some choose to have it without anything just to get home quicker. I do wonder if she would be this excited if she was having this done wide awake. But of course she wants sedation so that it takes longer and she can look super special sick
long time lurker first time poster so if I have got posting here wrong you can delete the post.

No. 364732

File: 1501613362862.jpg (456.62 KB, 573x610, puregold.jpg)

Most important points?
- she didn't go to the appointment she had at her rheumatologist for 2 weeks and gets angry, when her rheumatologist isn't there
- they offer her an appointment at the 10/17 but it's too late for the munchie
- the gastroentologist offers her an appointment at the 10/17, which is too late for her gastroparesis(she thinks she has it!), but she waited month to even contact the doctor
- an old lady thought that she's a guy and it made her angry. She even wrote on instagram that her cup size is D!
- Someone on instagram contacted her and said that she is a guy and that people should feel sorry for rheuma_esgibtkeinzujung, because of all her alleged illnesses and psychosomatic stuff


another funny thing? Some days ago she wanted to get recommendations for a heart rate monitor, because she wants to show her doctor that she has POTS. Someone with POTS wrote that she probably can't skip the tilt table test. Suddenly the entry is gone.

She posts a photo, that she's happy about having 1000 followers(she wrote likes) on instagram and nearly 2000 on facebook. Later on she commented, that numbers aren't that important.

My personal opinion? She should go to her GP and ask him for help instead of going directly to a specialist. Having stomach problems while taking narcotics for such a long time is normal, but I guess it's not special enough for her.
And making a big drama on facebook and instagram, because one poor old lady misgendered her is so wrong! First she wrote that it doesn't bother her and now this.
Guess next thing she wants is EDS and a port and a feeding tube.
She hasn't contacted the surgeon for her wrist/hand pain yet, even though she already wanted to contact him last year. How many self-made problems does she even have?

No. 364774

File: 1501619755884.png (115.43 KB, 736x1040, IMG_1922.PNG)

Nicole "suddenly" advertising Snapchat as away to show off her tube … for someone who is a health science major and wants to be a doctor she has no concept as to how therapy works and cannot recognize signs of a basic eating disorder which you are taught in the most general of psychology courses!

No. 364799

>>364527

Cry me a fricking river. My parents worked full time so when I had blood tests, EKGs, teeth pulled out I went by myself. At age 12.
I guess this is a fair example though of how Spoonie Warriors are actually coddled and infantalised by those around them.

Sage for partly rage blogging.

No. 364802

>>364794
For a lot of these people, being out of a doctor's field of expertise automatically translates to "ZOMG I'm a complex medical mystery"

No. 364803

>>364774

She's such an annoying cow!! Anyone have access to her other IG? Nicole.2294? She was meant to stop posting medical stuff on the OMS account, that lasted a whooping 2 days and the second she landed her dumb ass back in A&E she was posting pics of her cannula and IV fluid bags.

No. 364804

>>364657

These threads are pretty good prevention for anyone who posts on IG about illness/disability creating a new account dedicated to that subject. The difference is, many people document their health issues in the context of their life - not make it seem like their whole life IS about being sick!

No. 364813

Absolutely ridiculous how her portacath tubing is always hanging outside her clothing; if it's not currently in use the safest thing would be to tuck it underneath the t-shirt. Obviously this doesn't get any spoonie points!

No. 364817

>>364813

If a medical accessory isn't visible, it might as well not have been worth faking symptoms to get it…

No. 364821

>>364813
why are you using numbers as a name? Lurk before posting.

No. 364823

>>364813
if you want to reply or relate to a comment, tap the number situated within the header, that then automatically brings you up to the reply box, then leave name empty, write the word sage in email bar and your comment in the space provided, then tap New Reply :)

No. 364825

>>364804
I still have an IG and occasionally mention my chronic illnesses but it still is and always mostly will be art and my dogs with an occasional selfie.

No. 364827

>>364825
Congratulations. Please, divulge some more fascinating tidbits from your journal.

No. 364835

>>364618
Anyone want to place bets on how long Jacque's going to milk this "surgery"? I'm guessing she's going to have some "rare reaction" to the sedation ("anesthesia") and have to be taking care of for a minimum of two days. Any takers?

No. 364840

>>364835
Something rare and dire. Maybe she will claim anaesthesia awareness as well.

No. 364850

In case anyone wants a comparison between munchie bullshit insta accts and an actual sick persons medical journal, there is this guy with cancer. And even with cancer, he manages to sound much less dramatic than these little bitches with EDS and POTS.

He died, so his family made the last few posts wrapping it up.

http://dougduncan.info

No. 364852

File: 1501628748441.jpg (635.47 KB, 1071x1848, Screenshot_20170801-180445.jpg)


No. 364853

File: 1501628770253.jpg (760.13 KB, 1040x1890, Screenshot_20170801-180457.jpg)


No. 364893

One thing I don't exactly understand about jackie and a lot of spoonie she in general is why service dogs have so quickly become a fashion statement. I'm totally for having a pet for companionship and emotional support but in a lot of the cases I've seen, these dogs are not doing anything for them they aren't capable of doing on their own. For example nobody needs an alert dog for dizziness and fainting from POTS. You know when it's coming on, and you sit down. Like there's no mistaking it, it's not like a seizure or attack that you don't see coming. Why do you need a dog to tell you about the symptoms you already feel coming on? Maybe I'm wrong and some people with POTS experience different syncope than I do but I can't think of one thing a service dog would help me with.

No. 364895

>>364893
I mean next they'll be getting mini horses to pull them around in a cart.

No. 364896

>>364895

Please respect my therapy bird and my need to bring it into the cafe with me while it flys around shitting.

No. 364901

>>364896
kek ignore my therapy kangaroo, i keep my medpac(TM) in his pouch

No. 364905

>>364901
ignore my emotional support gorilla. sunflower david bowie sparkle monkey holds my custom made (by my seamstress™) backpack with my nutrition™ in it

No. 364910

>>364905
Respect my service rooster. He crows for help when I get nauseated

No. 364916

>>364910
don't mind my service squirrel sally. she flits around the room when my blood sugar drops below 70 in my sleep. she's not even trained to detect crashes!

No. 364919

>>364916
Follow my emotional support hamster on Instagram!! @erichelperhamster

No. 364925

>>364919
my service goldfish has his own page @helper_fish_fred! and my service husband is selling shirts with my face on them at @service_husband_bud $49.99!!

No. 364939

The issue with people using service dogs the way Jacquie does is that it devalues service dogs who actually do mitigate those conditions and others – yanno, those people who use them the RIGHT way for the conditions she claims, not for stupid shit that she can do on her own.

No. 364967

>>364893
There are so many things you can train a dog to do to help with severe EDS and POTs and none of it involves getting slippers and a blanket. Well trained to actually mitigate disabilities service dogs do some awesome stuff. Alerting though totally unneeded for something like pots. Picking stuff up off the ground because bending over might cause you to pass out sure. The water bottle/Gatorade bottle/get med bag are probably the only useful things Jacquies taught the dog IF she actually had pots.

No. 364968

File: 1501644070540.png (Spoiler Image, 1.84 MB, 2220x1080, Screenshot_20170801-215806.png)

Yes, she 100% NEEDS that feeding tube. Hey goal rate was 45, she runs it anywhere between 25-35 because anything not makes her feel too bloated. She claims her goal rate was 35, but that is not what her doctors said when she got the tube. Apparently she claims MALS now too. She said she doesn't absorb anything she eats, it either it vommited up or comes out her drainage port. If her malabsorption was as bad as she claims the feeding tube wouldn't even work, she says her whole digestive tract doesn't absorb nutrients.

"Oh, poor me, I was so malnourished I blacked out after a few steps." Bull shit, is that why you look and did look so fucking healthy? She has never looked too skinny, or like someone that can't/isn't eating.

The hospital called her and recommended she get hydrated for the tube change. Instead of being a normal person and drinking water, she runs an infusion.

No. 364973

>>364925
This is my service cow. I milk him on social media every day.

No. 364998

>>364968
25% is a quarter of what she should be at and such a low feed is doing nothing for her other than giving her spoonie brownie points. If her gastroparesis was as bad as she's been complaining about she would of lost more weight because 25% isn't even close to being enough to put on weight if you're supposedly not eating barely anything most days. But it's also proof she is getting enough oral intake and did not need that tube.

No. 365001

>>364998

And she's even gaining weight. She's eating way more than she posts. If she can only tolerate 25 ml/hr and can't eat, she would look horrible right now, when actually she looks completely healthy. But she got her precious Gj button, and all her clueless followers are fawning over her. Honestly I can't believe over 30 thousand people fall for her shit.

No. 365005

File: 1501648636133.jpg (729.14 KB, 2048x2048, 82880F8F-8FCE-4E9A-883C-CF496A…)

>>365001
Yeah she's getting fat. Sure she may of been on the lower end of ideal weight right as she got the tube. Left side picture the face is from the day or two pre tube and the close up of her stomach is the day she left the hospital and the right photos are from yesterday and today

No. 365027

>>365005

Because she was perfectly healthy when she got the tube, other than probably eating not enough on purpose to guarantee getting that sweet, sweet spoonie prize of a tube. She has what she wants, so why keep not eating when she's not trying to prove her "severe" GP. With all the shit she eats she's plumping up quick. No wonder she gets bloated, that's what happens when you go from purposely restricting your food intake and then stuffing your face. If she can eat enough to gain weight with barely running the tube, she's got to be just chowing down. I'm sure she'll blame it on sone other rare and speschel illness.

No. 365030

File: 1501650688310.png (Spoiler Image, 44.1 KB, 551x440, IMG_0498.PNG)

>>365005
Here we see jacque in her natural habitat…

No. 365031

The service dog subgroup of spoonies are the fucking worst. They are almost always so entitled and OTT and self-righteous and think they have a license to shove their speshulness down everyone's throat, being a bitch and making a nuisance of themselves everywhere…as 'advocates' they are oh so speshul and making such a profound positive impact right? NO. Just no. They are absolutely taking the piss out of actual service dogs who perform real tasks. SERVICE DOGS ARE NOT ANOTHER FUCKING PROP people! Fuck you with all your tubes on show and your poor joke of a service dog making public drama and loving being on show as usual. You are NOT advocating and raising awareness about service dogs. You are ENGENDERING BIAS. You #SDIT munchies are highlighting the issue of overly self-important, insufferable little attention seekers and give legit service dogs and handlers a bad name! Thanks for creating more stigma and misunderstanding, fucktards!

No. 365063

Has anyone else noticed the growing number of instaspoonies who have suddenly turned into passionate SJW activists about "ableism?" Thoughts on how this might play into the whole OTT/MBI thing?

No. 365069

>>365063
More than likely they find out the hard way that not everybody is going to treat you like a poor brave little soul for being disabled and get upset. Or they see the potential for even more pity points because now they can scream about discrimination.

No. 365070

Seems youre not the only ones onto Jacquies shit https://gomiblog.com/forums/lifestyle-bloggers/chronically-jacquie-jacquie-blake/page-2
Stumbled across this while googling chronically Jaquie fraud/fake, found lolcow and this.
I've caught her contradicting herself countless times and her 50,000 viewers aren't even calling her out in the comments. She needs outing as a huge fraud.

No. 365084

>>365070

Interesting they point out how much Jaqui is aping the Frey Life.

No. 365106

>>365070
Be careful with gomi because, while it often has great stuff, the site itself is notorious for carrying viruses and shit.

No. 365108

>>365084

So because I am bored, I am doing some research. In particular, I am taking shots of Jaqui's videos where she claims to be in pain and compare relative facial landmark positions (this is my field of expertise) with some reference pictures of people in severe pain.

I'm…. looking forward to the results..:)

No. 365109

>>365063

A lot of them actually went the other way around and suddenly came down with some mystery chronic 'disability' after it turned out that their critique of modern society coming from an affluent white girl from an affluent white neighborhood did not ring too credible.

No. 365120

>>365070
That's because she deletes any and all negative comments that call her out on her inconsistencies. She left the SD community when they called her out on inconsistencies with diagnosis and unethical bullshit with working an dog that has medical issues

No. 365132

>>365120

What are her dogs medical issues?

No. 365138

>>365132
Its eyes has some kinda issue I don't remember the name of it and I went back to try and find proof of it but all proof has been deleted about it. And she was all you're over reacting it's just plugged tear ducts and it's more than that if you look at that poor dogs eyes. Which it had issues with its skin, stomach and eyes prior to her feeding raw.

No. 365139

File: 1501679513480.png (1.84 MB, 2220x1080, Screenshot_20170801-221241.png)

Her "I'm so exhausted, I'm in so much pain" face is ridiculous.

No. 365141

>>365138

Does anyone know her point in doing the raw diet thing? Why is it better than just good quality dog food? (it's not, I'm guessing, I'm just curious about her reasoning behind it). Especially because it's so much effort for her physically.

No. 365143

>>365139
Totally. Her "I'm feeling shit" face is just super droopy eyelids, talking slow and monotone, that's it.

Not that I need experience to know why that's just dumb, but I'm a chronic pain patient who also deals with a few other illnesses and often have very bad days. I'm very familiar with a lot of different kinds of pain. I've never made a face anything like that, nor have I seen anyone else do it. Maybe it's just a weird thing she does, I don't know. But I know that when I'm in a lot of pain/feeling very sick, I can still keep my eyes open, if anything I'm squinting/tightening my bottom eyelids (if it's real bad, my eyes will just be closed) not in a constant state of droopiness anyway.

Other examples of genuine pain-face include, but not limited to, furrowed brow, tight mouth/lips, fidgeting, changes in breathing, not talking, and not being able to or wanting to pick up a fucking camera and film myself.

(sage for kind of blogging)

No. 365146

>>365143
She's generelly so monotone, it's annoys me so much. The way she talks, over explains things and such, it's fricking annoying

No. 365147

>>365141
Because her bff Janice does it with her dog and she probably also did it to get ass pats for it. I have a service dog for an actual reason and signed up with chewy two years ago with the same high quality decently priced kibble the program my dog came from told me to use. Shows up on my door stop once a month and no need to extra energy to be expended for no reason and never an issue.

No. 365148

>>365147
Ah of course. See your method seems waaay better. I mean, she's got a service dog to "make life easier" (I put that in quotes because she obviously doesn't NEED Harlow) but then she spends half her fucking energy making unnecessary food for her, that might actually be doing more harm than good? In what world does that make sense?

PS. I find it super funny how one of Harlow's main jobs is getting her slippers and blanket from the bucket across the room, when she could just you know… move the bucket to a spot beside the couch.

No. 365163

>>364732

This reminded me of one of our past munchies. Does anyone else remember when Shelbie threw a temper tantrum because her vascular surgeon wouldn't place a port for her "veins that always blow"? They supposedly told Shelbie that it's too risky with her condition (this is when Shelbie claimed to have vEDS before genetic testing), but my guess is the doc asked why she wanted it and she had no good excuse. She doesn't get regular infusions (or doesn't talk about them) except when she goes crying to the ER about how weak she is, she's never had any other central line, and as far as we know she doesn't get blood work done weekly or more. It was laughable and was a shame I didn't know about this thread before than because it was high grade 2% milk. She seems to be laying low now, and her new insta bio says something along the lines of "don't expect me to accept you if I don't know you", I bet it won't last long kek.

Sorry to get off topic from Jacquie, though. A+ cow.

No. 365165

>>365163

* then, ffs

No. 365173

There's a great video of Jacquie trying out her friend's wheelchair. She was so excited. Normal 20 year olds share clothes with their friends…

No. 365179

>>365146

It's called 'flattened affect' and is a typical sign of Munchhausens. They're worried that if they show emotions, they'll be seen by doctors as desiring some interventions or being a little too happy to be in hospital, so they have this flat affect that almost makes it sound like a schizophrenic. There's a reference to this in Kelly's blurred out note, too!

No. 365180

>>365147

ugh that video was so cringey. I felt bad for the guy, he looked so uncomfortable. And what if he thought he was just going over there to just hang out, and she grabs the camera and starts asking him about his wheelchair before immediately turning the conversation back to herself (I say conversation, but it was pretty one sided) and all about her. And then she made him get out of it so she could use it/try it out, saying she wanted it in pink, etc etc.

I really hope that once she finally put the damn camera down they hung out and didn't have to talk about medical stuff. I'm sick, I have sick friends, and when we hang out usually the last thing we want to do is talk about all our medical problems, let alone excitedly try out each others medical devices. Talking about that stuff occasionally is good, but knowing Jaq, it's all she wanted to talk about.

No. 365183

>>365179

I think it might be her autism… She talks about it in her "All about my Autism" video (lol). She talks about how she can't recognise other peoples emotions/facial expressions and social cues and stuff like that.

Maybe she has trouble showing emotion because of that. You can see it when she smiles/waves/poses for photos especially, she looks like she's trying really hard to do what she believes is supposed to be a smile. Sometimes her emotions are definitely genuine, but she seems to have a lot of trouble with that stuff.

No. 365198

Robyn Lambird has such an annoying face. I know she's not a munchie like Jaq, but she's the definition of OTT and always shitting up the tags with her pretentious selfies. She enjoys the fuck out of her disability while pretending to be an "activist", kek.

No. 365203

>>365183
No doubt she's autistic. But i have never heard of "flattened affect" in autistic individuals. It might be a thing tho

No. 365204

>>365179

The only time I've seen somebody in legitimate pain looking the way she does is with migraines and other headache disorders… where show of pain and emotion makes it worse. Usually there is still a lot of foottapping, grabbing of the head, eyes are generally totally shut. I can buy that she has occasional mograines… but occasional migraines do not make you disabled so she had to start adding on diagnoses. I wouldn't be surprised if she started out with migraine as a diagnoses. Often doctors that deal with it are pushed so hard to find a cause or answer that they will diagnose almost anything to get someone off their back. Chronic migraines can be debilitating… but of course that's not exciting and doesn't get you a bunch of instafans.

No. 365207

>>365198

A distant acquaintance has a daughter born w/hemiplegic CP. it's not particularly severe, in that she could walk with an AFO (albeit with a pronounced limp) and would maybe use a cane every now and then.

So somehow, she got involved with Special Olympics, which is all well and good. And somehow, she crossed paths with RL. At this point, she was an 11yo who other than some tendon surgeries and having to wear an AFO was 100% ambulatory and got by just fine.

Well, after hanging out with RL, she expressed the wish to use a wheelchair because it's more comfortable. At first, the parents thought she would prefer to compete in a wheelchair, because her upper body strength is less limited than her lower body issues. But a year later, she basically kept complaining about all and sundry until her OT finally signed off on getting a wheelchair. RL offered to send her one of her used racing wheelchairs (I don't know how that works, as they're different sizes, but I'm no expert). She's now using her wheelchair full time. Her parents are heartbroken. Her docs are puzzled as this kind of loss of function just doesn't happen. She's recently started going all activist, too.

Like Brynn whatshername, Robyn Lambyrd is one of these pied pipers, encouraging the healthy and moderately sick to full time spoonie it up.

No. 365212

>>365203

Oh, no. Flattened affect and what autistics do is very different. In an autistic person, the content and the affect are both detached, flattens affect just refers to the way it is expressed.

Of course, it's never 100% so, but here's a ridiculously overdone example:

Autistic: "And so, my mother succumbed to breast cancer. She experienced a degree of pain she described as severe throughout the last weeks before expiring."

Flattened affect: "So my mother died of breast cancer. She was in unbearable, tormenting pain..

Both said in the same affect, in the second example, there is a clear detachment between the emotion that ought to be expressed and the affect through which it is expressed.

No. 365269

File: 1501694158883.png (256.62 KB, 1536x2048, IMG_2773.PNG)

This goes on forever, too much to screenshot. She is furious about the suggestion of psychiatric help.

This made me actual laugh. You are never too sick for emergency care in the UK.

No. 365277

File: 1501694410891.png (208.82 KB, 1536x2048, IMG_2774.PNG)


No. 365280

File: 1501694457346.png (223.12 KB, 1536x2048, IMG_2775.PNG)


No. 365282

File: 1501694508565.png (205.7 KB, 1536x2048, IMG_2776.PNG)


No. 365296

>>365282

"How dare you suggest I don't have the sooper cereal condishun I painstakingly picked on WebMD for ease of faking and pity points, just because you have a medical degree and more years' of practice than I have been alive?"

No. 365304

>>365282

What Chloe needs is an explanation that she is not too complicated at all, she is merely a psychiatric case, for which A&Es are not equipped. They are not psychosomatic emergency units. If she deleted her Instagram, got herself a hobby and forgot about this idea that she needs to be a super sick super spoonie fighter in order to be someone - anyone! -, she could have a life.

This way, I see this ending in three ways: fatal nosocomial infection in a line she forces one of her poor doctors to insert, suicide when she is not getting her way one day and is forced to go to a psychosomatic unit, or long term mental health dependence, where she can play Girl, Interrupted to her heart's content.

Such a loss of a life, a life born with all the privileges of health, wealth and being born in an affluent country that wastes time on her antics. In most poor countries, she'd already been doing the Thorazine shuffle.

No. 365312

Youngpeople_chronicillnesses is an example of an account that started relatively reasonably and legitimately but a lot of it has descended into big time milk. Just kind of perpetuates the whole "I'm special because of my illness" culture.

No. 365314

>>365269

I'm not a psychiatrist. I did, however, work both in an A&E and do a psych rotation specialising in psychosomatic disorders and EDs.

Despite her exaggeration, I cannot see anything, and I mean anything at all, in which her care would have fallen below the standard any patient is entitled to expect from the NHS.

She claims no doctor took her on because she was too sick for a hospital. That… doesn't happen. If somebody turned up at our A&E with space amyotrophiphylencephilococcosclerendixioma, we may be puzzled what the fuck to do with them (we are your run of the mill large urban university hospital serving a fairly diverse community), but we have a very established practice: assess, document, stabilise and prep for transfer to tertiary care (in her case, a MH specialist hospital with a PD or somatic specialist ward). Least of all would someone coming in by ambulance turned away (though from her description of symptoms, I do not see what warranted the blue light, she is either lying or herself acted like things are serious and the ambulance personnel erred on the side of caution).

That aside, she was assessed competently. She was given the A&E gold standard of diagnosis for suspected seizures. The putative diagnosis is spot on and the doctor had no other options. There are literally no conditions that would have produced seizure-like symptoms without ictal activity on the EEG (other than perhaps also making shit up!). Least of all is her expectation that A&E will somehow after seven years get her under the care of a neuro anything close to reasonable! A&E is about three things: triage, life support for those who need to go on to tertiary care and making the rest fit enough to go home and see their GP soonest. If in seven years her GP has not given her a neuro referral (during which she could have changed her GP, among others!), then there must be a reason and A&E rules exist exactly to prevent what she was trying to do.

She did, however, cost you and me quite a bit of money. Cheers, Chloe.

No. 365321

File: 1501697579169.png (294.79 KB, 750x935, IMG_1377.PNG)

she didn't get her precious button

No. 365323

File: 1501697706862.png (477.17 KB, 1854x1199, IMG_0202.PNG)

The thing I hate most about Chloe? The fucking vaccine bullshit.

There is absolutely zero proof that her illness, if any, had anything to do with her vaccine other than some temporal coincidence. But she keeps pushing against vaccines, lying and deceiving instead of admitting plain and simple that she has a mental illness that is causing her physical symptoms. But no, she has to blame the evil vaccines and hope for a big payout. Little does she know how many people she endangers. As she walks around with that stupid-ass vogmask, she of all people should understand that some people depend on herd immunity (because vogmasks don't fucking work!). I'm one of them, and I don't want to die of measles just because some mother saw this bullshit lie that Chloe is spreading to justify to herself that she has spent most of her last few years playing the sick person instead of putting up with life's challenges, and did not vaccinate her child. I also don't want that child to die or suffer pain, illness or disability. I get it, Chloe: you want someone to blame. But you're in control. It's all in your head, and the longer you blame other things, the less likely it is that you will recover. That is, if you still even want that…

No. 365334

File: 1501698559180.png (442.18 KB, 1854x1178, IMG_0204.PNG)

Different Chloe, equally full of shit. @chloeprintlambert has everything, from POTS through MCAS, but oddly, she is not allergic to the fuckload of pain medications she's taking (on virtually every photo you can see her chewing an Actiq and having her fent patch on). I mean, fine, I have a pain patch too and I sometimes have an Actiq lollipop, but I don't instagram it. It's tacky.

I used to be in two minds as to whether she really was unwell, but having followed her for years, I'm pretty sure she is full of shit. We met in person as we used to go to the same hospital for treatment. She has quite extensive self harm scars, and she and her parents threw an incredible hissy fit when it was suggested that her GI issues may be due to psychiatric problems. Initially, she had only gastroparesis and colonic inertia - to be quite honest, on her dosage of opioids and Zofran and all that, I don't think anyone wouldn't! Then someday she decided she had MCAS. Then POTS and somehow she talked her parents into buying her second-hand the wheelchair that was used by the protagonist in Me Before You. She is constantly obsessed with what new treatments she can get. When I had my Hickman sooner than she did, she was literally asking me details that would have made Sarah Silverman blush. Despite being on the NHS, her parents play the "affluent middle class pushy parent concerned about their child" stereotype so well. She knows procedure inside-out, and knows how to get her way inside the NHS, and doesn't shy away from telling doctors that. I'm pretty sure that by now there IS something physically wrong with her, given the fuckton of meds she's been taking, but I remember her in the beginning, when she just had GP and some mental issues, how she was excited by every procedure and how she was getting a kick out of getting her way inside the NHS.

No. 365350

>>363112
>Nobody said you're faking
>I know but some people have said it

What???

No. 365353

A seizure is supposed to end after 2-5 minutes max.

If you have a seizure longer than that, they will tranq you into a coma and you will will wake up with brain damage.

Psychogenic seizures are real. They can last 20 minutes and are awful and terrifying. They need treatment but they will not be helped with anticonvulsants. The anticonvulsants will trash your liver and pancreas and have awful long term side effects. The proper anxiety meds and tall therapy usually completely frees people of psychogenic seizures. Suck up your pride and save your liver!

And honestly, most people with a chronic illness are in therapy because this shit is hard to cope with. Why anyone with any chronic illness would be angry at the suggestion to seek mental health support is beyond me.

No. 365359

>>365323
Just read that post.. She's jumping on the "vaccines cause autism" wagon too even though saying she's only against the cervarix vaccine = she's full of shit

No. 365361

>>365282
Well, let's say she is vaccine injured. her health have changed rapidly over a short period of time. Wouldn't it make great sense that she's mentally distressed and therefore having psycogenic/dissociative seizures?

No. 365369

>>364524
is she the one who was on DIY SOS i know 2 people have been on DIY SOS recently with these issues one (tonia) who is genuine and a Chloe was on there too i recognise the face/name/picture

No. 365373

>>365369
Yep that's her

No. 365377

File: 1501702045734.png (66.98 KB, 200x144, trumpbird2.png)

>>365323
>I died

No. 365384

>>365207
Dumb question, can you grow out of mild CP?

No. 365385

Chloe Print Lambert recently lost a baby. I didn't realise she was pregnant!

No. 365387

>>365385
Me neither! I went back at read all her post and didn't find anything about it

No. 365394

>>365385
>>365387
How did you find out about it then? (don't samefag)

No. 365400

File: 1501703478585.png (1.08 MB, 1536x2048, IMG_2779.PNG)

>>365394

Sounds like her little one was stillborn quite early.

No. 365405

>>365394
She posted a picture of a tiny stillborn baby.

No. 365432

>>365148
Yeah I've jokingly told friends before I should train the dog to fetch us some beers. But nah I get up off my ass and get my own shit.

I just can't understand if you're not someone with a severe neurological condition or other condition which it makes it impossible to do things like put on socks or pick things up why train your sd to do shit like get a blanket. It's so much more fun to teach them to do fun stuff like play dead and balance on stuff and do the lassie pose.

No. 365439

>>365148
I find that hilarious too! she seems to spend a lot of time and energy to get that dog to fetch her things, must be way more exhausting than just organizing her home more practically

No. 365440

>>365400

That was her child?! I couldn't possibly believe someone in her medical state could conceive, never mind hope to carry it to term.

No. 365443

>>365440
She's not that ill. I don't want to criticize her too much since she just lost a baby. But she really isn't anywhere near as sick as she pretends. Read betwwwn the lines of her account and you'll see she's similar to Chloe Leanne, all drama and attention seeking. Maybe some mild real medical issues, but a fuck of a lot of psychiatric problems that she can't handle. She has an ED too.

No. 365464

>>365400
I'm assuming that she does understand the very real difference between late miscarriage and stillbirth?? Although it's largely irrelevant to the heartbreaking outcome.
Saged for gynea/obst armchairing.

No. 365472

Stillbirths aren't milk. It either happened or it didn't. It's a big deal to even totally normal people so you'd have to go pretty far before it would get milky. Shit's just sad.

Can we get back to the milk?

No. 365480

>>365432
For what some people really need a regular, normal person pet would totally suffice. But you can't take a normal pet with you everywhere and they don't fit the spoonie narrative on social media, so…

No. 365486

>>365464
In the US a stillbirth is anything past 20 weeks, she was 21 weeks.

No. 365519

File: 1501716867556.png (1.12 MB, 1536x2048, IMG_2785.PNG)

Dunno what's the deal with this chick but honestly, this photo makes me cringe. What's with all these women who have doormat men?!

No. 365520

>>365321
Dear god, seriously? She would love to go under anesthesia as much as possible. But she's not even getting it done under anesthesia, she's getting sedation, which is actually much different. First of all, sedation can be done by a nurse, while anesthesia requires (surprise!) an anesthesiologist, who is in the room and monitoring the patient constantly for any changes, and adjusting the medication as needed. Sedation is barely anything. And it turns out this particular procedure doesn't even hurt, and takes maybe ten minutes, fifteen at the most. They don't even usually bother with blood work if there's some fairly recent results on file. Oh the milk from this girl.

No. 365526

>>365519

What kind of a moron rides in a shopping cart as an adult? If you're goofing off with friends, maybe, but insisting on being pushed around the store? If you're old enough for an IG, you're way too old for that.

No. 365532

File: 1501717456782.jpg (721.96 KB, 1050x791, jackass the movie.jpg)

>>365526
>What kind of a moron rides in a shopping cart as an adult?
These legendary heroes.

No. 365536

>>365519

spoonies claim to want to be treated equally and viewed as normal
demand to be pushed around grocery stores in shopping carts

No. 365537

>>365532
Hahahaha shit at least they're doing something other than acting like a whiny toddler

No. 365544

>>365519
That would not be out of place on an ED account. Lazy cow, it's not surprising she's tired if she's starving herself.

No. 365555

>>364998

Exactly. The tube is for special sick spoonie points, and the feed is so low because then she can basically eat what she wants at the same time. Best of both worlds, and utterly despicable.

No. 365558

File: 1501719420842.png (167.09 KB, 749x1019, IMG_9652.PNG)

JBN has gotten her BUDDY BEADS!! lolol they show her sooper special "journey with chronic illness"

What a joke this girl is.

No. 365560

File: 1501719561562.png (216.27 KB, 750x1043, IMG_9653.PNG)

The text to go with above IG picture.

No. 365561

>>365558

Aw, just like all the other eight year olds out there. Too bad she's stuck in the fully functioning body (and life) of a twenty-something.

No. 365562

>>365558

This just in, Nicole: NOBODY FUCKING CARES

No. 365566

All these IG spoonie warriors just want to be little kids, don't they? No idea why. Being an adult is fun, you can choose your own bedtime and everything.

No. 365588

>>365558
Who the fuck gives her this stuff? Isn't she like 21?

No. 365592

>>365588

I believe she buys it herself. At least she has done so with the "tubie" bear which she has stated is given to children for free (because you know it is meant to help a child) but that she was able to pay for as an adult.
These beads are straight up out of a children's craft kit - might be different where she lives but the beads of courage I typically see are typically not al the super cheap plastic kid crap. Giving yourself beads for entering a pageant, "raising awareness", and donations is not a thing.
I give stickers to my 3-year old clients for a job well done in therapy. Real adults don't need stickers and prizes for every task they do.

No. 365593

>>365384
No because CP is non progressive brain damage caused when a child's brain is still developing usually happening during birth you can stay the same your entire life and never need more than basic added stuff like PT and afo's to sometimes possibly needing more interventions as you age because of the muscle issues you may just wear some of those down a bit faster than an average person. I have a friend who has CP and just now started using a walker in their late 40's after just needing afo's and a cane since like three years old and that is what they said to me. Which was bought not for a fashion excessory but so they could continue working without too much detriment to their life.

No. 365600

>>365592
Beads of courage started out as a good thing for kids with life threatening diseases but in my opinion it was a mistake to open up these programs to teens with other chronic illnesses. I first saw it happening a few years ago when almost all the teen girls in a gastroparesis support group I was in on Facebook started trying to sign up.

No. 365606

>>365600

I can't imagine what it must be like to be a parent of a small child with cancer who is actually benefiting from something like this and then seeing a bunch of instagram-loving, "spoonie" adults take over and make it all about them.

No. 365615

>>365600
The whole idea, I believe, is to help kids stay calm and tolerate painful things (for kids). Don't fight the nurse drawing blood, you get to add a bead! You're scared to go into an MRI, but when you're done you'll get a new bead! It's basically bribery, but a great idea that I totally support for kids. And if kids want to show off what they've survived through, of course, because they're kids and aren't old enough to have an ulterior motive. But even a teenager, and especially an adult, should not have to be bribed to behave at the doctors', and tolerating medical things such as an iv as an adult does not make you brave. If you're an adult, you should be able to handle a needle prick without needing a medal. Instead these spoonies have turned a great idea into another way to compete with each other over who's sicker.

No. 365617

File: 1501725085241.jpg (39.99 KB, 448x270, IMG_0501.JPG)

>>365558
Hey Nicole, they make these, too! Helpful for someone your age, judging by your recent bead order

No. 365622

>>365606

I used to have my Beads of Courage, received when I first had cancer at age 8, on my wall next to my medals from various races. When I had a recurrence aged 16, I was a bit of a surly teenager and declared I wanted none of that childish shit, much to the chagrin of the CL lady.

I just took the whole set of beads (gosh, they're heavy!), put them in a plastic bag and took the whole shit up to the attic. After seeing Nicole with her stupid beads, I couldn't bear the sight of them. Maybe someday, but not for now.

Thanks Nicole.

(Sage for blogging and no1curr)

No. 365631

CPL is a trainwreck. A few interesting factoids:

- She was obsessed with the idea of a home oxygen concentrator. She tried to get one prescribed from three different docs. All said nope as she can maintain good sats without assistance. So at one time she actually asked me to help her look for one on eBay (I use an oxygen concentrator and bottles of O2 as chemo fucked up my lungs).
- At one point, she told me and a friend of mine that she's glad she's got physical health issues because now she's being taken seriously. Wut.
- The reason she had her parents buy a powerchair? Her OT did not sign off on it, as her physio rightly said that what she needed was to move her joints to avoid them stiffening into a single position. Well, you can guess what happened.
- Around the time two relatively well known spoonies (as one has passed away, I will not give names) started using CPAP devices, she reallyreally wanted one. As I had to use one for a while she actually asked me if I would let her have mine. That… weirded me the fuck out and I'm not easy to weird out!
- She has decided, like so many with multiple health conditoins, that she has Mito, which explains everything, and that she's terminal. Boom. She loves mentioning it or hinting at it.
- She's on a stupid amount of drugs and her escalation is concerning at best. Worse, she has regularly said she would take an Actiq (she's got the 400mcg ones, I think, so pretty strong) when she's not in acute pain but is feeling emotional or upset or sad. That, in case you're not familiar with chronic pain management, is a big red flag. When her doctors wanted her to reduce her opioid use, she allegedly threatened suicide.

Yep, she's got a lot of milk. The boyfriend is another funny story but I can't be arsed for more right now. She fucked over plenty of her friends for them to provide more details!

No. 365633

Chloe Leanne aka Chloe's Chronicals is an interesting instagram. She was always very slim and has a small build. If you scroll back to the beginning, you can see. It didn't take much for her to lose a few pounds and look thinner. Also, below one of the pics of her showing off her slender body, she says something like "this isn't thinspo" which set alarm bells ringing. She definitely has an eating disorder.

No. 365636

>>365631

Did she actually get prescribed oxygen in the end or did she buy it? Also, moar milk please!!

No. 365668

>>365631
Am I remembering correctly that at one time she was claiming to be in some kind of hospice/palliative setting? Seems like she was posting something like that a few months back?

No. 365669

>>365400
It's weird because there seems to be no other mention of the child until then. It's sad, when she knows all the medication she's on that's so dangerous to try having a kid /:

No. 365670

>>365560
If everything is "countless" how does she know how many beads to put LOL

No. 365671

>>365631
So she's an addict as well as an obvious munchie. I feel sorry for her parents, as well as her poor doctors of course. How do these terrible people get so good at their manipulation?

Tell us about the boyfriend! Another enabler like Judd.

Saged for no contribution to the milk

No. 365676

>>365334


I fucking hate how her and Shelbi take pictures of their analgesics. I'm not gonna judge people who use opiates, I abused them 10+ years. It's just unsettling to see people fetishize it and think it's ok.

Just seeing this stuff gets my heart rate up. Fuck these people are dumb.

Sorry for blogging.

No. 365724

>>365560
How bored, lonely, or insane do you have to be to want to commemorate trips to the ER or being hospitalised?

It's like they want a memento from every blood test or urine sample the way kids want a souvenir from Disneyland.

No. 365749

File: 1501736318940.png (308.19 KB, 1536x2048, IMG_2787.PNG)

She's actually really rude, not to mention a medical miracle given she just said she has been dying and she's posting away.

No. 365750

File: 1501736340672.png (251.76 KB, 1536x2048, IMG_2786.PNG)

Oh and she's hilarious about what's in vaccines.

No. 365754

File: 1501736502494.png (729.76 KB, 1536x2048, IMG_2788.PNG)

Just putting this here.

No. 365771

>>365754
They probably didn't give her bile bags because she was supposed to close up her tube and try to let her gallbladder go back to normal.

No. 365787

File: 1501739755617.jpg (39.3 KB, 513x287, IMG_1583.JPG)

>>365750
Cow serum

No. 365788

If the blogposting continues as it has in this thread, it will be autosaged.
Saging does not exempt you from this rule.

No. 365798

>>365108
Looking forward to seeing your findings anon. :)

No. 365801

>>365771
Jesus fucking Christ who would rather do this shit than try to heal?!

No. 365808

File: 1501741590931.png (297.65 KB, 1237x1859, IMG_7169.PNG)

Such a try hard. Stuck a full lime in her gob, missed the point of the entire thing. Just stop lol

No. 365811

>>365808
Um, what was the point?

No. 365812

>>365811
Apologies

Bit of context "Take a bite out of lime" for Lyme awareness. You take a bite out of a lime. Not stick a full one in your mouth like you're plugging a hole

No. 365827

>>365808
Um, what was the point?

No. 365866

File: 1501746946831.png (212.91 KB, 749x1031, IMG_1581.PNG)

lol scrolled back through her account and found this. I'm assuming she's gotten over this deadly allergy?

No. 365882

>>365866

Not WKing but the daily mail is full of shit. You could say "I like ice cream" as a quote and they'd put their headline as "woman hates ice cream!"

No. 365890

>>365866
I have exercise induced anaphylaxis. It is rare. That is what this dumb broad is describing. You get physically "excited", be it through exercise, fear, anxiety, and your internal histamine levels go up. It brings on anaphylaxis. You feel hives at first and a sense of impending doom. You have plenty of warning. Take some fucking liquid benadryl and move on with life. I've lived with this since I was 12. It's no big deal really, if you know the warning signs. Grow the fuck up and take handle your shit. No drama needed. Fuck me, I cannot stand this dramacow.

No. 365892

>>365866

How was she even able to have sex with her husband then to get pregnant?

Wouldn't she have passed out 5minutes into it.

No. 365897

>>365866
I remember her from years ago
Back then she just had anorexia (pretty severely actually from what i remember) and a personality disorder diagnosis
Then suddenly it was trauma and ptsd
Then it was GP and disgestive stuff (probably a continuation of her eating disorder lets be honest)
And now its… well everything really

I fucking hate this cow for wasting so many resources. I would do a blogposty rant but no1curr and dont want to infuriate le farmhand.
Sage for rage

No. 365902

Did anyone see Chloe Leanne sperging about vaccines again? Top kek.

No. 365912

>>365902
The comments on that post (if it's the same one, bettergraces) are full of top quality munchies claiming "vaccine injuries"

No. 365922

>>365902
Another reason I can't stand this bitch. My son almost died from pertussis at 3 weeks old, before he could get vaccinated. He caught it because I lived in a town that at the time was the number one city for pertussis incidences in America. A "progressive" town in which a super high percentage of people didn't believe in vaccinating their children (I've always been pro-vaccination, my daughter was vaccinated and 2 years old at the time). My beautiful son was on the heart long bypass (ECMO) and in a coma for 2 months and then a feeding tube and oxygen for over a year. Thank God he isn't brain damaged, but he still has some lasting impairments, so yeah, fuck you for advocating against vaccination Chloe. Fuck you.

Sage(USER HAS BEEN PUT OUT TO PASTURE)

No. 365932

>>365897
Well, the personality disorder diagnosis was accurate at least.

Bitches like this wasting resources are a cancer on the NHS. At least Jaquie has to pay for some of her shit.

No. 365934

>>365912

Was at university with bettergraces. I swear, these cows follow me around.

At first, she's a somewhat shy and a little acerbic but altogether sane English student. Like, you think that you've seen worse. She's a little full of herself and fancies herself a bit of a poet, but other than that, initially, she seemed harmless.

That is, until, with time, it turned out she was a drama magnet of epic proportions. Predictably every few days or weeks, something either happened to her ('Muh chronic fateeg!'), She claims to be on her doctoral programme but is basically on indefinite compassionate medical leave. She's an incredible drama cow.

No. 365939

>>365934
kek, I went to uni with her too and if this was slightly more accurate I'd think it was a self post. Vendetta much?

I found her account a couple of months ago after not talking to her for years. She can be OTT and her captions are dumb, but she talks about being on medical leave.

Sage for being fucking boring

No. 365953

>>365754

Ohhh my god that legit triggered my gag reflex. I had to scroll away in order to stop from dry heaving.

Hworf

No. 365956

>>365953
It's licensed self hrm for her.

No. 365958

File: 1501768674070.png (152.7 KB, 474x437, wtfmorgan.png)

Morgan McCastor, the munchie who had been applying for hospice care for her sooper srs gastro?EDS/undiagnosed illnesses, is following the suit of cows with eating and personality disorders.

Boohoo my doctors won't pay attention to me, time to eat my feelings in greasy fast food. Featured Morgan's massive amount of fries and fried chicken.

Link here: https://www.facebook.com/morgansmedicaljournal/

No. 365960

File: 1501768931641.png (590.29 KB, 1060x675, wtfmorgan3.png)

>>365958

Dmmt wrong pic. Right pic now attached.

No. 365965

>>365960
The meal of a woman on death's door.

No. 365966

>>365965
>>365960
Be nice to the poor dying munchie, it might be her last meal

No. 365976

>>365958
Who goes to the er for a "spot under her arm"?? I'm surprised they weren't laughed out of there.

No. 365977

>>365960
Sooper serious GP, you say? Better have some of the worst possible foods for that! Does she not realize that EDS is not fatal? (Okay, in the rare case of someone having vEDS, yes, but she definitely doesn't). What a moron

No. 366001


No. 366003

>>365334
You are all vile bullies. I know chloe print-lambert personally and what you are saying couldn't be further from the truth.

I have a question to ask, what do you gain out of this? It baffles me. You are cyber bullying and it's horrible.
All I'm saying is STOP you wouldn't like it if it was the other way round.
You obviously all admire chloe as you are spending your time talking about her.
If you don't like her, then fine we can't all get on with everyone. What I don't agree with and will not stand for is the bullying and bullshit you are all saying..

I suggest it stops and you all get on with YOUR pathetic lives(USER HAS BEEN PUT OUT TO PASTURE)

No. 366006

>>366003
Oh shut the fuck up, you whiny cunt.

No. 366007

>>366006
Do you know me? I think not(USER HAS BEEN PUT OUT TO PASTURE)

No. 366008

>>366007
Don't want to, but you seem like a cow as well or you're her. Either way, take yo fake medical condition elsewhere you cow.

No. 366010

>>366008
Well my name is chloe PAISH, not print-lambert. So I am not her. I know her very well though. I don't actually have a physical medical condition so…

No. 366012

>>366010
You probably do, being dropped on your head so much as a child has clearly done some damage to that tiny brain of yours. You don't sound too bright, did your dad touch you? ;^( awh

No. 366013

>>366010
No one cares

No. 366014

>>366012
Original

No. 366016

>>366014
Original

No. 366024

Oh gosh, this stuff is literally nothing but laughable. The time people chose to attack is when I have just lost my baby that I have fought tooth and nail to carry? Shows what kind of person they are not me ?

I don't know who this person is who apparent knows me but they sure do chat a lot of shit ? Not even going to waste my breathe there!

The NHS paid towards my chair, like most that need specialised seating, you get a voucher and pay the difference I was lucky the difference was charity funded.

I am on medication, I don't care what people think of that. I don't care about hiding it or not. I've come bloody far in the last couple years learning how to deal with my condition, push boundaries safety and I have had a purpose build space to learn indepence if you want to act like a jealous brat that's fine but seriously, it only makes one of us look utterly ridiculous and it's certainly not me…..

I have mastocytosis and my enteric plexitis (people mistake that for MCAD for some reason)diagnosed via biopsy, I have oxygen prescribed by oxygen services from respiratory consultant. I don't know where the apparent mito thing came from I've never mentioned that and certainly don't have it. I have addisons yes I'm dependant on steroids, I have fentanyl they are 200 not 400 if you must know but why do you give a shit? I'm on TPN and IV meds prescribed by consultants. I don't need help knowing how to get anything- I need enough that I would rather live without.

Jealousy is so ugly.

Right now I need to focus on my little girls funeral. It's up to me and Jordan if we feel the risk is worth it. Sex would kill me? Get a grip. If you are low life enough to make such accusations knowing that my little girl came into the world passed on, then you are not worth my time or explanation. Emma was on the cuff of weeks, legally that is one week off being viable. One week and she would've had a chance so of course I am going to be grieving her as my baby, my little girl. I shouldn't even be giving you my time of day. You can talk about me but whoever is sick and sad enough to speak about my baby and my partner- I pity you and the sad life you live.

Find something to do with your time that doesn't make you look like a judgemental group of low lives.(USER HAS BEEN PUT OUT TO PASTURE)

No. 366026

>>366024
You don't need to attach your email address to your posts.

No. 366027

>>366024

No one here is jealous. I don't know what would ever give you that impression.

No. 366039

I've got to be honest I really don't think Chloe (print lambert) deserves to be here. I agree with a lot of the comments bought up about members of the spoonie community who take it to far (JBN) and some who are likely almost entirely facticuous (KR) but I don't think Chloe falls into either of those categories. She makes the best of her difficult situation and doesn't spend her whole life talking about illness, despite its obvious massive effect on her. Not to mention her recent awful loss. All of the acccusations against her seem like personal vendettas to me, nothing she actually posted is milky. Come one, just move on to someone who actually is causing problems and let the poor girl grieve.(incessant whiteknighting)

No. 366040

>>366024

Most people recognise that your loss is tragic and sad and not to be discussed in a negative way. It was your "friend" who talked about the health stuff.

No. 366041

>>366039
Agree. There's lot of munchies out there, but honestly i have no reason to doubt chloe. Call me a whiteknight, whatever, but that's just my opinion.

No. 366042

It disgusts me that CPL would try to bring a child into this world if she's supposedly so medically fragile. No child deserves to see their mother in so much pain.

No. 366045

>>366039
I disagree that she isn't milky, she definitely exploits her illness.

But

You're right about the timing. She should be left alone to grieve.

No. 366047

>>366042
Completely disagree, she has just as much a right to have a child as anyone else. As does her partner.
Also, this board is for discussion of munchies, not discussion of ethics of pregnancy. Get back to the point

No. 366050

Chloe is not like someone like Jacquie who is actually full on fake munchie or the one who rides around in a grocery cart.

No. 366051

>>366041
Also agreed. Chloe Leanne on the other hand is definitely munchie

No. 366055

>>366051
Full munchie. Her reaction to the poor doctors' very sensible suggestion of psych treatment says it all. Any normal ill person would welcome the support.

No. 366057

>>366047
No, it's horrid. A woman who is allergic to her feelings and in as terrible shape as Chloe Prints-Lambert has absolutely no business bringing a child into this world. It was a selfish decision.

No. 366061

>>366057
The allergic to feelings bullshit wasn't COL. It was glamorisation by the daily mail

No. 366068

Nobody think it's kinda weird to put up pics of your dead baby on Instagram? I know people grieve in different ways and having the pics help some people to memorize it and move on but jeez, do you have to it up on the internet? Is this something usually done on Instagram?

No. 366069

>>366068
Stillbirth is not the topic of this thread. Move on.

No. 366077

>>366069
babyfag plz go

>>366068
It's completely weird. Nobody wants to look at pictures of dead babies.

No. 366082

File: 1501785770311.png (1.05 MB, 1366x768, Screenshot (51).png)

>>365520
>>365321
so another meal for jaquie who apparently is so malnourished she needs a feeding tube

No. 366084

>>366077
More importantly no one ones to have a stillborn. Not our place to judge how that's dealt with by the individual

No. 366085

File: 1501786017151.jpg (460.77 KB, 2048x2048, B584FA09-58C7-47D3-915D-0EE71A…)

So moving back into actually munchies Jacquie stop eating shit food I promise it will help your stomach and god the way her face fucking lights up about feeding tubes and infusions

No. 366096

>>366082

I swear she just wants the GJ so she can purge. I also still fully believe she eats when Judd isn't around.

No. 366100

File: 1501787511847.jpg (191.25 KB, 1080x967, Screenshot_20170803-141018.jpg)

Has anyone look at Christina/watercolor_me_impressed?

I can't decide if I think she's 100% legit, or an OTT.

No. 366103

>>366100
Think she's fairly legit, certainly not full munchie

No. 366104

>>366100
legit in my opinion, i don't see anything super milky

No. 366105

>>366100
pretty sure she is legit tbh

No. 366106

>>366100
She's an adult who flaunts being a "tubie" so my guess is she's an OTT. I hope they didn't do a load of surgeries on her if it's all munchausen's. She probably has a few real issues but is exaggerating them. I think it's possible that a lot of the bigger accounts like Jacquie, WMI and CPL do have mild real problems but they blow them up into fantasies that don't exist. There are less who are totally munchie.

No. 366107

>>366106
Does the tubie part makes her a munchie? lol
I get that it can be seen as "childish", but i guess it's also a way of making it bareable

No. 366110

>>366106
CPL not a real munchie, slightly OTT at most. Chloe Leanne on the other hand is definitely munchie

No. 366112

>>366107
It doesn't make her a munchie. But it's childish and part of the whole infantilizing thing that the more dramatic and stupid spoonies are into. She's an adult woman like Jacquie is but they all want to live like little girls. Never said she was a munchie, but she should stop with the tubie shit. It's nothing to show off about. No1curr if you have a tube.

No. 366114

>>366112
I get you're saying but she doesn't seem childish like nicole or jacquie

No. 366115

>>366096

If she keeps eating junk, she won't be able to purge through the G tube part. It will get blocked. It's not meant to drain the amount she consumes.

No. 366116

>>366110
Ha you're forgetting that CPL started out as an average teen with basic mental health problems like an eating disorder. I used to follow her in those days. She's moved onto something that meets her need for attention more, that's all. She may have some legit issues but it's nowhere near the level of drama she claims.

Agreed that Chloe Leanne is full on munchie though.

No. 366129

>>366100
While she may be a little OTT she's most likely legit. She's doing something a lot of people like Jacquie doesn't do, actually works at doing PT and OT for her conditions and seems to have gotten better.

No. 366130

File: 1501790592916.png (212.03 KB, 1242x1345, IMG_4057.PNG)

Not an Instagram spoonie but I just wanted to point out that even the Ehlers Danlos Society- the top organization for EDS- encourages this kind of milky behavior by saying things like this. Instagram is full of spoonies who see themselves as an injured, damaged, neglected community and the top spokespeople for EDS just ag it on.

No. 366134

>>366130
Lara is a huge narcissist who revels in that damaged narrative. She presumably does have EDS but loads of the blame for the shitty #spoonie EDS environment is hers. At this point she isn't helping anyone.

No. 366136

>>366134
Saged for samefagging but I've also met her and she is so fucking full of herself, thinks she's god's gift to EDS. I'm surprised she isn't selling shirts like Jaq.

No. 366143

>>366130
The whole EDS fb community is full of itself. Yes sure it's hard to diagnose and doctors miss shit all the time but if you've seen five plus doctors who are all just no you're just hyper mobile or no all the tests came back no time to stop.

No. 366148

>>366143
Well i've seen 10+ doctors with no one having a clue what was wrong until finally someone connected the dots and i was diagnosed

Sure a lot of these munchies go doctor shopping to get their sooper serioos EDS diagnosis, but you can't ignore the fact that many doctors simply do not know about this disease

sage for somewhat blogging i guess

No. 366177

>>366148
You mean you doctor shopped until you found one that fit your personal narrative.

LOL. You belong on this thread. What's your ig/twitter/tumblr?

No. 366178

Any updates on endlessvoices? She's my fave.

No. 366191

>>366177
nah not really, i was referred to doctor after doctor because they couldn't seem to figure it out

Plot twist: people with EDS who are not munchies exist

No. 366242

>>366201
Don't post your diary or feed trolls plz.

No. 366251

File: 1501803596329.png (200.38 KB, 750x1108, IMG_1925.PNG)

I thought that charities like Make a Wish and Dreams Come True were for people who are Terminally ill or have life limiting illnesses? At least in the US I believe they are …

No. 366253

File: 1501803938748.png (170.04 KB, 750x1098, IMG_1928.PNG)

>>366178
She posts today how she is in a gp flare and can keep nothing down, then next post was she was going to the store for ice cream sundae supplies bcuZ she had an urge for icecream

No. 366254

File: 1501804006511.png (134.64 KB, 750x1073, IMG_1927.PNG)

>>366178
Her post almost immediately after the "I'm in a flare" post

No. 366258

>>366254
Please tell me she's being called out in the comments. She flips the fuck out and turns her defenses up to 11 every time.

No. 366269

>>366251
She watches Casualty? That's basically the equivalent of a munchie saying they watch Gray's! Pretty much proves they have an obsession with the medical field. An obsession that goes beyond being interested from a distance.

No. 366273

File: 1501806522570.jpeg (229.79 KB, 1241x1944, image.jpeg)


No. 366281

>>362479
Idk if people have seen this or if it's relevant but since Kadee Konstantino was a professional munchie, look at this.

http://www.thehour.com/news/article/Woman-charged-with-manslaughter-in-drug-overdose-11152517.php

No. 366306

>>366281
It won't let me read it without taking some survey.

No. 366308

>>366306
i thought that, but there is an option to skip the survey if memory serves me right its in one of the bottom corners of the box ?

No. 366313

>>365960

she vapes? that's a nicotine vape on the chair arm. kek

No. 366319

File: 1501815506028.jpg (376.61 KB, 1489x2598, kadee1.jpg)

>>366281
Holy sheet. I knew answers would arrive in time but what a sad way to go for Kadee.

No. 366320

File: 1501815604285.jpg (549.41 KB, 1525x2440, kadee2.jpg)

>>366319
part 2

No. 366321

>>366319
>>366320
some cunt cleaning your death scene before the police come. awful.

No. 366325

>>366321
I mean I couldnt stand Kadee but that's a horrible way to go. she still deserved to have help called immediately, goddamn.

No. 366326

>>366325
Yes, so lonely. And heroin addicts are so fucking predatory, they love to introduce people to it because they can take a cut or some money for a while. It's not like Kadee was a seasoned user. I guess the theory about her abusing pills in the past was true if she ended up at NA.

No. 366327

File: 1501816322562.jpg (647.15 KB, 2219x1079, Screenshot_20170803-220306.jpg)

Jaquie's mom moved in with them to help.

No. 366338

>>366327
So much milk to come then her mom seems like a super dramatic enabler.

No. 366380

>>366325
>>366321
>>366320
>>366319
>>366281
C'mon fam, this is really, really old news, and I thought we had agreed to let everything remotely related to Kadee not to be discussed. Let the dead rest in peace. If you must discuss it do it somewhere else, please. I know that Kadee is tangentially related to this thread because she was a Munchie, however, she is dead. Let discussion of her be dead as well.

No. 366397

Did anyone notice Jacquie and her family were planning on "celebrating" her GJ tube button by having Italian takeaway? I swear she's trolling us.

No. 366398

is she still seeing dr parkman for stuff? i feel like him or his PA would have caught on by now…..

No. 366404

>>366380
I'm the one who posted the screenshots, I'd thought I'd caught up with the Kadee story as told on here but obviously not? I can see that the article is from May but her thread's been locked.

No. 366424

>>366251

She fucking went to the set of Casualty.

Doesn't that ring ANY bells to ANYONE? Hello, Mr Psych Consultant, are you asleep at the goddamned wheel? Your patient with mysteriously severe ongoing health issues uses her Victimhood Free Trip to go to the set of a hospital drama.

If that doesn't fucking scream Munchie, I don't know what she needs to do.

No. 366427

>>366327

I'm gonna be an asshole for a moment.

Among the things they teach you at med school are something called the 'indicae of malnutrition'. Such as: the ring/bracelet gap (losing so much weight that rings/bracelets that used to fit now are loose and leave a gap), prominent cheekbones (as the fat surrounding them dissipates), the triangle formed by the sternocleidomastoids and the suprasternal notch protruding…. I don't want to call Jaqui fat, she's normal for her range and age and gender, but anyone who would credibly deem her malnourished and give her a tube before trying other interventions is a moron. The question you ask yourself before all of these things is whether the patient has enough of a reserve to endure trying liquid nutrition (Ensure) etc. for a few weeks, +/- meds like MCP. But no, she straight got her surgical G/J. And what's more retarded, not long after she got her button. Buttons are expensive and they have to be sized for stoma length, which is why they're given only once weight has stabilised.

Jesus.

No. 366436

>>366427

Not asshole at all, just honest. We can all see it. She's not fat, she's slim and looks healthy. Malnourished people don't look like she does; her hair and skin are also a big giveaway. Oh and the fact that she can eat whenever it suits her!!

No. 366453

>>366427

This is why Jacquie fucking mystifies me. It could be that my experience was being in a college health clinic rather than a traditional GP setting, but after I lost 10% of my body weight in a month, and I showed all the signs you pointed out, the doc prescribed me some antibiotics and said losing weight when you're sick is normal.

So at least in my experience, even if the signs are recognized, docs aren't keen on pumping a body full of nutrients that will recover on its own. So it more or less shows how aggressively Jacquie pursues this whole "get me a tube" angle.

Just like Nicole, for that matter. It's like they recognize they're missing something that should be filling/fulfilling, and their brain subconsciously fills in the gap by being like "Food?" So they identify this gaping hole of neediness, and try to fill that hole with medical props and liquid food.

No. 366457

It's like the psych pt from hell: Axis II + ED{NOS|AN} + FII.

God save whoever will have to deal with these fuckups someday.

No. 366461

>>366453

At a college health clinic, the population is seen as having more risk factors. So it would be more, not less, likely for you to get at the very least an upper GI series and an up and down with the magic snake. There are telltale signs of ED in the GI system that we ca. Identify pretty easily with a single scope, and so it has become pretty common to send anyone with suspicious weight loss for bloods to check the actual level of malnutrition (A/G ratio and, to an extent, HbA1c, are much more telling than weight or weight loss - in and of itself, weight loss is not a problem, the problems are either the things that cause it (ED, serious illness, etc.) or the things it causes (lack of nutrients, various hyposomethingorelseosis syndromes - would you believe I saw my first and hitherto last case of beriberi at an affluent elite university campus's surgery?). So really, the whole thing stinks of parental + Jaqui pressure, and knowing what the right things to utter are. I would not be shocked if Jaqui had a close female relative who is either a doctor or had a PEG/J (we give them away pretty liberally for cancer these days as food shoved in the jejunum will usually stay the fuck there, no matter how nauseous or sick your chemo makes your area postrema).

No. 366463

File: 1501850784526.png (582.01 KB, 813x601, wtfnicole.png)

"Allows me to be myself"– an attention whore?

Yeah, sounds about right. At least Nicole realizes she likes to be the center of attention. You know, for a bitch that apparently got bullied for her weight in school, she sure bounced back VERY quickly and has no problem with a bunch of strangers oggling her on a stage for the merits of her beauty, especially when stacked against more traditionally attractive girls.

She's so fucking weird. Is joining pageants trying to overcompensate for the negative attention she got in school? Like sort of sticking it to her former bullies?

Though, tbh at this point I wouldn't be surprised if the bully thing was a load of shit. She could be lying about it to justify doing pageants.

No. 366464

>>366463
she writes like a 3 year old with no motor skills

No. 366465

>>366463

PAGAENTS

No. 366492

>>366463

I've seen this handwriting before. It's even got a name I forgot, because it's so widespread in neurology assessments (fellow medfags, pray, help me out). It happens when a person is trying to simulate a motor dysfunction, a demyelinating disorder or, in recent EDS-ridden years, weak joints. The problem is that that's not how your handwriting in those cases would actually look. She's like the people who are asked to draw a clock face and draw a squirrel or some shit, or number the clock dial with random digits. Nope, not how it works.

No. 366494

>>366463

The tube returns and suddenly her self esteem returns as well? (Also, why is she always in her pajamas in these "appearance " photos?)

No. 366497

File: 1501858711603.png (1.06 MB, 1080x1189, Screenshot_20170804-155711_01.…)

>>366492
Wouldn't the bad handwriting be due to her essential tremor?

No. 366499

File: 1501858836297.png (653.55 KB, 1366x768, Screenshot (54).png)

>>366397
she is eating more ice cream

No. 366502

>>366499
why does she need a tube?

No. 366506

>>366497

That handwriting is pretty far from essential tremor. Look how straight the straight lines are… it's the shape of things that's off. Like someone using their non-dominant hand to pretend they've got some neurological impairment.

No. 366512

>>366502
For attention.

No. 366544

>>366463
She's the god dam bully that goes around bullying people not the other way around.

No. 366547

>>366499

Her poor mother has moved closer to be her second slave when Judd is not there.

No. 366549

>>366506
It's like the dyslexic post where just middle letters were back to front- that's not dyslexia.. Can't post photo as profile now private

No. 366561

>>366463
Legit looks like meet new >fiends..

It's I before E except after C… or angling to add non-typical dyslexia instead of just stupidity to your ever growing list?

Her handwriting only looks atypical to most non UK residents, sadly this is pretty much how all under 25's write it's supposed to look cute but just looks shit and you know there was at least 5 attempts prior to THIS perfect one…[during the last decade presentation and spelling haven't classed as indicative of intelligence, hence the global embarrassment of our pisa scores]. Millenials here are thick as fuck, if it can't be copy/pasted they're they can't be arsed.
Sage for education rage.

No. 366576

>>366547
Yeah don't feel sorry for her mom I'm pretty sure she's a classic mbp/enabler because if you watch the videos she's very oh the best for my baby in the dramatic ott kinda way.

No. 366637

File: 1501879124230.png (133.59 KB, 738x934, IMG_1583.PNG)

She has such a proud look in this picture like look at me with all my new attachments

No. 366638

File: 1501879248852.png (282.13 KB, 750x1087, IMG_1584.PNG)

Caption that went with the above. The cut off part was asking about calories, says she's dependent on tube feeds, and is at risk for refeeding syndrome. She's also asking what the symptoms are of refeeding syndrome…

No. 366640

>>366463

She was in one pageant - that she got in for by applying online! But she is milking that one for all its worth. She wants people to tell her how strong and brave she is for doing a pageant in her "condition". My guess is that she always wanted to be in a pageant but knew that she was too average to have any success. Now when she doesn't win she can justify it because she has the tube while still trying to score points for doing the pageant with the nose hose (as evidenced by the multiple media articles she did about it).
I half suspect that she wanted the tube put back in because she kept going on about having a family/friend (I don't remember which) wedding to attend in a couple of weeks. Other people her age have jobs, lives, school, etc… so I bet she thinks the tube will get her off the hook for having to answer those questions and bring more attention to her.

No. 366643

File: 1501879835657.png (260.17 KB, 750x865, IMG_1585.PNG)

Just going back through old posts I never saw now and noticed this dislocations thing seems a bit ott LOL. They don't really move you that much for an endoscopy…

No. 366645

File: 1501880768053.png (267.87 KB, 750x1065, IMG_1586.PNG)

And throwback to her first IG post. She has no specialists but had an EDS diagnosis? Going through her account is like seeing MBI developing. obv she has some health issues but it seems she's turning it into something else to fit in with all the IG spoonies

No. 366647

File: 1501880828309.png (105.84 KB, 588x537, IMG_2338.PNG)

>>366494
Looking through old JBN posts and thought some of the pics JBN posts are similar!

No. 366648

File: 1501880876309.png (119.41 KB, 637x664, IMG_2337.PNG)


No. 366657

>>366637

Ugh she has a vog mask too?! Wtf?!

No. 366681

>>366637

Bless her, she doesn't look like she's suffering from or at risk of refeeding syndrome lol.

No. 366698

File: 1501885218618.png (1.05 MB, 1440x2560, Screenshot_20170804-151023.png)

Oh gahhhhh, Jacquie's 'about me' video is horrible, I have Narcolepsy (amoung other ailments) and I would never explain it the way she does. WTF. I had to stop watching before I lost brain cells… (picture 1)

No. 366701

File: 1501885329164.png (472.91 KB, 1440x2560, Screenshot_20170804-151014.png)

CJ picture 2

No. 366723

>>366638
2:26 Warrior beads for glasses/contact lenses! Whatever next?!

No. 366728

>>366701
for someone who loves to fake illnesses she should know it's not ehlers-danlos III anymore it's hypermobility type.

No. 366737

>>366723
Does she have a bead for every bump and scrape she gets? Save up for a special one to commemorate a dental checkup?
How over excited and obsessed can she get? 'Ohh I'm such a chronic fighter I got my glasses prescription updated cause I'm a survivor! Here's the prize I got for being in a dentist waiting room. All the staff wanted pictures with me because I'm so chronically special'

No. 366739

>>366497
The fuck is brittle asthma? Essential tremor is literally just being a bit shaky, half the world takes daily tablets, and how do you have epilepsy and non-epileptic seizures at the same time?

No. 366745

>>366739
brittle asthma is basically where you either have attacks very regularly and are very poorly controlled (type 1). Or you have life threatening attacks that can and often do result in admission to ICU/HDU or require intubation or other kinds of ventilation like CPAP (type 2).

No. 366750

File: 1501890060106.png (1 MB, 750x1334, IMG_6461.PNG)

New munchie from where I live! Found her while typing in the word "chronically" to show my friend how many people base their identity around an illness.

Anyhoo she likes to have her mum take heaps of photos of her in hospital, and for some reason she is grinning like a Cheshire Cat in every photo (1/2)

No. 366751

File: 1501890161278.png (766.37 KB, 750x1334, IMG_6458.PNG)

>>366750
Grinning her head off despite being in the emergency department. Super speshal might need an NG tube in a few days if she can just pretend not to eat her special purée diet for a few days longer…

No. 366759

>>366750
Orthostatic hypotension is part of POTS. But let's list as many things as possible! Moar sooper speschel sick!

No. 366762

>>366643

Yeah that's not how EDS works. Partial dislocations, maybe, but a full dislocation hurts enough that you'd wake up after the first one, and full dislocations are rarer than these spoonies claim. If she's getting that many dislocations, she'd be in intensive physical therapy multiple times a week. Nothing about her story makes sense at all.

No. 366764

>>366760

Go blog elsewhere

No. 366765

>>366760
Could we get some more of your journal there anon? Your personal anecdotes are so relevant and interesting and there was no possible way to explain your point without making it about yourself so please, share some more.

No. 366773

>>366762
In most cases what Instagram spoonies describe as dislocations are actually very likely subluxations. Still painful but not a fraction of what a full dislocation is like.

No. 366782

>>366701
Omg…table of contents?!? Seriously!! Quite the list she has going…

No. 366799

>>366723

Clearly she has made all these up and bought a set of little kid plastic beads and then sorted them out.
Half of these beads would be "earned" for the same thing - she would have given herself a bead for nil by mouth before a procedure, having whatever procedure, being in the hospital, missing work - hell one doctor visit can "earn" her up to 3-4 beads at a time. Beads for contacts/glasses - like a good percentage of the population has and nobody considers debilitating.
Even kids with terminal cancer don't get a bead for most of this stuff. Does she get a bead for washing her hands after using the bathroom too?

No. 366806

>>366799

God she's fucked up a cute idea for kids so, so badly. And there are actual "beads of courage" that parents send away for, that are a lot nicer and have real meaning, unlike Nicole's shit

No. 366812

File: 1501896838278.png (4.09 MB, 2048x1536, IMG_7359.PNG)

>>366799
The official website for the Beads of Courage program (which uses artist-made glass beads, not cheap plastic crap) specifically says it's for CHILDREN. Not attention-whore adults.

No. 366814

>>366812

And the beads are actually given to the child by a healthcare professional, not doled out for just anything by the patient for themselves. The real story always makes her more pathetic.

No. 366824

>>366762
dislocating is the most miserable shit. i can guarantee that that photo she posted is not the face of someone who has had even one dislocation, let alone multiple.

>yes im fucking mad

No. 366828

>>365676 OT but how did you quit? That shit is hard af.

No. 366840

File: 1501902944560.png (3.74 MB, 1242x2208, IMG_1517.PNG)

>>366799
Actually the pictured plastic beads upthread are from 1boy4change and you fill out a form and you get beads sent to you

No. 366848

File: 1501905266662.png (397.36 KB, 1536x2048, IMG_2805.PNG)

Takes enough opiates to manage pain in an elephant and then complains GI tract is slow. No shit.

No. 366851

>>366840

I wouldn't be surprised if she was just copying his idea and then adding to it. I checked out his order form and there are no clear beads listed for glasses/contacts or missing a day of work/school.
Although I kind of hope she just stole his framework and made her own since it seems like such a waste to make him pay international shipping on something that can be found at any store that sells children's craft supplies.

No. 366852

>>366828

Not that anon but I quit benzos and opiates by smoking pot. I feel like a lot of these spoonies are fucking nuts using these fent patches like it's nothing. Shit is addictive and they are so young to be on hardcore painkillers for really nothing..

No. 366855

File: 1501906340500.png (345.55 KB, 1536x2048, IMG_2806.PNG)

I was also scrolling through IG to look at the "chronically" ones and found this. Basically, advertising their munchie - recovering from builimia but needs toobz to purge <cough> I mean eat. Bullshit.

No. 366856

>>366855

Sage for samefagging but shoulda added…which mental case doctor put a draining G tube in someone who calls themselves a recovering bulimic?!

No. 366864

File: 1501908505798.jpg (335.94 KB, 1396x1536, IMG_2809.JPG)

Guess who's jumped on the gastroparesis spoonie bandwagon?

No. 366865

File: 1501908532622.jpg (289.38 KB, 1242x1300, IMG_2810.JPG)

Babybear!!!!!

No. 366869

>>366865
Why the fuck is babybear wearing a helmet like a retarded kid?

No. 366871

>>366848
Lol yeah wonder if she ever thought maybe that's why her GI stopped all other meds

No. 366876

File: 1501912608815.png (171.78 KB, 750x1082, IMG_1590.PNG)

…and a new munchie was born.

She even got a vog mask!

No. 366878

File: 1501912723531.png (181.34 KB, 750x1043, IMG_1589.PNG)

Gotta celebrate that eds "diagnosis"

No. 366905

Legit question for any Munchies lurking… How the fuck are you unable to spell words such as friends/excruciating or differentiate between there and their yet manage to spell every overly complex word/illness grays anatomy ever printed and every pharma listed in PDR's everywhere???
Saged for overthinking.

No. 366918

>>366643

I have scoped a lot of fragile people, and I'm not even a decent endoscopist, never mind any good. You can scope a tied down person, without needing to move them collaboratively at all (don't ask me how I know this, but working in a jail where people are a little nuts and have a propensity to swallowing things that we then need to at least visualize in two methodologies according to jail rules, so it's either scope + X-ray or x-ray + CT…). There is no conceivable way anyone competent enough to be allowed to handle a scope would dislocate multiple limbs in a regular upper scope.

Bull. Fucking. Shit.

No. 366920

>>366905

The same way I have never misspelt oesophagogastroduodenoscopy but the other day wrote 'shitfing' instead of 'shifting' multiple times in an email. Very embarrassing. And I can't spell 'differential' for the life of me (thanks spellcheck!). The words you use most or the words you know you need most are going to be the ones that you will remember best. Munchies think that if they speak 'our languague', they'll be taken more seriously. That might even, rarely, be the case - if an adult says 'RUQ pain, intermittent, for about 3 days - Dr Anon, could we please have an ERCP?' I'm more likely to believe this is because the patient is a healthcare practitioner who knows what they're talking about (though for legal reasons I normally run their name and if I don't see them qualified as a doctor, nurse or AHP, it's a biiiiiiiig red flag and no ERCP for you!). But when a 16-year-old lists me the indications for a PEG well enough to pass FRCP, I WILL ask what the fuck is going on. Sometimes it's totally innocuous (kids who have been whisk for a long time, such as young people with cancer, have had to grow up very fast and gained an understanding of what is happening), but often it's a sign of advanced Munchies.

No. 366921

>>366876

Top news: your cardio is shit.

Making a diagnosis in a complex pt based on HPC alone is career suicide. "I get dizzy spells when I stand up" + clear echo and ecg has a much too large differential to conclude it's POTS, and some of that differential might actually be harmed by typical treatments for POTS like Florinef.

Moooooron.

No. 366922

>>366865

Who the fuck is this person and why is s/he wearing a tard helmet?

No. 366923

>>366865
Oh god jonzie didn't stop. She's probably got the helmet because it lets everyone know she's special.
Realistically, jonzie has probably claimed some rare seizure disorder or the rarest and hardest to treat form of epilepsy. She claimed more diseases than the others combined and manipulates her 'mummy' into taking her to emergency every twenty minutes, pushing her around in a shopping cart whilst she posts about wishing she had a stroller, and having someone take photos of her more often than Aly the emoji worrier.

No. 366924

>>366762

Never mind that a dislocated hip, no matter how frequent it is, is a medical emergency requiring reduction and imaging within, ideally, no more than 6 hours from the incident. The reason is that if the hip dislocates, something called aseptic avascular necrosis of the femoral head can set in, which means the femoral head will slowly start to die and need to be replaced (THR) a couple of years down the road.

No. 366928

>>366924

And yet, on every EDS Facebook page and IG munchie account. they are forever dislocating heir hips. I mean, some of them definitely sublux their hips but most of them are bullshitting. Same with "dislocating" their jaws.

No. 366934

>>366920
My achillies tendinopathy is definately/definitely (ha see what I did there..) istg that's my blur word, never have I hated a set of letters so vehemently, Ughh I completely understand the context of earned knowledge as opposed to learned knowledge, I'd never thought if it that way tbh, it just bugs me throughout these munch threads coz I'm petty as fuck.
Saged for medical vs educational literacy feelz.(USER HAS BEEN PUT OUT TO PASTURE)

No. 366935

>>366922
I think you answered your own question there anon…

No. 366936

File: 1501928736281.png (250.81 KB, 1536x2048, IMG_2811.PNG)

Happy birthday, Chloe. Shame you didn't feel you couldn't spend ages listing every single health problem you have. Life's too fucking short, love. You're only 19. Whole big world out there if you let it be…..

No. 366938

>>366865

Jonzie is back! How I missed that milk. Please post more!

I don't know too many adults without serious cognitive disabilities that go around wearing epilepsy helmets. And it seems like commenters are already trying to call her out on her lies - of course she tries to say she only sees a pediatric GI. The doctors gave her IV Keppra because she was past due for her nightly dose?

No. 366945

>>366938

That's all I could find, sorry! I'll keep looking. She's my favorite cow.

Those helmets are usually used for children and some adults with very severe epilepsy, so severe that they would not be able to use social media in the way that babybear can. It's all bullshit.

She's still going to the ER all the fucking time. Waste of time and resources.

No. 366947

>>366865
OMG! Has she just gotten back online? It's been months, fill us in fam!

No. 366951

>>366851
There used to be an option for several other things. He had dropped the program a few years ago because he went on to do more productive stuff like make kits for police dogs and other stuff. Tbh I think he was sick of all the adults in the program when he originally made it for kids that weren't in an area for warrior beads. But the person he passed it too never filled any of the orders and everyone cried about it so he's doing it again.

No. 366954

>>366876
What a shitty cardiologist seeing as there are a ton of different dysautonimias that cause similar symptoms that it would be counter productive to use POTS treatments on and could do some real harm. Which is why always a tilt table test.

No. 366955

Isn't it funny how when we all move on from talking about someone, their friends come by and ramp up the drama again. With friends like that, who needs enemies?

As for Jonzie, I laughed so much at helmet. I guess she's too precious to do what the rest of them do and get a big mask. It's cause she's spent too much time at a children's hospital. I predict a feeding tube in her very near future.

No. 366956

>>366955

vog mask not big mask!

Sage

No. 366960

>>366928
this rubbed me the wrong way, as someone with eds i can 100% confirm that joints dislocating partially and fully multiple times a day, can and does happen but only in severe forms of eds, as in there is literally no collagen holding the bones in place, and when it gets to that point operations are offered; take it or leave it you're fucked and in pain anyway.
buuuuut of course the munchies sit there saying "OMFGFIGHGJFD I DSILCOCATED MAH RIBZ AND MAH JAW AT TEH SAME TYM"
that shit pisses me off. i'm half tempted to go on a blogpost rant, but that'd make me no better than them.
lets just say if anyone claims eds, i dont believe them unless they've visibly got dislocated joints, or displaced hips in their walk, putting yourself in flexible poses does not mean EDS at all, someone with EDS would not be stupid enough to purposely hyperextend thier joints like that.

No. 366964

>>366918

Clearly you haven't heard of the new endoscopy wrestling championship, where the patient and the endoscopist have to fight for the upper position, and whoever gets the dominant position and dislocates the maximum number of joints of the other person wins.

No. 366976

File: 1501939343549.png (3.59 MB, 1242x2208, IMG_9532.PNG)

Has anyone seen this account? Momma has not one, but two children each with multiple chronic conditions. They get appointments together and have procedures together, they're "spoonie sisters" and of course were diagnosed with all those rare but far conditions such as EDS, MCAS, POTS, gastroparesis, etc.

No. 366993

>>366976

I bet Christine Miserandino rues the day she ever invented the spoon theory. At least she had a legit illness.

No. 367021

>>366964

So fucking tempted to print this and tape it on the wall of the endo unit staff room.

No. 367022

>>366976

The Munchie by Proxy version of the Slaton Sisters?

No. 367026

>>366936
I absolutely hate when munchies say "I was in and out of consciousness". You mean you fucking slept most of the day?

No. 367029

>>367021
Dooooo it hahaha

No. 367031

>>366952

I'm gonna be cruel as fuck here. And I'll blog and you'll want to kill me and I am so sorry in advance.

I am a physician, and probably the only pro life doc in our hospital (major UK university hospital). I'm also the husband of a wife who had a recent miscarriage, and there's not been a day for the best part of a year that we have not cried over it (I was an Army doctor, I don't fucking cry, so this was a bit of a surprise to me). I also believe everyone has the right to have a child.

But I also believe in obligations towards that child. If, say, you're on isotretinoin, having a child that's almost definitely going to start with very bad cards is inhumane. Equally if your body is barely holding itself together, whoever told you you should get pregnant did not have your best interests at heart, never mind the child's. if the child had made it to term, I would be seriously shocked if CPL had made it out of that delivery room with a pulse.

And so, I agree she should be given the chance to grieve as any other parent who lost a child would. But let's be quite clear here. There is no charity in bringing a child to this world if your body can't handle it, if it would potentially kill you, etc.

An acquaintance of mine (I won't name names) is very, very sick. So they used surrogacy and the baby is going to be her legacy to this world when she passes, which is pretty likely to be in the next few years. I understand that. To decide that you want to bring up a child in a body that lacks the strength to sustain itself and has a lot of other issues and is riddled with toxic medications (I don't know many GI meds that are even remotely safe for pregnancy) is selfish. Sorry if that hurts, but it is.

Now, every once in a blue moon, a woman comes along with hyperemesis gravidarum so severe, we have no option other than to tube or TPN feed her. Those situations are super high risk but impossible to know in advance. When you're already on TPN and fluids and feeds and meds and god knows what, you should seriously think whether your body is the best place to put a tender, vulnerable, growing child into.

This be the sermon. I am sorry for you, CPL, and for your baby girl. Whatever I think of your decision to have her, you'll all be in my prayers.

No. 367033

>>367029

Fuck no. We just scoped a championship wrestler the other week. That guy would have broken me in six pieces. I don't want to spend the summer holidays dead!

No. 367035

>>367031
AGREED. Could not have said it better

No. 367037

>>366952

One more thing.

> she sought all the appropriate medical advice before getting pregnant and was under close monitoring .There was no reason why her having a child would be selfish or hurting said chil


Thanks for your educated opinion, doc. One: we aren't your fucking parents or caregivers, so we cannot say 'don't do it, it's stupid!' Woman on taxanes wants a baby? We can tell her it won't happen, but we can't say 'don't do it'. We're literally not allowed. Kid on isotret wants a baby? We can explain to them they'll have heads like baseballs and more issues than Cosmo, but we can't say don't do it.

So please, think about this for five seconds.

Also, the only way her pregnancy could have been monitored appropriately would have been in a specialist maternal-foetal unit. I know every one of them, for personal reasons I referred to above. I know the people who run them. I can tell you none would so much as remotely be ok with this whole charade. She would have to have major medication changes, plus adjusting TPN to someone newly pregnant is incredibly complex.

Just, no.

At least don't slander our profession by saying we somehow ok'd this.

/disclaimer: IANAOBGYN

No. 367051

File: 1501953086873.jpg (168.01 KB, 800x622, idi nahui.jpg)

>>366865
Cyka blyat

No. 367073

Just pointing out that we don't know if she planned to get pregnant or not. She may not have 'chosen' at all. In which case as a pro life doctor, you must admit she did the right thing.

No. 367085

>>367073
You make a "choice" by having unprotected sex.

No. 367087

>>363752
That is LITERALLY the worst ballet form I've ever seen. :O :O :O :O :O :O :O

(I dance for a company and know what I'm talking about… I'm not being mean, just honest).

No. 367088

>>363752
ALSO she should NOT be wearing pointe shoes. Her feet are weak (not from an illness), she just has really bad like REALLY bad form. And wtf is that pose.

No. 367092

>>367037
Medfag, are you convinced by her supposed illness then? It sounds like you are but a lot of us think her issues have a large factitious component. Would everything you say still apply if her drugs and treatments aren't necessary but just the playthings of her munchie fantasy? Since whether she needs them or not the drugs, if she is taking them, would still harm the foetus. But she may not be nearly as fragile a potential mother as she pretends.

No. 367109

Does Jonzie know about lolcow?? She has to be embarrassed. But she also has no shame…

No. 367112

I was in TEP (the same one in Ohio that Jonzie attended), but at a different time. I kind of freaked out when she started posting pictures of other patients- if she had done that to me, I would be horrified. I actually called TEP and told them/sent screenshots. They thanked me profusely for speaking up. It's not okay. I know some people will say "don't get fucking involved" but it's NOT okay to post pictures of patients at an ED clinic on the fucking internet.

No. 367114

I wish someone would do a documentary exposing these spoonie accounts.

No. 367115

>>367087
>>363752

Ok I'm sorry for going on about this, but as a pro dancer (I'm not lying- I'm in a ballet company on the east coast), but my god out of ALL the things on this thread, that picture infuriated me the most. :O(stop blogging)

No. 367120

Not wking but I thought we had somewhat agreed to give it a rest about CPL and leave her to grieve. There's no milk in losing a baby, whether the pregnancy was planned or not.

No. 367121

>>367085
Cannot disagree anon. Pregnancy IS a choice most of us in the developed world are fortunate enough to make, I'm not querying the religious/moral/ethical aspect of said choice but as you rightly pointed out a choice was made.
This isn't a site where such topics are routinely discussed nor do I believe it should be, speculation around nhs trusts ethics are subjective and in no way relevant to a general "munchie" thread.

No. 367126

>>367114
LOUIS THEROUX (spelling??)

No. 367128

I'd like to mention Eleri Steele and her constant need for attention. Her tumblr has been ridiculous lately- constantly posting about her oh-so-serious anorexia (being about 150-160 pounds) and her "pain issues" and how her family doesn't believe her. Here's a newsflash- no one believes her. She's another one who is going to need to change her name. She comes up on these wannarexic forums and that's just pathetic. I'd never hire her.

No. 367132

>>367087

Agreed!! Not a professional dancer here, and I see it too. In all of her pictures. I laughed when she would say that she had strong feet because if those are strong, mine must be Hulk strong.

It's funny to me that she claimed to dance at the Rock school to multiple people, especially looking through her Instagram. If you go back far enough and look at one post, she says she auditioned when she was 23 and wasn't accepted. I wonder what else she's lying about.

She's said that she's a "professional ballerina"…She's a dance major. There's a difference.

No. 367135

Seriously it pisses me off. The term ballerina only applies to principals and soloists. Not the corps, not a student, not a recreational dancer. Ana ballerina is literally laughable.

No. 367137

File: 1501962094000.png (407.19 KB, 350x618, Screen Shot 2017-08-05 at 12.4…)

Much anorexia.

No. 367138

>>367137
…yikes

No. 367139

>>367137
Eleri Steele, everyone.

No. 367145

>>367137
Wow! she wasn't lying when she claimed anorexia, shouldn't she be wheelchair bound and forcibly tubed at such a dangerously low body weight?? I'm guessing here but a bmi of -4 at least?? Anons act quickly she's fading away right before our eyes.

No. 367147

>>367120
Fair point, I was the one who asked the medfag a question but I shouldn't have done. Whether CPL's issues are legit or not, she has lost a baby and that's shitty. I apologise.

Saged for no contribution.

No. 367149

>>367145
LOL get the tube stat!! She's absolutely wasting away.

No. 367205

File: 1501970307692.jpg (268.85 KB, 1332x1376, IMG_2817.JPG)

Babybear is very sick, you guys. Pic 1 of 2.

No. 367206

File: 1501970331011.jpg (386.15 KB, 1319x1389, IMG_2818.JPG)

>>367205
Pic 2 of 2.

No. 367207

File: 1501970564594.jpg (349.17 KB, 799x1076, IMG_20170805_160055.jpg)

Drinking game: Everytime one of these faggots post a picture of their #vogmask, take a drink.

No. 367220

>>367206

someone set me straight if I'm wrong but what doctor is going to do TPN before tube feeds? I mean just throw down a nasal tube and try it. TPN ruins your liver not to mention sepsis risk

sage for not contributing

No. 367223

like it doesn't make sense to me that any doctor would do something more risky than tube feeds for the purpose of "holding off" tube feeds or delaying them?

No. 367229

File: 1501972567380.png (119.68 KB, 640x727, IMG_2345.PNG)

Very odd that Chloe didn't reply to the question about concentrator or cylinder to deliver her oxygen. Mask with reservoir bag is very unusual in the home setting.
I call bullshit

No. 367230

>>366878
>that's hilarious!
what the fuck why is she so elated

No. 367233

>>367137
Eleri is weight restored though, she went to treatment multiple times in the past few years.

No. 367235

>>367206
Here we see the wild munchie, getting ready to shop around for whatever will get her the most speschel spoonie points. (If you really need a picc line or a feeding tube, a doctor will suggest it and make sure it gets done for you, I don't understand these spoonies that think they can just ask for and get what they want).

No. 367236

>>367220
Yeah, any reasonable doctor who cares anything about their patient and ethics in general would jump to tpn without trying less evasive and safer things first.

No. 367238

>>367236
Since when has mamabear ever been reasonable? Jonzie will get what she wants, she always does.

No. 367239

File: 1501973334929.png (215.57 KB, 640x1136, IMG_0577.PNG)

>>367229
She's also bragging about how much money her gofuckme has raised. Tacky, even if she wasn't already full of shit

No. 367246

>>367238
not to mention she made it pretty clear in that post that the picc line TPN thing was her idea and she was seeing if it was a "good option" and she was "considering it". You don't just decide "ok… TPN it is" on your own.

No. 367252

File: 1501974106532.png (1.36 MB, 1536x2048, IMG_2821.PNG)

Look at my flat stomach and my toobz…Oh i mean, the nice present I got for my birthday! Honestly, can't she go one minute without showing off her medical paraphernalia?!

No. 367264

>>367239
Her attitude to money is gross. She's ebegging for stuff she doesn't need after already screwing the nhs out of thousands of £££. I would feel bad for the people who donate but they're morons if they still believe her at this point - when she just had ME it seemed plausible but now she seems like she's deliberately manipulative in the way KR is. literally preying on people for attention and money.

No. 367265

>>367233
She was never underweight, but wanted to believe she was dying. That's why she's milk…

No. 367268

>>367206
"I lost 40 pounds in two weeks"

Yeeeeeeeah right.

No. 367270

>>367085

don't derail the thread with this dumb shit

No. 367272

File: 1501976110321.png (895.87 KB, 1366x768, Screenshot (57).png)

>>367233
these 'left overs' do not look GP friendly , particularly for someone so 'malnourished' who has 'severe gastroparesis' like she claims.

No. 367273


No. 367280

>>367229
There must be something running because the reservoir on non rebreathe mask is full and puffy but when you have no oxygen or anything going through

No. 367281

>>367229
She's also way to healthy for needing a non rebreathe. There is no signs like blue lips etc which would indicate low oxygen.

No. 367285

>>367280
It would be possible to inflate the reservoir enough for a quick photo even without an oxygen source

No. 367289

Rebreathers are for when you need high flow oxygen over 10LPM. If you need that much oxygen you're on a transplant list, or in a critical care unit hooked up to an oscillator…

No. 367293

File: 1501978587405.png (196.36 KB, 747x1107, IMG_3809.PNG)

Been sifting through this account and I'm drowning in milk.

No. 367295

File: 1501978612387.png (279.86 KB, 750x1021, IMG_3808.PNG)

^ more

No. 367302

>>367206

And now jonzie will probably be shooting for a port so she can give herself sepsis. We know she has a habit of eating non-food items to make herself sick.

No. 367308

The thing that is driving me nuts is that mast cell disease can be controlled. There are medications. I know a girl with mast cell problems and she takes her meds and goes to work, only wears oxygen when she needs it, no feeding tube. She fights so hard to have as normal a life as possible and seeing that and then seeing this just like… what the fuck. Mast cell diseases are hard but they're not impossible to manage.

No. 367309

>>366864

can't see the rest of the person's comment in the picture but is she sort of being found out for bs-ing about the doctor. Jonzie tries to boast about seeing the pediatric GI (based on previous drama I would have guessed she was finally booted to the adult world at least for "new" issues) and this person seems to indicate that her adult daughter sees the only GP specialist in that hospital system. If she is sooo sick she wants to consider TPN you would think she would have seen the only GP specialist in the practice first - even if that meant seeing a doctor for grown ups.

No. 367311

File: 1501979521752.png (210.84 KB, 734x1096, IMG_3812.PNG)

Oh look it's an American JBN

No. 367312

>>367311
What was going through her otherwise empty head when she picked that as her IG name

No. 367329

>>367302
She can just inject the detergent straight in like she's a human front-load washer.

No. 367334

Just wanted to mention that I'm seeing more and more people claim to have both hEDS and vEDS. I was told that in hEDS because the gene mutation is not identified, symptoms can sometimes MAYBE overlap with other types, but wouldn't it be a mathematical impossibility to have two different EDS mutations? And with more spoonies claiming to have vEDS too, it's funny how that's one of the types that are more dangerous and known to cause premature death.

saged for not contributing/slight blogging

No. 367335

>>367311

Ha, she's so arrogant, on one pic she tags herself #beautywithatube !

No. 367342

>>367334

Dr Clair Francomanco is a top EDS generics doctor and clearly stated that overlap doesn't exist. If it does exist, is it so very fucking rare. These IG spoonies are straight up lying and/or have fished for bogus diagnoses from bad, bad doctors. I'll believe it when I see the piece of paper that says they have the genetic mutation for more than one type of EDS.

vEDS is rare and patients tend not to get the common co-morbidities like; gastroparesis and PoTS, although a small proprption will do. That said, given how rare it is to have vEDS and have those associated conditions, how many are you gonna see popping up on IG?

Sage but basically calling these attention seeking assholes out for what they are - bullshiters who don't even read enough on their pet topic.

No. 367365

File: 1501987731747.png (1.85 MB, 1242x2208, IMG_9535.PNG)

>>367295

Isn't is so fucking cringeworthy? Take a stroll through their daughters feeds and you'll find much of the same thing. For example, Rachel - "I'm nauseated because of a gastroparesis flare, I can't chew because of sensory disorder and I also can't swallow because of dysatutonomia." Those poor girls. Their mom probably convinced them they're sick and now they seem to be trying to see who can collect more diagnoses for her attention.

No. 367367

>>367365
The mother has led them to believe they are seriously ill and makes it into this dramatic saga. They might have a few legitimate conditions, but the mom is an attention seeker who plays everything up. Now the girls seem to be following the mother's lead into munchieland. Sad.

No. 367369


No. 367370

File: 1501988214755.jpg (161.33 KB, 1517x640, IMG_2826.JPG)


No. 367371

File: 1501988251491.jpg (354.66 KB, 1274x1268, IMG_2825.JPG)

Looks like a self diagnosis…

No. 367375

File: 1501989216079.png (1.15 MB, 1536x2048, IMG_2827.PNG)

Another shopping cart rider.

No. 367385

If you're having trouble swallowing and keeping down food, you're supposed to go to a bland diet. Oatmeal and rice. Eat one spoonful and wait. If you can tolerate that, another spoonful a half hour later. Eventually you will get up to a full serving at a time. If you eat too large a portion you're going to puke, but that doesn't mean you need a tube. It means you need to shrink portions of tolerable foods as much as possible and space them out as much as possible. Start with shot size servings of ensure if you have to. Suck on ice chips for hydration. And yeah, it's hard, but do you want to be posting photos of your vomit on IG or do you want to be well?

I'm not a doctor, I've just lived through this and wish these kids would take care of themselves!

No. 367397

>>367371
Wow Jonzie, thanks for photographing your vomit for Instagram to see. Real nice.

No. 367401

>>367371
Looks like she just spilled it tbh.

No. 367407

>>367386
>This is an image board.

Don't post like this. If you are going to post milk, fucking post it. Who is she and what is the drama? Screenshots?

No. 367410

>>367370
How in the ever living fuck did this bitch go from super severe AN to spoonie diagnosis cocktail du jour? How would her doc, especially at children's, discount her having an ED as a cause for GI shit? She is so full of it. NO WAY they would go straight to a GJ.

No. 367426

File: 1502000210590.png (1.27 MB, 2220x1080, Screenshot_20170806-010953.png)

Here's Jaquie, sitting in yet another shitty position for EDS.

No. 367428

>>367371

Spill your wine jonzie? I am no crime scene expert but that doesn't look like it was caused by 8oz of smoothie vomit.

And on the off chance it was a smoothie - I am guessing a fruit one - I have been on this board long enough to learn that fruit is a GP no-one. But of course if she is having testing done on Monday she will want to do everything she can to try to make that test say what she wants it to say.

>>367410
My guess - she is making up a lot of this story she is telling. And if not, she is trying to gain the love and attention of a new set of doctors since her antics were leaked to her old doctors.

No. 367436

File: 1502001335774.jpg (75.59 KB, 1500x1500, 89641-9139622.jpg)

>>367426
Is that a commode chair in the background? So lazy she can't even go to the bathroom I guess.

No. 367439

Does anyone know this dumb girl with BDD, anorexia, OCD, anxiety, depression, kidney problems? but says she would never take meds bc "they change your personality" and has never been to therapy.

She's 100% self-diagnosed and has been called out before but continues to use this "help me, i'm sick" persona to gain subs and money on youtube and on instagram, never on twitch though (bc of her male audience maybe).

No. 367441

>>367439
lol it's fucking pearhead. she has her own thread, but it's on auto-sage b/c there were a lot of spergs.

here's the thread >>340026

No. 367482

>>367205

What the shitfuck.

There is ABSOLUTELY no justification for placing a parenteral line ahead/before an enteral line. An enteral access needs to be clean(ish), a parenteral line goes straight next to your heart and needs to be absolutely sterile. The annual costs that factor in supplies and the potential risk of treating you for septicaemia are incredible.

And to these fuckers, it's like a fashion accessory.

Assholes.

No. 367577

>>367426
>>367436
Yep that's what it is because some days it's apparently that bad for it eye roll

Also yeah so much for EDS and taking care not to overstretch. She always sits in the worst positions forever.

No. 367604

>>367577
If you can get down to and up from the floor, I'm pretty sure you don't need a commode. It's actually disgusting how lazy and manipulative she is.

No. 367607

>>367482
And she's obviously not starving to death, so there's no way she needs TPN, let alone a gj tube. These munchies don't seem to understand that those things aren't something people choose, it's what they're forced to use to stay alive when nothing else has worked.

No. 367612

File: 1502031602705.png (1.18 MB, 1366x768, Screenshot (65).png)

yet again eating food thats hardly GP friendly. but of course she is sooo malnourished!

No. 367614

>>367604

She does that shit ALL THE TIME. In one vlog she was having Harlow pick up her own toys because "bending over is dangerous" but her water bottle was in the middle of the floor. They got a Roomba because "vacuuming is just so hard" no, she's just lazy.

No. 367619

>>367612
It drives me nuts how much shit she eats and cries GP. I wish I could still occasionally enjoy half the shit she gobbles down on a daily basis. Which I can't because I actually have what she cries wolf about about and actually follow a proper diet so I can avoid a tube for hopefully forever. But I also don't have a cut happy doctor who isn't for severe interventions over upset tummies because you eat shit all day.

Sage for blogging ranting piss offness

No. 367624

Has CJ explained why she can suddenly eat real food now? In all her videos prior to getting her tube (that I saw) she was basically catatonic because she couldn't eat, and therefore "needed the tube".

Post tube, she can magically eat again. What the fuck is she up to. Not just eating, but eating so much junk food and things that'd be hard even for someone with minor IBS hard to tolerate. Also, for someone who's apparently so malnourished they need regular TPN infusions and banana bags, she sure does seem to avoid nutritious food. I know it's hard for people with GP to eat fruits and vegetables, but all I've seen her eat is broccoli, cucumber and banana (frozen, and with peanut butter mind you) which all seem like they'd be harder to digest. If she can digest those foods, and meat, dairy, pasta, processed white bread, pastry, cake, cream… Why can't she eat proper healthy food that's easier to digest? Like soups/broth, cooked spinach, smoothies, soft veggies like sweet potato, zucchini, eggplant, cooked fruit… I could go on. Even fuckin baby food would be better than the shit she eats.

Literally does anyone know her reasoning behind all this? Surely people have brought it up to her before.

No. 367638

File: 1502034249661.png (182.62 KB, 640x1060, IMG_9221.PNG)

Same old antivax bs from Chloe's chronicles.
Copy and paste scientific holes and blatant lies about what is in vaccines and how terrible they are with no proof of effectiveness. Also how they have been of NO help to the human race blah blah blah (has she forgotten about small pox?). Maybe if she'd studied some level of biology chemistry or even history she'd spot her errors

No. 367658


No. 367667

>>367658
So many things wrong with that. Any opthalmolgist could see that the eye movements are consciously faked as they're too slow for rapid uncontrolled movements. Plus, does she look 5stone to anyone here?

No. 367677

>>367667

I was copying her as I was watching. I can do that with my eyes. I don't have a vog mask and I wasn't flashing my toobz though.

No. 367690

>>367638
I feel bad for bettergraces, she writes a basic but sane post about vaccines and Chloe Leanne sends the raving munchies after her. none of these "vaccine injured" can stand the idea that it doesn't exist. I went to look at the post for most recent milk but she seems to have deleted it.

At least none of their doctors will be supporting this vaccine fakery, unlike Babybear who is going to get her TPN if she wants it, just like CJ will get her button. kek.

Saged for not adding shit

No. 367695

>>367624
Yes people have she even has a bullshit leave me a lone stop telling me to try different diets videos they are didn't work blah blah blah blah I'm getting calories from the stuff I enjoy instead.

No. 367699

Here it is again for all those who missed it and asking about if people call her out about it or not

No. 367711

File: 1502038135465.png (102.22 KB, 640x552, IMG_2352.PNG)

>>367289
Think someone else is also calling bullshit
1/2

No. 367713

File: 1502038168610.png (157.42 KB, 626x787, IMG_2353.PNG)


No. 367728

>>367711
Wouldn't be surprised if she was faking the entire oxygen thing tbh. (Sorry in advance for a tiny bit of blogging) My sats can get quite low and I checked out home oxygen parameters, but it was very clear that I wasn't a candidate and that they're rigorous - and rightly so - about who gets it. Is the fake kit for this, or worse some dodgy bottle with unknown gas in, what she's spending her gofuvkme on?

No. 367741

>>367126
THIS WOULD LITERALLY BE THE BEST THING ON TELEVISION EVER & IT HASN'T EVEN BEEN MADE YET. PLEASE DO IT LOUIS!

No. 367749

An oxygen mask like that can also be used for cluster headaches. Which need high-flow oxygen at home. But generally you wouldn't have such a mask and be well enough to be home.

No. 367762

>>367667
kek this bitch is not 5 stone, unless shes ridiculously short
5 stone at like 5'2 would give her a bmi in the 14s and a dx of 'severe anorexia' and having been around plenty of anachans I can categorically say that is not the case for her. She looks slim, but a healthy weight. 5 stone my arse.

sage for noncontribution

No. 367811

>>367295

Shit I've never heard in practicing medicine on five continents, including, yes, what was technically Antarctica:

- anaphylactic inhalatory tar allergy
- anaphylaxis selectively closing off a lobe
- Pepcid, of all fucking medications in the world, being given for an anaphylactic patient's secondary reaction who needed a breathing treatment earlier
- a girl who had a very serious inhalatory anaphylactic episode with a delayed onset reaction who has no swelling around the eyes, clear sclerae, no rubor, healthy and well oxygenated skin, make-up that somehow withstood not only the inevitable flood of tears that comes when you're choking to death but also the mist of the nebulizer

Now, some people argue that you can develop a hypersensitivity, which they call an allergy (wrongly, because 1) they're morons, 2) not every hypersensitivity reaction is an allergy although every allergy is a hypersensitivity reaction, 3) see 1) to just about anything. Funnily enough these are the people who send their patients to ELISA based 25 gazillion component allergy tests, which we all know are worth a crock of shite.

Now, Pepcid is an antihistamine all right, but why the fuck would you use an oral agent on someone who is having a recurrence of a respiratory?

No. 367812

>>367811
>Antarctica
What.

No. 367815

>>367728

I wouldn't be surprised even a little bit. I was in an FB group once where a girl got banned because the admins figured out she was munchie. She apparently ordered oxygen tubing and canniulas online and took selfies wearing them without them being hooked up to anything.

No. 367820

>>367728
Also there are medical supply exchange groups on Facebook where you can buy tubing and medical equipment from other people. Not actually sure how that's totally legal tbh, but it's not hard to get a hold of some equipment without your doctors ever knowing.

No. 367825

>>367812

Doc on a research ship for a few glorious but ass-freezing moths.

No. 367828

>>367820

In the US, it's totally illegal as most medical equipment is classified prescription only. Posting medication is even worse.

In the UK, it's legal but very much frowned upon, especially where DME is concerned that is not patient property (like feeding pumps).

No. 367837

File: 1502050411490.jpg (241.76 KB, 986x1402, IMG_2835.JPG)

Such a munchie

No. 367841

File: 1502050515342.jpg (174.48 KB, 954x1037, IMG_2836.JPG)

Look at her fishing for info from genuinely sick people trying to convince her docs. Queen of the munchies.

No. 367842

>>367638

A subject I have no expertise in? Curious blanket assumption, Chloe. The evidence that 'HPV vax cause FND' is flimsy at best, it is not replicated worldwide (just about every HPV->FND case is from the UK, when the same vax ought to have led to the same phenomena worldwide!), no established causative mechanism (how does a vaccine create a psychosomatic disorder in someone), and so on?

Part of me is wondering if they aren't just hoping for a UK Vaccine Court where they can bring claims without the usual amount of evidence needed and most importantly without the strict requirements to prove causation. They're hoping for a big-ass payout, and a comfy life as a professoinal vaccine victim.

No. 367844

>>367842

I'm curious as to why she hasn't sought legal input. Maybe she has?

No. 367848

>>367842
They're thirsty lazy psych cases. That's all. She has an eating disorder and a personality disorder - her behavior makes both of those very clear. She's either histrionic or borderline imo.

god knows why the UK has such a cluster of munchie cows on a fairly small island.

No. 367851

>>367624

Easy, she has an eating disorder and can now eat all the unhealthy food she wants and purge it through her tube.

No. 367854

>>367848
So many of the EDS/GP munchies are this way. They don't have a physical problem, they just have mental illnesses that don't get them enough attention, and they're attention whores. Also they have to put in effort to recover from mental illness, and they're lazy, so it's easier to cover their symptoms with a pretend physical illness and also get that sweet, sweet sympathy.

No. 367863

>>367854
Yeah, I'm convinced this applies to (rough estimate, kek) at least 95% of people claiming EDS or GP (or both) on Instagram. I only believe people at this point if it's not the main focus of their account, having a "spoonie" account is a red flag in itself.

No. 367865

>>367863
The more they post medical paraphanalia, the less I believe them.

No. 367898

File: 1502057268028.jpg (426.15 KB, 1088x1440, IMG_2840.JPG)

Alexys is actually a terrible, terrible human being. She's lying to people who are actually sick on a support group.

She had the NJ due to anorexia and refusing to eat. Medical services abuser.

What "autoimmune diseases" - most people who name them, at least.

Vog mask? So fucking what, you can buy them.

Also, PoTS is a type of dysautomnia, you moron.

She is the munchiest of all munchies. I hope karma bites her on the fat ass.

No. 367899

>>367898
In case you read this babybear, you are mocking disabled children by wearing that epilepsy helmet that you don't need, so quit it.

No. 367903

File: 1502058247506.png (3.71 MB, 2048x1536, IMG_2842.PNG)

Love this

No. 367917

>>367898

Of course no mention of the "super severe anorexia" or the PICA. And granted she has just resurfaced but unless she first gained a ton of weight then she didn't have 40 pounds to lose without becoming a skeleton (and given her history of anorexia would have had the doctors intervening much sooner).

"I never go to the ER unless absolutely necessary" is a joke (although I guess it depends on your definition of absolutely necessary). She has spent most of the last few years self confined to a wheelchair/bed because she was such a sick wittle girl.

I think the doctors that were previously treating her no longer are taking her BS so she is either trying new doctors or making up a medical story for internet sympathy (since we know she made up stories about doctors before)

No. 367929

>>367917
I think you are spot on. Mamabear is no longer in the picture because of her bullshit and also I contacted TEP because she was posting creepy pics of other patients. ANYWAY, I think Mamabear got fed up with her bullshit and finally called her out. TEP kicked her out because of the picture thing, so i think she no longer wants to be associated with ED stuff because she failed miserably.

It's easier to fake invisible illnesses and with the spoonie community, I think she realizes doctors/the population in general gives "sick" people more sympathy than people with eating disorders. Even though people with genuine EDs are sick.

It's all about attention and sympathy with this chick.

No. 367930

>>367917
>>367929
Also, notice how she no longer emphasizes "CHILDRENS hospital." She's graduated to the real thing, or so she thinks. I think the childrens hospital caught on and refused to treat her anymore.

No. 367932

>>367929
Thank you for contacting them. You did the right thing. I would absolutely die if she posted a picture of me in treatment without my knowledge or consent.

No. 367939

>>367930

She did mention the children's hospital in a previous picture. However, I think it was more of a trying not to be caught in a lie defense - someone asked her what doctor she saw and was from her area so she was quick to say she sees a GI at the children's hospital - that person then said her daughter was 30 and saw the only GP specialist of the 50 GI doctors in that system. The rest of the image was cut off so I don't know if that commenter was a bit suspicious. She doesn't seem to be emphasizing the child part right now (but bet she still acts like one).

You are right - a lot of these muchies seem to try to hide eating disorders and/or other mental illnesses behind invisible disabilities, probably because of the stigma around mental illnesses, even if they are just as legitimate as physical illnesses.

No. 367941

does anyone follow chronically vlogging? are they legit? they are on youtube and on instagram.

No. 367965

>>367941

I don't know for sure, but if she isn't faking it's very over exaggerated. The begging for a wheelchair when everyone is saying she doesn't need one definitely throws up a red flag.

No. 367972

>>367939
I don't think it's the stigma. It's the fact that you can claim an indefinite amount of attention by way of crisis as a munchie, you can manage it but nobody expect you to get cured. It's not something you can really do with an ED, you end up in a psychiatric hold at worse or people end up getting sick of your shit when they see you're not really trying to get better. That's what happened with Jonzie, I think. I'm pretty sure the medical staff told her to stop it and that's why she's been laying low and is suddenly back with 'legitimate' problems.

No. 367974

>>367972
Alexys, not Jonzie, I'm mixing up the cows.

No. 367982

>>367974
Alexys is Jonzie. Her name is Alexys Jones.

No. 367995

>>367972

And it's a good way to get that attention you're getting from an eating disorder when you no longer look like you're sick. No weight limit for physical illness.

No. 367997

>>367965

Yeah, it's the "I'm a lying, lazy fucker who wants attention from everyone who sees me" flag.

No. 368002

>>367898
She didn't have an NJ. She had an NG. I met her personally and she simply refused to eat and preferred having a tube for sympathy points.

No. 368029

>>368002
Spill dat tea anon! What else was she like? Was she always querying people for other ailments to emulate?

No. 368054

>>367941
Very over the top at best. Writing a list of referrals to demand from a doctor, upset about being declined a wheelchair because it was in her notes that she didn't need one, describing her dysautonomia as severe every time she mentions it. In one post she described how a doctor said she could be without mobility aids in a year, but she wrote that she didn't think she would be because of her severe dysautonomia. Instead of trying to lose the walker she keeps asking for a wheelchair

No. 368056

>>367941

She's angling for an EDS diagnosis, so obvious.

Feel a bit sorry for her because she's young but if she lost some weight, her knees might improve.

No. 368057

>>368002

Did she prance around in her beanie and text mama bear all the time?

No. 368071

>>368057
I hope mamabear broke up with her. Alexys hasn't mentioned her in a while. Wonder if that means anythhing.

No. 368080

>>368029
>>368057
She mostly kept to herself. She actually did wear that I'm-pretendplaying-cancer-kid beanie, but whenever asked about it, it was for her drastic hair loss ofc. She called her ensure boluses her "feedings" and always acted shy when noticeably attention-seeking (showing her actual hair for five minutes, parading around in soccer uniforms and tube stickers, etc)
Oh yeah, and she was strictly anorexic (aside from the occasional detergent binge apparently), no other problems at all. And they're onto her- she caused many people restricted laundry room access, lol.

No. 368106

File: 1502079332649.png (197.46 KB, 749x1075, IMG_1602.PNG)


No. 368110

File: 1502079503667.png (184.44 KB, 750x1083, IMG_1603.PNG)

>>366855
Frustrated because she knows more about the pump than they do LOL.

ALSO she mostly just posts about "infusion day"

No. 368112

>>368110

i used to follow this girl for the milk but it got to the point where she was just so fucking annoying, even looking at her face drove me insane.

sage for not contributing

No. 368121

Is there anyone else here who reads these threads to keep themselves in check with how they're reacting to/handling their illness? Please tell me I'm not crazy

Saged for blogging

saged for blogging

No. 368122

Crap didn't mean to give the sage twice

Saged for being a moron

No. 368145

>>368121
You're not crazy.

No. 368149

>>368121

This is accurate.

No. 368151

File: 1502087913765.png (374.85 KB, 1437x2277, Screenshot_20170807-011343.png)

Anyone look at chronicallyhangry? She's annoying with some possible actual sickness but milky with how she draws it out and gives details, see the attached screenshot of her asking how to get pain meds…

No. 368157

>>368151
Literally one of the most annoying and OTT spoonies out there. I don't think she's faking EDS but she's milky af because she thinks there is no one sicker than her and she'll let you know it. She shits up the EDS subreddit with her bitching and self pity too.

Yet strangely she has no problem posting in the make up subs and having hobbies and interests like that. From the way she talks you'd think she ought to be in an icu bed, but it's all massively exaggerated.

No. 368168

>>368157

She seems legit sick but yeah, total drama llama. Saw her whining in comments that she's too sick for physical therapy. Dude, even unconscious people in intensive care have a bit of physical therapy, ya know even, just to move their arms and legs around.

No. 368174

>>368168
She's someone who has been fooled by fake EDSers in addition to her natural huge thirst for drama. She sees all these fakers claiming EDS and then still being okay to do anything they want (just not work or be adults) and thinks that means she is the sickest poor little thing ever. (Kek, competition, Jonzie!) Actually she has normal eds and is too lazy and self pitying to do anything to improve her situation.

No. 368178

>>368151
I'm on LOA for a spinal fusion and second microdiscectomy on a different disc. I am on a low dose of oxycodone. Know why? Cause I have an acute injury and I fucking ASKED for them. Y'know, cause I am in actual pain. Girl needs to be a grownup, use her mouthwords, and ASK for them if she is suffering so much.

Also, y'know why docs are so reluctant to prescribe pain meds girly? Cause they are fucking ADDICTIVE. They should not be prescribed for chronic, not-too severe illnesses because that is how junkies are made.

In addition, Mr. Nurse was probably in a bad mood because he had to make a house call for something that could wait until morning. He was called at 10:30 PM. He got there at around 12:30 AM according to Ms. Princess-and-the-Pea, and I am sure he was fucking TIRED. When she called he could have been in the middle of an episode of Tim and Eric, or reading Ray Bradbury, or in the throws of a good fuck with his SO, or, y'know, SLEEPING. And Ms. Priss needed help with her spoonie nonsense. I am sure he got there and didn't want to put up with her shit. Okay, I am done now.

Sage for kinda blog, but mostly rant.(USER HAS BEEN PUT OUT TO PASTURE)

No. 368180

>>368110

Sorry, in the above rant I was also referencing this post as well. Pain meds for actual pain make me stupid.

Sage

No. 368190

>>368157
The only one with milkier fake EDS is @Richelle_Elissa plus she's one of those "I'm on 3 different opioids why is my stomach so slow, LETS GET A TUBE" kinds, without a gastric emptying study mind you… super speshul snowflake who has vEDS and kEDS (minus the kyphoscoliosis, the hallmark of that type of EDS) but somehow doesn't have the gene for either? sounds like munchausen's to me.

No. 368191

>>368190
Image board. Screenshots plz.

Sage

No. 368192

>>368190
yes she is so fake. so, so fake. of course she claims more than one type and claims veds eyeroll

I don't think she has any kind of eds, but raging hyperchondrija and mental problems.

No. 368206

>>368190

So worried about her that she needed a tube but erm, she doesn't look very malnourished.

No. 368212

File: 1502106762239.png (1.37 MB, 1536x2048, IMG_2852.PNG)

Calling it "chemo" is so attention seeking. You know you'll get more ass pats that though.

No. 368220

File: 1502108384683.png (1.63 MB, 1080x1694, Screenshot_20170807-131521_01_…)

Wasn't Nicole giving eating a break?

No. 368223

>>368220
WTF kind of photo is this?! Fuck she makes me rage!

No. 368229

>>368220

Umm, if eating real food causes vomiting like she claims then I don't necessarily think that going out to eat is the best idea for a date - no matter how "normal" it may be. (Not to mention the likelihood that she would then vomit up the tube).

But I forgot - its sooo easy to put your super serious illnesses on hold when you want to do something fun.

Next she is aiming to get a news article that states "he loves me even with my tube".

No. 368243

>>368220
Perhaps her somatic vomiting is of the selective variety.

No. 368250

>>368220

Annnd the weak bitch is private.

We know you read here Nicole. You're fucking pathetic. Do your fucking therapy, get your fucking head on straight, and do something good for once in your miserable, whining, pathetic life.

You're deplorable.

No. 368262

File: 1502116330681.png (134.34 KB, 640x1136, IMG_1263.PNG)

>>368220

JBN Tube helps her with body image problems! Go to therapy about your body image problems you fool! A tube does not make a healthy brain!!!

No. 368266

File: 1502116504596.png (128.28 KB, 640x1136, IMG_1265.PNG)

>>368262
Lolcow won't ruin your "relationship" you will!

1/3

No. 368267

File: 1502116528039.png (133.48 KB, 640x1136, IMG_1266.PNG)


No. 368269

File: 1502116555312.png (128.39 KB, 640x1136, IMG_1267.PNG)


No. 368278

File: 1502117353707.png (110.62 KB, 623x828, IMG_1268.PNG)

Any thoughts on Toonauseous
Most photos show off the tubes and super strange posing going on as if she is

Warrior beads-check
GP - check
OTT about getting tube to use kids tubie pads - check

Not full on munchie but has ingredients in the making although some health issues may be accurate

No. 368283

>>368278
Insurance not covering feed related issues as not ill enough. Managed relentlessly to convince Drs to get tubes and is within weight but keeps gaining. Maybe cause your feed is filling you up and probably feeding on crap anyway!

No. 368284

File: 1502117793848.png (158.21 KB, 640x932, IMG_1277.PNG)

>>368283

Pic didn't attach sorry

No. 368291

>>368284
AHAHAHAHAHAHAHAHAHA
fuckin top kek right there
>gp gainer
jesus christ these munchies get more ridiculous by the day
nobody gains weight if they arent getting enough nutrition because its physiologically impossible
see: any country in the world where malnutrition is rife

sage for no contribution

No. 368301

Look! A "classified anomaly" and "medical mystery"! Anyone seen songshinedancer? Claims to have THREE types of EDS (hEDS, vEDS, kEDS). Also does not seem to have Kyphosis, unless soooper mild, of any kind… Private, but has over 26,000 "fans". Why is kEDS the new train to jump on? Aren't there only ten or so families that it's confirmed in?!

(can't get image to attach for some reason)

No. 368310

File: 1502119873944.jpg (58.75 KB, 501x509, IMG_1607.JPG)


No. 368317

there's new (hilarious) MLS milk i just can't get it on my phone's shit service so saged for not contributing shit

No. 368338

File: 1502123532019.jpg (304.63 KB, 1077x1073, IMG_20170807_103134.jpg)


No. 368343

I hate to sound like an idiot who needs to lurk moar but sadly I only have time to patronize the boards that are of, uh, professional interest to me (this one and Autoexsanguichan), so can someone refer to me to where this Alexis 'babybear' person seems to have already been discussed at length?

No. 368347

>>367371

No. Just, no.

Unless she lives on Mars where healthcare works very differently, a tube would not even be discussed before a GES and possibly an EGD, and a lot of other tests. Not only is the ddx of GP symptoms bigger than Jaqui's allegedly starved fat pads, not everyone tolerates tube feeding at ALL and we will not put anyone through a PEG insertion, complete with gastropexy and cutting through the gastric wall and other unpleasant crap, unless we know they manage fine on a nose hose.

Jesus. The lies.

No. 368357

File: 1502125741653.png (190.46 KB, 750x1334, IMG_1589.PNG)

Babybear hasn't even had testing for gastroparesis yet. Here she is, wearing her helmet, mocking disabled children and what they go through.

No. 368368


No. 368371

>>368121
that's why i read this shit. all these fakers make me thankful my illness isn't worse and that i don't need all the shit they beg their doctors for.

No. 368378

>>368343

She was in the pro-ana threads.

Adult young woman under the care of a children's hospital and paediatrician, constantly taking herself to the ER.

Lied constantly about her weight and made out she was sicker than she is. Yeah, she has anorexia, no she's not on death's door or she wasn't as often as she made out.

Called her doctor "mama bear" and faked texts from her pretending they were oh so close and had a special bond. Got called out on this but not sure what happened.

Diagnosed with PICA and ate a lot of laundry detergent, hence ER visits but she made out it was her sooper serious anorexia, kidney issues and heart issues - no actual evidence of this. Well known for making herself sick by eating soap.

Called herself a sick kid all the time and glamorized every IV and wheelchair ride.

Soooooper dramatic about everything healthwise.

Took up a lot of time of childlife professionals and other medics who could have been looking after actual sick children.

Took photos of other patients and posted on social media.

Someone - maybe from here ? I don't know - contacted the IP programme and she deleted her hilariously entertaining IG.

Now she appears on social media trying to munchie it up. She is the gift that keeps on giving…..

(probably forgot some hilarious stuff that she's done. )

No. 368384

File: 1502127437632.jpg (153.31 KB, 750x884, IMG_2853.JPG)

Medfags - doesn't zofran delay gastric emptying? In the UK, they make you stop so many drugs for quite a while before the test, zofran is included.

No. 368385

>>368378
I was the one who reported her to her program. They thanked me profusely and said I did the right thing. They were pretty horrified and I felt a little better about calling.

No. 368386

>>368385

Good for you. She needed taking down a peg or two. I cannot believe how munchie she has become. It's very funny. I look forward to the new updated on her trying to get a central line so she can purposefully infect herself and spend even more time in hospital

No. 368391

>>368384
Not really, as it's frequently prescribed to help with the nausea caused by GP. Studies show there's no effect on gastric emptying either way.

No. 368395

>>368391

Constipation is a common side effect.

No. 368426

I think mamabear has moved on.

No. 368444

>>368386
Of all the procedures and devices these munchies covet, nothing horrifies me more than them being given long-term venous access and sent home with it. I shudder at the things people have done, can do (and will do) in the future. Scary, scary shit. I am deeply disturbed how many of these OTT spoonies are getting portacaths and tunneled CVCs. Port sepsis should not be so common as it is in the IG crowd. Either many of them are complacent as fuck with aseptic technique and regular cath care, or they are deliberately contaminating it.

No. 368476

>>368357
>>368384

And this new epilepsy thing is just silly. She never mentioned it in past antics and was driving. Now it's so severe that she can no longer drive and needs to wear a helmet typically only worn by children or adults with severe cognitive delays. Considering she claims she is basically wheelchair bound it's not like her fall risk from a sudden drop seizure is likely.
She claims she was just dropped off for the test so who takes all her stupid pictures

No. 368521

>>368444
I have actually always wondered if under good port care, sepsis was as common as it appears on IG. I certainly hope not.

No. 368544

File: 1502143648757.jpg (690.05 KB, 2896x2896, 20170807_165303.jpg)

this is the shit I hate..plain? No. Dump a "tiny amount" of pepper knowing it's not only bad for digestive issues, but her acid reflux that she has started crying about more and more. Note the close up picture of her bland meal. You can see a shitload of pepper in a pile right next to the mustard..and it continues on the food. Tiny bit my arse.
I wish they'd admit her or place her in a temp. Home to monitor her 1:1 and know exactly what is going in and what's going out (and how) and let her have zero control over her meds to clean her up before testings and after testing and any treatment for a few months..she probably throw a fit at this but she'd absolutely love that..all that attention and no other responsibilities but be sick while Drs can get an honest picture of her health and what she does or doesn't have..not what she does want to fake and "brag" about online.
I wonder if we will hear something like this soon,"I'm the most severe anorexic in NJ and now I have the worst GP temple has ever seen!"
Waiting for her to come back with some odd ball diagnosis

Anyone else bothered about her immediate jump on GP awareness month Aug 1?


Sage for blog-ish comment. She just really gets under my skin.

No. 368560

>>368521
It freaks me out when people don't cover their tubes with clothing. Why on earth would you expose yourself to germs like that? Do I now understand how tubes work or something?

No. 368596

>>368284
Oh wow when munchausens and fat logic combine. So starving she reverses biology and physics in one fell swoop. Someone get her to CERN

No. 368598

>>368544
I honestly think dani needs to be in a residential setting. Not for her million imaginary illnesses, but for her glaring disability and being dangerous to herself.

I'm totally convinced she has a cognitive disability or learning disorder as well as whatever mental shit she's got going on. She needs psychosocial rehabilitation and a carer to stop her engaging in faking diseases and drug seeking in the emergency room, not access to amazon to buy medical equipment and Instagram.

No. 368608

>>368385
Isn't it against the rules here to get involved with these people in real life? I was told off once by others here when suggesting that if you're so sick of a particular munchies behaviour then why not rat them out to their doctors. I guess your rules change based upon your feeling for the particular day.

No. 368614

>>368608

Generally yes and there was much discussion about it at the time. However, the person (or it may have been more than one) who reported her at the time did so because she was posting pictures of other people at her treatment center without their permission - the people who reported her were also at that treatment session and were concerned regarding their own privacy - so they weren't an outsider randomly interfering in a strangers life but rather a person trying to protect their own privacy.

No. 368616

File: 1502150861810.jpg (50.69 KB, 400x400, IMG_7688.JPG)


No. 368625

>>368598

Couldn't agree more anon!!
I honestly feel like if she was in the correct environment shed actually be a decent productive part of society.
Maybe something like an assisted living facility, with her having some sort of mental handicap she can even get a life skills coach and groups to help her get her shit straight.
She would have it made at assisted living housing depending on how much she milks it (which will be a lot as is with her) plus way more attention. It would also protect her from herself. To think of it I'm surprised she hasn't thrown out

"I'm the worst in state. Drs have never seen anything as severe/ anyone as complex, I need 247 help because I fake pass out all the time and my heart is so bad (yet the Drs have never been concerned about me living alone passing out all the time..surprise) so I have to move into a nursing home/assisted living."

No. 368632

>>368347

Even with a GP diagnosis (which can possibly be very mild), tube feeding is one of the last resorts. You have to really make an effort on a GP diet, then on a liquid diet. And only if those don't work should a tube be considered, and a non-surgical one first, like the other anon said, to make sure it's tolerated. But these munchies think they can demand what they want.

No. 368636

File: 1502154448158.png (1.11 MB, 1044x1144, f359d1e13402edbb978597ceb146f2…)

Fucking lady pretending to have BPD, autism and transgender is OKAY WITH SELF DIAGNOSIS

https://www.youtube.com/watch?v=K0KVmS5KBkc

Lowers the voice by editing the audio

No. 368637

>>368521

Absolutely not. PICC line, yes. But ports are put in especially to avoid the risk of infection. Ports can still get infected, but the risk is much, much lower, as long as you're careful and follow precautions (which I'm sure many of the lazy spoonies don't do, even though it's easy things).

No. 368638

File: 1502154881827.png (666.85 KB, 850x592, 1502104132001.png)

>>368636
HAHAHAHAHA
https://www.youtube.com/watch?v=i8-NfELf71Y
FUCK BORDERLINE NARCISSIST PEICES OF SHIT

No. 368639

>>368391

Also, zofran is not always that effective (I've heard only 25% of people benefit from it), so it's surprising how much these spoonies depend on it. (Probably because they don't have the severe GP they claim!). Severe GP often doesn't benefit from zofran, but I guess they think it makes them sound moar sooper sick.

No. 368640

>>368638

Isn't this girl 30?? A little old for the attention whoring I think.

No. 368653

File: 1502157214471.png (186.3 KB, 750x1056, IMG_3878.PNG)

She must be thrilled with the abundance of asspats she's getting now.

No. 368654

File: 1502157241341.png (204.63 KB, 750x991, IMG_3879.PNG)

^

No. 368657

>>368637
I never wanted to admit it but the more time I spend here the more plausible it becomes to me that some spoonies revel in the overall riskiness that comes with central lines. Terrifying to think they might be neglecting the proper care of their lines or ports, sepsis is nooooo joke and nothing to mess with, so the fact that it's so much more prevalent on Instagram than in normality is even more disturbing. Sadly, deadly infection-sepsis-ICU = sooper serious and that's what a lot of these people seem to thrive on. It was unthinkable to me at first but I can see it now. Sad.
sage for not contributing

No. 368667

File: 1502159031796.jpg (151.33 KB, 1280x959, IMG_2856.JPG)

Note the stupid kiddie bag hanging up.
top kek.

No. 368670

File: 1502159365474.jpg (897.45 KB, 2048x2048, 1AC92D1C-D137-4B54-B8E6-26494B…)

>>362479
>>368212
Sepsis for 5 days but well enough for selfies where she looks healthy? what a cow

No. 368674

I have a question for medfags in here. Is it possible to eat and purge through a G-tube? I thought it would clog as it's not meant to drain cake and pasta (Jacquie, I'm looking at you!).

No. 368675

>>368670

They do not discharge you from hospital with sepsis. They just do not. It's very serious and can kill untreated. It can kill even when treated.

Lies. Lies. Lies.

No. 368684

>>368674
Not a medfag but it depends on how well it's chewed (size of solid pieces), how much liquid went in with it, how long it's been churning in the stomach, and how far up on the stomach the tube is (if it's right in the middle of the top and bottom, the g-port may not be able to reach anything once it's emptied a certain amount).

No. 368685

>>368667
I know it's not a big deal but it annoys me to no end that she's got shoes on a hospital bed. If she was such a sick kid and needs a mask to protect her from all the big bad germies, surely she shouldn't have her flip flops on the bed after stepping in spit, urine, feces, vomit, and general dirt on the blanket she snuggles her face and ports in?

No. 368699

>>368667
>Look how skinny my legs are~
>Look at my tard helmet and Simba backpack~

No. 368704

>>368674
Yes, it is absolutely possible and sadly increasing in incidence among adolescents and young adults on enteral feeds.

No. 368705

>>368685
THANK YOU! I had the exact same reaction.

No. 368716

>>368632

Sadly, they can, and not only in the Sweet Land o' Press-Ganey (of thee I sing… etc). My former boss, an absolutely fantastic gastroenterologist who now runs a major endoscopy unit in the UK, is in hot water now because of one of them (nobody well-known or even on Instagram, I think - just your garden variety Munchie who wants to be that onemorestep girl). Reportedly (and when I say reportedly, I mean corroborated by several of my former colleagues who were present), this young lady (we are talking young adult, early 20s) turned up at his outpatient clinic on a GP's referral with mum in tow. That in and of itself tends to be odd/suspicious but mostly either a vulnerable adult or young person dealing with some very grown-up issues (think getting a terminal diagnosis at 22 and having to decide about a care plan…). Well, this girl was neither. She was politely described as being 'in a healthy weight' , no prev GI history. So mum produces a letter from a (private) gastroenterologist (whose speciality is, to put it politely, not functional gastrointestinal disorder… gastro is a big fucking field, and with just about enough idiots for every corner of it) that went something along the lines of 'patient has delayed gastric emptying according to scan (enclosed), give her a PEG/J and deal with it yourselves, peasants!'. To which my former boss probably thought 'piss off' and anyone who can afford a GES and a GI consultation with this guy privately should pay for their own fucking tubes. Still, ever the gentleman, he explained mum and daughter that he's sorry for any unreasonable expectations that might have been created by the private gastro, but we don't normally do procedures without our own work up and we would not consider performing a PEG/J insertion without first admitting her, nose hosing, ruling out various treatable causes etc. - all stuff that Doc McOverpaid-Stuffins should have done instead of pocketing his fee for a half page letter that consisted mostly of his signature (what a cock). He even went beyond usual procedure and offered to do urgent bloods on her and if they looked dangerously off, she could be admitted urgently for investigations, but tubes are a last restort, and she can't expect to just turn up with a letter and get it inserted.

So she broke down in what was described by one of the eyewitnesses as 'making up in drama for what it lacked in genuineness', an observation that's still making me chuckle, and stormed out of the room, with her mother in tow, who was loudly threatening to report him to the trust. And so she indeed did, and now the Trust is investigating this l young lady not getting her way as a breach of the obligation to provide adequate care… what the fuck, honestly.

The thing is, these fucks are exploiting a system we have in place for good reasons. There are stringent oversight mechanisms on what I can do to you even with your consent, how I have to do it and whom you can bi… I mean, complain to when things go bad. And while getting hauled into an inquiry about a patient complaint is a nightmare, especially the first time around (or, as we tend to joke about it, the first 30-40 times… after that, it gets routine!), few doctors would disagree that patients shouldn't have some level of recourse if they feel the care they received was inadequate. Sadly, however, these processes attract two kinds of people like flies: Munchies and people who read about some treatment in the Daily Fail that helped someone's great-grandmother's neighbour's dog sitter and now they want it, whether it's for their disease (or whether they indeed have any disease!) or not. We keep getting these 'are you prepared for this year's flu epidemic?' e-mails at our Trust pretty constantly from August or so onwards, with helpful tips like 'wash your fucking hands' (thanks, Dr Lister, never heard of that one!). They should instead send us some warning on the impending epidemic of Munchies. Just when we got pretty OK at weeding out people who wanted to go on welfare age 18 and make a career out of it, this shit starts up. Not to put a too Malthusian point on it, but these people spend their most productive years with Instagram Syndrome, blocking beds and racking up six-digit hospital bills they'll never get to see. They get expensive medicstions just to brag about them or make 'pill art' (Christ, don't get me started on that one!) from them. What will they do when they've decided they've had enough? They'll be hopelessly behind their peers who went to university and actually completed a course and got a job. Some will be our beloved full time activists, explaining to us the poor benighted how we just don't know enough about their condition (oh, I'm sorry I did not have time to read your unsourced two page pamphlet about your specific brand of multiple chemical sensitivity syndrome, I was busy trying to see if a young father of three with stomach cancer might be a candidate for a new drug that might give him some more time with his family, but please do chastise me and the whole medical establishment for our ignorance of your terrible plight!), but the rest? I mean, I'm honestly asking here. What the fuck is the endgame here? I used to think it was an easy life on benefits, but that won't replace the attention and intensive treatment they're given now (treatment we would, by the way, occasionally withhold of elderly people because there's just not enough money to go around - thanks, Munchies! - and treating the young and possibly someday fit has always been a priority ahead of prolonging life). I just don't see where this is all going.

Sage for angry medfag being angry.(USER HAS BEEN PUT OUT TO PASTURE)

No. 368718

>>368637

Where I work has a handful of TPN patients. They come typically from three demographics: the most severe Crohnies who need to give their GI system a rest, people with malignancies and/or vomiting problems we can't easily fix otherwise (including hyperemesis gravidarum) and people with FGIDs. One of the persistent mysteries is why FGID patients have higher neutrophil counts, are in a better state than someone suffering from debilitating Crohn's or liver cancer with intestinal mets, and aren't on anything that ought to suppress their immune system (like, you know, chemo or or immunosuppressants for Crohn's), and yet make up the majority of lines removed for infections.

There was a complete nutcase of a girl who kept fancy mice and let them nibble at her fucking central line, because it was cute. And put it on Facebook. I'll now go and write 'I will never Facebook my patients again" a hundred times. She's still alive btw, despite repeated line sepsis and a fortune spent on caspo or whatever the fuck they give for whatever the fuck her blood grows, which I presume is almost every common and uncommon nosocomial and community acquriable bug because she lets the fucking thing dangle out of whatever she's wearing, in the open air!

No. 368721

>>368674

Yes. And it's becoming a problem.

I've described in detail how they do it in fact previous post. I won't repeat it because as someone pointed out, some sick Munchie fuck might use it to, well, use it! I have since heard that people actually discuss on ED forums that if they go to their docs asking for a tube it will be given to them as it will be seen as a sign of a willingness to heal and gain weight, then they can purge through that to their heart's content. Needless to say you can do a lot of damage to yourself doing this kind of crap, duh.

No. 368723

>>368670

Err, I'm not infectious diseases, but if your PICC line is still in situ, how the fuck did they determine it's not what caused your sepsis? In all but the most vulnerable patients, sepsis means we start pulling any lines that look even slightly dodgy. Pull first, do cultures later.

No. 368740

>>368653
Lol was just coming on to post this, ya beat me to it.

No. 368750

>>368740
She's grotesquely manipulative. Why the fuck does she put that about not being pretty enough… oh yeah, because she's trying to get even more asspats. Her whole ig is focused on how skinny and pretty she is. Reading between the lines I think the doctors have called her on her mental health issues many times, but she won't accept it or acknowledge in public what they've said. Faking oxygen to get more money and sympathy is disgusting.

No. 368751

>>368639

Zofran is popular because it's expensive, fancy, used to be for chemo patients only (I believe it's only been approved for non-CINV for a few years) and other than constipating, it has relatively few side effects. Domperidone causes prolactinaemia which is not great, MCP can cause fairly unpleasant extrapyramidal symptoms and most other antiemetics are basically glorified antihistamines that make you too tired to Instagram your cool medical adventures(tm)! The newer ones like the NK1ergic antiemetics (aprepitant, rolapitant etc.) are still not approved by insurance for chronic vomiters although people with cyclic vomiting (which is not chronically persistent but chronically periodic) can get it. Same for the other 5-HT3 antagonists - the others are much more expensive and as such insurance regulates them more tightly for non-CINV and/or postop nausea.

Sage for boring medfagging.

No. 368752

>>368750

Wait, which fuckup is this one?

No. 368757

>>368752
@chloeschronicles_of_illness

No. 368767

>>368750

There was a recent post on her IG about her being told to get psychiatric help. She was furious and went on and on about how neglected she is and how she's even too sick and complex for hospital.

No. 368770

>>368767
The whole 'too sick for hospital' thing fucks me off more than anything else. Doctors and nurses train for years and years but suddenly you're too special to be treated by them? Their enormous amounts of training just don't apply to you? Yeah right…
Just go take a look at the ICU, palliative oncology or PICU. I'm pretty sure if hospitals good enough for them, it's good enough for anyone.

Sage for rant/no contribution

No. 368778

File: 1502188024804.png (404.68 KB, 1242x2208, IMG_9537.PNG)

The mom literally bragging about being able to parked in handicapped spaces because somehow both daughters have cards to do so. Shit like this drives me nuts.
Reminds me of a cardiology tech who works in the same hospital as I do, whose job it is to walk around giving EKGs all day (to inpatients and outpatients) but always parks in the absolute closest handicapped spaces in the main patient parking lot. Fucking lazy, selfish losers. These people use much more than medical resources. They insert their irrational lifestyles onto innocent public bystanders, as well.

No. 368798

File: 1502190460218.jpg (50.4 KB, 1024x685, IMG_0218.JPG)

>>368770

See, there IS such a thing as being too complex for a hospital. If you have a one in a gazillion cancer or a rare chromosomal abnormality, you may be well too complex for the Rural Hospital of Bumfuck Egypt. That's why we have secondary referral centres (big hospitals with wide speciality units, so for instance having a neurosurgical service would be a wide speciality unit), and tertiary referral centres (such as specialist cancer hospitals like MD Anderson that may have a specialist service for, say, the removal of particular types of complex acoustic neuromas). In general, what happens when there's a complex case is that a multidisciplinary meeting is called and then a referral is made either to deal with the patient altogether or just to deal with a particular aspect of their care. There are whole jobs within the NHS as well as in every US hospital I've ever worked at that coordinate clinical services for complex patients, and relatively, these people are NOT a complex case! A complex case is the diabetic heart transplant recipient who has a MALT lymphoma, which is a 'how the fuck do we treat this guy without killing him?' situation. These fucks seem to use complex as the new equivalent of 'waaaah nobody understands meeeee!'. Picture related.

No. 368801

>>368798
Said it far better than I could.

There's such a thing as being too complex for A hospital, but not too complex for ANY hospital

No. 368802

>>368778

Spent some time browsing this woman's Instagram the other day, and I've got to say, there's a pretty fucking concerning dynamic going on there.

It's not so much MSbP but more like a weird mix of codependency, mental illness, shitty socioeconomic environment causing a sort of emotional deprivation that they are filling by over reliance on caregivers and adopting a sick role, and a lot of other weird shit.

It's a damn shame that CPS did not look into them earlier. I hate to sound like an asshole but I don't see a bright future for either of these girls… or a long one. They are being overtreated and overmedicated with serious shit that DOES shorten lives, and their mother seems to almost get off on all of this. Add to that the weird religious angle and the whole thing is a trainwreck. Gee.

Sage for no real contribution. Sorry.

No. 368831

>>368802
I feel so bad for the daughters. How old is Caroline exactly? It all feels very MSbP to me. The mother is actively trying to get Caroline a feeding tube AMA, she reports the doctor saying he doesn't want to place one…

And she forced them to put Caroline under GA for her endoscopy when the anestheist didn't want to do that. She's going to end up killing them. Both girls look miserable and seem isolated af.

No. 368897

>>368638
lol these "10 completely self-sacrificing ways to coddle the feelings of someone with borderline personality disorder" lists. they're always written by histrionic munchie-types who contribute nothing to the world, see themselves as "neurodivergent", and think it's ableist to be appalled by shitty behavior.

some latch on so hard to bpd diagnoses (real or self-dx) because they love its association with "trauma".

i think the autism dx is just in their defense arsenal to protect them from criticism and in some cases as carte blanche to have daily meltdowns.

No. 368903

>>368802

Spot. On. These girls will never lead fulfilling lives. Imagine what happens to them when their mother passes? Who will take care of them? They clearly can't take care of themselves.
Caroline can barely go out of the house without falling into some sort of psychosomatic induced "anaphylaxis." It's tragic, really.

Sage for assumptions.

No. 368937

>>368903
Too bad the mother couldn't stick to dramatizing her own illnesses instead of ruining her kids lives. That's a sad situation really.

No. 368944

>>368723

Not always. It's a general rule to pull lines with suspected sepsis however there are always differences in each patients care. When sepsis is not full blown sepsis and obviously not septic shock, sometimes they can save the lines. This is part of why early treatment is so important. Treat it before it gets bad and have better outcome. (Again, not always)
They can take cultures from your line without cutting the inner tip off, depending on what signs and lab results show.
Often when one comes in ER with suspected sepsis cultures are taken first and the assessment determines what to do..too risky to use the line, an IV is given and use of line is stopped, if the patient is doing ok, and they can save the line that's the course of treatment and they will start use of the line once the repeated cultures are improving after IV antibiotics for a while.
However it seems more common to not save a port line.
Some who have had many lines cannot get many more lines, every time they place one it's a big chance to scar it up and make the same place unusable. People who truly depend on their line cannot loose all access so that plays little role in trying to save a line too. (We have 6 places).
Occasionally they will give a picc instead of IV, but midline is more common and safer.
And of course if they can't save the line it's pulled asap and once the infection is cleared up a new line is placed.
It's not uncommon to have a person with a line who can go without a line if needed and that's when the fight can come up for the munchies as they are told no dr is giving you a line for saline because it's harming you (remember that oath!) You can go to infusion place like the others. The part that back fires is once discharged they have a new line because the antibiotics they need can't go in an IV. Some people don't get it removed and change Drs and story. Big back fire there lol. But thanks to medical records they don't get to play that game very long.
Because munchies are usually idiots, they don't realize the cultures will show what they did to infect themselves.
People truly sick who have record of being in and out of hospital recently that show line infections are pretty much the only excuse when it comes to what type of infection it is.
Ex- munchies has sepsis, line grew mssa. Someones been touching it
Sick person has sepsis, line grew mssa. Person has been in hospital a lot recently, hospital acquired mssa.

No. 368946

>>368944
I still can't wrap my mind around the fact that a lot of them are likely infecting their own lines. Horrifying. Not to give any munchie fuel out there but how do they do it in general?

No. 368950

>>368675

No they don't, but I think she is just exaggerating the treatment she's needing.

Depends on the type of infection but it's very common for people to need IV antibiotics for weeks after discharge, so they are sent home with another line (picc usually and then port or line after antibiotics are done with and cultures nirmal, or total line removals if previous treatment is stopped) And have IV antibiotics to do. Sometimes it's 247, every x hour. They will have a gravity ball, or a bag and pump, each infusion is a few hours. Some will have a nurse to come out and do it every dose,the trusted some have to set alarms.
I'm assuming she will cry she has sepsis at home for the next 3-8weeks while she needs the antibiotics instead of being thankful the worst is over, and she can continue treatment in the comfort of her home.



Btw if she is on vanco. They do level checks and if she is not doing the antibiotics right they will know she's missing doses and end up in their radar..red flag

No. 368954

>>368723

The cultures and other labs and other tests can show what's causing the infection.

A lady tpn dependent had pneumonia that put her in ICU because her pneumonia caused sepsis but her line was not infected. They were able to save the line, but stopped use temporarily but once antibiotics were in her and the infection didn't attack her line they started using her line again.
It's a small window but it happens

No. 368994

>>368946
Its not rocket science (unfortunately). Without specifics, think similar to how you would want to avoid a cut getting infected- you keep it clean, dry, sterile etc. Now do the opposite.

No. 369011

I don't know if this is technically bad line care but one thing I've noticed is that many of the girls on Instagram who have ports keep their line hanging out of their shirt without it being hooked up to anything. Jackie does it all the time. It ensures that it's always visible even when it could easily be hidden by clothing, speaks for itself with OTT and munchies, but I imagine that isn't a great habit against infection either. Maybe I'm wrong though. I just know if I had one having it hanging out and exposed is the last thing I'd want to do. But I guess it looks spoonier (is that a word) that way.

Saged for not contributing, blogging

No. 369014

File: 1502232198161.jpg (870.21 KB, 1071x1689, Screenshot_20170808-173528.jpg)

She thinks she's so fucking special.

No. 369018

File: 1502232953383.png (114.44 KB, 640x925, IMG_1286.PNG)

JBN Still attention sucking munching! I bet this challenging is the tip of the iceberg!

Probably hoping for everyone to adore her but she is so needy for attention that she will be loving this too!

1 of 2

No. 369019

File: 1502232974931.png (144.34 KB, 640x822, IMG_1287.PNG)


No. 369021

File: 1502233137246.png (68.33 KB, 640x887, IMG_1288.PNG)

>>369019

JBN loving that someone asked about her tube! I'm so special I have my tube back

No. 369023

File: 1502233206668.png (161.04 KB, 640x862, IMG_1289.PNG)

>>369021

Bet she sent herself a message/s to say how beautiful she is.

No. 369032

>>368544
What always gets me about MLS is that people have been onto her for months about trying the low FODMAP diet, yet every time her response is that she is "researching it". It isn't hard to find info on, especially not if you ask your gp for a referral to a dietician who will literally give you pages of printouts with what are essentially step by step instructions (which are pretty easy to find online as well).

No. 369035

>>369011

Not really. As long as you use alcohol before using it it's fine being out..they make covers these days that have alcohol pads in them and just screw onto the filter of the line to protect it. They make the same thing but without alcohol too.
Granted they'd have to use this stuff which they probably don't like they are supposed too. But having repeated line infections and the type of infection the hospitals/drs eventually catch on
Munchies have to be a super special type of idiot.

Some people have real/legit reasons they let their line hang outside their shirt instead of under. But the ones here aim for attention.
When out and about or people coming over or whatever the people who have legit reason to let line hang out, they simply coil it, make a tap tag and safety pin inside the shirt and let it hang out when home.

No. 369036

>>369032

Anyone who actually has gp avoids the foods that make them sick, simply because no one enjoys
feeling like that. If her precious ice cream really made her that sick, she wouldn't want to eat it, because she'd be miserable. Same with Jacquie and all the shit she eats.

No. 369037

>>369032

With her having some sort of learning disability she probably just doesn't understand how to do the fodmat diet.
And shed loose all the junk she loves to eat and drink and cry about it being costly so shed start a fit about it not helping after a week.

No. 369039

>>369037

I think she knows, but doesn't want to stop trying to make herself be sick when she's actually fine. She wants a tube, but knows she won't get one if a diet helps.

No. 369040

>>369037
Dani would throw a fit over just about anything, so refusing to give up her treats even for whatever reward she finds in pretending to have gastroparesis. Either that or she's doing it on purpose to get her precious tube. When she says she's researching fodmap it's just a defense so she can claim she didn't know she shouldn't be eating xyz.

No. 369044

>>369040
did you see she claimed digestive enzymes make her sick when someone suggested them? any excuse to get her precious tube

No. 369050

>>369044
I wanna be kind and put it down to her intellectual disability and no understanding of what digestive enzymes are because that claim is literally too dumb to handle.

No. 369055

File: 1502237242143.png (264.7 KB, 1536x2048, IMG_2861.PNG)

I thought she had a NG tube not NJ..? Assumed NJ could not be placed at home by lay person.

No. 369061

>>369055

Yeah I'm pretty sure it was an NG, at least that's what she's always said. An NJ tube absolutely cannot be placed at home, it has to be done in radiology to make sure it's in the right spot. And Nicole needs to stop claiming malnourishment, obviously she's far (far) from starving.

No. 369064

>>369050

She's smart enough for IG, so she's smart enough to know how to follow a diet and take medication. Special ed kids who can't read still can learn what foods aware healthy or not. Saying she's got a a disability is an insult to people who are actually disabled, but who aren't lazy, manipulating attention whores.

No. 369067

>>369055

Just having an NG tube causes a sore nose and throat. She keeps changing her reasoning, and none of it makes any sense other than that's she's saying whatever she has to to keep her precious tube.

No. 369069

File: 1502238611693.jpg (171.9 KB, 1421x1172, IMG_2863.JPG)


No. 369070

>>369011

The part that usually gets infected is where the line enters the skin. However, having it hanging out leaves the line at risk of accidentally getting pulled on, or even out. It's more of an issue with picc lines, since they have to be replaced if they're out too far, but even the needle/tubing that's stuck in a port to use it would not feel great being pulled out wrong.

No. 369071

>>369069

Hahaha Annie nailed it

No. 369072

>>369064
I'm not gonna debate the varying abilities of people with disabilities, but functional literacy and the ability to post photos and complain aren't the same thing as being able to control her impulses, follow directions, or keep up with behaviour that isn't immediately rewarding.
One person with probable disability being a wanky piece of shit isn't a reflection on the rest of the disabled population, and you're taking it a bit too personally imo.

No. 369076

>>369055

Correct.
NJ tubes J tubes must be placed under stay or fluro to help guide it in with a peel stealth and guide wires to make sure it is properly placed as using it out of place can do some scary shit to you.

NG tubes and G tubes can be done by yourself or someone else at home.

A GJ tube must also be done under xray or fluro for same reasons as J.

If she had issues with repeated NG tubes I don't get why they didn't place a peg. In her case it would be a small peg and placed as high as her anatomy allowed to prevent purging. She claims spoonie dying points and an upper gi to place the peg and new bragging rights about being so sick she has a permanent tube now.
It's obvious her Drs aren't thrilled about her having the tube, but safety and health reasons peg makes more sense to me specially if she only used it at night and removed it during day.
Its usually outpatient or one night stay, and when they discontinue the tube crap they remove the peg or leave it if they think she will need it again but she isn't trustworthy and would fuck with it however she can.
It heals up pretty fast. They can place another if needed and we know she would love to have the scars to brag about.
Many birds, one stone.

This one is almost as pathetic as mls.

No. 369077

>>369076
NJ also have a weight at the tip to help keep it in place. This is a part of why a NJ hurts so much

No. 369078

>>369055
I read that as the tube she had placed was the last resort before an NJ but maybe I'm wrong

Sage for my opinion

No. 369084

>>369076

Oh god, don't give her any ideas. You know she'd love a peg tube. I would hope her doctor wouldn't give her a peg, especially if they don't want her to have a tube. She's not at the risk of starvation, so why even let her have a tube at all? It's obvious she's totally focusing on the tube instead of her underlying issues. Stop diapering a baby, and they'll learn to shit in the toilet.

No. 369086

>>369078

Oh, yeah,you're right. Seems like a common spoonie/munchie trait, claim they don't want the more serious intervention, when really you know she'd sell her soul to have anything that makes her seem sicker

No. 369088

MLS definitely just wants a tube so so badly.
I get a feeling that if she doesn't get a tube she will tube herself again with another NG (for the fluids she refused to drink because of her severe anorexia and it helped her keep it down despite it going into the stomach and while eating fine enough to gain) and pretend the Drs mentioned giving her a tube (she isn't going to be the one bringing it up every 2 seconds of course)
And then set another gofundme for a ridiculous amount because her insurance won't cover a pump, feed, and everything needed for tube feeds. When the truth is she begged for a tube, got denied by more Drs, bought ng tubes, tubes herself, can't afford to buy the formula because her insurance doesn't know she's on tube feeds (self tubing) and she has no medical necessity for tube feeds, there for no prescription. And she will make excuse after excuse for not going back to temple appts. Specially if things dont go the way dani wants it to go.
I just have that feeling about her..her whole I'll make myself sick to show them attitude she has. She'll come home and self tube, make up some story about how severe she is and they made her get a tube before going home instead of coming home with normal test results and no tube. (I'm so curious what they will find out with these testing and hoping they will get her on a better treatment plan. She's def. Got GI issues, just not like she claims. Anyone notice she stopped her whinning about her severe irritable bowel syndrome about the same time she cried about swallowing issues, gerd causing barriers and cancer and needing throat stretched?

Get ready for some milk from her testing "week"
Some of her tests require a tube down the nose.

No. 369089

>>369088

Her GI issues are her unhealthy diet and her purging, and maybe some reflux. Tubing stuff is terribly expensive even with insurance, it's pretty sad she's wasting so much money, but pretty indicative of a munchie. Personally, I look forward to the milk, and what's going to happen when she unfortunately finds out she's totally fine.

No. 369093

Sadly we know dani won't stick to any diet change unless it is called "the how to make yourself super specially sick with food choices diet for MBI sufferers"

I don't think she understands how long of a process it is for someone truly sick with GP.
It's not -I've had 1 GES that I manipulated, 1 botox, 1 dr opinion I am starving to death, but my bloods are normal give me feeding tubes so we can be done-
No one's going to give her a tube even if they determine she actually has severe GP (or IBS GERD etc) if her labs are okay. Many people with severe GP don't have tubes!

No. 369094

>>369088
It's legit terrifying that she's willing to tube herself. If she got it into her lungs she'd be fucked. If she had a port she'd be the kind to inject salt or some shit.

No. 369099

>>369064

You don't have to be a genius to use IG.
I do think it is likely she has some sort of at least mild cognitive delay. In the one vlog of hers that I watched she mentioned that she was born fairly premature. The outcomes for preemies are much better these days but given her age, I wouldn't be surprised if she had some sort of mild cognitive delay or at least a learning disability. It also sounds like she was over-protected by her parents. I don't know if she realizes she is doing it or not but I think she wants to be sick/likes being sick because that is what has gotten her the most attention in the past.
I do think she isn't really making a big effort to try to get better via diet changes. Seeing as she doesn't appear to do much besides go grocery shopping, she should have had plenty of time to "research" the diet so many people have recommended. I am sure that if she did she would complain about it being too expensive (she strikes me as the type of person who buys a lot of cheap things thinking that they are a good deal and ends up spending a lot more money than if she just bought a smaller amount of quality items).
She wants the tube because she needs some sort of physical sign that she is sick to gain sympathy points. For her, any attention is good attention.
What frustrates me the most is that she mentions that she has some mental health diagnoses but goes on and on about the GP and anorexia. The other diagnoses are likely the root cause of most of her issues - focusing on them would be more effective but that would gain enough spoonie points.

I only wish that I had screenshot of the IG story where she complained about blurry vision and her glasses were super smudged and grimy.

No. 369106

>>369023

As a medfag who specializes in the actual swallowing processes, this one confuses me a bit. I don't know much about psychosomatic issues so maybe thats why but -
The food may be bypassing her oral cavity but its not bypassing the swallowing mechanism.
Unless you have some sort of nerve/structural damage, everyone swallows hundreds of times a day - regardless of whether or not you eat actual food. (If you didn't then you would be drooling constantly). She is still swallowing with the tube in. There is still a physical object (the tube) providing some sort of sensation in the pharynx/larynx while she is swallowing.
Just seems like a weird explanation that I am sure she has convinced her doctors makes sense so she can have her precious tube.

No. 369122

>>369106
That's a good point, she mentions nothing about drooling or whatever happens to your saliva if you can't swallow. So she can swallow, and she posts pictures of herself eating. There's just such a huge disconnect between what she says and all the things she posts.

No. 369134

>>369089

But what if temple actually finds something?
Something really bad?
Something really bad motility related?

While it's unlikely she would have GP not self induced, or anything a few minutes from the time frame for GP, I still am nervous for the results (sad I know lol) because they will find stuff, not sure what, and beyond worried they aren't monitoring her/admitting her to make sure she's not self inducing shit.

No. 369138

File: 1502249249899.png (1.55 MB, 2220x1080, Screenshot_20170808-222231.png)

On today's Jaquie vlog:
-She talks about how she does Monday mornings on the phone "advocating for herself" for the treatment she needs.
- She's getting a special shower chair.
- She's prepping that poor dog's food with meat from fucking Walmart. No wonder the poor thing got sick.
- "OMG normal things people have to deal with are happening, everything is so hectic!"
- She's getting Life alert because she is in so much danger of just dropping dead, hey conditions are that serious. I'm pretty sure she had mentioned an angiodema attack in MONTHS. She needs to learn to just fucking sit down if she's going to pass out.
- "OMG I had to FIGHT FOR MY LIFE" bullshit bitch.
- She's have a major breakdown because she's taking a year off of school, like people do ALL THE TIME. She claims she can't even do online classes, which I don't no understand.
- She's going to change her major because they think her ever working full time would be detrimental to her health.

No. 369139

>>369134
They may find that it's self induced through terrible diet and purging, they may find nothing, but I think it's most likely that she will have some minor damage, no gastroparesis or ibs, just some sad abused guts that would be fine if she ate some proper food and drank some water.

Dani will choose to interpret it as an imminent death sentence, start a new gofundme for vaguely related medical supplies, and post twenty times a day about being the worst case of gastroparesis anyone has ever seen.

No. 369145

>>369138
Damn, she's getting chunky. I can only imagine the life alert people, if they have to call an ambulance because she can't manage to tell when she's going to pass out (it's obvious, very much so). How wonderful for her that's she's getting all these things to furthur enable her laziness. If she used her energy for something other than making videos and calling people with her demands, she'd be perfectly capable of working.

No. 369147

>>369139
So sad for these munchies that they will actually live

No. 369150

>>369147
Nah, dying isn't what they want.
What they do want is the hushed voices of everyone around their bed asking if they're confortable or if they need more morphine, or to be brought treats when everyone comes to visit, all the attention and love and caring people naturally heap upon the very sick and dying without the inconvenience of actually dying, or having a terminal illness.
They want the painkillers without having to feel any pain, and nothing to do but rest and soak up all that attention forever.

No. 369151

File: 1502251239433.png (1.29 MB, 1536x2048, monoqueenmadi.png)

I found a Munchie Queen on Twitter.

No. 369152

File: 1502251400525.jpeg (Spoiler Image, 354.33 KB, 1274x1468, endo.jpeg)

Also this IG Spoonie who has uh, documented their endoscopy…

No. 369156

>>369035
The only legit reason for you to have a line hanging out is if you're covered from neck to ankle and you needed it for emergency (read: impending death) meds. And EMS usually cuts clothes off anyway.

No. 369163

File: 1502253206395.png (117.2 KB, 750x941, IMG_9693.PNG)

>>369151

Omg. Just. Fucking. Why. This girl literally has her tubes hanging out in EVERY picture, and in some it's clear she has cut or sew holes into the clothes to specifically bring the tube out. Disgusting.

No. 369165

File: 1502253383609.png (150.53 KB, 750x1044, IMG_9694.PNG)

Tuck that shit in!!!

No. 369166

>>369165
How do you even get obese with a tube? If she was obese before she had it she should by all means have lost significant amounts of weight before and after getting it.
Is she eating food as well as pushing nutrition through the tube? Running 5x the amount of formula she needs?

No. 369171

>>369166

This.

No. 369173

>>369151

she was close friends with a girl I knew who passed away. That girl was definitely, 100% legit, but this one may be legit but milky and really OTT about it.

No. 369176

>>369173

I'll also add that I think she has gotten a lot more OTT than she ever was a few years ago. Sad when people descend into it like this.

No. 369203

>>369152
That's probably just a laptop charger

No. 369204

File: 1502262302812.jpg (428.9 KB, 1072x1243, Screenshot_20170809-010026.jpg)

Oh lordy. I found a self-aware one

No. 369205

File: 1502262367858.jpg (603.38 KB, 1080x1537, Screenshot_20170809-010142.jpg)


No. 369206

File: 1502262427437.jpg (433.76 KB, 1080x1501, Screenshot_20170809-010221.jpg)

It's honestly quite impressive. At least she admits that she wants to have a disease instead of just outwardly pretending like she had it

No. 369207

>>368946

In general, there are three different types of line infections: site, tunnel and bloodstream (called 'proper CLABSI', the other two apparently aren't well-behaved enough). Site infections are simple to cause but because the skin has a fairly sane immune system, it rarely leads to severe disease in immunocompetent Munchies. It's also extremely painful. A tunnel infection is harder, and generally means the line's got to come out, but the principle is the same - introduce some infectious agent sufficiently deeply past the site and into the tunnel. Finally, CLABSI sepsis requires almost inevitably something to be pushed into the bloodstream. Inadvertent CLABSI happens by accidentally touching a port gripper needle against something or not swabbing hubs/bionectors/whatever the fuck your call them. When induced intentionally, I've seen a wide variety of absolutely fucking insane ways of doing it. All of them are playing with serious fire, and the contribution these fucks make to antibiotic resistance to last resort antibiotics is definitely appreciated by bacteria. Much to their sadness, Munchies recently learned we have discovered blood cultures around, say, the century before last, meaning that we can identify the pathogen. We know what pathogens turn up where, and if I suddenly see weird shit in the bloodstream of someone with a central line and other warning signs, we now have VERY sensitive methods that can identify exactly what that pathogen is and where it came from, including whether it was injected at a large volume (your average Munchie is not a microbiology tech, she WILL fuck it up). The saddest case bar none I've ever seen was FII by inducing dilute faecal matter (yes, really) into her bloodstream. The pt had a stool transplant (yes, that, too, really) a while earlier and we thought hey… everything's possible. Some antibiotics later and she was better. Then half a year later, she was worse again, but this time far less fulminantly than initially. Thinking this was because she did not put enough poop down her midline rather than because she developed some degree of resistance, she decided to give herself another central line enema. To the predictable effect of a piece of some solid matter getting lodged in a major blood vessel and causing a devastating stroke that killed her. It made for a depressing M&M, and that's despite the fact that we are all sick fucks who laugh about this sort of crap. Sometimes.

No. 369208

>>369204

Doctors with 30 years of experience scare me because they're so trained and experienced they can see right through me!

No. 369212

>>369151

Oh God, that's Madison Noelle <lastname>. I have friends in common with her on fb so I've seen some of her shit shared. She went from 'I haz fibro' through 'omg holy fucking shit TFIOS came out, I need fucking oxygen!' to her latest SJW incarnation. Now with +100lbs bwt.

No. 369214

>>369163

No, it doesn't. It shows that your skin was exposed to the limits of its tensile strength as you ballooned in weight because you ignored your physio's advice for graded exercise and instead prefer to sit in a fucking chair and be #bodyposi all day.

No. 369216

>>369212

The SJW variety of spoonie is the one I have the least ability to tolerate for so many reasons.

No. 369218

>>369204

They probably will dismiss you. Hell, I know I used to be a gullible fuck 2-3 years ago compared to now, and I'm still just a baby docling. Wait till I reach my final evolution and gain my Munchie repelling attack!

No. 369219

>>369206

So basically she's fat and wants to get T3 to lose weight rather than get off the pills that make her nice and lazy and stupid and mellow and slightly high,

Fuck, I am glad I did not end up in endocrinology. I lack the poker face required to tell these fucks that their thyroid concerns will be seriously investigated.

No. 369237

File: 1502269044448.png (422.44 KB, 640x1136, IMG_1293.PNG)

Toonauseous an OTT who is jumping on the Sarahah bandwagon and throws a fit when someone questions her. She wants them to not be anonymous. Well don't idiot that's the point.

Think a lot of lurkers from here will be calling it like they see it and leave negative yet realistic comments about these attention seeking munchies.

They moan so much about this site and the hurtful and dangerous things being said about them cause it's just "not fair" then in the same breath sign up to a thing where you are asking for anons to do exactly what they protest about!

Sage for not much contribution other than irony!

No. 369243

>>369238
Lurk more namefag.

No. 369244

How can you be obese on tube feeds??! Even if - by some random chance - you start off large, surely you're going to lose weight as you are only taking in what you need. These "tubies" are clearly eating food which negates the need for a fucking tube. It's all for show.

No. 369248

File: 1502271181425.png (611.27 KB, 1536x2048, IMG_2865.PNG)

Practically half population has a haital hernia, love. It's also often an incidental finding. She must be devastated that she's not got the beloved gastroparesis diagnosis. Basically, if you read between the lines of her posts, they haven't found anything wrong with her. I'd bet $100 that she's purposefully starved herself, judging by how happy she is to be admitted to the hospital.

No. 369249

>>369206
The comments underneath are WOW. Bunch of munchies complaining that bloodwork is basically meaningless and how she probably has the disease anyway or maybe other diseases and how doctors don't look at the full picture because they're dumb. Top kek.

No. 369250

>>369244

Actually pretty easily.

1) Shitty dietitians who suck at calculating BMR. Sorry, but it happens.
2) There are vast interpersonal variations when it comes to metabolism and how much you need of what. Many of these we don't even understand and most we cannot even test for. Thankfully in a normal situation, we have a pretty decent way of understanding that eating certain things makes us feel good and makes us thin while eating other things makes us fat and feel sick. And so eventually your body figures out its individual composite diet. A tube feed, however, has to be for just about everyone. There are special feeds called elemental formulas that are basically predigested but they're expensive and a bad idea unless clinically justified. Some patients rapidly gain weight because their glycaemic control is so crap, they absorb all the carbs. This is especially a problem with certain ethnic groups who normally have a very high protein low carb diet: I've seen a number of Afro-Caribbeans with lean or even emaciated physiques balloon up on the regular formula that doesn't accommodate the fact that they're genetically geared towards a low sugar high protein diet (the same reason btw is why a lot of Polynesians get very obese and die to heart disease if they're put on a carb-rich Western diet!).
3) Most of us lack self control to the point that even if we are nauseous we desire food. It's hard to be NPO for a few days, being so for weeks is torture, and so they invent bullshit like they have 'safe foods' or plain suction it out of their bellies after consumption,
4) It's only when unable to eat that you realize how much of our social interactions revolve around food. The pace of a dinner conversation, for instance, is geared towards eating and talking, not just sitting there with an empty plate. It can get very awkward very easily. Hence the temptation by many to still try to eat. That's despite what they say an absolute no no with an NG or NJ, and even in the case of reenteralising a patient, there's an order to it and it has to happen under medical supervision. Plenty of people got very fat on a combination of no exercise, lots of steroids and hi calorie tube feeds.

No. 369251

>>369248

Slow oesophageal passage is virtually never symptomatic and if it is, it presents as a predominantly dysphagic symptomatology (aka choking), not the nausea/bloating of profound dysmotility.

Lie better, Carmel.

No. 369256

>>368670
>The sepsis has been confirmed I have a collection of bacteria from my bowel infecting my blood.

Multiple pathogens
Intestinal flora
Really?
I would say that these details alone are concerning. How would intestinal flora end up in the blood? Occam's Razor, fam. The simplest explanation is usually the correct one. In this case the most obvious answer is that her PICC became the vehicle for introduction of gut pathogens.
A few things to note:
1. Negative line cultures do not necessarily r/o line colonization. Many times these infections will not show until the explanted catheter tip is cultured.
2. Unless she has some kind of fistula, the only other MOA is exogenous introduction of pathological flora.
Make of that what ye will.

>>369207
This.

No. 369259

>>369250
So no self control, pig urges to eat even when nauseous (who the hell experiences this!!?) and a thousand extra calories literally every day, with a side of 'muh genetics calories aren't real'

No. 369263

>>369256
alternatively considering she claimed they couldn't confirm the presence/location of sepsis bc of a public holiday (emergencies don't get put on hold for public holidays like she was) and she was only in for four days, the public holiday weekend. (has history of being in hospital for birthdays and easter bc super speshul sick points and sympathy) She never had sepsis. P.s there's no line in following posts.

No. 369264

>>369263
Wait she's seriously claiming that a hospital didn't treat her for sepsis because of a public holiday?

No. 369266

>>369264
yes, those posts are dated as easter. She also claimed she was sent home still having sepsis after 4 days. looks totally healthy/not dying of sepsis in the first image. go figure

No. 369272

>>369266
Wow she didn't even to bother finding out the usual treatment or symptoms for the infection she faked, how lazy can you get?

I thought that munchies went to absurd lengths to look as sick as possible and would have at least similar amounts of knowledge to a med student from researching symptoms to induce or fake. From what I've seen here they're all extremely ignorant about health/biology/medicine/what doctors actually do and just a bunch of lazy fuckers who want to collect tubes and walkers and diagnoses like they're gym badges in Pokemon

No. 369297

>>369272

She's the laziest, dumbest one i've seen yet. It's actually laughable. The mum (@Sara_alcock) seems MBP/enabler at the very least. Sad.>>369272

No. 369313

>>369272
Don't give them too much credit anon. Some munchies take the time to research thoroughly; not all do. The inconsistencies and/or presentation with a caricature of illness rather than cardinal symptoms are often what leads to the suspicion of FII in the first place.

No. 369316

>>369216
it's pretty easy for them because their followers believe any sob story as a matter of principle

No. 369320

>>369216

The worst are the oppression point collectors.

Somebody fifteen generations back might have had a feather in his hair? #fuckDAPL #waterdefender #proudnativeamerican #indigenous!
You have a cough? #asthmawarrior.
Sore joints? #arthritisfighter.
Your grandfather's fifteenth cousin seven times removed's hairdresser's friend's kid knows someone who has cancer? #gogoldfor<nameofmonth>
Somebody expected your largely able body to perform a function it should be able to even if much more grievously disabled? #everydayableism #endableismnow
You once kinda fancied a girl at school? #lgbtpride.

I don't mind most of these, but I can't stand diseases and health issues getting mixed in here like they're badges of disprivilege to be collected.

No. 369371

>>369207
This is my favourite medfag contribution ever. What a fucked up way to die.

No. 369380

File: 1502289900819.jpg (104.99 KB, 750x440, IMG_2867.JPG)

Someone posted to say they had a normal emptying study after having years of gastroparesis and having been previously diagnosed after an abnormal one and babybear replied…………

No. 369385

>>369380
Awww look, poor Munchie tries to hide her AN-bp/BN hx and go for a GP cover, and fails! Big fucking shocker! Fuck you Alexis. You are such lying sack of shit.

No. 369392

I enjoy this topic oddly and it's interesting to see other medfags do as well.

It's neglected but important to differentiate between Munchausen's and Pseudologia Fantastica. PF is much more common than genuine Munchies.

PF is particularly common, in cluster B personality disorder. It's not uncommon from people with BPD to exaggerate or malinger, ditto with NPD.

It's uncommon to become truly pathological and most will divest after things run their course. Some get invested into the identity they've built. They have no way out of the false identity they've built. Being found out is the worst thing that could happen because their actual identity is disordered/fragmented relative to the constructed one.

When PF cases of any kind are discovered as falsehoods, they often experience a lot of narssisistc injury. Lack of targets turns all that rage inwards so suicide and self harm are common.

This is IMO the best metric for differentiating Munchies from PF as a feature of other mental illness. Munchies aren't really doing it for attention/identity. For them it's a mixture of genuine belief they're ill and clinical fetish. Munchies can handle skepticism, they'll just never accept it as true.

PF like you see in most of the people here can't accept skepticism. Unlike Munchies they escalate their supposed illnesses. Munchies tend to become invested in a narrow scope and stay there.

But yeah most PF I've seen was helped with treatment of co-morbid issues and ran it's course in a year or so. It's crazy to see how invested some of these chics are. It becomes a trap too. The deeper the hole gets the harder it is to get out.

Jacquie, for example, will probably never get better. She'll never be able to identify as anything but ill. Shelbi is just as bad but more chaotic because she actually gets psychiatric treatment, so she can't crystalize her "ill" identity as well as Jacquie.

No. 369394

>>369380
Hahaha that's what happens when you're a lying sack of shit. Too bad all she's got is her unspecial eating disorder and compulsive lying.

No. 369395

>>369392
PF is literally the perfect description for HypermobileGuy, Chronically Jaquie, Chloe Leanne, Chronically_Carmel, BlondeVoyage and EndlessVoices.

JBN might be Munchausens, I don't know. She has a fetish for her tube. And Richelle since she probably infected her own line.

The PF ones are almost more interesting imo. I know it's not a popular opinion but I feel sorry for idiots like Endless Voices. She'll malinger away until she dies and she gets nothing from it. It's the exploiters that get my goat. Anyone with a gofuckme, and Jaquie's shitty shirts and patreon. Who the fuck do they think they are?

No. 369398

>>369380
Her doctor won't do anything because she's fine. So sorry you're not as speschel sick as you would like.

No. 369408

>>369395
I would say Jacque as well, just because of all the medical treatments/ paraphernalia she has. I don't know if a habitual lier would go as far as getting surgery like she has.

No. 369431

>>369152

I'm a GI doc. I do scopes. Shitloads of them. I am as close as you can come to being an endoscopy nerd (I absolutely am fascinated by the technology involved). With that said…

What the FUCK is THAT?

That… is not any scope I know. There are very thin scopes mainly used for the nasopharyngeal passages, but they look different. Proper scopes have a scoring on the scope itself so you know the depth of introduction - that is actually required as reports often need to state distances and how far something was introduced if a blockage is encountered etc.

So initially I thought hey, maybe it's a capsule scope receiver. In case you're unfamiliar, a capsule endoscopy is a small single use swallowable camera that takes pictures and transmits them to a receiver outside the body, typically a vaguely x-shaped receiver system strapped onto the abdomen. But I also know most capsule scope systems and nope, that ain't one.

Finally, wtf is she wearing? We do endoscopies in absolute emergency situations without getting the patient into a gown, we just put a drape blanket over them, but definitely no frilly dress bullshit going on in an endoscopy room.

So, this wins the prize for most fake faked endoscopy ever. Fucking hell. I'm even angry.

No. 369441

chronically_carmel's newest instagram story is so violently disgusting i can't bring myself to post it so i'm saging this. no one NO ONE wants to see that fakers nasty ass coated white tongue.

No. 369447

>>369392

Great contribution, fellow medfag. I took the liberty of actually bringing this up with a colleague or two - I'm not a shrink so I only see the fringes of these issues. What my colleague pointed out is this: if it's PF, why is it not more pervasive? Wouldn't someone with PF be basically lie about everything, not just their health, and so FII is more appropriate than PF if it is limited to health stuff?

Sage for medfagging.

No. 369451

Medfags, what's with this MALS diagnosis that's popping up on IG "spoonie" (bleugh) accounts? Is it a legit condition? They all seem to have it.

No. 369454

File: 1502301387498.jpg (813.17 KB, 1078x2089, Screenshot_20170809-125200.jpg)

From chronically_carmel. She's loving all of the attention

No. 369455

>>369451
@tubefedandfabulous had/has it. she was fairly popular until she stopped posting and got a real life after she got better. now everyone thinks they have it as soon as they can't eat or vomit more than once. saged for assuming.

No. 369458

File: 1502301599278.png (378.46 KB, 1080x2220, Screenshot_20170809-125752.png)

People are congratulating her for having medical problems. What the fuck is wrong with the spoonie/chronically community?

No. 369460

>>369454

Nice she's slowly morphing into a spoonie social justice warrior destroying discrimination!! Because clearly being denied disability due to lack of proof of genuinely needing it is "discrimination"

No. 369461

>>369458
this place opened my eyes and i got the hell out of that community.

No. 369463

>>369458
Pretty sure they meant congrats for the article being published

No. 369464

File: 1502302268771.png (1.34 MB, 1080x1561, 20170809_130938.png)

Bitch, that's a filter, not pots. All it is is a filter with the saturation up.

No. 369469

>>369464

Just no. POTS means your legs turning blue/purple from a shower not red. Pretty sure everybody's feet look like that after a hot shower or it's a filter.

No. 369489

>>369447

With PF it is almost always pervasive, but in a medical setting tunnel vision develops. In psych treatment it becomes easy to become fixated on medical related lies as they can be verified as untrue. Every PF I've been able to investigate in depth has engaged in the behavior in other contexts.

IMO they end up malingering because it's an attractive narrative. It builds an identity that is resilient in the face of skepticism. Many people are going to question health related claims as they're perceived as verified from an authority (modern medicine) that people don't feel qualified to question. Malingering allows cows to play the Hero(advocate, strong)/Victim(ill, neglected) narrative to the hilt which is extremely desirable. There's also a lot of technical language and esoteric knowledge involved in career malingering that allows them to seem knowledgeable, hence credible.

With lifetime PFs it's a cycle. They engage different narratives throughout their lives, but "mature" into others as needed. When they find one that works as is sustainable, they stick with it.

I think this maybe why the demographics (female, 20's) are so consistent. Malingering is attractive to them but they've grown into it from other PF behavior.

Extreme example: Women claims to have ductal breast cancer. Motives are sympathy, easing of job, financial gain, etc. Eventually she's found out and sent for an extensive psych evaluation. Psych team focuses way to much on medical related PF and just tosses her into the BP II collection bin.

Later it turns out she engaged in PF in every aspect of her life. Told students her fiance died on 911, she worked with NASA, acted in Mamma Mia!, had a PhD. Treatment ended up being futile because as her malingering narrative collapsed, it took her entire identity with it. Her entire life was a lie.

tl;dr FII is heuristically more appropriate, but PF is far more common. Just requires often unrealistic investigation.

Sage for medfaggotry

No. 369527

>>369392
WTF are you even trying to say? PF is a very common component of FD. The presence of PF is not a ddx from FD.

No. 369536

>>369380

Funny how she hasn't seemed to whisper a word of her super severe anorexia to this support group (at least from the screenshots posted here).
Maybe its "normal" because she eats enough bleach/detergent to clean her out (I couldn't resist)

And the ER isn't a revolving door because of severe symptoms - its because she thinks its her home and she keeps going back.

Often times doctors have to write down a diagnosis code to bill for a test - even if that test comes back negative - these munchies seem to take every code ever billed as a diagnosis.

No. 369545

>>369536

I went through every post of hers. She has not said a single word about her anorexia. In fact, she even lied and said she was NJ fed but conveniently left out it was because she refused to eat due to mental illness. Also, she was NG fed anyway.

Alexys is a full on munchie.

No. 369549

>>369263

Hospitals used to "dump" patients around holidays (previously worked in a nursing home and would always get an influx of patients before any holiday, many of whom had to go back because they shouldn't have been discharged yet in the first place). However, that has changed more recently, at least in my part of the US because some insurances (like Medicaid) have started to penalize hospitals when patients have to be re-admitted. It has cut down on some of the hospital holiday dumping because they don't want their reimbursement to be cut back.
And I doubt a hospital would dump someone with something as serious as sepsis.

No. 369550

>>369545
Does she have a public account now? Is she back on IG?

No. 369554

>>369545

Thanks. She has always been an OTT munchie. (I originally found her through a parody account on IG). It doesn't surprise me she is trying to go a new medical route since I think she was basically caught in the old lie so now she has to make up some new stuff so everyone can see how special and brave she is. And she has to try to cut associations with the previous fake illnesses to delay the amount of time before she is caught again.

Jonzie is smart - she does her research and knows full well what she is doing.

No. 369555

>>369550

No. I just happened to stumble across her on a Facebook group. She'll appear again on social media, mark my words. She'll get her toobz and show 'em off.

No. 369567

File: 1502312265470.png (2.62 MB, 2048x1536, IMG_2872.PNG)

Gastroparesis warrior?! Cringe.

No. 369568

File: 1502312315568.jpg (906.92 KB, 1073x1775, Screenshot_20170809-154212.jpg)

Her faces are so irritating

No. 369570

>>369451

Yes, it is a real condition, just a lot more rare than these fuckers pretend. MALS happens when the medial arcuate ligament squishes the celiac artery and celiac plexus together, causing pain. It's popular because it is a diagnosis of exclusion, i.e. if you have pain in the right places at the right time and weight loss and everything else is OK with you, you're assumed to have MALS that did not show up on imaging. The only useful imaging modality is CT angio, which few hospitals will order for a diagnosis of exclusion, especially as it's so often inconclusive.

Munchies used to love another GI vascular disorder called SMA (superior mesenteric artery) syndrome. The difference is that SMAS, while also a diagnosis of exclusion, has fallen out of favour with the medical establishment. A lot of gastronauts think it's a bullshit condition. Others, myself included, are happy to accept that it exists but is very rare and will not give a diagnosis unless some vascular evidence of compression (ideally some angiography followed up by a Doppler - I want to see the constriction and the slowing before I throw every other possible cause, including an eating disorder, out of the window and potentially medicalise a psych patient or treat them for the wrong disease!).

Teal deer: real condition, very rare, none of these assholes have it, easy to fake, in general the only times we know we were right on the money is after surgical treatment. Surgery for MALS is unpleasant and involves cutting the MA ligament and shoving a Doppler probe on the celiac artery. If it lights up, then the patient is stitched up and sent on his merry way. If it stays blue (= the artery has been so squished that it doesn't have enough blood flow), we usually have vascular standing by to do something ghoulish like doing a vascular bypass, they live for that shit. In general, and in recent years, two failed MALS surgeries are regarded as proof the diagnosis sucked and/or something else is going on.

No. 369571

>>369527

Err, that'd be a 'depends'. PF doesn't have its own concrete code and so a lot of PF where there was a medical element was/is coded as FII/FD/Munchies. PF and FII definitely share behaviors but arent necessarly convergent, e.g. FII includes actually making yourself sick, not merely appear sick. That does not chime well with the overarchingly narcissistic character of your average PF.

Sage for derailing and medfagging

No. 369607

File: 1502317107553.png (3.13 MB, 2048x1536, IMG_2875.PNG)

Why does she eat such rich, creamy foods?! If she's sick enough to need a feeding tube, she's sick enough to be careful and try clear broth and crackers.

No. 369624

>>369607
Who is this and where is it from? MLS's YouTube? Link video please,
and if it is from YT please post URL in the box under message body so we can watch from here.

No. 369628

File: 1502319635011.png (379.95 KB, 1080x1920, Screenshot_20170809-175728.png)

New video is filled with milk.
Some one must be having withdraw,
It seems full of manipulation or even flat out lies.

No. 369631

>>369624
The food screen shot is from Jacquie.

This is link to the MLS screenshot

No. 369641

>>369631
a lot of these munchies at least have their looks going for them in life but mls really doesn't. she should take better care of her hair and skin. it's actually pretty sad.

No. 369656

>>369166
Oh dear lord… she follows me on twitter.
I'm fairly sure she said she used her tube for water? Which makes no fucking sense.

No. 369657

>>369607
No wonder Jacquie's getting fat. You can tell just by looking at her that's she's gaining a significant amount of weight, which is impossible if she's only eating and tube-feeding what she said. Someone who desperately needs a gj tube is lucky to be able to tolerate bland crackers, like the other anon said, and maybe broth in small amounts. Not past with sauce and cake and sandwiches and whatever the fuck that fried thing a few days ago was. GP diets are low fiber, low fat, and usually processed. None of what she eats fits that. And since she was a normal weight when she conned her way to a tube, it's no wonder she's packing on the pounds now.

No. 369662

>>369579

If you have untreated sepsis, you will most likely be dead very soon. Often a hospital will keep you until you have 72 hours of no fevers and clear cultures, and then you get to go home (which is good news, unless you're a munchie who loves the hospital). No hospital would release someone with sepsis unless they wanted a lawsuit on their hands, and possibly a dead patient.

No. 369689

>>369607
I don't know about GP, but I do know Pots patients are supposed to limit carbs. Carbs cause an increase in heart rate. She just purposely does things to make her conditions worse knowing it will be awful and then complaining about it. Does no on call her out on that? Sage for contributing nothing extra there!

No. 369693

>>369567

She talks about getting violently I'll, but I don't believe her for shit. I have a friend that has a stomach condition and when she throws up a few times she gets nose bleeds, bursts blood vessels in her eyes, ruptures her esophagus every few months.
Sage for blogging.

No. 369696

>>369693
Your friend's experience is definitely not normal, tearing an esophagus is serious. But I agree that Jacquie shows no signs of consistent violent vomiting. There's no way she'd eat the shit she eats, either, and obviously she's eating enough to gain weight.

No. 369700

>>369696

She's seen multiple people and they've said it's just how violently she gets sick, and it's only if she does 4 or 5 times in a short span.

Sage for OT.

No. 369706

>>369631

Her voice always remains the same no matter how much "excruciating" pain she is in. The whole I am in too much pain to read but I can vlog just fine thing is crazy. For someone who only ate a single slice of bread all day - what dishes does she have to clean?
Also noted that she constantly pushes off doing any sort recommended diet stating she is waiting for her food stamp grocery trip. She makes it sound like she only goes once a month when she actually seems to go at least a few times a week. If her "boyfriend" cared so much about her, I am sure he would chip in a few bucks for food that would make her feel better.

If you mention her voice she claims its from reflux/vomiting - but it sounds more like she is just stuck in the whiny sick kid voice.

Wait until she gets to PT on Friday and they want her to do actual exercise. Can't wait to see what excuses she will come up with for why she can't do those.

No. 369708

>>369696

Eh. Mallory-Weiss tears are neither uncommon nor particularly dangerous. They're unpleasant, painful, scary as they may make it look like you're haematemesing, but all in all, there are worse things. Usually, the reason we shit our pants in GI about M-W tears is the cause (oesophageal varices s/t liver disease s/t booze? bleeding disorder? collagen vascular? bulimia? something More Sinister Altogether?), not the symptom itself. Hell, I'm a healthy guy and I've had one.

However, the total absence of scleral petechiae, facial petechial bruising and/or burst capillaries, retinal damage and other effects of sudden violent Valsalva manoeuvres (of which vomiting is one type) do seem to be almost universally absent, indicating they either have a very easy gag reflex or, you know, are lying their arses off.

No. 369711

>>369706

Oh, she'll say that her joints are too weak and that she's going to pass out, but those are exactly the reason someone with the illnesses she claims absolutely needs PT. She'll then never go back, because they don't understand her illnesses kek. She's a lazy attention whore, nothing else.

No. 369724

>>369711

The PTs will have a good laugh behind her back when she tells them her pain is 10/10.

No. 369734

>>369641

Like her "IG modelling" days?

No. 369764

>>369711
>>369706

This shit pisses me off.
I have a gut feeling her heart will come up as an excuse.
She's such an idiot
They do PT on paralyzed people, they do PT on 90yr old grannies.

New flash dani- they have cardiac PT. It saves my father's heart and millions others. Best friend has got long QT (real deal caused by mutation, not medications and confirmed by 3 EP cardios for 3 opinions like normal people do)
Which means strain, specially exercise, would make her drop dead yet she does OR, cardiac obviously.

She doesn't have any condition she can't take PT with no matter how much she tries to get out of it..and that should raise red flags to her Drs.
Not to mention that she claims her Drs can't figure out what is wrong with her heart (because it's completely healthy and she should be fucking thankful for that. Of course she's not)
PT won't let her complain her hearts too weak.
I hope she gets good Pts. That will not let her slab off and read into her shit. And if she doesn't shut up about this nonexistent heart condition hopefully they will get with her dr and set out to prove nothing is wrong with the heart again.




She needs to shut her mouth and listen, not hear, for once.
Because she isn't the one who studies every day and works around it every day g and in comparison she's not at all proper to have the mind frame that she knows it just as well as they do. BS.
The only time patients know more about their condition is when it's so extremely rare and the Drs have never treated it, just studied it in school. But even then if you've got a good dr he will step up and dig in and talk to other Drs to help his patient and/or give referral to a Dr specialized in the illness even if this means flying across country for treatment. Happens every day and she bitches about a 1.5-2 hr drive..and she has no life. Her dad who is taking her does. The people who travel have lives but they make it happen. She wont. If things don't go as she wants in temple I will not be surprised if she starts rescheduling appointments and then cancelling them all together saying she cant travel for them.

Sage for rant and a bit off topic..she just gets under my skin.

No. 369766

>>369741
Wow..

No. 369780

File: 1502333243941.jpeg (332.76 KB, 1272x1476, misstery1.jpeg)

Miss_Tery__Diagnosis with her "SDIT", ft. useless germ mask and tiny dog unlikely to be much help with her EDS/POTS. Like Jacquie, if she's trying to claim she needs help getting things off the floor, she made a mistake as the previous picture is her (without the mask, same in-store location) crouching down to hug the dog. I know people with POTS and severe EDS, they don't crouch down because they can't get back up again. Also I'm pretty sure she's trying to be Jacquie except with two service dogs. Yes, two. The other one is for "emotional support".

No. 369787

>>369780
I thought those masks were more to prevent germs coming from you, than to stop them getting in.

No. 369793

File: 1502335544254.png (Spoiler Image, 1.07 MB, 1536x2048, IMG_2884.PNG)

Not sure if this is the right place but does anyone know what's up with this person? Freely admits to having - and trying to recover from - an eating disorder, yet has both a J tube and G tube. She talks about binging. She alludes to Ehlers-Danlos but not seen her say it straight out but it sounds like it, so I'm assuming she got the tubes for gastro issues…but how? She's in the UK too and it's much harder to be a munchie and get tubes, you can't demand.

She's the_feeding_of_the_fox if you don't want to click on pic.

(Spoiler for nudity.)

No. 369797

>>369793
Those granny panties are a lot to take in

No. 369806

>>369793

I'm heading towards "legit", seeing as she's in the UK. The constant tube flaunting in the name of body positivity gets a bit boring, though it's nice to see it from someone who isn't a 20yr old attention whore.

No. 369807

>>369787

That's what Japanese people use them for. I suspect she's just using them as Spoonie Accessories though.

No. 369820

File: 1502339802788.jpeg (278.8 KB, 1278x1326, mbv15.jpeg)

In case you missed it, MyBlondeVoyage decided to go back to Breakspear after all for some very genuine sounding medical treatments…

No. 369821

>>369793
I think she's legit. She was really obese and then dropped hundreds of pounds really quickly, purged loads, and was malnourished enough for hospital and a nose hose. I'd say after so many years of constant abuse her digestive system could have genuinely up and quit.

No. 369843

>>369821

I get that she was really and genuinely sick and needed the tube back then, guess I was just confused as she seems to be eating now. I'm probably too cynical from hanging out here!

No. 369882

>>369806
Oh my sweet summer child. Being in the UK means nothing. Chloe Leanne is in the UK, and Chloe Print Lambert (not saying we should discuss her now), and myblondevoyage, and hypermobileguy, and many more… the first two have managed to get tubes all right.

No. 369905

>>369843
Having looked at her account more, she is a total OTT drama hound and SJW. She obviously has been exploiting whatever real issues she may have (maybe mostly her obesity and sequelae) for decades. How on earth did this woman get such a following with her crude SJW rambling? It's crazy.

No. 369912

File: 1502357343496.png (57.04 KB, 750x516, IMG_3639.PNG)

kek
you tell'er nina jean

No. 369925

>>369912

At least most of these girls are clever enough to pretend to manipulate doctors into getting a tube. Dani is basically openly advertising it. She's desperate.

No. 369933

File: 1502361816485.jpg (620.7 KB, 2048x2048, 0C25831E-1D20-4954-A4E0-8A23DD…)

>>369912

Saraha fun!

No. 369941

File: 1502362361053.jpg (458.69 KB, 2048x2048, ECC6CE51-526E-468B-8084-9B9A10…)

JBN mixing up usernames!

If she is usually sick within minutes of food how does she even complete meal. Is it minutes after the first bite or is her psychomatic brain clever enough to know to wait until the plate is empty.

If it's after every mouthful then that would be one long ass meal back and forth to the bathroom or sick over other diners!

No. 369947

File: 1502363671355.png (170.23 KB, 640x918, IMG_1319.PNG)

>>369933

Well done on not going to the ER unless "something is really wrong" and wasting resources for someone who is "really ill".

No. 369997

File: 1502372463683.png (47.55 KB, 762x469, uah wtf.png)

Told shanny she should leave youtube cuz it keeps making her relapse, everyone calls me a troll and keep attacking me personally when my first comment was just concern.

SHE ENDS UP SENDING HER SHITTY FAMILY MEMBERS TO DEFEND HER

So i delete my comment.

That is so low of that cunt.

No. 370003

>>369997
BTW You can tell shannies "husband"is a piece of shit who makes fun of her boobs for not being gigantic all the time.

Also the gross faces he makes at everyone.(USER HAS BEEN PUT OUT TO PASTURE)

No. 370006

>>369628
What's her full YouTube name I kinda wanna watch them all

No. 370009

>>370006
She has no videos, just uses the channel to comment.

No. 370010

When people call fucking tube changes "Surgery" I want to lose my shit. It's a PROCEDURE at best. Wildly off topic and no specific milk, TONS of precious spoonies do this though.

/Sage for rage

No. 370011

>>369997
HOLYFUCK SHANNIES MAKING ANOTHER CHANNEL FOR "KIDS" SHE WANTS IT TO BE "FUN"


Btw she made the "trolls" video because i left a few harsh comments over the last few days…
She wont learn cuz she wants a shanny family cult family.
She wont help herself, thinks her cult strangers can help her by coddling her.

Latest video is about sex or something…. ew

No. 370012

>>370011
btw never commenting to her again, its cringy to know she made 2 whole videos over me leaving a few comments.

No. 370020

File: 1502376654695.png (2.59 MB, 494x4852, nooooooooooooooooooooooo.png)

>>369997
What a horrible fucking family letting her fuck up her life like this.

Censored face in case she realities she made a fuckhead out of herself and decides to kill herself.

No. 370023

>>370010

I saw one refer to an endoscopy as an "invasive procedure". LOL

No. 370033

>>370010
Hahaha a tube change takes about ten minutes (and that's for a gj tube, a g is even less) and doesn't require sedation or even a local anesthetic. You can literally stand up off the table, walk out to your car, and drive yourself home

No. 370049

>>370023
Can beat that. I know a girl who referred to an endoscopy as 'surgery' as it was performed under GA (by request of course). So apparently GA=surgery.

They perform MRIs on little kids under general to keep them still, doesn't mean it's surgery…

No. 370065

Does Jacquie reveal anything about her living arrangements/family dynamics in her videos?

I've finally gotten to watching them hoping for more context. Temporarily deaf though and captions don't give the same level of comprehension. Honestly I do give her props for including captions.

Like I said previously, I don't think she's a legitimate munchie. Psychologically she's certainly interesting though. I work in forensic psychiatry and I'd be interested in the dynamics between her and Judd. Captions give no context of their interaction.

Seems like they're living beyond their means. Nice house in a high end looking neighborhood. Maybe her parents are helping bankroll them?

This plays into what I said about PFs and how fragmented identity causes them to construct narratives about their lives at the expense of being genuinely revealing. She mentions no hobbies, interests, details about her past, etc. I mean she just got married. She doesn't even give context of how she met Judd. She doesn't lay or a time-dependent narrative of the role being chronically ill has played in her life.

Jacquie more than other Munchies selectively omits details about her to such an extent that it's clearly purposeful.

No. 370069

>>370065

She has said that they were high school sweethearts.

I have no idea about money. The salary for Judd is $35000+ depending on the county. I've always thought they lived far above their means, especially when you consider the medical bills they probably have.

I don't believe she has any hobbies. I think her hobbies are editing her vlogs, and netflix.

No. 370070

Judd is in the National Guard so he likely gets some compensation for that in addition to his salary on the police force. She has said that her dad used to develop very high end resorts and I am pretty sure she mentioned that her dad bought her car. Otherwise she hasn't revealed much about what her parents do, or what his do.

No. 370094

>>370065
Seeing as she's basically a copier of everything Fry life does she very much is most likely an munchie trying to ride their coat tails into popularity and making easy money from YouTube. Though living in Florida is much cheaper so it can look like they may be living above their means but who knows. They very easily could be. But when Jacquie started vlogging she has a lot of interests including going to a dojo and reworking on working her way up to black belt again when she was supposedly a black belt of another martial art. And as for national guard money they only get paid on their weekends and week and deployment which isn't all that much.

No. 370097

File: 1502386401340.png (158.17 KB, 750x1110, IMG_9719.PNG)

Because if I KNEW that every little thing was going to make me vomit my sooper special little guts out, the first thing I would do is eat out, because ya know puking in a public toilet is sooper sanitary especially for someone with so many other "health issues"

No. 370100

>>370094
living in florida is not cheap at all unless you want to live in section 8 or have roaches and brown water in a building from the 1960s . sage for not contributing sorry

No. 370107

>>370049
Heard that general anaesthetics were being called surgery. Fucking attention seeking beyond belief

No. 370112

File: 1502388293819.png (189.48 KB, 750x1200, IMG_6181.PNG)

Dani will come up with every excuse not to try a diet that might help. So many people have laid it all out for her yet she still says she needs to "research" it.
And when asked why it takes so long to research she replies that she can't spend too much time on the computer to her chronic migraines (which she only ever brings up as an excuse). If your migraines are so bad you can't spend 20 minutes googling a diet on a computer then maybe don't spend so much time on IG, watching Netflix, making terrible vlogs.
If it was truly an issue you would prioritize using the limited time to find something that might make you feel better.
But let's be honest - Dani doesn't want a cure because underneath the illness she realizes that she is nothing special

No. 370116

>>370107
what? dumb person here. general anesthesia is surgery. if you're totally out it's a surgical procedure isn't it? not wk'ing genuinely now confused.

No. 370118

>>370116

Procedures are any medical processes with a pre-determined sequence such that if executed leads to a desired result. Surgeries are procedures that involve making an incision (cutting) into the skin.

No. 370125

>>370097
Because making sure to sit near the toilets is totally normal sarcasm off What happens when all the toilets are occupied?
Isn't it kinda dangerous to eat large meals, when you have a NG and know that you end up vomiting?

No. 370128

>>370116
Surgery involves making an incision. You can have 'surgery' without having a full general anaesthetic too (I.e a Caesarian or open brain surgery). The anaesthetic is conincidental

No. 370145

>>370128

Yeah, I've had surgeries on my toes while fully conscious (but buttloads of local anaesthetic).

No. 370159

File: 1502395645054.png (151.54 KB, 818x604, wtfnicole2.png)

Huh, so JBN is a liar about her asthma too. Here she disclaims her asthma is triggered by food allergies and "traumatic events" which…no. No.

You're a drama queen who gets attention by getting you sent to the ER by faking an asthma attack.

Got she wastes so much medical resources.

No. 370168

>>370159

How to make a panic attack sound more serious - call it asthma.

No. 370169

>>370159

Though she does have epi-pens so she's probably not lying about having food allergies. Whatever it is she's allergic to…

(and from a friend who has this, I know that a sulphite allergy tends to manifest itself in asthma-like symptoms)

No. 370182

File: 1502397903161.png (170.8 KB, 750x1044, IMG_0711.PNG)

>>370112
>going to try this next month when my food stamps…??

You mean next month, after Temple, because you want to exacerbate your super mild, self induced, GP until then. Ok Dani.

No. 370259

>>367135
>>367135
>>367135

>>367439
>>368544
>>368444
>>368544
This is ridiculous. Try being on the BRAT diet pretty much 24/7 or maybe actually take the paresis diet seriously or maybe you just have perfect motility.

Saved for bitching and I'm sorry but this bitch gets under my skin.

No. 370263

>>370159
Not wk-ing but think they were asking two questions, if she had ever been intimated due to her asthma and if yes could her psychosomatic vomiting issues be related to trauma from intubation? she really does seem genuine about her asthma and allergies, most of her medications are for asthma and she is prescribed epipens

No. 370267

>>369204
These are the exact Dr's I look for cuz the old school ones not only really care about their patients but they're good and not afraid to call anyone out if they're BS.

Saged for blogging

No. 370276

File: 1502408161479.png (507.17 KB, 1536x2048, IMG_2886.PNG)

"Oh noes, they can't find any real evidence of sooper serious problems!"

No. 370277

>>370259

Yeah, you don't need a special diet to manage delayed gastric emptying if it's mild, like hers. Use common sense;,no high fat foods and no high fiber foods. Eat white carbs (pasta, rice and bread), well cooked veg, fruit without skin, chicken and white fish. There ya go, Dani. Easy peasy.

No. 370284

>>370276
Yesterday she said her endoscopy showed gastritis, if I'm not mistaken gastritis is not a terribly uncommon finding.i mean it's something but it's not sooper seriose. Hence why the doctor would call it unremarkable.

No. 370304

>>370284
Gastritis is super common, in fact. And isn't something that needs to be treated in a hospital. Unfortunately for her, she's not medically special kek

No. 370321

Someone please tell me what kek stands for. I've been lurking for weeks and still don't know.

Sage for ignorance

No. 370351

>>370321
KEK = LOL. It's imageboard slang.

No. 370426

>>370277
>>370276
I think this is the same person, crying to the media bc centrelink didn't give somebody disability payments for a condition which isn't usually disabling and for which she didn't provide sufficient evidence of disability and functional impact to support her claim https://au.news.yahoo.com/sa/a/36672253/wheelchair-bound-student-denied-centrelink-not-disabled-enough/

No. 370437

File: 1502432935771.jpg (89.34 KB, 480x645, Drawing_175608.jpg)

Emisdreamingthroughthealarm posted an update on her seizures. She's definitely angling for an epilepsy dx

No. 370475

>>370426

That article…. ugh. The article even links to her gofundme, which I read and promptly felt the urge to pour bleach into my eyes. So much milk I am drowning and wouldn't even know where to start. So irritating and even infuriating to read that stuff as a person who lives with some of the things she claims. I am sure she is very pleased with the article.

sage for blogging, ranting, not contributing, and being a waste of space

No. 370476

>>370426

Not wking, but to be fair EDS can be disabling. The problem is most spoonies who have it (or at least say they have it) claim it disables them and then turns Instablogging about it into their occupation. On her gofundme she said EDS was suspected (Probably just by her though..) so I guess by the time of the article she'd gotten that sweet sweet diagnosis too.(USER HAS BEEN PUT OUT TO PASTURE)

No. 370477

File: 1502442376174.jpg (117.94 KB, 229x303, wtf.jpg)

How can you have your period for 5 month? She keeps visiting her Gynaecologist and I don't think a doctor would tolerate this. Her GP I guess checks her blood frequently and he would have noticed anemia, or?

Her newest thing? She thinks her RA is Lupus, because her face is flushed sometimes lately.

She admitted in a comment, that she never saw a cardiologist. But her RA is attacking her heart? Wtfh

No. 370483

>>370476
Hot damn,she is such a faker. Her pictures couldn't make it more obvious that she loves being in hospital and is going to milk it for all the sympathy and money she can. What a greedy, lazy munchie.

No. 370488

>>370483

She annoys me because she looks so smug and happy to be in hospital, posting pics all the time. It's also too obvious that she wants a nose hose for extra ass pats.

No. 370489

>>370477

On the drugs she takes for her RA, she'll def be having regular blood tests.

No. 370490

>>370488

Agreed, today she posted a pic where she looked so happy to be there and the caption was "by the way this was taken right before I started crying" oh ok

No. 370493

File: 1502444250442.png (554.62 KB, 1242x2208, IMG_4512.PNG)

She complained on a doctor just for saying that IBS and fatigue have psychological factors. I'll never understand why so many spoonies have such an aversion to even the slightest hint that things can be affected by stress.

No. 370494

File: 1502444550196.png (182.46 KB, 1242x874, IMG_4513.PNG)

just saw this comment. I'll be interested to see how she responds, if she does

Sage for not contributing

No. 370495

File: 1502445011205.png (268.68 KB, 1242x1208, IMG_4514.PNG)

In addendum: snatched.

sage for samefagging.

No. 370499

File: 1502445451390.png (1.13 MB, 750x1334, IMG_6629.PNG)

>>370495

Of course Carmel has Lyme Disease - WHICH DOESN'T EXIST IN AUSTRALIA! Allegedly being "secretly treated" by a doctor who could "lose her license" for it. Going through Carmel's posts it's amazing to see how many new illnesses pop up!

No. 370513

File: 1502448803091.png (145.15 KB, 630x899, IMG_1328.PNG)

Give me a break! In the ICU with sooper special spooner severe sepsis but is fully able to IG an update. Give me strength!!

Not a full on munchie, some legit and OTT. Had quite the diagnosis collection. Possibly from winnings on the illness lottery

Sage for the need to vent the anger

No. 370517

>>370513
Bloody hell, they always have to add "severe" to everything! No shit sherlock! By the way if you are in ICU with sepsis, no fucking way you can take pics and write coherently. This bitch…

No. 370522

>>370513
Another one with AN but GJ access. And a gofundme

No. 370524

>>370489
And they never show any abnormalities, besides the low leukocyte count thanks to Rituximab.

No. 370528

>>370493

She needs to get the fuck over herself. If she actually has any of the conditions she says she does stress can be a major contributing factor that makes everything 5X worse.

No. 370549

>>362479

i miss kadee :(

No. 370550

>>370522

Hmm and very, very thin.

No. 370556

>>370513

TBH I feel like happyguts isn't taking her illness seriously enough. Out of all the munchies/spoonies she actually looks like she's dying, yet continues to eat when she's obviously not on enough tpn or whatever she's being fed with. Maybe eating is keeping her sick and getting spoonie points, but it's obviously not working for her

No. 370559

>>370556
kek shes anorexic, pretty sure there is no actual eating going on there in spite of what she claims
shes either purging anything she does eat via the tube or just the standard ED purging AND/OR shes not eating AND/OR she has reduced her TPN or is simply not doing it

No. 370560

Interesting how the more emojis people use, the more they are lying

No. 370565

>>370477
Not to WK, but my mum had her period for 8ish months once. But she still worked and went about her daily life bc she's not a little munchie butch.

Iirc it was from having the metal rod birth control in her arm that triggered it and it stopped a few weeks after the doctor finally removed it.

No. 370566

File: 1502461301015.png (137.99 KB, 750x909, IMG_3692.PNG)

Shes been mentioned on her before (shopping cart ~omg im so weak~ post) but shes FINALLY HIT THE SPOONIE BIG TIME
Yay for tubes
Lets all vlog about it
Service dog? Check. Questionable GP dx? Check. 'Lyme'? Check. POTS? Check. 'Epilepsy'? Check. Host of other random 'illnesses'? Check. NOSE HOSE? Check.

Ding ding ding we have a(nother) winner for the spoonie/munchie lottery.

No. 370576

>>370566
any time I see someone beaming with sheer joy like that in a selfie with their medical device(s) I just assume they're a munchie.

No. 370585

>>370493

I must be old. Is it a common thing now for people to substitute punctuation with emojis? I see this shit more and more. It's retarded.

No. 370599

File: 1502464856580.png (160.95 KB, 636x793, IMG_1329.PNG)

>>370159

It's so ridiculous that JBN was presenting at A&E daily sometimes for seizures, asthma,allergies, hallucinations, dissociation and the list goes on …..

Amazingly since the tube got put back in there have been no episodes back relating to any psychosomatic disorders and she had traveled to a friends to then go to the wedding (mass audience sympathy as she is doing a speech). I hope for her friends sake she pulls the tube for that day and not wear it like a fashion statement, and not be a selfish munchie and make it all about her.

Sage for rant as my blood boils!

No. 370602

I love this thread so much because it makes me rage. Short blog, I have a friend who's in her late thirties. She's got rheumatoid arthritis that's so bad her six year old son–who has it too–routinely stays with his grandma for months at a time because mum's too ill. We spend months not even talking because she's just too sick and her mom has begun to send out updates so we know when she's been hospitalized and how she's doing.

Because she's too sick to do it herself.

So looking at these grinning bitches with the nose tubes and their perky updates is firing me up in a very unpleasant way. What a horrible thing to use for insta 'fame'. If any of them were truly ill with something that wasn't clearly malingering/somatoform in origin they wouldn't know what the fuck to do.

No. 370605

>>370475

30 pills a day…. luckily they included a picture so we can see how many of those are OTC vitamins and supplements kek

No. 370610

>>370100

If it's not Key West or Miami, then yes Florida is relatively cheap and you can live well on not much of a salary. Even at the coast. Like Texas, there's no income tax at the state level so your dollar goes farther.

sage for complete ot

No. 370615

>>370556
She takes it seriously in that she uses it to her full advantage in staying severely anorexic. She doesn't get the nourishment she needs because she doesn't want it. She makes excuses that it's all her illnesses, but it's much more her eating disorder. Also, she has manageable illnesses if she wasn't keeping herself so sick. But that she loves that sweet, sweet attention and lack of adult responsibility that comes with being so sooper speschel sick.

No. 370621

>>370599

Eurgh, the sight of her sitting there for attention would put me right off donating to the food bank. I can just imagine going there to donate something to people who literally can't afford to feed their kids and her coming out with a sob story about how she can't eat (except she can).

No. 370622

>>370566
I don't understand why munchies have to call it an experience. You have a tube, you hook it up, pour in some formula or blended food, press some buttons, and go about your day. It's not an experience, it's actually pretty mundane. Why would anyone want to watch a video about that? Probably just other munchies, tbh.

No. 370626

File: 1502467426725.jpeg (336.03 KB, 1253x1451, hmg8.jpeg)

….

No. 370635

>>370626
Jesus how many hands does he have?

No. 370648

>>370585
It's so fucking annoying.
Sage for wanting to ban munchies from using emojis.

No. 370663

>>370605
Wrong. Florida isn't cheap anymore I know, I live there. Google home prices.

No. 370720

>>370663

Either way Jacquie is loaded. There's no way she's getting the sort of treatment she's getting through TriCare. If she needed it they'd cover it, but she'd never pass the level of scrutiny they would apply to her case.

Probably she's still on her parents insurance as she's under 26 and they're loaded.

Speaking of Jacquie, today she pissed away ~15k worth of immunoglobulin. Naturally that wasn't enough chronic illness for one day, so she had to go to the ER to make sure her feeding tube wasn't kinked. Obviously it wasn't.

Judd seems to just dissociate from all this shit. When he's not staring off into space, he's dicking around on his phone and making minimal generic responses.

I don't know whether to feel sorry for the guy or not. He either was thinking with his dick and feel for the early 20s "I can handle anything" mentality or really underestimated how nuts Jacquie is. Maybe he wanted to play hero.

Can't see things working for him though. Eventually he's gonna get tired of life revolving around Jacquie's lazy ass. It's going to get old, she's never going to put out kids, she's gonna go down hill quick in terms of looks.

Guy was retarded to marry her. Even if she never has kids, he'd still get murdered financially in a separation.

I guess the only thing he has going for her is that he can probably screw around all he wants. She's way too distracted with herself to catch on.

No. 370746

File: 1502476559065.png (249.46 KB, 1242x1385, IMG_4515.PNG)

Anddd the EDS society does it again

No. 370759

>>370746
EDS Society, friend of munchies everywhere. rolls eyes

They're such a fucking joke.

No. 370761

>>370759

I used to like them before they spent all their time SJWing and talking about what a helpless victim we all are. When they changed from EDNF to EDS society it went downhill. Lara Bloom drives me absolutely nuts.

No. 370763

>>370720

That was my thought. Tricare seemed so accepting of these insanely expensive treatments, some of which don't even have evidence of being effective. She screwed herself over though, now that she's married she can't be on her parents insurance.

I thought it was interesting that she isn't even a citizen.

No. 370796

>>370746
saging for blogging and non contributing but the EDS society plays favorites and always has. they only whore out the Mega Spoonies with 1000s of followers who don't need their help and never feature anyone legitimately ill with a smaller amount of followers.

No. 370800

File: 1502482131583.jpg (117.21 KB, 750x972, IMG_2893.JPG)

No idea why she cut her face off but LOL at the munchie mask and fake anachan thigh gap.

No. 370801

>>370800

Oops, name got cut off. This is Alexys aka Jonzie.

No. 370804

>>370800

Her emptying study was normal, she doesn't even have gastroparesis!!

No. 370836

>>370513
>>370566
I swear all of these people look so ridiculous all happy smiling like they just had the best day of their lives… okay I guess they did cuz they finally got their super duper special tubes. Yay! kek

Saged for bitching and not contributing

No. 370853

>>370836

But don't forget that "smiling through the pain" makes you inspirational and gets you spoonie inspiration points!!!!!

No. 370857

>>370621
In reality it is you and I that have donated to the food bank. No mention of JBN having an actual job so I suspect she is yet another one on benefits funded by the UK taxpayer.

No. 370864

>>370863
Different anon, but fucking hell can you not necro the vaccine injury topic please, it's boring af. They're fake, stupid munchies are trying to milk them for money (as if they don't get enough in their gofuckmes), get over it.

No. 370866

OT but did Ariana Magro delete all her social media?

No. 370869

>>370800
What an attention-whoring munchie! She had absolutely no delayed gastric emptying, and therefore no gastroparesis. You can also just have slow gastric emptying that requires some lifestyle changes but isn't actually gastroparesis, but she didn't even have that! Sadly she's a perfectly healthy munchie. I see she's also jumped on the creepy vog mask trend.

No. 370871

>>370836
It doesn't make much sense tbh. If you're sick enough to need those things, especially a tube, you're not smiling. And if it's a brand new g or j tube, you're going to be miserable for a while. But they always look so fucking happy.

No. 370887

File: 1502492457805.png (1.71 MB, 1242x2208, IMG_7435.PNG)

Honestly this girl makes me seethe. It's chronicallyspicey.
She was posted here before. Her mom asked if her boyfriend could go to dinner with them cos she had no money, spicey flew off the rails then too.
"I worked 4hrs and am sooper sick how dare you ask me to put away groceries when you brought me back a sandwich and fries also HOW DARE YOU"

The fact she posts this shit and expects sympathy for her "abusive mother" is beyond. Makes me sick

No. 370893

File: 1502493244276.png (Spoiler Image, 162.43 KB, 750x731, IMG_3700.PNG)

>>370866
Oh she is very much still around.
Pic related.
Youre welcome.

No. 370894

>>370887

Ugh, just saw that she works 20 hours a week but broken into 4 hour shifts. That is around half of what most people work. Yes, even sick people. Those with chronic illnesses also work. Fine if you can't work cause you're too sick but she's such a whinge bag.

No. 370895

File: 1502493419972.png (1.2 MB, 1536x2048, IMG_2896.PNG)

I know a few munchies who would LOVE these.

No. 370896

>>370895
^^^ not calling her a munchie btw.

No. 370904

>>370896
She is one, though. Or maybe not completely a munchie but certainly a disgusting exaggerator and drama queen, like everyone who acts the brave little heroine. Sorry for a-logging but they make me sick. They're creating a fantasy that is the exact opposite of what real disabled activists with genuine issues (not munchies, not sjws) have fought for. Selfish little brats, I hope they all end up fat like Jaquie. I swear at least 90% of the high profile Instagram spoonies either have nothing wrong with them at all (pure munchie), or entirely somatic issues that they refuse to accept, or the most minor and trivial of real medical problems that they use like a toy (or to collect those sweet GFM $$$), showing they know nothing about the real thing.

No. 370905

NOTICE

Thread has reached 1100 posts. The thread will be locked and you will be unable to post in it shortly after it exceeds 1200 posts. Please begin preparing a new thread and post a link to it when it's created.

No. 370908

>>370857

She spent a grand total of £4.85
Buying only basic store own brand. If she really wanted to actually help those in need to give them a little hope and let them think they are worth more than shops basics then that is more value and merit as a "pagent superstar".
Don't get me wrong every donation to food banks will get used and they will be grateful for anything. Just rage at JBN as if she just saved the world! I bet she is on full disability and gets over as £1000 a month with no rent and she probably will stay with her parents forever as she is so special and had life threatening illness as a munchie.

Sage for the rant and not contributing

No. 370909

File: 1502494814699.png (4.59 MB, 1536x2048, IMG_2897.PNG)

Carmel is so desperate….
Pic 1 of 2

No. 370910

File: 1502494834726.png (2.46 MB, 1536x2048, IMG_2898.PNG)

>>370909
2 of 2

No. 370911

>>370904

Erm I think chronicallyfabulous is legit. She has myasthenia gravis which is pretty shitty.

No. 370920

>>370911
Read all the threads before whiteknighting. People claim slash fake all kinds of illnesses that are serious, that by itself doesn't mean anything.

No. 370943

"Ex-spoonie" here. I refuse to have that label anymore. I've lurked these threads for months and it's been eye opening. I don't talk about my health on social media anymore… to the point where someone recently accused me of faking because my entire life isn't being sick and I'm currently well enough to work GASP turns out not everyone with chronic illnesses feel the need to talk about themselves all the time, need a transplant or special toobs or "need" to live on welfare payments. I've concluded that the more "awareness" these idiots try and raise with hourly symptom updates, the more their filthy mouths are full of dirty lies. Thank you everyone for providing more of an education that school ever did!(USER HAS BEEN PUT OUT TO PASTURE)

No. 370952

>>370943
>long munchie post

>I don't talk about my health on social media anymore

>not everyone with chronic illness talks about themselves all the time
Obviously you didn't get the message

No. 370953

>>370909
God imagine having such a hard time wrapping your head around the fact that you're not rare or super special or even actually sick

No. 370959

File: 1502500590236.png (280.28 KB, 1536x2048, IMG_2901.PNG)

Why the fuck would you put a thumbs up at getting a tube? Desperate for ass pats. She was angling for a tube and has been for a while.

No. 371009

File: 1502503861392.jpg (231.25 KB, 1079x1172, Screenshot_20170811-200932.jpg)

Do they not read their own psychobabble before hitting submit?

No. 371022

Man Carmel is dying for that tube. It's disgusting. I honestly don't know how she can smile and cheer about being in the hospital right now. I feel like anyone witch actual chronic illness would be avoiding the hospital right now as Australia is currently going through a major flu/gastro outbreak? Not to mention her gofuckme…. we have Medicare and PBS and decent affordable health insurance over here! If she can afford to live out of home, and pay to travel around Vietnam she doesn't need charity. Stop playing ana Carmel and just eat. Everyone's sick of your shit. Keep taking your vitamins and shut up.

No. 371025

File: 1502506252404.png (282.7 KB, 750x1334, IMG_5127.PNG)

Angling for that super spechul GP

No. 371031

>>371022
She's disgusting. What the fuck is the Ehlers Danlos society doing, promoting such an obvious headcase? It makes them look even worse than they usually do which is saying something. She's blatantly trying to get an unneeded tube just like she wants free money… ugh.

No. 371038

>>371025

Yet, apparently she's getting an NG tube which goes…into her stomach.

No. 371049

>>370959
Writing a complaint about doctors posing s very valid question…classic munchie right there. They'll give her a tube since she won't eat, not because there's actually something wrong. Also they probably don't want to deal with her malingering any more, along with her doctor shopping. She'll get her precious tube, because she's manipulating herself into one. Both pathetic and disgusting.

No. 371050

>>371038
Oh boy, another Nicole. She's so so sick, but is still posting like nothing else. Why are munchies such idiots?

No. 371062

>>371049

She's not smart enough to figure out that she's only going to be NG fed because of her refused to eat. They'd do the same with an anorexic.

If they thought she was at risk and did have significant GI problems, they'd place an NJ anyway. Her stomach is probably fine.

Also, she says she's not stressed but the mere suggestion that she doesn't have a super serious GI problem has made her depressed and suicidal. That just screams "mental health problems". Hey, there's no shame in that, Carmel, but at least be honest.

No. 371070

>>371062
mental health problems arent the flavor of the month though. not severe or rare enough so of course its not special enough for spoonies to lean on when searching for their precious tubes and various medical devices.

No. 371092

>>370857

TBH I wouldn't be surprised, if they believe her symptoms are as serious as she claims they are. I'm not going to lay into people who need benefits to survive though, as I'm one of them myself. I would rather be able to work than live like this, but it's not a choice I can make.

sage for OT, plz don't ban me <3

No. 371141

>>371070

and thank fuck for that, now us normies with our garden-variety depression and anxiety can just go back to the nice, nostalgic quiet life of self-loathing and isolation without having our illnesses co-opted and making us look like a bunch of woke-flakes

No. 371144

Why do so many munchies always have their tubes dangling, especially central lines?? And prepare their special water bags on grotty surfaces?? Are they TRYING to get sepsis??

No. 371145

>>371144

This has been discussed a lot. The answer is attention. If no one SEES the tube, you might as well not have the tube at all.

No. 371148

>>370116

Ok, medfaggery and medical administrative faggery here for a second (God, finally some use out of those five years managing a gastro unit that made me wanna kill myself on a daily basis…!).

GA has nothing to do as to whether something is surgery or not. We have brain surgery done under local, quite often in fact, as the patient's responses need to be monitored (this happens often in ablative surgeries for epilepsy and sometimes for benign tumour removals). Equally there's GA that's not surgery, e.g. GA for small children to stay still in the Big Noisy Donut.

So. There is this big class of things called procedures or interventions. If you are interested what a stupendous range of them indeed exist, go look up something called the CPT, which is a code system for them popular in America.

Now, a procedure may be anything from taking half your brain out (a legitimate medical procedure, used on infants with a rare disorder called Rasmussens, and they grow up pretty ok!) to giving you an injection. Back in the day, medicine was a very fragmented profession. The Hippocratic Oath actually only applied to medics, and mentions not 'cutting for the stone', I.e. not doing surgery to remove kidney stones. Medics were formally university trained, surgeons were apprenticed to barbers and would do an appendectomy between two haircuts. No shit. Thankfully, around the 18th century, this system got a little civilized. Today, the division between what is surgical and what isn't has been pretty distorted, so e.g. we do things with an endoscope that would traditionally have required open surgery. So here's the current understanding in the U.K., which is more or less aligned with the US as far as I understand (correct me):

- minor surgery: done by a non-surgeon, often a GP, involves some skin-.cutting and the odd stitch, example: removing an uncomplicated suspected melanoma
- major surgery, also referred to just as surgery: any procedure done by surgical, as opposed to medical, specialists that involves cutting and other barbarous stuff, whether it is under GA or not.

Not that anyone, btw, gives a shit about what is or isn't a surgery. It just isn't an important distinction. But, to clear it up:

- a scope is not a surgery, no, even if under GA, and no, even if we take biopsies
- a PEG or PEJ insertion is an endoscopic procedure involving gastropexy and some piercing of the skin to create the stoma (bon appetit!). It's sometimes done by GI docs, sometimes even done by nurse endoscopist specialists, who are the best thing to happen to medicine since sliced bread.
- PEG changes, whether bumper or balloon tube, are NOT surgeries.
- Line insertions are not surgeries,
- Port insertions and extractions are on the fence. I think of them as surgeries, but as said, the relevance is not that big a deal.
- Ostomies, anastomoses, Bianchi procedures etc, are all obviously surgeries.
- As a GI endoscopist, I must say Nissens are surgeries, but they really are not.

No. 371163

File: 1502530232464.jpeg (58.76 KB, 640x444, misstery2.jpeg)

Checked in on Misstery_Diagnosis.
Her reasons for making her pet a service dog seem really suspect. How the fuck can a dog tell if your heart rate is fast better than you can yourself? Also that poor dog is too small to be used for support to get up :(

No. 371167

>>362479
>>371163
if the tachycardia is severe, you feel it. if you can't feel that it's happening, then it's likely very mild/not tachycardia. some of these spoonies count 80bpm+ as tachycardia smh

No. 371187

>>370493

It shocks/appalls me as a physician how many of these people don't want to get better, they don't want to get the diagnosis or treatment that helps them, they want a physical cause.

The doc they complained on? He'll do a pubmed search on 'psychological causes' + 'me/cfs' and put the results page on the table at the hearing, and walk out. Worked for me.

Why the fuck does it matter to you as a patient where or what the cause is? You want to get better, right? Shouldn't you be happy some talk therapy and a script for some good antideppers will fix you and you don't need a lifetime of surgeries and eating through a fucking tube?

Christ. Munchies.

No. 371191

>>371187
But poor little Carmel wants a lifetime of sympathy and free money!

And the EDS Society thinks she should get it!

No. 371211

>>370599
Nope. Tube in place for the wedding. (Can't make pic attach sorry, but it's on JBN instagram)

No. 371228

File: 1502547111837.png (285.79 KB, 600x338, nosehosecouture.png)

>>371211
nose hose in full view. not tucked or coiled away, but right there ready to attract that sweet, sweet attenshun.

No. 371232

>>371191

These girls are pathetic. How will they ever have lives; careers, hobbies, a social life, proper friendships and fulfilment if they destroy their 20s by being insta spoonie drama queens? Just give it up. You can still be a spoonie attenshun seeker but for god's sake, do something else - go school or get a job and find something that's not chronic illness related in your life.

No. 371273

>>371228
The tube has changed sides between the first wedding day photo and the photo in the bridesmaid dress! Who would take it out and resinsert for a wedding where they probably won't even use it for feed!
Full on munchie

No. 371275

>>371163

Jaquie does this same shit. She'll say Harlow alerted to her almost passing out, a dog can't do that, they alert to the cause. The dog would not be able to alert to a minor tachycardia, it would have to be a 200+.

Sage for dogs?

No. 371295

>>371273
Not wking but as the first photo is a selfie it reverses it so the tube is same side

No. 371304

File: 1502558145795.png (1.41 MB, 2220x1080, Screenshot_20170812-121234.png)

Well, of course she had to have IVIG complications. She's been admitted to the hospital with "suspected aseptic meningitis" but they haven't even done any tests yet.

No. 371308

File: 1502558284281.png (232.77 KB, 750x1122, IMG_9749.PNG)

obsessed with the prospect of getting her precious NG tube. I'll laugh so hard if the doctors decided NOT to give her one. She's been going on and on about it, she's going to look like a proper idiot if it doesn't happen.

No. 371309

>>371304

Look at the three fucking epipens on that table.

No. 371311

>>371295
Ah OK! Still think unless she is going to have feed during the wedding or reception then there was no need to go with it in!

No. 371312

>>371309
you'd think the hospital would have it under control and she wouldn't need to show those off. something is wrong with her that's not a physical illness. munchie.

No. 371324

>>371309
Look at the toy. This is an adult woman choosing to present herself to the world like this. Wtf.

No. 371339

>>371304

Which is why doctors don't usually prescribe ivig to people unless they specifically have autoimmune pots. Which isn't the type associated with EDS, if Jacquie even has that (which I doubt). Ivig won't help, but still can cause complications (super common, like upwards of 50%, which is why most doctors don't prescribe it unless they're sure it'll help!). So she got a common side affect from a treatment she shouldn't have gotten in the first place, but probably bullied her doctor into. And somehow Jacquie always gets what Jacquie demands, and fuck the consequences, since they come with their own spoonie points like said hospital stay.

No. 371341

>>371308

They're going to tube her just like they would for one of those ana chains that won't eat enough. It doesn't make her spoonie special, just an idiot. Anyone who wants to can not eat for a while and then go to the hospital and get a tube. If they're giving her an NG tube, there's nothing physically wrong with her stomach (just like a certain someone else…)

No. 371358

>>371339

She's a trip. She was just in the ER yesterday because she thought her tube was kinked. Apparently she managed to wait until her IG infusion was finished before going to the ER.

She probably frequents ERs more than any munchie here. It's an impossible rolller coaster with Jacquie. Even the most terminally ill people have periods of quiet.

The degree to which people enable her is obscene. Her immediate family totally caters to her. They help her shop around high end doctors and clinics to find clinicians willing to patronize her.

I can't understand how the people treating her don't take a step back and asses the risk/reward involved.

Has she even stated explicitly what her IVIG is implicated for?

No. 371368

>>371358

She has some vague immunodysfunction "diagnosis".

No. 371376

>>371368
Don't forget she is trying really hard to be a knock off FreyLife, and since Mary has ivig Jacqui needs it, too

No. 371391

>>371358
You'd think that with immune deficiency she'd want to avoid the er due to all the actually sick people with communicable diseases. Plus, going to the er because she suspected her tube was twisted? I've never heard of that happening, and with the amount she eats, even if it was there's no emergency in the situation. Girl's not going to starve. It was pretty funny when she was,as usual, totally fine. Most actually chronically ill people avoid the er whenever possible, sometimes even when they do need it.

No. 371398

>>371304
She really has put on weight. Keep chunking up, Jacquie, it's so obvious you need that feeding tube.

No. 371431

File: 1502571602561.jpg (219.15 KB, 1530x1293, IMG_2909.JPG)

Older video but had to laugh. She specifically said she can only digest veg when she cooks them "really, really thoroughly until they're basically mush". Doesn't look like "mush" based on this! Also…that meat and mac and cheese?!

No. 371447

>>371431
she eats things that even people with simple ibs would be bent over a toilet from eating.

No. 371487

File: 1502579088973.png (3.63 MB, 1536x2048, IMG_2912.PNG)

Thank you for sharing TMI, Carmel.

No. 371495

>>371487

Serves her right, she wants all of these test and treatments, now she's getting an unpleasant one.

No. 371505

>>371487
She's still pushing for a gastroparesis diagnosis, even though she just had a normal gastric emptying study. She's doing whatever she can to get that tube.

No. 371507

>>371431
God, that food would make anyone sick. How did she manage to wrangle a feeding tube eating like that? Must be nice to be rich enough to get whatever treatment you want, no matter what's medically appropriate.

No. 371509

>>367109
Yeah it's why she deleted her IG lol…

No. 371512

>>367137
To be fair that is when she left treatment and was weight restored. But I agree she's annoying and dramatic af

No. 371523

>>371505
Why is Carmel such a twat. She has absolutely nothing wrong with her!

Except maybe a personality disorder which would explain this shit, I suppose.

No. 371525

>>368378
>>368343
She also would constantly have hospital admissions claiming she was in organ failure, and then two days later she would post a picture of her eating a burger and fries saying how challenging it was but she was being so brave against her ED.

No. 371527

>>371525
And now she's trying to jump on the EDS/GP/epilepsy/etc. train, when it's obvious she's physical fine. Mentally fucked, definitely, but she's not sooper speschel sick like she's claiming

No. 371532

File: 1502584763574.png (690.21 KB, 1536x2048, IMG_2917.PNG)

Why oh why is every pic showing off her toobz?! This is 1 pic but there are another FIVE….apparently for gastroparesis awareness month.

No. 371534

File: 1502584900354.png (244.33 KB, 1536x2048, IMG_2918.PNG)

If she's so convinced she's vaccine injured, why not pursue it legally instead of a gofuckme?!

No. 371536

>>369088
MLS? Why are you calling Dani/endlessvoices that?

No. 371544

File: 1502586616823.png (960.22 KB, 1536x2048, IMG_2919.PNG)

Why is she showing off her port at a freaking wedding?!!

No. 371546

>>371534
because she's full of shit and vaccine injuries are lie.

No. 371563

>>371532
She posted a video earlier of how she cleans her tubes, of course taking something simple (wash them with the rest of your body in the shower) and turning it into a speschel spoonie event.

No. 371564

>>371544
Most people run infusions specifically when they're NOT out in public. But nooo, have to get those spoonie points! Not to mention that she's risking an infection.

No. 371565

File: 1502589224999.png (305.38 KB, 1536x2048, IMG_7374.PNG)

Another cow back at it again.

No. 371566

File: 1502589302608.png (2.54 MB, 1536x2048, IMG_7376.PNG)

Here she is, with her precious beedz

No. 371567

>>371566
She doesn't look malnourished at all. Is she pumping crisco through that tube?

No. 371575

>>371566
the level of denial in the spoonie community is amazing. even if blood results came back that she was perfectly healthy, they would all still say she were on deaths door

No. 371598

>>371534
Kek, she's such a fucked-up, money-hungry cow. I wonder if deep down she knows there's no such thing as vaccine injury and she's sociopathically exploiting it to get followers and cash, or if she really believes her schtick? Wish they'd shut down her account for pro ana shit, with the covert thinspo she's always posting.

No. 371699

>>371536
her original IG account was called MyLifeStruggles

No. 371721

File: 1502614975208.png (299.44 KB, 1536x2048, IMG_2920.PNG)

She's loving the drama.
Firstly, they do scopes on young people allllll the time in the real world.
Secondly, 4 days of not pooping is hardly a drama. Some people only poop a few times a week and this is totally normal and healthy for them.

No. 371741

>>371544
Probably because there's some stupid couple taking attention off her at their own wedding like a couple of assholes. The outrage at having to wait until speeches to make it about herself!

No. 371750

>>371721

I haven't pooped in two weeks and it's not a big deal. If you don't eat as much you will not poop as much. And a colonoscopy prep isn't the most pleasant thing but it's also not that bad either.

No. 371763

File: 1502625347958.png (146.53 KB, 640x909, IMG_1340.PNG)

>>371295
The selfie may be reversed but there are 2 pictures with her flower attached in same position and nose hose in different sides!!

I hope she had a ensuite toilet next to the table of the 3 course dinner and alcoholic drinks (guessing somatically alcohol is fair game) she was shovelling down!

On a tour of the castle where the wedding on and she has her pageant sash! I'm only shocked she didn't wear it to the actual wedding! Only a munchie would take her sash on a journey to a friends wedding! What possible merit can the pagent organisation think that this is an "appearance"!!!

I bet she hated the bride getting all the sooper attenshion

Sage at JBN rage of Just Being Narcissistic

No. 371773

>>371750
Anything else you'd like to share from your diary?

No. 371777

File: 1502630656067.png (341.62 KB, 745x1129, IMG_6182.PNG)

>>371763

Why do I wear my dash everywhere - because I compete in pageants. She has "competed" in one pageant and she got the sash as a participant not a winner. She is not raising awareness, supporting a charity, or promoting anything other than herself.
Real answer- I wear the sash everywhere I go because I need to feel beautiful and special and I need everyone else to know I am special.
Even her food bank post was all about herself and how great she was for donating less that $5.

No. 371784

>>371721
the amount of emojis she fucking uses drives me crazy

No. 371818

I find it incredibly amusing that Jaquie actually starts to experience some of the symptoms she's always complaining about, and she's MIA. She says her neck is one of her worst joints and is constantly in pain, now she's got some real neck pain. Says she has migraines, now she's got a real one. Says she has all over body aches, now she really does.

Maybe this will take her down a notch.

No. 371846

>>371818
Especially since she brought it on herself, demanding a treatment she doesn't need. Welcome to the world of real illness, be glad yours is temporary.

No. 371853

>>371544
WTAF?! You can schedule your fucking infusion for BEFORE a planned event! Selfish bitch. I can't stand shit like this!

No. 371913

File: 1502650168787.jpg (225.6 KB, 1080x1018, Screenshot_20170813-134728.jpg)

Nicole made her account private.

No. 371922

>>371913
wtf is with her always changing her ig handle?

No. 371927

File: 1502652831895.jpg (54 KB, 640x480, anime cat annoyed.jpg)

Someone should make a new thread, we're close to the post limit.

sage for no contribution.

No. 371933

>>371927
I'll do it. Hang on anons.

No. 371940

>>371933
What is the new thread?

No. 371954

>>371933
thanks gurl

No. 372010

>>371954

Am I missing it? I can't find it.

No. 372036

>>372010

Where's the new feed?? I need my milk!

No. 372042


No. 410675

You guys are fucking despicable. Sitting on your asses all day MAKING FUN of People who actually suffer from shit like this on a day to day basis get a fucking life, you guys call yourself fucking adults like tf. My Mother suffers from chronicle illness and, let me tell you something she don't fucking lie about this shit, you guys are fucking disgusting human beings how can you guys live with this, fucking sitting here making fun of people who suffer from it. Go fuck yourselves! like Jesus christ! It ain't all in your fucking heads. You try it huh, you try not being able to do whatever tf fuck you want when you want. My Mom sits there crying and profusely apologizing for how she can't do shit with us and how she, couldn't give my brother and I the normal happy, perfect life she never had. Huh how bout your guys fucking witness it, go through. You guys are pathetic you don't even know how pissed I am, I could legit come and beat the fuck outta all of you "adults" don't even fucking call yourselves adults, what kind of adults act like this, and make fun of people who suffer. Wow, fucking disgusting.(USER HAS BEEN PUT OUT TO PASTURE)

No. 410687

You guys all here making fun of sick people are disgusting. Who makes you the doctor to decide if these people are actually sick or not? Live with a chronic decease and then say something about someone elses life. You guys are all a disgrace to the human society. Let me just throw this out there, A doctor is not going to keep you in a hospital for 15 days unless they think something serious is going on.. A doctor is not going to insert a port for no reason. A doctor is not going to insert a peg tube for no reason. Seriously, get a fucking life because obviously yall have nothing better to do than to stalk sick peoples social media and make fun of them.(USER HAS BEEN PUT OUT TO PASTURE)

No. 410747

>>410675
>chronicle illness

Chronicle is the worst.

I love these people who come here. Also love how they're herded away after one or two comments.

No. 413264

I’m not sure if this is allowed, but I wanted to ask a question. I’ve been reading this thread and questioning all these chronically ill folks and whether they’re telling the truth or not. But are you all of the opinion that any social media account that talks about health is wrong and pointless? Or just certain ones? As a chronically ill person I feel like I’ve benefitted and gained knowledge and tips about how to cope better with my illness by seeing these accounts and seeing people able to take on life. But I guess maybe I’m the minority?

Again I’m sorry if this sort of post isn’t allowed. I just genuinely want to understand. I find myself doubting everything I know about the chronic illness community now.

No. 413333

>>413264
I have a very close friend who actually does have a chronic illness and the support she has found online has done wonders for her. No one really has a problem with health accounts etc in themselves, it’s just the lying attention seekers who use these communities for the wrong reasons and actually make it harder for the real sufferers to get the help they need. People inside the communities, like yourself, may struggle to identify and call out liars for many reasons. So, in short, it’s just certain ones.

Sage for noncon

No. 491870

I swear most of you don't know how SDs/ ADs work. please ask me if you need to know anything about them.
(sorry if I get something wrong, first time posting/replying)(USER HAS BEEN PUT OUT TO PASTURE)



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