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The Hartley Hooligans are a pair of sisters, Claire and Lola Hartley, born with microcephaly, cerebral palsy, dwarfism, epilepsy, and tons of other conditions. This basically means they are ultra retarded, can't walk, talk, or even move their tiny limbs in any useful way. Their appearance is somewhere between human and weird space alien.
The sisters are semi-famous due to Gwen, their mother. She loves dressing them up in goofy outfits, discussing and analyzing their every minor facial movement, sound, and bodily function. She even had the second baby despite that the girl would be staggeringly messed up. Their home state spends millions of dollars on a parade of therapists and special equipment that have had no noticeable impact on their potato lives.
So anons, do you think retards should be not only allowed to live and leech millions of tax dollars, but also to be praised for shitting themselves, making ugly faces, and not dying? Is the mom wrong to parade them around for internet likes or is she doing a public service by giving the world so much material for funny memes?
Its one thing to have a kid with downs or autism or cerebral palsy or any number of disabilities where they are compromised but otherwise capable of living pretty human lives.
this is just…something else entirely and makes me pretty sad. I especially don't like the mother parading them around in little costumes and making exhibitions out of them.
They're surprisingly old but I don't really think they have much longer to live, so that will be quite the shit storm.
Oh wow I didn't realise it had been active.
The way the mum parades these kids around is vaguely sickening. She's made these kids a spectacle so she can get asspats for deliberately not aborting some babies who aren't even capable of self awareness.
Once nature finally overtakes medicine and the goblins are allowed to die the mothers gonna lose her shit. I see divorce, a stint in a psych ward, and losing custody of her son within three months of the longest lasting girls death.
I wonder if she ever feels guilty about making such a selfish choice.
Maybe that's why she parades the poor little fuckers around dressed up and crows about all the progress she imagines they're making. Its as much about deluding herself as it is smearing her kids on any screen she can for attention.
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I wonder what his childhood was like…
>>187411>…ASNS typically involves cerebral atrophy and that it is progressive. That scares the fuck out of me. While I know the girls' prognoses have always been grim, I have become the queen of pushing it out of my mind – sometimes many times a day – because I am unable to process this harsh reality without it completely shattering me on a soul-level. I want to believe my girls are an exception to this rule because their heads are growing still & their development is progressing. Surely this cannot be a sign of atrophy or degeneration. I will hold out hope that they are setting a new standard for this diagnosis…
On one hand, she's finally being open about it. On the other hand, her bullshit about them "developing" is just that, bullshit. Their brains are atrophying as we speak. Oh and this spokesperson for microcephaly stuff is ridiculous given the circumstances.>they both continued to progress developmentally!>I got to hear Lola tell me ALL ABOUT why she DID NOT want to leave her BFF's & the game! MY GIRL COMMUNICATED WITH ME!
Also, ffs:>homeopathic allergy remedies>allergy-busting Young Living essential oils>chiropractor/applied kinesiologist
yeah no they are not going to live past 30 tops.
if they have ever had a memory capacity or ability to perceive things, its just going to worsen and all that "development" will be out the window.
The brain can adapt to many strange circumstances, but this isn't really one of them.
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This is the data pool. It's really that small, and now researchers can add these two goblins to it. They literally have no future.
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nah anon i agree with you
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I think if a pair of seagulls swapped with that family as their caregivers it'd make no difference to them!
I also believe the girls have little to no awareness of each other, far from Gwen's "sibling rivalry" "westside dwarves" BULLSHIT….I think their poor atrophied rotted brains CANT FORM MEMORIES OR OPINIONS!
The older they get its very clear to everyone except GWen they are rapidly deteriorating.
Especially Lola who was clearly at birth more affected than CLaire.
God I just wish they'd die yesterday!
I was amazed how similar this woman's story was to the Hooligans. Except this mother thought of her children's quality of life & is not a exploitative monster: http://community.babycenter.com/post/a32064837
TDLR: Had two girls diagnosed with microcephaly with simplified gyral pattern. First wasn't diagnosed until after birth and has lived at least 10 years. 2nd was was diagnosed while still pregnant & they aborted. Also have 2 healthy children.
I thought it was in informative read & may give a deeper insight to this Hooligan situation.
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this woman takes pictures and adds silly captions to her daughter being in severe pain from having her tiny arm poked with a needle
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and poor lola had several veins blow…
i think it's safe to say they do indeed feel pain and fear
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And yet she persists in sending these lies in a letter to her Dr each year. Walking… pfft.
She says she's pissed that he told them Claire would probably die within a year, but ignores that nearly every other baby with these conditions dies quickly
. It would have been aggressively unethical for him to tell everyone with a baby with this many disabilities anything else.
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This thread has given me a much needed laugh.
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Healthiest I know!
They love rap and wedding shows….
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They don't have anything to measure the atrophy against.
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Lola in that pot. "They're not even sure if it is a baby".
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Claire lost the ability to eat (this post is more than a year and a half old). And just as I thought, Lola gets tube fed as well. I guess hers gets pulled in and out.
there's this video where she's trying to roll over, like the first move a baby makes, 4-5 months old I'm guessing? and she does look around a little. but when you watch the 'walking' and 'crawling' pt sessions, she's not doing anything. she's has a young baby's level of sentience maybe? but then it's less, because even a young baby is quite interactive.
but also her brain is atrophying and getting more damaged each day, and she can't feed.
Watching the full "bubbles" video, Lola looks like she's having a reflex reaction to the sensation of the bubbles (or maybe she's having seizures?). When dad kisses her on the cheek she looks to have a seizure then for sure. Lola never appears to get used to the water or anything happening around her. She fails to notice Claire it seems.
Claire seems different, she does seem to have a sense of the people interacting with her and some desire to move her limbs. On what level, who knows? Does she recognise them as her parents?
I wonder who pooped in the spa after the shot ended…
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This is the single most disturbing and proof of abuse I've seen so far!!
The parenting equivilant of keeping your head permanently in the sand!!
That and then switch to all the zika interviews and letters to doctors about her thriving, normal girls with cheeky personality's….
I'm fucking speechless
This woman needs to be at least paid a visit by child services and mental health professionals!!
PS. On fb and YouTube 97% of comments under her microcephaly is fun you guyz interviews people say everything we are saying here!!
Claire might have something going on in there. In her various videos both in therapy and in the water she does try to move her legs, which isn't much but something. Gwen herself has said that she thinks the BSRs intellects to be around that of a 6-18 month old.
Even the video where Claire farts does seem like she might use her explosive ass to get a point across. On the other hand there's no proof at all that she ever recognizes anything other than pain.
oh my god anon, this is so unsettling.
creeping!!!! could she not just call it crawling or something.
it's even more disturbing seeing one this old. freaks me out, man.
I can't..I just can't.
I do feel more sympathy for them than the Hartley's to be honest. This child was born in 1980 so the pre-natal diagnostics weren't as good as they are today. And she didn't go and had another one of those. I really feel for people who end up with a child this fucked up. But I will never understand the need to broadcast your misery.
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That gilker woman is knowledgable but the same as Gwen and other crazy sped moms!
This thing is 24, wears diapers, non verbal,non mobile and horribly-as you can see disfigured!
Mom is all over her, constantly publishing very even for her unflattering undignified pics and telling people her daughter is such a normal sassy twenty something who's got a gtube and shits in her diaper….see a pattern with these moms
It's interesting how she colonises all these "awareness events / days": microcephaly awareness, dwarfism awareness, feeding tube awareness and so on. These goblins have a very specific condition and I realise it's only been diagnosed a minute ago, but things like microcephaly are just inclusions in that condition. She surely has realised that even when she didn't know the condition's name.
Her selling the wonders of microcephaly is the most disturbing to me. I guess she has to suffer, and subconsciously she'd like others to suffer too. Someone is going to keep a child alive despite everyone's best interest becuase of what she's currently saying in the media. If Claire could really operate that touch screen, I bet she would tap out "kill me".
sage for samefagging but:
how can she say the girl's heads / brains are "growing" if she never had them measured? also, Lola seizes constantly, how could you not get an EEG under those circumstances? she's been alive and seizing constantly for ten years.
this disturbs me more than the hartley kids… at least the potatos just sit there and do nothing… the way this girl moves doesn't even look human
she's like a fucking cryptid
>>190667>Gwen herself has said that she thinks the BSRs intellects to be around that of a 6-18 month old.
She lies a lot
. I tend to think Claire is in the 0-6 month range myself, plus she has lost the ability to eat, which is telling that she's regressing. Lola's basically a plant. Sage for further samefagging.
When you see a video of that disgusting little gremlin Lola "eating" you can't help but wonder why they don't get her a feeding tube too.
It's weird, because when you look at earlier footage of Claire and then later, it really does look like she's progressing, at least in the sense that she's literally becoming more aware and capable. Perhaps it is possible that her brain isn't atrophying, or that it's. It doing so at a particularly fast rate.
Of course, hard to tell for sure when the mom doesn't get them the fucking tests. Seriously, what an asinine lunatic. If she thinks the girls are showing improvement, who cares what an x-ray says? And if the c-rays gave her good news, then she can brag about it. Kinda weird to call someone who slaves over two potatoes all day selfish, but it certainly applies to her.
People judging her on this are shit.
>"I have been caring for my profoundly handicapped daughter, Bree, for almost 34 ½ years now. Some people say it’s not Post Traumatic Stress disorder (PTSD) that I’m experiencing. Others tell me that, because I’m her mother it’s not a job, but my responsibility to take care of her.
>As I look back in retrospect on these years, I am amazed that I am even still on this planet and the only reason I am here is because of my beautiful little daughter.
>My daughter fought to be here
She was two weeks overdue, and she was literally dying inside of me. The embolic fluid had turned green, she was totally wrapped up in the embolic cord and the Placenta was turning to calcium. Then when the C-Section was performed, it took her 20 minutes to breathe on her own.
>Within 2 months, we were told that our daughter had a syndrome call 4 P- or Wolfs-Hirschhorn Syndrome. It was not genetic, as both Walter and I were tested. It was just what it was."
Lola the gremlin has definitely been tube-fed before >>190486
. It's through her nose so I wonder if they take it in or out, or if she's just feeding by mouth these days?
i understand loving your child and not wanting to let go of someone special, someone you brought into this world…
but this just seems like torture for them both.
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Wonder what the yards will have forced onto them for Halloween this year??
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Piss pants funny!!
Nope! There's noons in either girl!
Never has been!
Maybe AHS "pretty girls" this year?
Whereas it's actually "Kill me now you demented bitch.">>190206
I bet Dr Dobyns just screams with delight when he sees her letters arrive.>>190229
NO YOU BITCH YOU HEARD HER CLAIRE'S A PERFECT SPECIMEN>>190379>changing people's whole perspective on life & love
Sure, Jan. Whatever lets you sleep at night.>>190744
i want to kill it. idk what it is, esp this picture. just wanna crush it until it dies. that would be more merciful than what gwen is doing to them so i dont feel too bad
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Holy shit! Lola's gone from ugly goblin to legit QT
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Claire and Lola Halloween 2016
I'm disappointed tbh
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This is about as cute as Claire can possible get. They probably had to shoot hundreds of pics to get her looking this good.
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Cmon dude look at her Claire could teach nuclear physics at Yale she's a genius
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Good lord. The taters look even more miserable than usual. I think Gwen enjoys humiliating them.
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Yep, they look like they're in hell, even the dogs look depressed.
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Saddest desperate genetically fucked
Pathetic… And if claire and Lola are an absolute dictionary definition of ASNS(rotting diesed brain useless spastics)???
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This is from Halloween 3 years ago where Gwen almost lost her shit on a 9 year old kid for saying Lola And Claire look like they're dying.
I'll never get over the time she dressed Claire like a chef and Lola like lobster. Lola was still recovering from chicken pox that almost killed her - she still had active sores all over her body but that didn't stop Gwen from dressing her up and cramming her into a stock pot. Lola straight up looked like a corpse that someone had dug up and dressed for Halloween.
On my phone and can't post the pics but here's a look at them in the previous thread: https://lolcow.farm/snow/src/1455292328220.jpg
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Sage for non-Hooligan but how come her daughter looks so severely worse than pic attached?
Why is she so unaware that other people might not have been exposed to such deformed bodies before? She expects everyone to see them and treat them just like any other kid when in reality, I'm sure a lot of people feel awkward around them.
I agree with the kid, they literally are dying. What a scary sight to see two underdeveloped children with their skin hanging off their bones, their limbs twisted in unnatural ways, their eyes practically rolling in the backs of their heads and their faces twisted into expressions of pain. That would terrify me as a child.
What an inconsiderate bitch.
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That's certainly as good of an explanation as any. Here's Claire last Halloween, looking much less miserable.
I hope he had another costume and wore it to go to whatever fun party his friends were doing.
Who am I kidding, Gwen probably made him stay home to take more pictures with the tots that she won't post because they look awful on them.
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She can post about them in a way that accurately represents who they are while maintaining a piece of human dignity. There are other Facebook pages for severely fucked up kids that don't even approach the batshit insane delusions and casual bodily fluid talk of the Hooligans.
Personally, I think they should have put a DNR on the girls and let them peacefully die early on, but what they do looks like legal torture.
The kid may have actually seen some shit. I was about 8 and 11 when two of my grandparents passed away. We had to go into the hospices and say our goodbyes. Of course, sprinkle on some of that dramatic flair Gwen has, and it's even more exaggerated. I don't think it's too far of a stretch for a 9-10-year-old to know what it looks like. >>191584
This. I don't think Gwenners lives in the "real world". It's ironic how she's so holistic about treating the girls, but if the time came to resuscitate them, she would likely have it done.
I think humans instinctually know what death looks like, or he's seen movies or read books, or has seen photos of holocaust victims.
Poor kid probably thought these were normal little girls that the mother was starving to death.
I wouldn't doubt it. In one of the photos the only one beaming from ear to ear is the mother while everyone else looks like they're forcing themselves to fake it.
I can only imagine how awful it has to be to grow up being outshadowed by not one but two siblings that take up 99.9% of your parents time and the rare times you do get your parents attention, you're forced to have Claire and Lola tag along.
I mean for fucks sakes, he doesn't even have a hobby for himself. His mother has forced those little creatures into even that aspect of his life. If the parents want to devote their lives to Claire and Lola that's one thing but it's just cruel to force their son to throw away his childhood to do the same.
>>191230>WHO SAYS THAT SHIT?! HOW DARE HIM.>ONE INNOCENT COMMENT
I think she's lying just on account of all the contradictions she makes about her emotions, like she has a Jekyll and Hyde personality. What does she expect from a nine year old who has never seen deformed, wall-eyed dwarves before? When I was nine I distinctly remember feeling uncomfortable being around severely deformed children and adults who had obvious problems, but even I had never seen anything like the Hooligan girls.
Sounds like she just needed a story to remind everyone, and maybe even convince herself, that she loves her little abominations.>>191215
They do look like they're dying here.
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Imagine going to the grocery store and seeing this fucking thing
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What's really worse, being one of these things or having to take care of one?
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Yeah, maybe we're a little too hard on the parents. Imagine 15 years of having to clear up the puke, piss and shit of those two hideous goblins…
they can't express emotion. she deliberately catches the smile-looking expressions but they are just expressions. watch a video of Lola and she has some charcteristic moves, head goes left and right, siezing and so on. the 'smiles' are just transient moments of mving their faces. she's filtering a LOT.
that said, I back-reaf the whole blog last night (it's short) and I feel a bit sadder for them now. she's trapped in this position and it's too late, and she really does love them as her children - selfishly though, denying them painkillers and so on because she thinks raw foods and essential oils will be better. imagine the misery of Lola's chicken pox without pain relief or, it looks like, and relief for her itching. they go to the dentist without pain relief. Claire has dislocated hips.
Part of me wonders if this crazy bitch is onto something re: not giving the sisters any actual medicine. Of course, it's torture for the girls, but seeing as neither should have made it to their third birthday, it could actually help.
Essential oils, chiropractors, all that shit? Superstition.
And it's crazy that she hasn't had their brains scanned. As was noted before, now they don't even have a point of comparison, so if the brains are changing in size, they won't know how much and how quickly.
Claire had scans early on, was assessed as pretty much cortically blind and at the level of a newborn. But Lola, who is noticeably worse, never got the privilege of a brain scan.
I'm with you, I think she's kept them alive by her own means. They constantly feed Lola raw fruits and veg and goats milk formula. Her body can hardly use all the food she consumes and she hardly grows, she just shits constantly. Even that seems a chore.
Do they even emote any kind of happiness? They definitely seem to emote pain or discomfort. The parents seem incredibly delusional, even if they don't have much thought going on, they seem to be suffering.>>191928
I feel pretty bad for this mother, though I feel like she's almost suffering some kind of Stockholm syndrome with her saying that he life got better taking care of her daughter. Bree doesn't seem to be in pain or suffering like the hooligans often seem to be at least, her mother seems to really know how to care for her? Sad that she threw her life away though.
Plenty of pics where Claire is "smiling" but never in the videos. Gwen might literally take 100 pics for each that contains a usable "smile" shot. >>191944
Shitting might be the only pleasure either of them ever get, but apparently even that's a colossal chore for Lola. Just look at the above pic of the dad "milking" her shit out. How fucking repulsive is that? She's so gross that I feel like an asshole admitting that she seems easy to despise, like a nest of roaches.
Scott seems to enjoy treating them like toys. Even the way he holds them makes it seem like he doesn't really think of them as living beings, which would be a pretty good coping mechanism tbh.
There's a video wherein he played peak-a-boo with the camera, using Lola. He'd hide her behind stuff, then pop her back into view. It seemed like he was having fun, but Lola gave zero fucks and it didn't look like Scott was doing it for her sake. It reminds me of the way people will play peak-a-boo with their dogs using a toy. Lola was the toy.>>192050
Gwen is so obsessed with their bowel movements.
*must smell like
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Recently Gwen was asked in comments of a fb post if Claire had started or would get a period.
Gwen's response was" whatever happens that's something I plan not to share and keep to our family"
Still laughing at that!!!
lol of all the things she shares, THAT'S what she draws the line with.
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This woman really is obsessed with their shit. And imagine going to Outback Steakhouse and having them next to you. You're already in a bad mood because you're at Outback Steakhouse, and then this family of vile gremlins sits next to you. Then the dad picks the ugliest one up and milks a rancid shit out of it.
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Whether its the goblins, the creepy creeper or this absolute minotaur of visual horror it takes a person of complete dedicated denial and narcissism to want,keep and care for these useless monsters.
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Check out KAylis KRusade on fb if you need more delusional spassie hooligansesqe lols!
Kid makes a rock look like James brown!
Mom has tonnes of pics and bids of her miracle NORMAL NOT BRAINDEAD NON TARD…
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What a beautiful affirmation of love that ceremony (and the honeymoon) would be.
It was time. I picked her up and held her above my knee, her diaper crackling softly over my hand. She opened her mouth ever so slightly and grunted, somehow both low and a whine, her bare feet chilly on my knees, her body odor a mingling of old cheese and sickly urine. I brought her close to me, her bald spots reflective underneath her stringy hair, and put my fingers across her stomach, a bloated tube covered by dry skin that hung loosely over her sharp ribs.
Her face contorted into a furious scowl as I rubbed my fingers in a circular motion across, her moaning getting lower as I moved, her belly rumbling as if waves crashed inside. I heard the wet beginning of a thunderous fart that turned into something as loud as a firecracker and much longer. The gastrointestinal fireworks continued, popping on and off, until her shit liberated itself with an angry, noisy surge, instantly giving her diaper a squishy, perceptible weight, filling the air with a sweet, enormously powerful stench that defied reason, a sulfurous aroma that seemed to contain all that was bad in the world. The shit poured out until ending with a lingering, dying fart, like the air leaving a balloon.
The Outback Steakhouse waiter nervously approached our table. The crowded restaurant had gone silent. "I'll take the check, please," I said as I mussed my daughter's greasy hair.
I CAN WALK
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Lmao @ "sibiling rivalry"
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They should seriously leave the two alone for an hour and see if Claire can send Lola to that great fart cloud in the sky.
It won't happen. Neither of these girls has enough body fat for menstruation. Especially Lola. The poor child is so wasted away that a period would sap what little energy she has.
Her wasted appearance is frightening. It's like the pic of that African child who had collapsed from hunger in the middle of a village. Only this is due to being born horribly disabled.
The physical therapist does do it, to the extent they can. They each have hypertonia ( http://www.disabled-world.com/artman/publish/hypertonia.shtml
) which is why Claire's legs are crossed (the muscles keep getting tighter and have dislocated her hips. They put the rubber chicken into Lola's hand to try and open her grip a bit. Besides… essential oils and all that…
What the fuck? If you're in a restaurant and your kid starts taking a shit, you take them to the bathroom and hang out there until the kid is finished and cleaned up. You definitely don't sit there and take pictures of them squeezing one out.
Are they such dickbags that they don't care at all about the people around them that are trying to eat? Are they so used to the constant smell of feces that they've forgotten that other people don't enjoy it?>>192893
So Gwen's husband and son dared to have some father-son bonding that didn't directly involve her, and her butthurt response was to give her son an insulting nickname and pretend it wasn't offensive because it's supposedly a family name?
Gwen is such a self-centered bitch.
The mum at least seems like a definite type to scream about how her precious little beautiful baby angels deserve to enjoy Outback Steakhouse as much as anybody with a formed brain does, and demand an apology from anyone who complained for being prejudiced.
Personally I doubt social norms and politeness or consideration for anyone other than her agony-writhing gremlins and pity points. anything short of humouring her and coddling the daughters = potato hater
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"For the record, YES, one of them DID just shit their pants.
God Bless Lambert's Cafe, Home of Throwed Rolls!"
I've noticed at Outback Steakhouses they are either completely deserted or so packed there are people waiting for a table outside.
(sage for OT)
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My friend just posted this
Didn't even know they have a fundraiser
this seems like an attempt to prove to herself and the doctors that the disease is not degenerative.
It could work (highly doubt it will) but if it does, its quite certain that it will not be permanent as the atrophy gets worse.
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Eyes are ok.
Brain is diesesed and rotting away since birth.
Sight awful and terrifying at best.
Also notice how Gwen curses all medical people, realists or anyone who disagrees with her ongoing denial.
They both have Cortical Vision Impairment (i.e. it's brain-related not eye related). Claire was assessed as almost completely blind, which Gwen furiously debates. I doubt Lola even got the privilege of being tested.
Eagle Eyes ain't gonna help em.
You make a strong case here, except for the facial expression stuff, because Lola can only do dead-eyed nothingness and demonic anger, whereas Claire can do both of those plus happiness and discomfort.
Claire has also been spotted playing with an interactive toy (a toy for severe retards but still), as well as kinda sorta pushing her feet in a walker when a state-sponsored nanny places it directly on the ground.
I'm still going with Claire as the #1 Hooligan.
She's a ninja!
>>192893>God, we're sick.
Yes, Gwen; yes you are.>>192956
Cal looks like the manifestation of the sufferings of Christ on the cross.
Not really, but it's a pretty profound expression and body language for a lad his age.>>193402
I love the one with the Pepe faces.
"Are they so used to the constant smell of feces that they've forgotten that other people don't enjoy it?"
Partially, but they also want to make everyone else share in their misery. That's part of the point of making their son and his friends interact with the taters.
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The comments on hooligans fb page.
I fuckin can't even
>>193368>Claire can do both of those plus happiness
Does she though? Or are you - and I hate to use this word - anthropomorphizing her? She might look like she's happy, but unless she's doing it as a response to joy-bringing stimuli, we have no reason to assume it's any more meaningful than a newborn sticking up its middle finger.
>Claire has also been spotted playing with an interactive toy
She rolls her head around seemingly randomly. Occasionally her head syncs up with sounds or movements that would catch a normal child's attention. It could be pure coincidence.
I'll concede that she might have been intentionally moving the toy, seeing as how she was moving that particular arm much more than the other, but I have to wonder what she'd have done if the toy had been moved so that she'd have to use her other arm to "play" with it. I mean, she and the toy were placed in those positions. She didn't crawl over to it and start playing it. For all we know, Gwen saw Claire's arm spazzing, so she shoved the toy there. Gwen is delusional enough to create her own "proof" that Claire is sentient and then convince herself that it's true.
It's like when Claire "crawled." All they did was prop her up like a poorly constructed chair and then cheer when one of her random movements propelled her slightly forward.>>193539
You can watch the videos without logging in. If they're too long, the screen will get really light, but the video will remain visible and keep playing.
It's hard to tell whether or not the girls have sentience. As you point out, even the pics and vids that seemingly show them doing things could be pure coincidence, a few seconds whittled down from thousands of hours of activity.
You give Claire too much credit for walking, since she only pushes when her helper literally places her feet directly on the ground. Claire does try to move around in water, though, consistently seen in at least a few vids, but then again, that could still be more reflex than thought.
It would be easy for Gwen to post several different videos at once demonstrating their capabilities, but she doesn't, which makes me intensely skeptical about either having any thought at all.
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Lola on her day off homeschooled.
Spitting and dribbling like the useless spastic spooligsn she is!
God she's probably even squeezing out a stanky turd too!
Love these girls o mine!
#teengurls #divability #shit #shizer #poop #asns #hollowchildren
Loving every laugh!!!!
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This is Gwen talking about how realizing that Claire's hands have gotten worse and that any chance the girl had of using them properly is gone.
Even if she can
be happy, no fucking way she is. Happiness simply isn't a thing when you can't walk, talk, see properly, control your bladder and bowels, eat, or take medication.
I don't have facebook and I saw it. This page: https://www.facebook.com/TheHartleyHooligans/videos/
You can watch Lola allegedly twitching to the sound of rap music.
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How can they be courageous and brave when they had/have no say in the matter or the capabilities to even grasp anything at all!!
Do you really think Gwen will ever snap?
She must not even remember what being in a room untouched by the aroma of hyper-toxic excrement (she mentioned once in the blog that Claire and Lola's shits smell far worse than a normal person's).
If one of the spuds dies soon enough, good chance they go for another kid.
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Of course press potato Gwen was a fucking teacher and hubby too!
Up there with middle class and christians as biggest assholes in society.
Its like all these pathetic quotes she stamps on pics of goblins, one a contradiction in itself.
A pic of a glazed eyed, contorted, post pox Lola with quote-"if I loved you less I'd talk about it more"
Its all she shouts and desperately tries to convince the world, south America butost of all herself!
I've a bad feeling the goblins might make it to 18 maybe 21…wtf then?!
>>193914>We give them choices and they touch our hands with the sides of their head. So cool!
Yes Gwen, of course they do. Lola's just turning her head left and right all the time anyway, but sure, she's making choices.>>193854
The children with this condition have died at different ages. Allegedly some of them have lived till 30+ >>188020
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Ttly normal teen gurl!!
Like whatever mom if I could communicate with you or had the brain matter to do so I'd sooi be telling you to leave me alone!!
She's 15 and everything that goes with that age!
Teething, non verbal, non mobile, diapers, seizures, tube fed, atrophy, microcephaly, spastic quad cp, cortical(she's blind ffs!!).
My daughter is NOT HER LONG LIST OF DIAGNOSIS!!!
SHE IS ALL THE OTHER THINGS THAT MAKE HER CLAIRE…..
Here they are:
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You missed out the part where Lola shitted all over the dentist chair
Imagine one of those things screaming and biting you.
Shit out of a horror movie
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Imagine waking up to this ungodly creature screeching at the end of your bed whilst dragging its mangled body towards you on twisted, spindly arms.
Same here. Claire is more photogenic but if you watch the videos with her you see her face twitches constantly so it probably resembles nearly any expression through the course of a day.
And taking these to the dentist is like taking an animal to be vet, except your average cat or dog is probably much, much smarter.
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Shit anon, that's horrifying. Looks like SCP-106.
Yeah I'd say they can, or discomfort at least >>189906
. Although with Lola I'll wager it's just a bunch of sensations 24/7.
Probably without lignocaine. Gwen thinks her goblins are smart enough to feel happiness, love, disdain etc but won't acknowledge that they actually can feel pain.
By the looks of the shit milking photos they feel a lot of pain.
They definitely feel pain, otherwise they would just be dead-eyed all the time instead of visibly distressed. And they're technically not paralyzed as they have some arm and leg function, so they can hurt.
Pulling a little tooth out quick might not be especially excruciating, especially if it's already loose.
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"A poets soul"
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Typical teens loving the latest fashions!
PS. One just squeezed a huge lumpy shit out its sweaty asshole
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"Wanna see my pussy?"(USER HAS BEEN PUT OUT TO PASTURE)
Do the Hooligans ever do anything beside pooping? Because according to what Mama Hartley says, they shit all the time… How is it possible to have shit inside all the time
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Claire is a stylish, smart, sassy teen! PS her piss soaked diaper is loudly filling up with a warm lump of shit
Cerebral palsy is just one of the things they have.
Think of this: if anons here are projecting onto them that these expressions are of pain (something I don't totally agree with) then Gwen is projecting just as hard with her claims of 'smiles'.
But pain is a basic function that even the girls brings are capable of processing.
Emotions are too complex but sensations aren't. Pain, cold, hunger, and satiation are all within reason for them to be able to experience though.
he's graduating this spring, and i honestly think he's going to go to school and cut off all contact with his mom because of this shit (pun not intended)
all of his posts on insta about them sound so forced and the exact same. "you've inspired me to be a better person"
Nobody said every expression that happens to form on their faces means anything. People are even pointing out that most of the contortions are random twitching or myoclonus.
its pretty obvious that they're in pain in quite a few photos, usually Lola when she's trying to shit.
You specifically said people were confusing CP with random grimaces, it was pointed out that it's not a typical symptom of CP. What's your point supposed to be anon?
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he's most likely going to stick in kansas since that's where his gf is going to school too, but you can just see his discomfort when he's holding his sisters
pic related: him and his gf
At this point he'd just look better if he buzzed his whole head vs keeping it cut like that
That haircut is the third most retarded looking thing in that picture
He kind of looks like a young Macklemore.
Also, had he ever said anything negative about having Lola and Claire as his sisters? I've glanced at his IG before and pictures with the girls in them are just as wordy as his mom about how they've taught him soooo much.
that's what makes me think he's gonna just cut them out when he goes to college, the wording on his posts sound just like stuff his mom would say
but other than the few posts on his ig and the "letter" that he was forced in to writing, he doens't do much or talk about them much>>194813
my friend thinks the letter is fake and gwen wrote it herself lol
she says it for a few reasons:
- it's written in cursive in 2011, but it was already being phased out and taught less and less in schools and by 2011 less than 12% of teachers even had the ability to teach it
- the handwriting and penmanship is way too neat for a 9 year old, especially a 9 year old boy
- the use of the word utterly
From a chair or bed onto carpet? Nope. not even if they fell from that little height into concrete. Unless they landed awfully and have very weak bones or a bleeding disorder. (Clearly neither of them have a bleeding disorder or bones that fragile because they're manually handled all the time without extreme delicacy)
If say, the dad was throwing one of the girls up in the air and didn't manage to catch her she could possibly be injured badly enough that it's life threatening but I really don't think falls are as much of a risk compared to viral infections or further atrophy.
oh my fuck.
He's even doing the hands.
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The way the kids are treated makes me think about the way Walter ( dog with Mucopolysaccharidosis VI ) is treated by his owners. Of course the dog is higher functioning than the hooligans
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every picture of him & his gf featuring the hooligans, the gf looks uncomfortable, and at first i thought it was just her face because she kinda has one of those faces, but nope there's a genuine difference between pics of her with the girls and then pics of her with just cal
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pic of her & cal w/out the girls
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Just a couple girls who love their brother and are happy to pose for photographs with him before a beautiful prom night! In this picture a slurry of lumpy wet shit blasts out of Lola's sweaty asshole while Claire blasts a fart loud enough that a neighbor two houses over clearly hears it.
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his gf has a truck driver body and she's wall eyed, but what's most obvious is the discomfort in her face around the gremlins
Looks more like just an awkward/ugly smile with overplucked eyebrows to me. I don't see a hell of difference when I look at >>195090
besides the body posing. In fact the way the boy is squinting and showing his upper gums he almost looks disgusted or uncomfortable that the bitch is sitting on him lol.
But see, when they're not holding the vegetables they have the freedom to sit on them instead and actually focus on themselves as a couple.
She's gotta be one of those ultra-religious famewhore girls anyway. Any girl with common sense and self-respect would do a 180 and nope the fuck away from this crazy family and their imposing shitdwarves.
She says Lola is allergic to Tylenol. I think she just diagnoses this shit herself.
But the Dr doing the Gtube did say he wasn't comfortable anesthetizing Lola.
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I think Claire is more qualified for the job than Lola and I'm sure the American public will agree with me.
"Candidate Claire, manufacturing in the United States has long been in decline. Just last year another 50,000 manufacturing jobs were lost with expert saying is only gonna get worse. When you are president, what will you do to protect American industry and encourage the growth of new jobs?"
Claire sit in her beanbag with a microphone placed in front of it. "Ughhhennn loud lengthy fart
The audience claps politely.
"Candidate Lola, what say you?"
Lola stares blankly head for 30 seconds. The buzzer rings and the audience claps.
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challenge accepted fampai
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When they know you're #teamClaire but make you hold Lola anyway
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This picture's from 2011. I doubt Gwen was plucking her 9-year-old's eyebrows, so we can safely assume they're naturally thin.
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i don't follow this thread, but I assume Lola is the lesser cross-eyed one, again challenge accepted
Id give her a smaller chin
Usually children have small chins
Great work tho
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The first thread started out as that, but slowly evolved to just getting rebumped by probably the same guy sharing their unfunny shit about the kids. This thread has met the same fate.
Decided to take a look at their blog and post an excerpt from Gwen's most recent entry. If it's already been posted and I just didn't catch it, then my bad.
"On Monday of this week, I got a call from Genetics in Kansas City saying they had a diagnosis. I almost couldn't catch my breath. A DIAGNOSIS, y'all!!! Should I say it a third time? THEY HAD ANSWERS!!!!!!! They told me they'd figure this whole thing out, and THEY FREAKIN' DELIVERED.
Scott & I were found to be carriers of this gene defect (it is an Autosomal Recessive gene, resulting in a 25% chance of this occurring each pregnancy, as we suspected), and both girls presented with the ASNS gene for Asparagine Synthetase Deficiency. It apparently causes most all of the girls' diagnoses, and the one picture I was able to see of another affected child could have passed for a Middle Eastern, male version of Claire at age 4. The newborn baby picture looked IDENTICAL to my girlies' noggins/faces/chins/ears/head shapes! This appears to be what we have been searching for all these years…
I will be curious to hear if the other lab in Boston confirms this result and/or finds anything else. It certainly feels good to know more, but it also feels a bit scary. There are 12 known cases of this in the world, though there are probably others who are still undiagnosed as our girls were prior to Monday. I am not aware of any other cases in the U.S. I read online the incidence is <1/1,000,000 worldwide. My girls are rare, yo. I already knew that, but holy shit. […]
I read that ASNS typically involves cerebral atrophy and that it is progressive. That scares the fuck out of me. While I know the girls' prognoses have always been grim, I have become the queen of pushing it out of my mind – sometimes many times a day – because I am unable to process this harsh reality without it completely shattering me on a soul-level. I want to believe my girls are an exception to this rule because their heads are growing still & their development is progressing. Surely this cannot be a sign of atrophy or degeneration. I will hold out hope that they are setting a new standard for this diagnosis & that they will be giving hope to other families who are diagnosed with this condition down the road. My online research found a family with 3 affected individuals with ASNS who lived into "the third decade of life." That gave me hope. Hope is literally ALL I NEED at this point. It is all I have EVER wanted & needed since day one. […]"
Make of this what you will. If it's been posted before I'll delete the post, just let me know.
Full entry: http://www.thehartleyhooligans.com/2016/10/weve-got-answers.html?m=1
Yes it has been posted but I think it was at end of the old thread. Leave it up here, I say. See also >>188020
which is literally the known data pool for this condition. These girls have brains that are atrophying and getting more damaged each day.
I see. I was hoping it'd get some discussion going aside from image macros of the sisters by now. I don't lurk her facebook either.
Her denial is worse than I thought. I mean, they have seizures all the fucking time and they have cerebral palsy. How could what little is left of their brain NOT be wasting away at this point? It's just painful to read through that she wants them to suffer for decades more. She'd probably go nuts if they passed away and she didn't have any more ways to mommyblog about their bowel mishaps.
(Also no idea why my post replied to 3 different posts but w/e)
these things look to be in a major state of discomfort and confusion at all times. if they do have some very small, minute ability of understanding, then it's extremely limited and all they know is pains, confusion, fear, loud noises, uncomfortable fabrics.
i say we make a petition to euthanize these poor things out of their misery.
why tf did she tell the dog to give her a kiss after telling the dog not to lick the other dog's dick
like wtf you just saw it do that and you still want it to lick your child's face
I keep imagining Lola as this poor thing that has no self awareness at all and if just in constant pain that she is unable to understand because she lacks the ability to use her brain to do anything more than reflexive actions. Imagine a life where you can't think, have no self awareness and are in constant horrible pain with no ability to express your agony. That's no way to live. I know it sounds cruel to some but I agree that her dying in her sleep would be for the best.
The mother is in denial so she gives her daughters the personalities she envisioned for them. She probably had this idea of what her kids would be like if they were normal and it's all she can do to keep from totally going off the deep end. She'd be better off with Reborn dolls. If her daughters die i wonder if she will go that route.
She claims that Lola loves wedding TV shows and Claire is into princesses. So yeah, she makes up personalities for them.
The girls look visibly worse than they used to. Look at the Halloween pics this year. Both faces contorted into miserable expressions. Normally she posts a ton of pics of them but this time no close ups, more pics of the dogs than the girls. Their lives are just pure agony.
Oh my god, I couldn't even get through this. He looks absolutely loopy.
This thread is so sad on all sides. Like, it's horrible for the parents to have brought kids like this into the world when they had a choice, but it's also clear that they're deeeeep in denial.
Like the Hartley mom ascribing personalities to her daughters when they're barely even sentient. She obviously wants to see them as normal girls, but it's ruining her non-fucked-up son's life. Sad all over.
When the dog licked Lola, she moved her mouth the same way she did in the video of her drinking from a water fountain. Ngl, I kinda hoped Lola had some degree of understanding that she was drinking water, but I guess it's just a reflexive response to having something touch her mouth, reminiscent of the rooting reflex.>>199515
He's severely retarded, but he's not pure potato like the Hartleys.
>Truly I'd love to hurt and Jill this vile nonhuman
Oh look, you're severely retarded too!
I'm no neurosurgeon but that looks like a mini seizure, esp the eyes rolling up and twitching
He can't draw a dinozaura while he's having a seizure lady
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Apart from the discomfort of hypertonia and stuff like that I doubt they're in constant pain
Seizures must suck but they probably aren't aware of pain, don't really have memories and can't think enough to fear, dread or dislike anything
Kinda a blissful potatoey experience. And they're better loved and taken care of than most kids.
I mean, maybe. But they have no value of life. It's an unfair existence. And their mother could have prevented this and didn't.
They're already here so killing them would most certainly be a crime which I don't condone.
But it should have never gotten this far to begin with. She knew they would be this way and didn't care. I'm truly sad for them.
Maybe. But in that last video Lola is clearly intensely uncomfortable at best.
Ask most people what it means to be be human and you'll get a lot of answers. To love, to think, to philosophize, to serve God, whatever. They are only human in the strictest technically sense. It's horrible.
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My fav part was when the dog started licking her mouth and she opened wide for that suckling reflex, effectively frenching it after he "licked the weenie"
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Well she didn't know the first one would be a tard, but indeed she chose not to scan for the second one. She left it up to god or something from what I remember, then had the scan when it was already too late (?) Someone correct me please I literally don't remember
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Their humanity (however you wish to define that) is what holds their worth.In fact the hartley hooligan's humanity is the only reason they're being kept alive.
Dolphins are better able to love, think and serve seaman and yet we allow the japanese to eat them on the regular. Your humanity is not measured by how clever, loving or altruistic you are. It's just that you happen to be a human, and so have the legal privileges which come with humanity. It is illegal to kill them simply because they are human.
Furthermore, worth is a subjective thing. To their mother they are worth the world, and as sad as that is, that's enough.
This was already posted >>190649
these don't belong here, this is a Hartley thread, not a general disabled children/adults thread.
pull it back.
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This poor kiddo doesn't have what the hooligans have. He has microcephaly. From just watching him, he seems aware of his surroundings and the strange sounds you are reffering to are vocalisations. Microcephaly can range in severity quite a bit, there are mocrocephalic people who can even hold conversations, have jobs and learn to read.
He's nowhere near as bad as the twins, I would like to know why you think his parents (?!) should be killed. It's a very odd sentiment and I hope you're ok. At least explain your edgy opinion.
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Go to bed raven/kiki
I think there is some
pain response. See >>189902
Also there is a vid with Claire kicking in the pool. But her life looks like shit, especially in the background of the latest fb video. Lola to me looks like she just looks left then right then left again all the time. Like, she jumps a little, and turns her head. It's like every stimulus is brand new to her and she computes nothing.
correct anon, see >>190578
for the evidence post-birth, Gwen also writes about pre-birth and not getting any further scans after discovering her small head size.
In all honesty, seizures aren't painful. If anything, they would probably give the taters some kind of disconnection to the real world. You are pretty tired afterward, so it's probably one of the only workouts they get, other than the therapist coming along. It's kind of scary coming back to sometimes because people tend to move you to a safe spot and you get even more disoriented.
But pain? Nah. Sometimes I'm sentient (see what's going on, but am trapped in my body) and you get a weird feeling (known as auras). I too doubt they're in much pain when seizing.
Sorry for blog. Just POV from someone who sometimes seizes.
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Just two normal girls, rooting for their favorite team with the fam!
Claire is currently enjoying a nice long piss after some rippling farts while Lola prepares to projectile vomit on the back of some soccer mom's head.
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Whos this bitch think she is cucking our Cal?
it's student voted pageantry. not cucking… yet
he looks like a smushed sculpture of Jensen Ackles, however.
That guy is so ugly in comparison
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Nothing quite like holding a disgusting, drooling gremlin squeezing out a lumpy shit before your fun high school dance!
Oh my god this fucking picture. I cannot stop laughing. Gwen is so totally trolling her son.
When he gets married, he and his bride will be forced to each wear a Hooligan in one of those baby backpacks so everyone watching Cal exchange vows will also get to see Claire and Lola shit, fart, vomit and seize throughout the ceremony.
When Cal gets his college diploma, the Dean will hand it to Claire because really she's taught them far more than any college class. She deserves recognition, too!
First day on the job Cal will look up from his desk, sniffing the air. Wafting over to him is the smell of rancid shit and feta cheese and he will run to the bathroom to hide. He'll stay there until the coast is clear, or so he thinks. He returns to his desk to find Gwen has set up Claire on her beanbag in his cubical and is snapping pictures of her grimacing during a seizure.
When his first child his born both will be in the delivery room because who knows more about life in diapers than this dynamic duo.
If he is unlucky enough to die before them, say, in a car accident, both girls will be posed in his casket for the duration of the eulogy. When Lola or Claire finally bite it Cal will be dug out of his grave so his sisters can be crammed down into that hole in the ground with him.
Seriously, Gwen could not have made it clearer that her son is merely a prop in her veneration of her daughters without forcing Cal to tattoo both their names and faces on his ass.
get out Cal and cut contact with your family for your own good.
Can Cal even recognize the smell of shit anymore? After spending his whole life with the aroma of human excrement in the air he might be immune to it.
If he gets married during their lifetime, guaranteed the spuds will be part of the wedding. But he's 17 or 18 so if he gets married at 25 then decent chance he'll be an only child by then.
You know it's lucky she didn't force him to let his sisters tag along to the dance because "They deserve to experience it too!" and then force people to dance with them.
You should she'll drag them to his graduation and would probably try to force the principal to give the oldest one an honorary diploma as well.
Claire looks so frickin' yellow.
Has anyone thought what is going to happen if one of the girls dies? will ever Gwen stop? she is going to have another poor child?
I can almost bet that she'll try for another sick child once the sympathy for the death of one wears off. People like her absolutely crave the attention once she has it and after one passes she'll push the other into the spotlight even harder to make up for it until she deems it 'ok' to announce that she's trying for another child (and secretly hoping it'll be sick as well). If she gave birth to a healthy child it would end up as forgotten as Cal.
After they both die, heaven help Cal because if she's too old to have kids she'll be pressuring him to have children no matter what his age.
>>201628>Seriously, Gwen could not have made it clearer that her son is merely a prop in her veneration of her daughters without forcing Cal to tattoo both their names and faces on his ass.
>Claire's page on the HH site>6 pics in total>all show her clearly>NONE include Cal or Lolahttp://www.thehartleyhooligans.com/p/lola.html
>Lola's page on the HH site>5 pics in total>all show her clearly>NONE include Cal or Clairehttp://www.thehartleyhooligans.com/p/cal.html
>Cal's page on the HH site>8 pics in total>5 include Claire and/or Lola
Of the 3 pictures that DON'T include Claire or Lola>1 is his shadow-blackened silhouette. You can't even tell that it's him>1 is a fairly shitty picture of him playing basketball>ONLY 1 picture shows Cal clearly and without the shit-monsters
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>>201892>that scary 'eating' thing she's learned
I'm pretty sure it's something akin to the rooting/sucking reflex that infants have. It's instinct, rather than a learned behavior.
I found this picture from when she was 4. She was doing the same "eating" thing back then.
Damn I fell for Gwen implying she learned it. I don't know much about newborns but your comment caused me to actually read, and:
>Rooting reflex – This reflex begins when the corner of the baby's mouth is stroked or touched. The baby will turn his or her head and open his or her mouth to follow and root in the direction of the stroking. This helps the baby find the breast or bottle to begin feeding. This reflex lasts about 4 months.
Maybe she had that, if so it's gone.
>Suck reflex – Rooting helps the baby become ready to suck. When the roof of the baby's mouth is touched, the baby will begin to suck. This reflex does not begin until about the 32nd week of pregnancy and is not fully developed until about 36 weeks.
She's got that- sort of, in that she doesn't seem to swallow much.
Also to say, she doesn't wait for the roof of her mouth to be touched (per the reflex description). Lola starts faint sucking motions even when someone's hand goes near her head, like in the snoop dogg video: https://www.facebook.com/TheHartleyHooligans/videos/vb.111342938969247/808589249244609/
or the spa video. Just maybe, there's an aspect of learning or adapting to repeat this motion when something approaches her face, but it's slender. Gwen tries to make it sound like it's only when the bib is on or the water fountain is running but that's not true.
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That's why I said I'm pretty sure it's something akin
to the the rooting/sucking reflex, rather than saying that's what she's actually doing. I don't know what to call it, and "the - attempt to eat anything near your face because your shriveled brain understands on an extremely primitive level than you need sustenance to survive - instinct" doesn't roll off the tongue very well.
Even if it is
a learned behavior, it's so imprecise, hence Lola continuing to make sucking motions even after there was no longer anything near her face, like she doesn't understand that something needs to actually be inside her mouth for her to eat. It's "There's a thing near my face, and I make this movement, and then my stomach hurts less.">>202096>gifted at dwarf wrangling
Dwarfs are easy to wrangle if they're incapable of moving from wherever you put them.
Gwen needs to shut up about her gross poop fetish.
Well-explained, and I missed the 'akin' first time around, sorry>"There's a thing near my face, and I make this movement, and then my stomach hurts less."
What a life.
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It reminds me of the film The Boy where this lady has to pretend a doll is a normal human boy. Have they ever had a babysitter?
Samefag but I missed >>202014
which just makes it even sadder. I mean Cal could just not want his stuff published on the website but even then that's still pretty sad to see.
This is so sad. I truly hope Cal gets some psychological help when he leaves Gwen's home.
Also, I was sceptical bout the girls expressing some kind of emotion but I saw this video and… that some real suffering. Wonder if Gwen feels somewhat guilty.
That's terrible. At least the girl in >>190649
can actually move herself.
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Imagine having a 200 dollar prom dress and you're just about to leave with your bf to your prom and then his batshitinsane mum shows up with the horrors. Your bf gets visibly embarrassed and whispers to you, once again, "I'm so sorry, Kaka…"
Then, his mum sticks a kid with no bowel or gag control on your lap drooling all over your new dress and makes you pose for a bunch of pictures.
You're there pretending to be okay with it, but in your head you're fearing for your dress.
This happening every time you go to his house or any noticeable event. Like when your neighbour has the christening of his new cat.
Something that concerns me is that if the taters were a result of poor genetics, it means Cal could carry the gene too, right?
This poor boy may have to resort to adoption if he doesn't want a tater of his own.>>201749>(with a special super tiny set for Bok)
Won't lie, I giggled.
Could you imagine how his mother would rant about him online if he decided not to have children because of the risk? I mean she humiliated him in the past over his sisters so just picture what she'd say about him when she started pestering him for grandkids and he declined.
I mean, if this genetic defect ran in my family even if you needed two people with it to make a baby like them, I wouldn't risk it to begin with and go childless or adopt a healthy baby.
Lol.. what a fucking waste of time to give these girls "physical therapy". That was no crawl or attempt to crawl. That was Claire being held in an uncomfortable position while her noodle wrists bend different angles and she stares half-blind in mute horror at the shrill voice of Gwen, and the chill touch of the ham. No functioning memory makes sure that she will be confused (if she even has the capacity for that, truly) til her blessed end, and final escape from Gwen's wicked, sadistic clutches.
This is vile, indeed,
This seems to be a theme with that family. They're more content to just ignore everything and keep the girls alive for FB likes than actually investigate their condition and how their progress is over the years. I mean, if it were my kid and I was getting all this shit for free, I'd damn well make sure they got all the scans and tests they needed to ensure my child had a full prognosis, not just "I have a sick child, they're totally fine though even though I haven't even gotten them scanned for brain deterioration."
This is the kind of thing that leads to one of them dying suddenly and Gwen just going "Well I had no idea it was coming!" until they find out the girls had been rotting away slowly after their autopsy… if Gwen even allowed one.
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They are in constant hallucination
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Why in the fuck would they post this picture, Christ almighty. They're so desensitised to the absolutely vile shit these little imps expel every day that they forget how repulsive this is for any normal person to see.
The face scabs, the stringy patchy hair, the scrawny, spindly limbs and body…this is the most goblin-esque I've ever seen any of them look. Truly scary stuff.
They really are Eraserhead irl. If something like Claire and Lola came out of me i would be horrified and tie my tubes.
You guys are so funny though. The maymays this thread produces has me in stitches!
that was Claire (the older one).
and given that, my money's on Claire going first.
Same here. Partially to see the shitstorm, partially because those things have been tortured for 15 and 10 years and every second they're alive is inhumane.
My money is still on Lola because her health is much more fragile overall. She weighs less than half of what Claire does and needs oxygen if the windows are left open for an hour.
Oh, the older one is Claire? Damn, I thought she was Lola this whole time. Usually I just see them as "the sisters" because they make me really uncomfortable when I try to read up about them.
The mother on the other hand, lady is batshit.
, I'm right there with you anons.>>205462
You use a clean nipples every feed but we never had more than five in the house with three children because they take less than a minute to wash.
Gwen doesn't need loads, two each for the girls would be plenty.
Claire hasn't fed on her own for years; they use a Gtube for her.
This nipple is out of production forever and ever, and her little monster can't feed from anything else. Lola can't survive an anesthetic so no Gtube for her. She has teeth as well. I just find it interesting Gwen's saying "enough nipples!", aren't her girls going to live forever?
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not the same anon but
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TPN would be a major risk and I doubt Gwen could find a physician who would be willing to go there, given how she has been so vehemently opposed to meds and tests. First, she'd need a central line (Broviac), port or PICC line placed. A peripheral IV can't be used. It has to be a central catheter (a line going to the heart). A PICC could be placed at the bedside in some patients but NO WAY with Lola…have you seen the pic series where even a needle stick for bloodwork was complete and utter hell? She would be so likely to dislodge the PICC, and they aren't ideal for TPN anyway…so that would mean surgery for a Broviac or port placement. Now let's move onto the need for sterility…what can I say with this feta-handed shit goblin? She'd get sepsis faster than flies on shit. I don't even want to think about it.
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yeah, she's so far off being able to participate in any of that. her blood flow for the sample wasn't even normal.
These children's problems have nothing to do with the age of the parents. It's a genetic risk that both parents happened to carry (aginst all odds).
What you're referring to is the risk of having a Downs Syndrome baby, which increases with age. Educate yourself or at least~ read the thread.
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Lola (the one on the left, I think) sort of looks normal here. This pic gives you a glimpse of what ~could've been.~
They both look more hideous as they age.
All of the above is why the smart money is on Lola croaking first. Tremendous feeding problems, needs to be put on oxygen regularly, sleeps only a couple hours a day, allergic to everything but goat milk and green vegetables, face contorted in a state of constant agony.
In contrast, clear sleeps all the time, doesn't always look like she is in the middle of hell, and simply takes her nutrition through a tube in a process that apparently causes little to no trouble. She will bury her sister, or more accurately, sit there farting and shitting while someone else does it.
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I feel like claire would look like Maddie Ziegler if she was normal
I went back and watched a lot of older videos and it's her gumming reflex. she really has been doing it forever whenever something gets close to her mouth or chin. honestly I think it was her first time drinking out of a water fountain because they…just never thought about holding her to a water fountain before. Wait wait now that I'm thinking about it im pretty sure there's an older video of them on vacation when she does it in a park or at the beach maybe? of course for the likes it's he first time that or Gwen has a goldfish memory too.
My theory on the nipples is that Lola can't grip on to them because they're too slippery especially with all that spit and slobber going on. The ones she uses aren't as slippery looking and probably have more of a grippy outside that's easier to latch onto and doesn't slide
Yeah if you watch the Facebook vid with Lola drinking from the fountain (the Youtube one is gone). She does her mouth-open-close thing when she's waved in front of the fountain (something near her face). Then when the water makes contact with the inside of her mouth she clearly changes to swallowing mode. https://www.facebook.com/TheHartleyHooligans/videos/vb.111342938969247/767885709981630/
The bottles are used to feed her goats milk.
Infants consistently react to stimuli. They recognize faces. They cry when they're hungry. They reach for things and desire to interact with their surroundings.
These taters do none of that. They have the intellect of a potato.
Lola does her weird mouth thing when things are near her face, which is a reaction to visual stimuli, and both of them cry, though the crying is always weirdly sporadic, as you can see in the video. For several seconds they'll make weird crying sounds, tense up, and maybe tear up a bit, and then just… stop. Face goes slack. Sounds cease. Eyes dry. It's like there's no permanence. They don't need to calm down. As soon as the bad thing (physical pain) stops, their reaction stops.
There used to be a video of Claire "playing" with a toy, but I think Gwen removed it. Claire was making distressed sounds and movements that kind of lined up with the toy's sounds. It might have been coincidental, or Claire might have enough awareness to suffer from certain sounds.
Neither has ever shown any semblance of joy.
Their intellectual capacity is higher than that of a potato, but not by much.
The video with the toy you're thinking of is on Facebook: https://www.facebook.com/TheHartleyHooligans/videos/vb.111342938969247/751862274917307/
. It's also worth considering the pool one. I think Claire has some
of the things that a very young baby has going on. She's built a bit different from Lola, e.g. she doesn't seize constantly.
Imagine you've got kids or you're babysitting, and you take the kids to the amusement park, they get on the carousel, and Lola and her entourage pick the horse right beside you. How do you explain that one?
And then when the kids you're with say honest kid things about Lola, that she looks like a baby, is she ok?, etc, and you and them get chewed out by psycho Gwen.
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IF YOU NEED INSTRUCTIONS ON HOW TO STEAL CHROMOSOMES, CHECK OUT THE ENCLOSED INSTRUCTION BOOK
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I thought the exact same thing. The neckbeard with the autistic son was originally a local news piece from the part of the UK I'm from- it made national news?! Gwen must have been seething with jelousy
if you're interested in this family you should read up about Jaxon Strong>>>/snow/208060
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Jaxon Strong's parents make this lady look sane
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And Jaxon's parents >>208060
are kind of evil. It's not as funny as Hartley land.
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Looks like they raised enough money to get the Eagle Eyes. Let's see a legit video of Lola communicating then, Gwen.
Look at Lola in the above pic. Really, look for a moment. Then look at her in any other picture. She has the awareness of a gerbil, if that. There is nothing even resembling standard human intellect in that brain of hers.
Giving her Eagle Eyes is no functionally no different than giving a dog a piece of chalk and asking it to explain quantum physics on a blackboard.
>>211895> I thought Lola and Claire have cortical blindness. How the hell can this sort of facilitated communication work with people who cannot see.
Cortical blindness can be partial.
Gwen says they've both had their vision tested, and they're both extremely near-sighted, Claire more so than Lola. But they're not blind. Supposedly.
I thought I've seen somewhere Gwen wrote she really didn't know how much Lola could see, but I can't recall which page it was on.>>211895
There's a good explanation of cortical blindness on the Jaxon Reality page:>although the eye itself may be fully functional, there is no way for the brain to translate that raw visual data into meaningful shapes and forms: the process we call "sight."
"CVI is brain based; there is damage or atypical structures in the visual pathways. Visual processing is compromised to varying degrees. The eyes get the image and the brain perceives it, however it cannot categorize the information or sort the information. The brain cannot label it or put meaning to it. This is why glasses do not fix the problem."
…But…but (you ask), Dr. Brittany said that oh yes he CAN TOO! see things because she watches his eyes "going back and forth and things" during Mickey Mouse! What is this heresy?? The issue with this observation, Lisa notes, is that "children [with cortical blindness] may look at objects, frequently. Looking at an item does NOT mean that they are able to interpret it."https://www.facebook.com/jaxonstrongtherealityJSRE/posts/679087595599760
When you subtract the edgy or 'ewwww' posts, talking about the girls is
a way of talking about Gwen, because she is the one broadcasting their lives. I personally can't wait for the Eagle Eyes fuckery to begin.
That said, since discovering the Jaxon Strong case here (300K+ followers, $200K+ scammed) I'm inclined to see Gwen in a more warm and fuzzy light. I think she acts out of delusion and that she does love her taters even when she's faking their milestones. Five likes on an Eagles Eyes post is nothing compared to what the Buells are doing.
Last thing because I realize >>214525
may be confusing. There are people with microcephaly who are high functioning. The brain has an amazing amount of flexibility and will work abnormally to make ends meet. It will quite frankly rewire itself. These kids are absolutely retarded. They will never function. They do have the intelligence of a 6 month to 1 and a half year old child. They are conscious. They can feel their health deteriorate with age. They could live a life of conscious suffering into their 20's while at the same time never gaining the ability to function. It is so awful.
Only Claire had measurements and neurology done. She's the one you're talking about with the 6-18months estimate, and that's only an estimate. She looks and acts <6months. Lola has never been measured or scanned, ever. So there are no estimates at all.
>the medical doctors who work with them
Whose ass did you pull that out of? They don't work with any doctors. The recent doctor images on the blog are purely from the genetic testing they had done. They have a kinesiologist and they use essential oils for everything.
Sme of us have actually read the blog.
Essential oils. So in other words, they get nothing
when sick. I'll give these gremlins this much, they're resilient as fuck.
No, they get to smell like herbs and spices when they're sick.
Encephalopathy or anencephaly?
I'm pretty sure it's the latter.
Encephalopathy = ongoing damage to the brain (caused by the disorder they were born with). It's something that happens even as they grow. They'll never get smarter.
There's not much out there about it but>distinct form of severe encephalopathy associated with congenital microcephaly and progressive brain atrophy.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820368/
>>217604>Pockey loves herself some melons!
She makes those motions if you put anything near her mouth. She's on video doing it to their dog's tongue right after it had licked their other dog's dick.
>(She gets that from her father ~ Ha ha!)
Is.. is that a joke about him liking tits? Ugh, Gwen has no filter whatsoever.
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Well I just finished reading all of this. I'm disgusted by the family, and the sisters invoke a natural human react of revulsion, but more than anything I feel pity.
These humans exist, but they're barely human. They don't have lives. All they seem to cycle through is physical pain, physical fright or fear, physical hunger, and the rest is nothing. Nothing at all. They're just one step above being fetuses, except fetuses have potential to become something sentient.
Can you imagine such a life? You can't, because it's nothing but a series of blankness, lack of consciousness, and negative sensations that come and go. How the fuck can you allow these beings to exist? I realize a mother's bond can make them delusional and they want to protect their offspring above all, but this is just horrific.
The spuds have had eagle eyes for a couple weeks and not a word from Gwen about Claire's awesome genius or Lola's sassy personality. Looks like they flushed $3k down the toilet
If one were to defend Gwen I think that would be the best way to put it. The doctors told them that each spud had only a year to live so it's safe to say she never thought she was signing up for 15 years and counting of this.
Also, Lola never sleeps more than a few hours a day, which means Gwen is in a constant battle with sleep deprivation. I despise the way she treats those things like gross little dolls for her amusement but I don't totally blame her for being somewhat deranged.
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The Hooligans will be on abc tonight. 12.27.16 ~ Just a heads up that our family will be on Nightline tonight on ABC at 12:35-1:05 am ET/11:35 pm-12:05 am CST!
Dead on. Now only if she'd have another lucid moment and admit that Lola doesn't understand a word of English, much less a cuss word, then she could get started on the road to mental recovery!
And how can you "spoil" a disgusting creature that can't do anything other than shit itself and suck down fruit goop?
My money is she looks around randomly like that all the time
. She's obviously not 100% cortically blind, apparently red is a common colour to be able to see and respond to. So I'm not surprised she noticed the red on the tshirt.
There is no way EagleEyes is a therapist-only task. Sure, the free PTs they have to have can use it with the girls, but there are no limits on who helps the child. In fact, a parent or sibling would want to be involved because there can be some actual communication between them.http://opportunityfoundationofamerica.org/eagleeyes/main/
You'll see there are many examples of family members operating it with the child (video related).
Predictions for 2017: Eagle Eyes mentions diminish even further; Claire passes away of whatever is making her yellow; Lola keeps twitchin' along.
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>> "they really want to be here"
>>223605> On ABC, she said the doctors told her that if they had another kid, it's be perfectly fine when she had Lola. Didn't she say before the doctors told her there was like a 75% chance another kid would have microcephaly?
Yes, she did and it's on her goddamn blog. That's one of the reasons why we all think her having Lola was even more selfish than when she had Claire. The balls on this woman.
> They asked him if he ever felt like Claire and Lola got more attention and he said "yes, sometimes." but he also said he didn't care…Poor kid.
Fuck, that's just heartbreaking. It's obvious he's so checked out now and is probably just counting down the days until he can move on from this hell.
Bullshit for ABC to let that go. Claire's "walking" is with the tater strapped into an elaborate device with her damn feet moved by the theapirst! She's no more walking than a man strapped into the seat of a jet is flapping his arms and flying.
Someone needs to photoshop top hat tap dancing Claire.
No thunderous farts and milking shit out? Completely unrealistic.
I feel so bad for Cal, hope he'll gets that scholarship and runs far away. There is thought a possibility that Gwen doesn't let him go because that would mean one tard wrangler less in the house.
Gwen, referring to Lola drinking from the water fountain: "It's like the most normal thing she's ever done."
Lola makes those motions when anything is near her face. She's on video doing it to a shoe, the dog's tongue, and Gwen's arm. So the "most normal thing she's ever done" requires only the most cursory understanding that [object near face] + [mouth movements] = [less pain in belly maybe]. Wow, so normal.
And fuck Gwen and Scott for trying to blame Cal for their decision not to abort. 7-year-olds are dumbasses, and you don't make life-altering decisions that will certainly result in a great deal of suffering for a newborn just because your naive idiot child wants to "meet" the baby.
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bet he regrets that one, amirite?
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Graveyardgirl and hooligans, separated at birth?
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>>225084>Because shoving your kiddies into costumes for laughs is treating them as people?
Except that it's only for Halloween?
Isn't one of them a teenager? How do you say she tries to treat them like normal people when she's dressing up a teenager each year for Halloween? That's not very normal
I'm a different anon.
Anon, it's Halloween, look at the picture not only Lola and Claire wear costumes, it's the whole family, that's normal.
The normal humans are wearing graphic tshirts and shorts/jeans.
The girls' are on the same level as the dogs, costume wise.
Cause they're flesh sacks that can only feel pain, startled, hungry, and the cessation of those sensations.
Forcing a mindless meat puppet into human poses to fulfill your sick fantasy of having a real little girl who meets the criteria for a person is twisted as fuck.
Anonymous now No. 226629>>226546
Exactly. If they're going to keep the girls alive, they should treat them with dignity. A list of things that don't constitute dignified treatment:
1. Blogging about their bowel movements
2. Dressing them up in embarrassing costumes (i.e. any costume)
3. Forcing them to "participate" in games and activities they don't understand on any level
4. Describing their intellectual and physical capabilities in outlandish exaggerated ways that have nothing to do with their reality
5. Forcing your healthy child to shoehorn them into to his social and scholastic activities
And so on.
I'm surprised Gwen hasn't got into legal trouble after all these years. Or has she? I mean it's not like the blatantly abusive treatment of Claire&Lola is kept secret within the household; she put on her own public-access freakshow on the internet. Then again I guess child protection services wouldn't know what to do with the potatoes either so welp.
But I find it surprising to say the least that no one told her ever that giving out such explicit information about their children on the internet is like, kind of unacceptable. I don't know law stuff but I would have guessed that if a child cannot consent or disconsent something like that because they lack faculties or whatever, the default thing would be to assume no consent.
sage cause I sound like sperging but I'm just legit puzzled
You're not familiar with the world of mommy blogging I take it? There are parents putting their children's lives on the internet everyday, some of them for hundreds of thousands of dollars return per year.
You are speeding, definitely. There's no case for child protective services here at all. The children are I a clean home with clean clothes and organic food. They are not left hungry or dirty. Gwen's just insanely delusional is all.
If you really want to upset yourself read the Jaxon Buell thread here…
Actually, Lola is hungry almost all the time. Some believe her chronic hunger is one of the reasons she sleeps so little and for such short durations. She needs a feeding tube like Claire but Gwen has refused because there is no way Lola could survive the sedation needed for the procedure.
Puréed veggies are not calorie dense enough for her to gain or really even maintain weight. If you've seen videos of her eating, she spends a lot of time working her mouth in that automatic gobble motion she does whenever anything goes near her mouth, and it takes a very long time for her to swallow even the smallest amounts of food. Were it not for the goat milk they get down her she'd have starved to death long ago. As it stands now she's so emaciated she looks no different than dead, starve children thrown into pits during the Holocaust.
This doesn't invalidate your response - Gwen isn't deliberately starving Lola and parents have the right to make complicated moral decisions about the medical care their kids receive. There's no abuse or even neglect. But Lola is hungry. Chronically. And since it seems to interrupt her sleep and since she spends a good portion of her days screaming, it's a good bet she experiences the pain of chronic hunger.
Yeah sorry I didn't make that clear. Mommy bloggers are abhorrent.>>226735
I had forgotten about the raw fruit and goats milk diet. Lola lacks enzymes to digest some foods though, or so Gwen thinks.
Where is the info from that she's hungry all the time? I thought her lack of sleep is neurological?
Woah. This never occurred to me but it makes perfect sense. If accurate, then it shifts the perspective of the whole thing, because in Lola's case, they really ARE torturing her (even if the intentions are "good") just to keep her alive. Positively ghoulish.
I don't know shit about medicine, so I don't ask this question in an "edgy" way: is it possible that Lola could have a feeding tube installed with little to no sedation? Obviously, the pain would be extreme, but they already take the girls to the dentist for teeth pulling with no anesthetic, and if she could survive a feeding tube installation, her quality of life would likely massively improve.
Claire is a severely disabeld child, but Lola is so much more so, to where she's only partially human in a way. She can't eat what you and I can. Apparently she can't even tolerate a Tylenol nor would she survive an anaesthetic. She seizes a LOT.
To me the things that are harsh are to leave her without pain relief during dental or while she's ill (like when she had the chicken pox for weeks). While I agree goat milk and raw veges and fruit don't seem like a full diet, Claire has made it to 15 and Lola to 10, very unexpected ages for their respective conditions. The goat milk at least is raw and it's fresh, they get it from a farmer. I personally think raw fruit and veg is really harsh, and cooking some of it would be easier for the girls to handle.
Your assumption that Lola is starving is projection just as much as when Gwen says she is smiling. Lola is in a constant state of neurological overload where her twitching and reacting never changes. She can't sleep because she has a barely human brain that is in constant motion. The mistakes were made in the decision to have a second child but the idea that Gwen is abusing her daughters, she certainly tries not to I think. She's just nuts and she stays awake with Lola round the clock.
The girls aren't beaten or molested. Their diet isn't nutritious or caloric enough imo, but they're not at risk of starving. Their bodies and home are clean. They're given physical therapy and taken out to restaurants and basketball games instead of being covered in pressure sores from being left in a crib all day. Despite Gwen's love of woo, both girls have somehow survived far longer than they were expected to. CPS has no reason to get involved.
>I don't know law stuff but I would have guessed that if a child cannot consent or disconsent something like that because they lack faculties or whatever, the default thing would be to assume no consent.
When it comes to pictures of minors online (not counting stuff like child porn), it's the right of the parent/guardian to invoke/revoke consent. It is fully within Gwen's legal rights to post those pictures and stories. To the best of my knowledge, even if the girls weren't borderline braindead and demanded that Gwen stop posting pictures of them, they'd have to prove to a judge that she was damaging them by doing so, and they still couldn't stop her from telling embarrassing stories about them unless the stories were false.
Anyway, it's not like it'll ever negatively affect them. You might as well be saying it's wrong to have a garden blog because plants can't consent.
Saying that Lola is starving isn't projection, but a reasonable guess of what is happening to her based on information available.
She is fed a few dozen calories of fruits and vegetables a day, and her face is in a constant state of agonizing pain, in contrast to the feeding tube equipped Claire, who just looks like a fucking brainless tard. Lola looks much more emanciated than Claire and her refusal to sleep could be the equivalent of an infant saying she is hungry.
The operation itself is painful, as any operation involving inscisions are. But the real problem would be the aftercare and general care of the wound and tube itself. Even (relativly) healthy people can get terrible infections and burns from the stomach acid so Lola's very limited immune capacity will be probably be overwhelmed.
So as you can guess, there's a whole plethora of additional problems to the operation itself.
Lola's a dwarf, Drwalnut. She hardly grows bc her pituitary gland, among other things, is malfunctioning. But it's just super obvious to you that her parent abuses her through starvation tactics. Go back through the pics and blog posts and learn about how Lola has gained weight.
I don't see how the raw goats milk hurts her but I totally agree that raw fruits and veges are not the nutrition powerhouses some people assume they are. In fact they can be hard to digest. It's concerning that she never gets a legume, I wonder if Gwen has ever stopped to think about the importance of protein and EFAs and various minerals and what she's feeding the girls. While their diet is very 'clean' and the goats milk is grass fed, I still think there will be nutritional gaps. A proper nutritional formula at least part of the time might help them.
I don't think anyone is saying Gwen deliberately starves Lola, just that her fucked up condition basically means she's in a state of perpetual hunger and that keeping her alive does nothing but guarantee constant pain.
Go look through the vids featuring her. Not the pics, because by Gwen's own admission she takes dozens to get individual shots where Lola looks "normal". In the vids she is always looking like she's in awful pain, the exception being the one of her in the vibrating chair, and that's just because her deformed brain likes the feel of heavy bass.
Agreed. Also what people don't realise is that these potatoes hardly have any muscle tone, which makes them require even less calories and makes them look spoopy.
Although I do agree lola needs a tube. Can't they use localised anasthetic?
Apparently no, the dr said he wouldn't risk anything with her. I don't know if local is viable for a gtube instertion though anyway. Lola has had and still has a nasal tube at times. She is able to ingest by mouth most of the time unless she's sick I guess.
In the Eagle Eyes video, it obvious Claire has some consciousness and is not quite the vegetable she appears to be in other pics or vids. I don't believe for a second she is moving the cursor with intention nor does she even notice she has control, but she can see at least some colours and shapes. She seems upset and restless then she sees the puppy image and gets excited looking at its face, until she is tired again. Claire has something going on but I doubt she'll have the skills to articulate herself on that thing.
None of us armchair tard wranglers know for sure if Lola is starving or not, but there's a case to be made, so it's an educated guess, not a random one. Her pained expressions could be the result of neurology, pain from her host of medical issues, hunger, or a combination of those.
IMHO Claire shows no sign whatsoever of understanding shit in the Eagle Eyes video. It mostly just proves that she isn't completely blind, something also demonstrated over the years by all the pics Gwen has posted over the taters staring at bright lights.
It's a nice thought that that machine could give Claire and Lola a "voice," but it just ain't happening. All these videos and pictures and not one has ever displayed evidence that either spud can understand a word of English or make a conscious decision of any kind.
If Eagle Eyes gives Gwen something to do, great, though I suspect that the EE people are mostly interested in testing the device on the most severely retarded kids possible.
Claire did seem to me to react to the part of the screen that had the dog on it, but with cortical blindness it could be the large amount of yellow in the dog image that is attractive. Claire has stacks more going on than Lola, which the pool kicking and rolling over videos do show.
Btw, Claire gets the walker and her physical therapy as in their state its provided in lieu of school.
Did anyone else notice the dark circles under her eyes? They look quite bad, the left one was black eye level.
Claire appeared attentive to the bright colors on the screen, especially from the drawing program, and kept turning to face Gwen, even after Gwen moved from one side of her to the other. Claire showed some awareness of the outside world. That's… weirdly heartwarming.
On the less heartwarming side, we've got
-Gwen pointing at the screen and making a clicking sound with her mouth in at attempt to make Claire look at the screen again. It's the same clicking you make when trying to get a dog's attention.
-"I think sometimes she looks sideways like that because she's using her peripheral vision." wat
-Gwen claimed Claire was smiling (she wasn't), and Lola was envious of all the attention Claire was getting and was impatiently waiting for her turn to use the EE (Lola was making her normal scowls and grunts).
-There was a game where you're supposed to look at a picture of a dog. All 3 times Claire supposedly looked at the dog, she wasn't even looking at the screen! But maybe she was looking at it with the eye we couldn't see? Girl is walleyed af.
Jesus, no one here thinks Gwen is starving her child with malice or that she even has better alternatives. Her best option was not to have Lola but since that's off the table, she likely has few options.
She loves Lola and I have to think that if she felt Lola would survive a stomach tube insertion or could tolerate more calorie dense food, she'd have a tube in her or would be pouring protein shakes into her. The girls' both have nightmarish digestion issues and Scott has to essentially massage poops out of both of them so it's safe to say that they don't have many options with a child this ill.
Lola, who is indeed a tiny dwarf, is around two feet tall. She does have very little muscle tone but her system burns glucose at a higher rate due to all the seizures. She may need fewer calories due to muscle wasting but her seizures may balance that out. A healthy two-foot tall child should weigh between 14-18 pounds. Lola ranges from 10-12 pounds. Let's assume she is no longer growing so she doesn't need as many calories as a healthy two-foot child, which would be about 50 calories per pound of body weight, but due to her seizures and inability to sleep that she burns calories at a decent clip. Let's say she only needs 40 per pound - that means she needs 400-480 calories a day to break even. It is very hard for Gwen to achieve that with goat milk and veggie purée, and if Lola can perceive hunger, then she likely feels hungry quite often.
But just because there seem to be few options, that doesn't mean Lola isn't suffering. She is. How much she perceives her suffering is unknown but Lola is a portrait of physical misery. >>227369
Are you saying Claire doesn't have seizures (looks like it autocorrected to "sisters"). She definitely has them. Gwen's video of Claire crying is really just a seizure. She had fewer than Lola, who seems like she has dozens a day, but sadly she does seize often herself.
Also, to address the notion that Gwen's excellent care has resulted in the girls living longer than expected. There may be some truth to that but there isn't enough data to say for sure. This genetic defect is so rare it's only been detected and tracked in a handful of families and two of those families had/ have children who are in their teens. Gwen's care cannot be said to be the reason the girls are still alive still, especially given her reliance on woo treatments like essential oils. It may just be the luck of the draw.
The CPS alarmism only has any basis in that perhaps Gwen shouldn't share so many details about her daughters online. Possibly so but they have zero perception of strangers' opinions. Gwen has a gallows sense of humor, is delusional and is very weird. But her daughters receive the best care possible within Gwen's desire to keep them alive at all costs.
Damn, I misunderstood that and I did think Claire didn't have seizures.
That 'peripheral vision' thing was a complete joke. This is really a toy for Gwen.
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"Lola is a portrait of physical misery."
Yep. I can't believe anyone outside of Gwen herself would contest this. Just look at a picture or video of her. There are tons of severely disabled kids out there without looks of hellacious suffering permanently plastered across their faces.
Just look at this pic. This is a 10 YEAR OLD GIRL. She weighs 10 lbs and her limbs are contorted into weird positions. She needs her dad to pick her up and rub the shit out of her guts. She can't talk or comprehend the meaning of any words. If you believed in reincarnation, she's the form you'd expect someone like Hitler to take upon rebirth. Gwen zealously promoting Lola's "happiness" and normality is itself looney bin level crazy.
In some defense of their decision to have Lola (and I can't believe I'm doing this) at the time Clair was not as bad off as she is now, and as they did not have an actual diagnosis to the cause, they didn't realize that her brain would continue to atrophy and her condition would be increasingly worse. I'm not saying she was well off, the CP was setting I n and contorting her limbs and she spent most of the time with the blank, dead eyed stare, but she was still somewhat cute. Of course they also probably did not expect Lola to be worse off than Clair, which she clearly is and has always been. She has never been cute and has constantly howled in misery and she has never had a decent quality of life. Gwen undeniably loves those girls, but sometimes loving them to the fullest extent means loving them enough to let them go, and that is the point they are at. I don't see how she can even stand to be around Lola. She is always screeching and squawking and she looks like a goblin of some sort. Not to be edgy, but it would be all I could do to not toss her down a flight of stairs just to shut her up. Lola's birth was supposed to be a healing experience for them after the tragedy of Clair, instead it was the funeral for Gwens sanity as that was the day she slid into complete denial and she has never returned. And Gwens sanity, much like the girls health will only continue to deteriorate and their ultimate demise will feed the bats in her belfry and if she is not committed Scott will spend the rest of his days caring for her crazy ass.
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She looked like your average microcephalic baby. In their defense, they believed that she was going to learn and grow, not regress.
I grew up with a microcephalic kid and although he is definitely mentally retarded and will always need assistance, he can speak, cook his own food, wipe his own ass and even hold a job. He's still human. He has interests, hobbies, likes and dislikes.
Microcephaly doesn't automatically mean that you're a puking potato goblin. Gwen probably thought Lola would be okay.
That is one cute baby >>227920
Claire deffo seems to be able to 1-notice movement and 2-colours, like in the swimming pool video
Lola doesn't seem to see tho
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I don't think she has awareness as in she has the ability to actually think to herself "i have to close my mouth i don't want to drown"
As far as I understand it's just a "reflex" hence why babies do it even though they have no understanding of death or drowning. Pic related
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I'm not sure, but it almost seems like her eyes worked in her early years.
I saw some tv programme about babies swimming and how they can have their mouths open when they're underwater. I googled because someone else explains it better than I could:
"When a baby goes underwater the two main responses are the ‘gag reflex’, which is when water gets in to your babies mouth the epiglottis closes and stops water from entering the windpipe. That’s why you often see picture of babies swimming underwater with their mouths open. This reflex can last up until your baby is 18 months of age". It's called the Mammalian diving reflex.
THEN there's a site that says "simply a sign that he or she is relaxed, and instinctively, he/she will likely not choke on or swallow the water".
The one that's got her lips pressed tightly together might be experiencing some instinctual fear reflex thingy (medical term). She might've swallowed water in the past and it freaked her out.
The girls suffer from a genetic condition called Asparagine Synthetase Deficiency, and one of the hallmarks of the condition is that brain mass decreases the older the sufferer becomes. Eventually every little skill these girls may have - focusing their eyes, being able to move their limbs on their own, etc. - will be lost as their brains diminish. It will continue until even the brain stem deteriorates and involuntary reflexes go with it and they die. We've seen it with Claire - she used to be able to eat and swallow but lost that ability as she got older. They both looked almost okay as babies but the older they get the worse things will be and the worse they will look.
And yeah, when they had Lola, they'd had no idea that they were carriers for ASD and that ASD would result in even further brain atrophy. As of this time last year they were operating on the premise that one day Claire could be taught to move in a walker if she had enough physical therapy.
But now Gwen knows her daughters are never going to improve, will likely die before their 20s and will deteriorate badly before that happens. It's almost a form of torture to keep forcing Claire into all that physical therapy when any skill they manage to wrench out of that poor child's body will be lost almost as soon as it is learned. It will be interesting to see if Gwen ever permits herself to admit that her daughters are on a downhill slope determined by their genetic conditions and no amount of essential oil, useless light therapy, and assisted communication and physical therapy will change it.
I personally don't think that will happen. The day Gwen accepts her daughters' brains are slowly turning into vegetable purée is the day she buries them. I don't think there is any way she can continue to care for these children - Lola especially - without lots of hope for the future.
I personally think Claire is more sentient than we realize. Not by much but she reacts to situations in a way that indicates a small part of her is at the helm. When they took blood for the genetic tests, she was visibly upset until the needle was inserted. After it was inserted, she felt no worse pain, stopped reacting with fear and fell asleep. She has very minor situational awareness - she generally can tell when Gwen moves near and away from her. She also has an expression of mild anger or irritation that she displays independent of seizures. It's like she's baring her upper teeth in a sort of mini-snarl. It's not an expression of pain or a toilet grimace. She gets irritated and wrinkles up her nose and shows her teeth. But that's the extent of her sentience, if I'm even correct and not reading into her behaviors, and she'll eventually lose all of this as her condition deteriorates.
Gwen has admitted that regularly, actually several times a day she pushes the truth of the girls situation out of her mind. I can see how when they were younger, and still presented as somewhat normal, it would be painful to imagine them dying. But now, as they barely appear human, you would think she would rather that their painful existence not continue and they be released from this thing she refers to as a "normal" life. But since everything is about her, and not them she denies their reality and glosses over how they actually feel and needs them to continue to live as the pain of losing them is too much for her. Honestly, she has to have lucid moments where her view of Clair as a perfect, perky little teen and Lola as a sassy diva dissipates and she sees them as they really are, gnarled, twisted little goblins, who have no perception of their reality, to the point that it's almost impossible to classify how they feel. Most of the time they look agitated and confused. Sometimes fearful, which I believe fear is an instinct, so they could actually feel that as I believe they do have basic instinctual reactions. But as to them learning, retaining and remembering anything, there is no way they are capable of doing any of those things. Even Lola's gobbling is the basic newborn suckling reflex and nothing more. That is why it is so difficult for her to "eat", she can't take actual bites and chew, just suckle and swallow. That's why she appears to be starving, if you have ever watched her "eat" you will note that 90% of whatever she is fed ends up on the floor and she projectile vomits…Gwen has to shove the spoon half way down her throat, literally gagging her with a spoon. She is actually only capable of drinking bottles, but Gwen can't admit that, Lola has to have something else she is capable of doing, again helping her to be normal. If she could think of them and not herself she would want their suffering to end.
>>228972>Gwen goes on to say how grateful she is that today Lola is still here
Yet she didn't bother getting Lola vaccinated in the first place.
And no, it has nothing to do with the vaccine being risky for someone as unhealthy as Lola. For one thing, Cal contracted the virus shortly after Lola did, meaning none of the Hartley offspring were vaccinated. Gwen is opposed to the chicken pox vaccine, period. Secondly, chicken pox can fucking kill a child as unhealthy as Lola, and nearly did. She was almost guaranteed to come into contact with the virus at some point, so failing to get her vaccinated not only could have cost her her life, it also guaranteed she'd suffer from the rash and probably other symptoms like fever, and there was an added risk of infection from the blisters.
There was no reason for Lola to suffer like she did. Gwen and Scott can go fuck themselves.
I was thinking about how at-risk the girls are for catching bugs with strangers coming into the home for the Eagle Eye. Also Cal could bring home any kind of virus that is passing around the high school. Gwen really needs to vaccinate herself, Scott and Cal to decrease the chances that they become ill and pass the illness to Lola and Claire. A head cold will probably kill Lola. She lost almost all her subcutaneous fat with the chicken pox and never gained any of it back. She has no wiggle room anymore.
I know Gwen loves her kids but she really has set herself up as the brave mama who defied the evil doctors who told her to abort or that Claire would die as a baby and now has a mellow teen and a sassy preteen who love life. Such a woman cannot defer to medical science and vaccinate herself or the healthy members of her family in order to keep the unhealthy members safe. She knows more than anyone else. She best thank god every day for herd immunity but I bet she sees all the people who passively keep her kids healthy as being sheeple for getting vaccinations.
Poor Cal, being sick when Lola was sick. You know no one had time to care for him much with Lola being a non-stop pox gremlin for weeks.
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In costumes that suggest Lola's imminent death no less.
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Gwen still has yet to post a video of Lola using eagle eyes! I can't imagine, her eyes are all over the place! It's kinda scary to watch in the videos how they roll back in her head or they just roll around like a cartoon character.
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She really is your typical 15 year old! I certainly wouldn't want to get on her bad side, in this picture she looks like she is ready to bite Gwens hand off.
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Just your typical healthy American preteen girl! 10 lbs, two feet tall, cortical vision issues, can't speak, can't walk, can't hand properly, has gigantic pants shitting episodes at Outback Steakhouse, projectile vomits, only eats purred veggies and goat milk, bald spots, seizures. How nice of Gwen to keep her alive!
Salt from sweat, and the general idiot is slowly decaying skin and insides.
Fun fact, a lot of diseases apparently have characteristic smells. maybe feta cheese is the distinct stank of the genetic shit show affecting the turd goblins.
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The one in the middle is making a Claire face!
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Of course they're happy. Just look at the happiness! Just pure joy 24/7. The girls are so grateful to be kept alive so they can have more awesome experiences.
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I feel like this picture is the closest we'll ever see of what Claire could have looked like if she was born normal.
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I feel like this picture shows it more.
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Gwen posted this on her IG. It was taken 2 months after they'd all gotten chicken pox.
The "hands smelling like feta" doesn't have to be down to poor hygiene. Your skin and breath can change smell as a result of infection and sickness. Liver failure, diabetes, cancers etc all can make the patient smell differently.
I doubt their mother would chase up this with a doctor though
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A VERY rare photo of Lola not looking like she's in horrific pain
I don't follow this thread so sorry if this is common knowledge, but I can't for the life of my figure out her anatomy in these pictures. What bits are her legs? Why does it look like she's got more than two legs on her right hand side? (The left of both pictures)
Sage for non-contribution
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Here's an idea of how her feet and legs bend/are positioned, anon.
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The Hooligans got a lot of mileage out of posing their goblin during this round of Monopoly.
Gwen says on her blog that it is because Lola crams her fists into her mouth all the time. Clenched fists drenched in saliva equals bacterial party time.>>229583
This. Sick, sad and wrong. Fuck Gwen.>>229613
Jesus fuck, Lola legit looks like a corpse!
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Found something while searching on reddit. I guess Gwen keeps everything together with her crazy, ironically.
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Weird, I always thought that Claire's superpower was explosive gas and Lola's was projectile vomiting several times the distance of her own height.
I just saw a video of Claire using eagle eyes and it was ridiculous. She's had all this tape on her face which detected her eye movements and those movements created designs on the computer screen. Basically she was just forming a bunch of meaningless swirls as her eyes darted aimlessly over the screen and even that she could barely do. She kept looking off to the side while Gwen tried to get her to look back at the screen.Then when she did finally did coax her back to where she was supposed to look, Claire's eyes would just go down to the bottom of the screen. Gwen kept resetting it, but she complained that Claire was getting "stuck" at the bottom as if was actually consciously interacting it.
The girl had no idea what was going on and had no interest in that eagle eyes contraption at all, but as far as her mother was concerned she was friggin michelangelo creating the next great work of art.
Ugh, those girls repulse me. I know it's not their fault,nor their choice to be born the way they were, but it's not a cockroach's fault it is the way it is either, but we're still filled with revulsion when we flip on the light and see one scurrying away. It's the same with these two little cretins. The feeling when I look at them is a visceral disgust. Especially the little one, Lola.
Her mother makes it so much worse by showing off their most repellent moments and she seems to go out of her way to choose the grossest descriptions as if the pictures werent' bad enough. Like when her husband "milks" the shit out of Lola's gut. Does she really think that's cute or funny? She doesn't realize that the way she so proudly portrays their shitting, farting, vomiting etc. turns people against her and her little spawns.
Everything she does is so obnoxious, like when she feeds Lola and brags about how amazing she is because she clucks her tongue when she puts the bib around her neck. Then she slurps down the strained mush that her mom shovels into her gullet and makes those repulsive noises…it fucking enrages me. it's like a violent car wreck..it sickens me but i can't look away.
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Something's up with this. I get the feeling Gwen is doing something to promt a response from Lola. I could be wrong, but you know the way people 'communicate' with their pets by prompting them to make a certain noise? (petting a certain way, pulling tail, ect)
The fact that this is just an audio file increases my suspicions that Gwen is possibly pinching, pulling limbs, or removing food from Lola to illicit a 'conversation', or to give the impression that she is purposefully communicating with her.
I think they're both potatoes, but believe it or not, I actually think Lola sometimes seems more aware than Claire, not that that's saying much and I think that eagle eyes will be useless for both of them, but Lola can sometimes cry, scrunch up her face if something seems to bother her and occasionally will turn her head in the direction of a sound she hears, while Claire just seems to stare off into space at nothing most of the time.
I think that although Lola was originally more profoundly affected than Claire, because the condition causes the brain to atrophy, they get progressively worse the older they get and since Claire is five years older than Lola, that's five more years she's had for her brain to shrivel up and rot.
I think another reason that lot of people believe Claire is slightly better off that Lola because Lola looks so much worse. I've seen a few pictures where you could almost tell what Claire would have looked like if she hadn't been born with this syndrome, whereas Lola barely looks human most of the time. There are instances where she's looks like something you'd see in a horror movie based on an HP Lovecraft story.
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there was a thread started on Jaxon and his disgusting parents. Some really good questions are raised, but the whole thing is incredibly sad.
I cannot for the life of me figure out how CPS are not involved.
IIRC, they stopped taking him to the doctors because 'doctors don't have all the answers'
Pic related; Jaxon dosed up on strong opiates to stop him from screaming in pain.
You should read his article on Steemit:https://firstname.lastname@example.org/jaxon-strong-exposing-the-reality
and the parent's heavily filtered, edited and moderated fb page:https://www.facebook.com/WeAreJaxonStrong/
I hope his parents happen upon their thread here, because they can't get it removed. Really don't want the tread to die- people who donated money to them have the right to know about this. The child is so clearly in pain and misery between fits.
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For a start, he's got cortical blindness. Meaning his eyes are working fine, they just don't send messages to the brain.
But even in low-light, dim, indoor shots…etc… his eyes don't react and pupils are pinned (constantly undialated)
pinprick pupils are a sure sign of opiate use
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When eyes are half-lidded, the eyes will dilate. He still has tiny pupils