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Previous Thread: >>>/snow/197138
Robyn Laura Brown (currently @bujospoonie on Instagram) is the epitome of an attention-seeking, sick role-obsessed person with Munchausen By Internet (see below for more info). People with MBI either fake illnesses or exaggerate/deliberately worsen existing illnesses for attention. She has a laundry list of alleged mental and physical illnesses and conditions which may or may not be legit, and has been caught in countless examples of lies and inconsistencies. She is a frequenter of chronic illness/spoonie communities online for nearly every vague, questionable disorder, especially the "trendy" ones. She sees doctors constantly and blows the tiniest of issues into mountainous "crises." Virtually everything she shares is related in some way to her illness and suffering.
Some of her hobbies include: taking selfies that showcase her alleged illnesses, disabilities and medical paraphernalia; making "pill art' (spelling her screen names out in meds); taking pictures of random people on the bus and ranting about how they are glaring at her for sitting in a disabled seat or how much they trigger
her, how much she loves work, collecting braces and finger splints, making her illnesses worse, creating more drama than Lifetime, collecting medical alert necklaces, bracelets, wallet cards and used EKG stickers, fucking with her wounds to keep them from healing (she kept a laparoscopic appendectomy wound open for MONTHS) while claiming her body is shutting down, and ranting about social injustices toward young people with disabilities.
Robyn has a litany of social media accounts with multiple aliases and profiles on Instagram, Facebook, Tumblr and Twitter, going back years. All are sickness-oriented, and she seems to change them whenever she has some sort of "crisis" or people catch onto her bullshit. She lives in the UK and works for the NHS as a ward clerk in the maternity dept. She's in her late 20's and engaged to her fiance, Zak (who seems to avoid mentioning her on his Facebook account).
More info on MBI:
From Dr. Marc Feldman, who first described Munchausen By Internet in 2000:
"…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups. Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support."
Her Tramadol is ER, not IR. She holds up the box in her third introduction video here. >>197196
Besides, the easiest and legal way to obtain it is through a doctor, they hand the shit out like candy. No point in risking jail time to rob her for one script that they can legally get elsewhere like she did. If she was advertising Oxy or something similar, then yes robbing is a real risk. Otherwise yeah someone would likely just swipe the bag and try their luck if it's a complete stranger on the street.
Interestingly, she also admits to taking two a day. That's one of those meds you're only ever supposed to take one of in 24 hours. Doubling ER meds increases the risk of OD (and seizures in this case) since it has a longer half-life and therefore stays in your system longer. Wonder if she's actually doing it or if she's lying. If she is doubling up, she needs to either tell her doctor or her doctor needs to be fired.
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Funnily enough this came up next on her most current facebook
She's probably basing it off the general price it'd be if she wasn't getting them for free.
Either way, that is definitely not a normal response. Like, I have a panic disorder, it's not something you casually lolemote away in a Facebook post. That shit is crippling.
she did a post on one of her many tumblr accounts about her meds costing almost £1000 a year then a brag post on IG about how she gets meds free now because of the epilepsy she doesn't even have.
I guess her next move will be applying for disability living allowance or whatever it's called now.
She's a parasite.
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Robyn once again believing she is the centre of attention and the world revolves around her and her super serious medical complaints.
don't get me wrong, i understand the risk she's getting at. i've had seizures on buses myself and even though i was sat down, i ended up falling into the aisle and getting hurt. but it's just one of those risks, not something to whine about. i'm surprised she doesn't wear a helmet…
imagine it. it would have all her chronic illnesses listed on it.
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Robyn's individuality would be lost behind her big skull protector. At least she wouldn't have to moan about people not letting her sit down if she was wearing one of these
''Tis the season, right?
Omg if someone actually ordered her one and it doesn't fit on her giant melon head.
/Sry for sounding like an idiot I'm on a lot of cold medicine
the language here is interesting - she outright calls it "collecting" which is pretty close to "hoarding" in my book>>215749
I just pictured a helmet with bright red chunky braids hot glued to it…ugh
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There isn't much of a difference to her normal hairstyle either anyways. It might help her hide bad hair days – another plus?
She could also decorate it with her ECG sticker collection and trade with other munchies, yay!
Just caught up in there, holy fuckfest!>>216360
Maybe Admin-sama will do something about all that WK chimpout derailment. Don't worry about it reaching thread limit though, I already have an OP image picked out for the next one. :)
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While working on the Epilepsy Saga, I came across this post. I wonder what happened that day with her doc? We can only imagine. Her poor docs.
By the way, I am planning on posting the whole Epilepsy Saga on Christmas Eve since a few of you said it would make a great Christmas present. :)
Bless you anon. Looking forward to it.
I'd love to know what happened at her doctors that day. I wonder if it's mentioned on any of her facebook accounts?
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Lol, she should get right on buying one of these online, like all her medical braces, canes, crutches and wheelchair. It would make her 'invisible illness' much more visible than all that other shit combined.
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Super severe hand injury
Look how fuckin excited she is, its so disgusting.
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Same seizure, same minor injuries, same injury, 3 days later.
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Second post of the day- much dramas at minor injures, super severe knee damage
On this trip to A&E they suggested her wound wasn't serious enough for them and sent her to the walk in centre / minor injuries unit (which working in the NHS she should have had the sense to do herself.) It was the minor injuries unit that was evacuated.
If I'm right, she wrote a letter of complaint to A&E complaining about being treated so poorly.
She kept whinging about how because she has epilepsy she should have arrived by ambulance because she had injured herself during a seizure but she did the NHS a favour by getting her dad to drive her.
All she really needed to do was clean the wound, put a dressing on it and maybe see her GP or a nurse at her GP surgery the following morning. Her trip to A&E was a waste of time because they didn't even stitch it. Of course, she fucked with it for days, stretching it open with those grimy sausage fingers.
Seriously! "Sprain" and "dislocation" are mutually exclusive terms. As soon as something dislocates, it's not a sprain, period.
I don't even get why she'd mention the real diagnosis. Obviously she wanted it to be a dislocation, so instead of trying to claim a sprain and dislocation are the same thing, why not just say it was dislocated, period? Did she knock herself stupid during her definitely not fake I swear seizure?>>219911
Why would she even need an ambulance? It's not like she was about to bleed to death.
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She sounds like a petulant brat who can't get her own way.
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I've got some screenshots for you epilepsy anon.
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This just made me laugh. She's admitting that doctors have accused her of faking.
My best friend died from SUDEP, so watching Robyn milk this epilepsy dx now really burns my beans more than anything tbh.>>219911
This is another epilepsy thing I remember from my friend. If he had a seizure he didn't want an ambulance called unless it was BAD, and if he was injured, he wanted to just be driven to hospital like normal. Ambulances are expensive yo. I've heard this from other epileptics too, to not call ambulance unless it's really really bad, because so many ambulance rides add up rather quickly. We're America tho. Since Robyn's got her healthcare probably paid for by the government since NHS, she probably doesn't care and feels no qualms about wasting resources and money.
sage cos semiblog
Sorry to hear about your friend. I also lost a friend to epilepsy. Status epilepticus, never regained consciousness. Scared the life out of me because I was in the process of having my own seizures explored.
Sage for blog.
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>> picked to have
Yeah my friends and family all know that unless I'm seriously injured (as in head injury or broken bones) or the seizure hasn't stopped after five minutes / I've had multiple seizures without regaining consciousness then there is absolutely no need to call an ambulance. All that will result in is me being pissed off and a wasted call out for the ambulance.
We don't pay for an ambulance call in the UK but the service is over stretched as it is without people like Robyn using them for the spoonie points.
yeah, i gave my work instructions on what to do if i had a seizure and i specified "do not call an ambulance unless i ask for one, or if I am severely injured, turning blue, or not coming out of the seizure within approx 90 seconds"
like the hospital isn't going to really do anything if i have a regular seizure, there's no point in even going. the only time i went to the hospital after a seizure was after my first one at 4 years old, and after another at 18 when i just did not feel good after and it turned out i had an infection which triggered
the seizure. they almost sent me home that time too until i vomited everywhere.
i work with severely disabled kids and have probably witnessed hundreds of seizures, only called an ambulance once.
status epilepticus is my worst nightmare as a support worker.
literally going to a&e for a seizure as a diagnosed epileptic is pointless as fuck unless you're still seizing/have an injury they can actually deal with.
robyn doesn't know how fucking lucky she is to be well and have mild if any actual epileptic seizures (more likely med induced)
I've ended up in A&E a few times due to clusters of Tonic Clonic seizures and a couple of lengthy seizures that were triggered
by infections and I still felt like I didn't need to be there. Sometimes, if you're out in public or with someone who doesn't know your medical info or whatever, an ambulance is probably gonna be called. I think anyone with seizures has dealt with the irritation of waking up to a paramedic prodding and poking and asking questions at some point. I bet Robyn would love that and would happily get rushed to hospital rather than say "you know what guys, I'm fine. I just want to go home and sleep". And even if she did sign the refusal of transfer form I bet she'd keep it and glue it to a special area in her hallway to pose in front of for instagram pics.
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Sage for ot, but how do you yanks feel about us limeys and our free health service?
are you guys, like jealous at all? Or do you feel the NHS provides some kind of sub-par quality healthcare? I'd be interested to know
**I'm in America, i should add. A coworker's sister lost her home because of dental bills. One of their kids had a bad accident and needed dental surgery and extensive work done. They ended up losing their home and car.
Be grateful for the NHS!!!! There are families who would do anything for basic healthcare here.
I would tongue-fuck Donald Trumps sweaty asshole if it meant we could have publicly funded healthcare. Raise my taxes, idgaf. My uncle had to have a bunch of his bowel removed and now has a colostomy bag because he ignored his symptoms of cancer because he couldn't afford the medical bills. He basically had to be forced to see a doctor by his brothers, and by that point he needed major surgery to remove the tumor or else it would have eventually killed him. That sort of thing shouldn't happen in a wealthy, "civilized" society.
So yeah, I'm jealous.
i don't care how shitty it is, ANY free basic healthcare would be amazing. My friend's teeth are rotting out of her face because she can't afford to get them pulled. And that is LITERALLY NORMAL HERE.
like anon said above, it really bothers me when people complain so much about the NHS. At least it's something???
Of fucking course. I live in a state that accepted mean ole' "obummers" medicaid expansion and it's the reason why my mother treated her breast cancer. Otherwise she'd lose the house and she specifically refused medical care because my Dad had just lost his job. We dragged her to the hospital where they said they'd help financially. She's alive today because of expanded financial assistance.
And to get on topic - I'm pretty convinced my former roommate fakes her "disorder" Claimed to have MS, short term paralysis and a variety of other imaginary disorders that have costs thousands. She does it for attention and I've noticed her faking symptoms. She's married and her husband is pretty much bankrupt trying to pay for care for imaginary symptoms.
sage for ot but one of my parents is a gp here in uk and they has lots of munchies. here tho due to shared med records you can refuse referrals pretty easily. the gp surgery my parent works at locks referrals for munchies except for 2 week rule (suspected cancer). but it doesn't work cos munchies seek out attention anywhere and everywhere. if they don't get attention from gp they'll call out ambulances etc. ambulance service do have houses they do not send ambulances to though under any circumstances due to misuse. you can also be prosecuted for having too much police/ambulance use here too bizarrely.
the codeine addicts here are the worst (in my area). they're the ones that kick in the surgery and threaten staff. munchies simply go for treatment elsewhere.
Google came up with these
ATS – Acute Thespian Syndrome (the patient is faking illness)
ATSWWT – Always Thinks Something’s Wrong With Them.
PRATFO – Patient Reassured And Told to F**k Off.
Oh it's definitely true. >>220323
This. Medical slang is only used between professionals. No one would never speak to a patient that way. It definitely isn't exclusive to the ED though.
People don't bitch about Obamacare, they bitch about having to pay for insurance, which keeps getting more expensive. So the thought is, "I have to pay a hefty insurance bill every month, but insurance won't cover anything until I've already spent $X within a year, and I never manage to spend that much, so why the fuck do I even have insurance? Oh, right, because I'm forced to."
Now if you get really sick of have an accident, Obamacare's awesome, because you're not going to go bankrupt. But the average person isn't worried about that. That's why so few people had insurance before they were legally obliged to.
Obamacare is absolutely a step in the right direction, but without a public option, the average person gets nothing out of it other than a smaller bank account balance.
And that's why Trump, who kept claiming Obamacare was "an absolute disaster," is now pivoting and saying his magical replacement for Obamacare will cover everybody (though he's failed to elucidate how). But buying insurance won't be mandatory. He'll get rid of the part that's face-fucking people, but won't have a public option (muh taxes!), but it'll cover everybody. Somehow. Trust me.
sage for weird political rant at the end
FUCKSAKE. her phrasing really makes you wonder (well, wonder more anyway) doesn't it?>>219944>literally going to a&e for a seizure as a diagnosed epileptic is pointless as fuck unless you're still seizing/have an injury they can actually deal with.
Well she did get that cut on her hand as a result from the seizure, but unless her GP's surgery was closed for the day, isn't that something her GP could've dealt with? I mean to me as Amerifat "cut on hand" seems more like a "go to doctor/immediate care" problem than a "rush to emergency room" one.>>219973
I'm a bit jealous, and maybe when I was studying there I should've actually used it more, but my biggest issues at the time were occassional random heart flutters and asthma attacks (and since I'm white trash who never went to doctor as a kid except on shot day, i don't even know when's the right time to go tbh and am frightened). Figured better to not waste doctor's time over stuff like that. But I liked the system of just being registered at a surgery based on where I lived. Here my insurance company wants me to pick a GP based on what's in their plan and I'm kind of lost at that tbh. Also here you MUST have insurance or you pay a penalty, but thankfully I work for a huge company so I get insurance thru work. I feel so terribly for people stuck on the healthcare marketplace in the US because I've had to deal with that before and it's a clusterfuck and usually very expensive.
I've heard some bad things about the NHS tho too like when my BF's brother needed gallbladder surgery, instead of getting the surgery right away they just let him stay sick and in pain and blissed out on morphine for months instead of getting him surgery. Their mum had to threaten to take him to a different hospital to get him what he needed.
I also worry about your nurse situation there, because it seems like a lot of nurses are from outside the EU and are going to be in trouble with all the newer, tougher visa guidelines that your government puts through, but that's a different story for a different time. It's just scary the idea of possibly losing so many nurses because they're just as integral in saving peoples lives tbh. >>219997
Her and the one "anorexic" munchie from NJ who's posted about possibly being pregnant a few times. Like they'll both turn MBI into MBP so fast if they've got someone who doesn't know any better in their care. those poor kids!
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Not even sure if cow but had to post
THE FUCK IS THIS SHIT!
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Wonder of Robyn will get one of these for Christmas? She could attach her medical alert tag to it and really draw attention to her special snowflake self.
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Is this really a good time to take a photo?
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Sage for off topic but did The Onion visit this thread & get some ideas from Robyn? Would love to see her start storing her pills in an old confectionery box ..::
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dont know whats more disturbing:
the fact that she felt the need to take a photo at the gynos office
those awful toenails
Fear not dear farmers, I did not foresake you! My sincere apologies for not posting this earlier today. In the words of Admin-sama's awesome banner, but said in Santa's drawn-out voice:
Epilepsy Saga incoming…
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THE EPILEPSY SAGA: In research for this case, I found it interesting to learn that while people do fake seizures (there are even medical slang terms for these illustrious patients' exploits: "feizures" for fake seizures and "status dramaticus" for fake status epilepticus), there is a big gray area in the 'pseudoseizure' category and a lot of cautionary tales among medical professionals regarding calling out a faker. Medically, the term 'pseudoseizure' has been used to describe convulsions which do not originate via electrical disturbances in the brain. They may or may not be indicative of fakery. Most are not. Due to negative emotions and implications resulting from factitious incidents, this term has come to be viewed derogatorily, and for this reason, clinicians consider Psychogenic Nonepileptic Seizure (PNES) as a more apt term for seizures not due to pathological electrical activity in the brain. There are organic (physical) causes and psychological ones of PNES, but only a small number are manufactured consciously. The definitive diagnostic criterion for epilepsy requires a positive EEG, and in Robyn's case of course this has never happened. It is possible that treatment be initiated for suspected epilepsy, but in Robyn's case I just can't believe that her psychological differential would come back unremarkable. As readers, we do not know whether Robyn's doctors have diagnosed her with PNES, and she could very well be converting the term to 'epilepsy' for her self-supposed legitimacy. Do to the diversity of causes and presentation of PNES, this is an area in which a patient with factitious disorder has latitude when it comes to believability. For people like Robyn, this characteristic is obviously appealing.
See the following article for more information on epilepsy, pseudoseizures and a cautionary tale from a physician to other clinicians: http://www.jailmedicine.com/pseudoseizures-the-right-approach/
Two things he points out regarding factitious disorder patients and those with genuine pseudoseizures are 1. these patients are often relieved to not have been diagnosed with epilepsy, and 2. confronting factitious patients often has negative results; they will just try harder to 'prove' their symptoms are real.
This article discusses differential diagnosis and profiles of PNES patients:http://www.mdedge.com/currentpsychiatry/article/59842/neurology/psychogenic-or-epileptic-seizures-how-clinch-diagnosis
There is this overall message in the literature, as well: when in doubt, treat as if the episodes are real. Very appealing to Munchies.
Regarding Robyn, her euphoric ejaculations about her diagnosis and medications are, frankly, suspect-as-it-gets. Let us begin a review of her fucktardery.
PART 1: February 21, 2013.
Pic related. This is the earliest record I can find of her discussing her 'fits.' This screenshot was captured from her original Facebook page. I posted this picture previously but am including here for the sake of completeness.
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Epilepsy Saga PART 2: August 22, 2014.
The next mention of seizures, and referencing the event on >>221790
>>221790>> relieved to not have epilepsy.
As a pnes anon (my seizures are triggered
by stress and migraine) I can vouch for the relief I felt to be told that I didn't have a life threatening condition. My first concern was that I was "crazy" but when my neurologist explained it all to me I was just happy to know I had a diagnosis that made sense and wasn't dangerous.
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Epilepsy Saga PART 3: August 22, 2014. Success! She is always so happy when she sets out for an appointment with a specific objective and the clinician says whatever she hopes to hear. In this case, she wanted to begin the 'diagnosis journey' and scored some prescriptions for diagnostic tests.
It is interesting to note that she mentions her doc saying her migraines are related to her seizures. I researched her migraine history and it is entirely plausible that she took the headaches as far as she could for #spoonie attenshun points, got bored of it and escalated her symptoms to seizures. Over the course of her years of known social media presence, she has consistently followed this MO: She has spurts of very active, intense attention-seeking drama, then as it wanes, emphasis and escalation of posts regarding a new symptom or exacerbation of a previous issue begins. I find it interesting that she used to blame her headaches on her sooper seereeus allurgeez, but the desired diagnosis and blame factor this time was epilepsy. I have researched her allergy saga as well but will not include it here because this bitch is long enough already!
Because she has correlated her migraines to her alleged epilepsy, however, I have included some of her migraine drama in this saga.
Robyn needs to be nominated for some of the Lolcow Awards 2016. If you agree, the thread about it is here. >>>/meta/3654
I nominated her for favorite cow and best new cow!
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Epilepsy Saga Part 4: August 26, 2014.
She's "nervous" about a motherfucking EKG?!! Oh no a new ~*scary medikul proseedyur!*~ Wat? You lay still for 30 seconds with stickers on your chest. That's it. Jesus fuck, the hyperbole!
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Epilepsy Saga Part 5: August 26, 2014.
No heart disease, so let's have some more fatty crappy food! As much as she eats shit like this and her beloved Dominoes, heart disease could be her next diagnosis quest, or the beetus. They are just boring ol' common illnesses though, so it's doubtful that either would bring her any munchie pleasure. The irony is, a run-of-the-mill food/overweight-related illness will probably be her ultimate downfall, not her sooper speshul spoonie illnesses.
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Epilepsy Saga Part 6: August 26, 2014.
The BK Aftermath, Part 1.
This was posted a short time after her Burger King #foodporn (kek) post. I can't imagine why you feel #ill (gotta tag it!). B-but, dat #spoonielife! Nah bitch, it was the food. You eat like shit and make yourself sick.
But wait, it gets better…
this is her FIRST ekg? if she is as busted up medically as she claims she would have had at least one a long time ago>>221833
is this the same day as the seizure? because my "spoons" run out immediately after a seizure. if my "spoons" run out i certainly don't have enough energy to take a picture and post on instagram.
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Epilepsy Saga Part 6: August 26, 2014.
The BK Aftermath, Part 2.
Fucking Robyn. Eats shitty food and makes it a ~*spoonie krysus desu!*~
She professes suffering with a brutal migraine with light aversion, yet apparently had no problem going to 'celebrate' (she always has some symbolic excuse when she posts her cheap junk food) with a big meal at her beloved Burger King, complete with sitting in a brightly-lit area.
No. Just no. Migraines of that severity are crippling. You would not be going to optional locations, and you absolutely would not be anywhere near a celebratory mood. FFS, at least be consistent, Munchiechan. You've been at this for years and yet you still screw up your own storylines.
News Flash: Your GI symptoms are because you EAT. LIKE. SHIT. Also, you took laxatives. Honey, they cause intestinal discomfort.
If you're having a migraine bad enough that you're averse to light you wouldn't go to burgerking for anything. You don't want to eat in that state.
Hell, moving your head a little causes so much pain and nausea everyone I know who's had one says they'd rather die than do it again. She either had a little bit of a headache or she's 100% lying. Migraines aren't a minor thing you just have whilst going about your day.
it fucks me up so much that not only would Robyn go to Burger King with a ~crippling migraine~ and light sensitivity, but she'd also take a selfie in the middle of a fucking sunbeam. yeah, no. pretty much every anon who's had a migraine can confirm the last thing they want to do while suffering a migraine is take a selfie in front of the window.
God this bitch really steams my broccoli
Right? She's such an idiot about how she fakes her dire health.
You'd think someone so obsessed with being the sickest person ever would spent 10 minutes on Wikipedia to get the symptoms right but I suppose those 10 minutes are better spent making sure she's gotten her daily 40 pictures of OTC vitamins and ibuprofens.
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Could this be the beginning of a new set of symptoms? I've been waiting for her to go down the endometriosis path next.
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Epilepsy Saga Part 7: September 1, 2014.
I need to mention Robyn's Surgical Mask Saga because it coincides with our timeline and she appears masked in several upcoming pictures.
The Allergy Saga, highlighted by the surgical mask schtick, was a relatively quick-flame drama for Robyn. Her focus on it begins and ends over the course of a shorter period of time compared to her other Munchie adventures, and seems to take place between the time she began her quest for epilepsy testing and when her more extensive evaluative tests are scheduled.
Pic related: One day, Robyn decided that she might start wearing surgical masks for her super-serious allergies.
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Epilepsy Saga Part 8: September 5, 2014.
The masks appear for the first time with an accompanying poor-me #spoonielife rant. All of the sudden, they are absolutely critical in preventing very seeryus allergic reactions. She is already setting us up for her needing to wear them all the time. This gets more pronounced as time goes on, but I am sure they were uncomfortable because it didn't last.
Note the 'bedridden every other day' part of her poor-me baaawww session. Really?
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Epilepsy Saga Part 9: September 6, 2014.
"I can't even go 2 hours without my #surgicalmask." She is also implicating her pets as a major allergen. Really? That's why all your snuggly pet pics never mention it before now, nor do you appear symptomatic in any of them? But, munch on, munchie kween.
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Epilepsy Saga Part 10: September 9, 2014.
This super poor-me baaaawwww post which has been shared on lolcowchan previously for it's OTT cringe and Robyn's admission of not wanting to treat her injury because ~*baaawwww why should I care if the medikul ppl didn't*~. She did a hospital run the day before for a soft tissue injury and they gave her a high-arm sling but she felt she was somehow neglected. That event precipitated this meltdown.
I am sharing it now because it is notable in light of the previous post's claims. Wait Robyn, don't your pets cause you such brutal allergy attacks that you can't be without your mask and will have an attack within 2 hours from ambient allergenic material in your home, never mind with them right in your face? B-but…when you're baaawwwwing on about dat awful #spoonielife, crying for an hour, you can absolutely cuddle your dog to your face the whole time! Makes totez sense.
All of this becomes relevant to our Epilepsy Saga timeline, as she segues from here into a migraine the next day…
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Epilepsy Saga Part 11: September 10, 2014.
Robyn discusses ~*muh #chronicmigraines.*~ She states that crying can bring one on. If, in fact, she has migraines and seizures, and if the two are in fact related, this would support the PNES theory. But that's assuming anything Robyn says is legit, and that in and of itself is reaching.
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Epilepsy Saga Part 12: September 19, 2014.
Finally, we get to where she again correlates her #chronicmigraines to her #seizures. She also ideates for us the desire to attempt to rush her tests. Shit takes too long when you need your attenshun fix, yo! Just focusing on super-serious chronic allergies wasn't doing it for her. Not enough asspats. She's still got her precious masks for now, though she phases them out soon. Once she ramps up her migraine complaints in an effort to get epilepsy testing moved up, that becomes her primary medical fixation.
Kek at the lone comment!
>I've had a migraine for 4 years. Nothing is wrong with me.
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Epilepsy Saga Part 13: September 26, 2014.
She got her CT scan appointment confirmation but the date isn't good enough so she calls to reschedule. She's thrilled it got moved up because she's had a migraine on and off for the past 2 weeks.
>"Finally moving forwards to seeing a #specialist and finding out if I have #epilepsy! #spoonielife and #spoonieproblems!"
She is so excited yew guise!
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Epilepsy Saga Part 14: September 26, 2014.
Later that day she has yet another bad migraine, but yew guize she is so excited about her appointment, she is counting down the hours!
>"Just keep telling myself that it's less than 12 hours till my #ctscan for my #seizures to see if I have #epilepsy… Hopefully I'll get an answer about the #migraines as well! Argh #spoonielife/#spoonieproblems!"
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Epilepsy Saga Part 15: September 27, 2014.
The big day has arrived! CT scan day.
>I personally fucking hate these legs/waiting type of pics, and her ugly leggings don't help.
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Epilepsy Saga Part 16: September 27, 2014.
Commemorating the day's event with a souvenir pic near the CT Scan sign. Good times in Munchie Land!
Her excitement about everything medical is creepy af.
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Epilepsy Saga Part 17: October 7, 2014.
Robyn receives her referral letter for seeing a neurologist. She hyper-analyzes how many days the referral was written following her CT appointment, and imagines some nerve-wracking drama about why they are getting her in so quickly. It must be because she's a super-speshul case! But rest assured, she's on it, anons. She will never fail to pester her doctor for more answers.
Christ she may as well be masturbating next to that friggin sign. She's seriously deviant
Who the fuck takes pictures of signs like this?
I wonder how people manage to be around her. Must be excruciating.
I had to take an MRI last week and just wanted to get out of there. Imagine stopping everything to take a goddamn photo to show how special you are. She's going to be smug and stupid until the day she really gets a SERIOUS problem, because trust me, she will. She takes fucking meds that are unnecessary and x-rays and whatnot all the time. When that happens she won't dare to spend energy taking pictures.
Sage for anon support
I feel you I had a headache the entire time I was a teenager it was awful I still get bad ones and it's still a mystery
This is why it took so long to piece it all together, too.
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Epilepsy Saga Part 18: October 9, 2014.
Her addiction to attention must have been stimulated by the receipt of the neuro appointment letter. She must be unbearably excited for that date to get here. In the mean time, she allegedly gets a 'cat scratch' under her eye (which just happens to look like a clean blade laceration) when her cat sprung off her face (I don't even want to know), and then baaawwws about her chronic allergies being so ~* sooper severe*~ some more. She rants about how her doctor wouldn't give her the attention she was seeking (or whatever prescription she was after, since OTC drugs aren't good enough).
>"The next step up of it getting worse is #hives or #anaphylaxis" yew guise!
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this is all i see..
How in the everloving fuck can someone have an allergy triggered
by water spray??? Unless you're spraying it, like, directly up your nostrils and inhaling.
Plus, didn't she work at McDonald's at one point? Pretty sure at some point or another she'd have to use some sort of cleaning spray.
can you fucking imagine seeing someone take this kind of picture when you're walking through a hospital????? like what the actual fuck robyn. no one is assed if the sign points to your head your fuckingn stupid ass hair is in the way of the actual arrow anyway ffs
sage for non contrib
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Epilepsy Saga Part 19: October 9, 2014.
Still steaming about her appointment, but now her Munchie version of what the doctor said has gone from "Carry on what you have been doing" (GTFO you don't need further treatment), to "My doc says I have to wear these #surgicalmasks all the time now even at work." No, no they didn't…but okay Munchiechan. She receives so few likes for her allergy charade posts, so naturally she doesn't get so dramatic about it after this krysus.
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Epilepsy Saga Part 20: October 9, 2014.
Still upset she didn't get what she wanted from the doc, she finds something else to bitch about. She accuses the doc of negligence for telling her to keep taking antihistamines despite the drugs potentially increasing the risk of seizures.
>"I am currently seeing a neurologist…"
No Robyn. You have an appointment for your very first consult with a neuro. Every drug has warnings of some sort, and no one has yet cross-evaluated her treatments for her other conditions yet. She just needed something to baaawww about. This is classic Munchie behavior. When they don't get their way, they get upset and may try harder to make their condition seem worse or more real, and/or malign the 'offending' physician as much as possible.
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Epilepsy Saga Part 21: October 13, 2014.
Retail therapy because unfair drama! Nah bitch. From the evidence I've seen (and believe me that is a fucking lot after chronicling all this shit), Robyn, YOU cause drama. Others just get sick of it. I was unable to access any posts outside of IG related to whatever shit went down, but I can just imagine. Robyn has a knack for having interpersonal conflicts with people. Whenever she's not the sickest or receiving all the attention, shit goes down with her chimping out. We get a taste of the fuckery in Part 22…
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Epilepsy Saga Part 22: October 14, 2014.
Robyn bitches and moans about some construction going on near work, and whines poor-me about being her age and argh #spoonielife! :( Apparently she slipped on a muddy hill and subluxed her knee (when she could have walked along a main road instead, but that was apparently somehow more dangerous?), but
>"I walked home after I did it because of the adrenaline but probably shouldn't have LOL. Ah well."
She gets some sympathy on IG, but apparently shit went down on Facebook after this post, as we will see in Part 23. Munchiechan then has the gall to say in the comments that she "tries to ignore" her EDS "as much as I can" and isn't coping well with the possibility of epilepsy. Oh bull fucking shit Robyn! Your entire Insta is about baawwww #spoonielife ~*muh EDS*~ and ~*muh othur illnussez*~ and you have loved every minute of it and documented the ever living fuck out of everything! But, yeah, you try to ignore it. Sure, Jan.
>I don't like to admit how much my body is starting to fail.
TOP KEK. Get over yourself!
Apparently someone on Facebook felt the same way I do and called her out. She shares her version of events with an epic chimpout baaaaaaaaaawwwww fest on IG in the next part.
"Muh cat scratched me so i boughts myself a ps4 to make my owies feel better"
Sage for rage sattire
I have been in and out of 3 different hospitals/ER over the holidays because of 6 seizures, 2 of them leaving visible lacerations needing stitches – can I get my mansion now?
Sage for blog but I wanted to display a real perspective how epilepsy can(!) impact one's life.
Thank you Saga-Anon for helping me kill some hospital-time, much love from Epilepsy-chan.
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Epilepsy Saga Part 23: October 14, 2014.
The Epic Chimpout.
In this post we learn about the fallout from Part 22; why so much was deleted off of her former Facebook account and why she started primarily posting her MBI-related shit on Instagram. One commenter said, "I would have just deleted the person and left it at that." Word! What the fuck, making posts like this one for more poor-me asspats is one of the reasons people call Robyn attention-seeking. She's impossible.
This is a bigger file, let me know if I need to break it up.
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Epilepsy Saga Part 24: October 23, 2014.
Another mask shot. Robyn describes not feeling well and attributes her symptoms to being "epilepsy auroras" (she means auras), but then lists other causes. Okay girl, whatever you say.
I can't stop reading this now, thanks. >>225635
It takes a special talent to look so smug in a face mask.
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Robyn and Aurora? You just made it too easy for me… couldn't resist. Feel free to add, there's still plenty of room for knee braces or allergy bracelets!
Good idea, but there's still something missing for the banner: it needs to be animated. I hope I'll find some time to fix it tomorrow. This is such a meditative activity…
Btw. does Robyn have any active instagram/facebook atm?
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Epilepsy Saga Part 25: October 24, 2014.
>"Yesterday I sat and watched #girlinterupted. Such a good film that I relate to a lot! The past 2 weeks have been tough with my #depression, #anxiety and #chronicillness/#invisibleillness and it felt good to watch this and have a good cry."
Jesus Christ, the dramu. Of course she relates to Girl, Interrupted. Her, and all the fucking tumblrinas.
>"And I found out my #surgicalmask is super absorbent for tears haha <3"
I can't. I just can't.
They should've used that money to buy themselves so new shoes that aren't falling apart. >>225703
This is perfect, anon. Too bad we can't make a banner of it.
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She has an active facebook, but posts are dull and generic 'happy new year' sort of marlakey
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Epilepsy Saga Part 26: November 18, 2014.
>Makes Hypermobile Geek blog, complete with custom masked spoonie avatar
>Posts intro and an entry about her microtia
>Plans to post about epilepsy and her other illnesses
>Never posts again.
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Epilepsy Saga Part 27: November 24, 2014.
Robyn is so nervous/anxious, yew guize! She is manically counting down the days to her neuro appointment in this post, spoonie hashtagging away, high on the prospect of how her brand new shiny epilepsy diagnosis will affect her life.
>This is literally a life changing appointment! I may end up on #medication for the rest of my life because of this."
I thought you were already sick and on medication for the rest of your life! Are all those other pills you post just for show? Oh, wait…
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Epilepsy Saga Part 27: November 26, 2014.
Robyn has a migraine. Again, she is counting down to her ~*glorious neurology appointment uwu*~ and also discusses her seizure symptoms and history in the comments. She says that the only reason her doc took her seriously about the seizures is because she had a witness (Mr. Doormat, of course). She also recounts that her docs blew her off about her migraines and told her to just take paracetamol (Tylenol). Somewhere along the Munchie line she did end up getting put on Imitrex for them, but it is interesting to see her track record of diagnosis shopping and fails along the way.
Do you know what really irks me, the fact she's saying things like >>seeing neurologist about my epilepsy.
You had some "seizures" Robyn, chill out. It take months to get a diagnosis. Also, her doormat has no medical training. I'm inclined to think that she may be fainting rather than seizing as fainting can cause mild jerking of the limbs which a worried partner might interpret as a seizure.
I mean, we know she was probably faking but that's my differential dx.
That's probably why she wanted sumatriptan. A few of her meds can cause seizures and she went doctor shopping for them after the epilepsy saga began.
She genuinely seems munchie enough to deliberately induce seizures to ensure medical attention.
Sumatriptan is awful for non epileptics! Both myself and best friend stopped taking it because it made our heads feel like they were going to explode.>>226749
So this is HIGHLY probable IMO.
Bit OT, BUT 3 dissolvable asprin and a travel sickness pill works best at the onset of a migraine, I find.
Sage because might be too ~personal blog~
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Epilepsy Saga Part 28: December 3, 2014.
The Day of Robyn's ~*Glorious Neurology Appointment desu*~ Has Arrived! She posts that she has a migraine that day, too…yes, of course she does. Now she's counting down the mere hours until she will get her super-anticipated "very important #hospitalappointment" fix sated at last.
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Epilepsy Saga Part 29: December 3, 2014.
Leaving for ~*Glorious Appointment desu*~!
>"Nervous as Fuck, but let's do this - off to see the #neurologist about my #seizures and possible #epilepsy and see what he has to say and what the plan of action is… So used to #doctors treating me badly that I'm pretty scared about this #hospitalappoinment - #spoonielife/#spoonieproblems ❤️❤️❤️"
>So used to #doctors treating me badly
I can't imagine why, Munchiechan.
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Epilepsy Saga Part 30: December 3, 2014.
Robyn has arrived for her super-important, very exciting but nerve-wracking #neurology #hospitalappointment!
>Big Day ❤️❤️❤️
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This just reminded me… Epilepsy Saga PART 2.2 (didn't want to interfere).
Not even a month after her seizure in August 2014 when she was still in testing - see above: CT not done, neurologist not yet seen, she got _heavily_ drunk at a friend's wedding on 12/09/14.>Even threw up in the bathroom cupboard because I was convinced it was the toilet. So #embarrassed.
That's not something you do when you're waiting for a diagnosis. As an epileptic alcohol is one of the biggest triggers
and if it's not you may enjoy a glass here or there but this is munchie in your face behaviour.
Bet she would have _loooved_ getting a seizure at the wedding. uuuuh, attenshion.
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Epilepsy Saga Part 31: December 3, 2014.
~*Glorious Neuro Appointment desu*~ "went so well!" She excitedly recounts the visit in great detail, including basic neuro tests, and allegedly receives the 'tentative' diagnosis of temporal lobe epilepsy. She scores orders for an MRI and EEG, and is prescribed Keppra.
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Epilepsy Saga Part 32: December 3, 2014.
Robyn gleefully shows off her new epilepsy med.
>"Scared and excited all at the same time."
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Epilepsy Saga Part 33: December 4, 2014.
Pharma-Porn shot, "such a cute little box" yewguise! Robyn wants to accessorize her pretty new pills in a new pillbox. Jesus fuck she is obsessed.
She has never mentioned her and Zak trying for a baby until this post, so she probably read the contraindication and invented a new spoonie sacrifice to bitch about. Ah well, #spoonielife!
>I can no longer drink alcohol and Zak and I's plans to have a baby have been put on hold for the moment because of this #medication.
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Epilepsy Saga Part 34: December 4, 2014.
Another glam pharma shot. Totez normal to be this enamored with an RX.
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Epilepsy Saga Part 35: December 4, 2014.
"Look, these are my instructions for taking muh new super speshul pillz!"
>only has tentative dx thus far
>already wants med covered for free
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Sorry, that's not entirely true, she did mention trying for a baby before. This pic is from August 14th. But being oh so worried because of her hypermobility disorder. So the reasoning stays, just the illness changes.>>227889
That's right. My neuro asks me every appointment if I plan to have children. There are other meds AND you would take smaller doses troughout the day - although you might start with the latter only after having conceived successfully.
Btw for you farmers not familiar with keppra: the side effects this drug has on the fetus are so severe, she could end up with some distant cousins of the Hartley Potatoes!
The doc's notes here are fucking bizarre. Either the doc believes she has extremely mild epilepsy, or no epilepsy at all.
Levetiracetam is one of the mildest anti-epileptics available– as in it doesn't have such a drastic, immediate effect on seizures as do some of the others like idk Dilantin or Lamictal. It's considered so mild that it's only been extremely recently approved for monotherapy, wheras it used to be given to supplement another stronger drug.
When I started Levetiracetam, my first prescription was 500 mg twice a day, and I had really only started to have seizures the previous year. 1000 mg is like the very lowest dose they'll initially put someone on, even when the idea is to gradually up their dose to better control seizures.
For the amount of "grand mals" she's had, especially over what she's claimed as an 8-year period, you'd think the doctors would give her something a littler higher potency or dosage. 1000 mg wouldn't do shit for the frequency of seizures she's claiming to have.
And I think the docs are on to her too. If you're going to play it safe and give a possible faker an antiepileptic, Levetiracetam is the safest one to give them. It doesn't get processed through the liver, so there's no danger of damage, and the major side effects are mostly being angry or moody. (Which, for Robyn, being a huge cunt isn't that big a deal anyway.)
500 mg my ass. Either she fucking faked the bagged script itself, or her doctors figure she's a histrionic shitheel.
Look at her smug punchable face. "Nyah nyah nyah nyah! I've got epilepsy now!"
>Diagnosis says tentative
Fuck I would love this malingering cunt to be called out by a doctor seriously. I'm so glad the Wound Saga surgeon called her out for being a time waster and to stop touching it at least!
Who is on the highest dose tho?>I' m taking a 1000mg> Well, i'm taking 1500mg
It's clearly a competition with these people.
I saw Jonzie having a similar contest with one of her commentors in an old post. Only, Jonzie really amped up how super special she was cause her dose was higher and got pissy when questioned.
I loathe these fucking eejits!
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Epilepsy Saga Part 36: December 6, 2014.
More pharma porn. Robyn has fun calculating how many Keppra pills she will be taking in the coming month. In the comments, she claims she hasn't had many side effects except for tiredness and feeling dizzy for the first couple of days, but contradicts herself in an upcoming post on Dec. 8th.
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Epilepsy Saga Part 37: December 6, 2014.
And MORE pharma porn. She is absolutely ecstatic about scoring meds for her "seizures" and can't stop manically posting about it.
>"I got a little excited that my #seizure and #epilepsy #medication (#levetiracetam/#keppra) matches my #babybluehair/#spearminthair - well at least I'm colour coordinated - #spoonielife/#spoonieproblems ❤️❤️❤️"
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Epilepsy Saga Part 38: December 8, 2014.
>"Here goes nothing!!! My first dose of #levetiracetam (#keppra) for my #seizures and #epilepsy. Let's hope I don't get any crazy #sideeffects - #spoonielife/#spoonieproblems ❤️❤️❤️"
The obsessive live-blogging about these pills is so OTT.
If this is your first dose, Robyn, why did you post about minimal side-effects in Part 36?
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Epilepsy Saga Part 39: December 8, 2014.
Time to order lots of gaudy medical alert shwag! Her level of excitement/fetishizing is so disturbing.
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Epilepsy Saga Part 40: December 11, 2014.
Robyn goes to the doc for the third fucking time regarding her migraines, hoping to score some better meds.
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Epilepsy Saga Part 41: December 11, 2014.
Robyn scores a script for sumatriptan. After the chimpout she had over being told to take an antihistamine despite her "seizures," she ought to have been similarly concerned in this case (sumatriptan can lower seizure threshold). I would not be surprised if she looked up migraine meds and kept going back to the doc until she got a prescription that could cause or worsen seizures, hoping to induce them on purpose.
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Epilepsy Saga Part 42: December 11, 2014.
Pharmaporn, sumatriptan edition.
The most ridiculous thing here is that when her GP prescribed Sumatriptan, a box will have come up on the computer screen stating that it's contraindicated in patients with a history of seizures. The doctor will have had to dismiss the warning, acknowledging that there is no risk of seizures in that particular patient.
Also, and I've said it before, why didn't Robyn mention her "crippling" migraines at her super important neuro appointment especially after whinging about how she needed her MRI asap because of migraines. The neurologist would have prescribed an antiepileptic with a dual purpose such as topiramate or sodium valproate which are both used in migraine prevention.
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Epilepsy Saga Part 43: December 11, 2014.
Robyn receives her appointment letter for an MRI.
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Epilepsy Saga Part 44: December 11, 2014.
Lookie yewguise, she got a kawaii case just for her beloved sumatriptan!
>Jesus fucking christ already, Robyn!
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Epilepsy Saga Part 45: December 11, 2014.
>"So excited! All my #medicalalert/#medicalert/#medicalalertbracelet/#medicalertbracelet stuff arrived today so I can wear it all the time just in case I have a #seizure or I'm in an accident and they need to know my #allergies, #medication and about my #epilepsy and #hypermobilitysyndrome - #spoonielife/#spoonieproblems ❤️❤️❤️"
Self-explanatory. Jesus fuck.
>>227875>My #epilepsy and #seizure journey officially begins today
Wtfff she's unhinged ! It's so obvious she's freaking stoked about this >>227977>But also no seizures :) x
Like she had real ones in the first place … She could have taken any placebo and she'd have no seizures either.>>227983
Bitch is officially unhinged
I can picture her looking lovingly at her pills, organising it, checking other munchie's pill porn, playing with her medication all day long. She must look like a goddamn psycho.
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Epilepsy Saga Part 46: December 11, 2014.
Robyn shows us her beloved medical alert trinket haul. Okay, I have never seen anyone wear more than one medicalert tag. Of course Robyn had to get the gaudiest, most attention-grabbing colors and styles possible. That penicillin allergy bracelet is so fucking OTT.
>"I already adore them"
FFS she makes me rage! It's not a fucking fashion statement, Munchiechan.
Seriously? A rubber bracelet band for penicillin intolerance?! That's so stupid its funny. She treasures these spoonie trinkets like they're Olympic medals.>>228506
I know it wont make you feel different, but you you've nothing to be embarrassed about.
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Epilepsy Saga Part 47: December 11, 2014.
Modelling her new bracelet, along with a bullshit anecdote about her sooper cereal #hypermobilitysyndrome.
>Awh tiny wrist club :)
Don't worry, you make it up in your fat hand and sausage fingers.
Does she still work in a medical setting? It's amazing they haven't dismissed her just for all this red flag.
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>>228586>designed for toddlers
just because it's in the kids section doesn't mean it's meant for toddlers.
fun fact. I'm a small wristed adult too (15mm). My wrists are not the same size as a toddler you ninny.
I can understand if she was allergic to something that might be administered by a paramedic in an emergency, diazepam or morphine or something bu penecillin? No one is gonna inject you with that without telling you.
Why would they even give her emergency penicillin? Like if she's having a freaking untreated 2 month old gangrene? Not to mention a lot of people are allergic to it so they don't use it that much anymore.
What a weird retard.
Did she order bracelets straps in every color and
extras in some colors? Whyyyy?
It's got different degrees of allergic reactions. Some people get rashes n shit, but some people can go into anaphylaxis shock. OF COURSE, this cow will have the latter no doubt.
On hospital wards here you get your details written on a standard blue edged plastic band and if you're allergic to penicillin you get an extra red edged one. It's surprising how many people get reactions to it.
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I thought she was off alcohol because of the epilepsy meds? Looks like a glass of wine to me!
>>228643>It's not like you're going to make out with some dude who just ate an assload of penicillin and you're going to die because he still had some in his teeth.
I'm fucking laughing out loud
A bit off topic but Yesterday I saw my friend's mother walking her dog and her dog suddenly had a seizure, (Dog is a known apileptic and sometimes has 12+hours seizures)
the dog was foaming out of the mouth and had defecated all over my coat when I was holding her head and covering her eyes. I just imagined Robyn trying to prove she has a seizure and trying to get foam drool out of her mouth and shit herself lol
this also makes me wonder if some munchies go extra and intentionally shit themselves to get more munchie points.
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Genetic testing? Is she gearing up for a speshul new crisis of epic proportions? I hope she starts a new instagram to document it!
I realise this post is like a week old but it's really pissing me off that her GP prescribed her 28 sumatriptan to "see if it worked".
I'm in the UK too and I've been having migraines for well over a decade without any medications really doing anything and I've never had a doctor give me that many tablets to try out. When I got sumatriptan my doctor prescribed me SIX tablets because there's no point in giving you an entire pack of pills if the end up working.
I'm just baffled by how shitty her doctors are.
Sage for blog post
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Oh I agree. She obviously doesn't have it. But the person she claims to have gotten her EDS diagnosis from, and thus the referral for genetic testing, is a rheumatologist. Not a geneticist. So they would have less specific expertise to realize that she obviously doesn't have vascular type and that she's just stringing them along. The rheumatologist also focused on her ear lobes and claimed it was suggestive of EDS, and the Munchie Queen probably didn't let on that this symptom is likely connected to her microtia since she was getting what she wanted. So a combination of inadequate knowledge and a munchie patient leaving out important information leading to wasted resources.. again.
Source on the ear lobes bit: http://www.atresiarepair.com/education-remnant-ear-lobe.html
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A vague status hinting at the doctors appointment she had today. I miss her instagram. She spewed all the information on there instead of these stupid hints.
Why the fuck would you be thrilled to get a diagnosis of a serious illness.
She's so incredibly nuts.
So it's confirmed that Robyn deliberately withholds medical information from doctors in hopes they'll (mis)diagnose her.>>231457
What illness is she referring to?
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New facebook post about how amazing the doormat is…
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Continued from last post..
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oh poor girl, a low dose for 'suspected' epilepsy and some OTC vitamin supplements. a lot of kids and teens have to get shit-tier orphan drugs, icds, and heavy heart medication for vasc and classic. there aren't even any studies as of yet showing links between hypermobile and epilepsy so that's just a spankin' choice on her part. how any practicing physician took her seriously is beyond me, hypermobile self diagnosis is already a fucked up running joke.
i remember one of the younger pediatric patients had vascular and did IG for some make up artsy-type stuff since his parents pulled him out of school. never once told anyone about having it and instead just self regulated away from social media when he'd get really severe. most genuine patients don't want people to know they have a condition let alone use it for internet brownie points and virtual asspats.
i feel pretty po'd knowing he's gone at 12 and she's around using hypermobility and glamour shots at medical institutes of all things to troll for attention because she's not interesting enough on her own. illnesses, conditions and prescriptions aren't fucking fashion statements to boost your follower count. learn a skill or at least learn to treadmill instead. >>227895
is she serious..? how selfish. i feel downright awful for her future child(ren) if they even make it past development.
I completely forgot she posted about planning for a child… and from my understanding she didn't discontinue her medication (she would have mentioned it for extra spoonie points I guess)
How can a person continue this joke up to this point? I know that some/if not most antiepileptic medication raises a woman's chance for birth defects, ranging from a few extra fingers/cleft lip to a messed up spine, a hole in a heart, lower intelligence and autism. Would she really rather keep up with her hobby of collecting pill marchendise instead?
She might become like the mother of the hooligans. if she can't prove she isn't disabled herself, why not give birth to your own poor suffering ~disabled~ child? or maybe if she shows everyone that she is a spoonie with a spoonie kid she would be the ultimate spoonie on the internet?
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What's the betting she'll have a "seizure" today now that two people have suggested it?
>engaged for nearly 6 years>CURRENT planned date is more than a year away
If an engagement lasts that long, at least one partner doesn't really want to get married.
>Zak never talks about Robyn on his sm>gave her her MOM's ring in a friggin kinder egg (I know she's a fatty but come on)>never got her a new ring despite her passive aggressive hints that she wanted a different one>Robyn ended up designing her own ring
I wonder if Doormat has attempted to dump her yet and she's done something crazy to force him to stay with her, or if he's resigned himself to his fate and is doing the bare minimum in the relationship as a result.
And fuuuck that ring is ugly. Is it really the best she could come up with? "This could have been paid for by Zak working one shift." Okay, so money isn't the issue (unless they're shit with money and barely scraping by). Why buy that fugly thing instead of waiting a little while longer and saving up? She hasn't had a ring she really likes for 6 years, it's not like it'll kill her to wait a little longer.
>>237076>I wonder if Doormat has attempted to dump her yet and she's done something crazy to force him to stay with her
I wouldn't be surprised if forcing him to stay (amongst other things?) was a silent byproduct of the chemical burn saga. That one was quite intense and disturbing.
Another theory may be, that Zak himself would have feelings of guilt leaving her. She doesn't seem to have any friends, does she? She may not have to play the victim card, he’s just too caught up in it already.
And last but not least: they have bought a house together.>>236822
They stopped trying for a child a few boxes into her medication, thank God, but she's still taking the prenatal vitamins or whatevs for extra pill porn pictures, I think.
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Epilepsy Saga Part 48: December 13, 2014.
Two fucking days later, still sperging about how she adores her beloved medic alert bracelets.
Someone asks her about the 'no ambulance' thing and she gives such a bullshit answer. Well sweetums, the only way you'd be that confident is if you knew you really plan your "seizures" so yeah you'll magically be in the right place/time.
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And the poor attempt at whatever this was has disappeared too
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Epilepsy Saga Part 49: December 13, 2014.
More medic alert gear OTT-ness. Jesus fuck, I have never seen anything more gaudy than the tags she bought.
>"Do you think I have enough colors???"
What a fucking brat. Now she's acting like a savior to these miscreants?
Nicole, if you're reading, pls justify yourself..
Like you're actually sick and we get that but these people art taking advantage of resources that you and other people need. If you don't think so, lurk more.
This thread is very easy to find, as are the other ones. Many in the chronic illness community are aware of the threads. It was only a matter of time before Robyn found out about them. Sorry that you won't have anything to bitch about anymore, looks like you'll have to find something new to occupy your time :)>>238103
Not every chronically ill person is a munchie…in fact very few are :)
Duh. Many of the people who comment here do because they have the actual conditions the munchies fake and are able to prove the posts are fake or exaggerated. Check out the posts of Robyns epilepsy saga. We've come from the hashtags too.
They/We are sick of what were wellness, health and support communities being taken over by drama queens looking for attention.
It's really unfortunate how you don't see how these munchies are literally making a mockery of what it means to be chronically ill and have these disease like how have you looked at Robyn's story without anger? She's literally mocking diseases you actually have? That doesn't bother you? We have done nothing compared to how terrible robyn, alexys, etc act on a regular basis and abuse medical staff and treatment centers.
Doesn't that shit upset you at all? As an actual chronically ill person?
Didn't that actually happen with JBN?
She just keeps comin back… honestly Nicole if you just kept your mouth shut we probably wouldn't speak of you again cuz you're not fundamentally a cow. But you can always become one, if that's what you're going for..
I personally try not to judge people because I don't know their full story, I only see small parts of their lives.
To be honest if people want to talk about me now that I supposedly tipped Robyn then so be it. I'd rather people leave my friend alone because she doesn't deserve it. If people talk about me instead I can't stop them from doing so, I have plenty of medical evidence to back up everything I'm saying :)
You are just dying
for us to ask for the evidence so you can post it all. It pisses you off that we don't give you the attention that Robyn and others get, doesn't it???
no1curr. Run along.
I'm sure you're due for another hospital post on instagram soon.
These were sent today?>13:54>15:50
Nice edit job moving the 5s there.
Literally fuck off. Nobody sent you these messages. I've been mentioned on these boards before (due to my involvement in a certain community) and I've never been messaged once. Nobody is sending you messages. Just_be_honest_nicole
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No but enjoy this
Omg I think it is.
Her gaping tongue piercing looks big enough to put a McDonald's straw through it..
What, you mean like actually suffering from the medical conditions you and shitheels like Robyn play tourist in?
Yeah, you ought to be fucking happy you're not sick. But given that you probably have a pervasive personality disorder, you're probably enjoying all of this negative attention you're getting.
What's the matter, sweets? Your family and friends finally not buying that you're awwww so super srs sick??? Just go ahead and bust out the old regulars– jam a few fingers down your throat and pray to the porcelain god.
Here's the thing, you moron: I see asshole like you regularly at the specialists I need to go see. And it's clear the types of people you are, even from behind a closed door. Listening to someone verbally abuse the medical staff for something not going their way, watching someone being a snippy dickhead to the receptionist, is vastly, vastly different from actually sick people.
And what you morons can't quite seem to figure out that this shit is taxing. On many fucking levels. Actually sick people don't have the energy to be the level of raging crazy cuntiness that you pathological attention seeking whores manage to sustain.
So hey: go ahead. Harp on us for getting sick of your constant drain on the medical resources we truly need. How dare we be frustrated with someone who's physically healthy but just mentally ill?? Isn't that just as valid? Don't you need medical attention too, even if you aren't "that" kind of sick?
Answer: no. Now fuck off and let us complain about your shitiness in peace. You cunt.
Nicole isn't one of those people though. I don't think she's ever mentioned kicking off at medical staff or anything like that. Yeah, she's disheartened by the treatment she gets sometimes but all of us get fed up of being sick sometimes.
And as someone with a diagnosis of bpd, it really pisses me off when it gets thrown around as an insult or as a way to explain away behaviours we don't agree with or understand. I'm pretty sure Nicole doesn't have bpd but even if she dis, who cares? Borderline patients aren't all the way they're portrayed in the movies. Some of us actually have a sense of right and wrong and accept the treatment offered to us and try to fix ourselves.
Sorry for ranting.
I've never once abused medical staff. I've never once shouted at medical staff, swore at medical staff or been physically abusive.
I also don't have a diagnosis of a personality disorder. I have medical letters which clearly state my diagnosis.
I have somatic vomiting, that's my diagnosis. I've never once lied about that or tried to make out it's something it's not. I've been completely open and honest about my diagnosis.
As for sticking my fingers down my throat, I think by now if I were doing it then medical staff would have caught onto it. I'm admitted to a general medicine hospital for weeks at a time due to constant vomiting, the medical staff can see I am vomiting and not making myself sick. A&E can see I'm vomiting and not making myself sick.
Holy christ, you people are fucking dense. And this response is a perfect testament to the kind of slimy circle jerk community you psychos have constructed for yourselves.
"B-b-b-but I'm realy sick yu guize!!! no faaaair!"
Yes, Nicole is one of those people. And since you don't seem to be getting it either: YOU are one of those fucking people.
You are attention seeking, resource draining fucking black holes of constant NEED NEED NEED, and if you can't get enough for just being who you are, you have to ramp it up to 11 and flail into histrionics about conditions you don't actually have.
I don't think you seem to realize: this isn't instagram or tumblr. Nobody here is going to say, "Oh my bad, since she came here and said 'NU-UUUHHHH', she clearly has EDS/anorexia/whatever random bullshit. Please accept my apologies."
The communities you sit and fester on have just strengthened your clearly fucking delusional belief that everyone will believe and give you asspats for whatever shit you decide to whine about on the internet. And then when we don't, you need to scuttle on in like the shithouse rat you are and squeal about how we aren't worshipping you and your dramawhore friends for the horrible things you're going through.
You aren't special. You aren't suffering.
You're just disgusting.
I hate this kind of stereotyping of mental illness. And yes, before you say it isn't, personality disorders are a mental illness or at least they are considered that way and therefore treated that way in the UK. I've been through treatment, I've worked hard to change the pervasive issues. I am and never have been abusive. BPD manifests in many ways. For me it was impulsivity, self injury, suicide attempts. And one of the things I hate about a lot of other people with BPD is their insistence that they have a serious mental illness that will never go away. Because that's bullshit. If you want to recover, you can. I did and no longer considered to have a personality disorder.
I don't consider myself to be a part of any community. Yeah, I may use the spoonie hashtag but it's to find people dealing with the same shit as me, not for attention. So fuck you.
Hahahahaha, and having had to live with a person like you, I can safely say that the people closest to you put up a veneer of support, because otherwise your whining, sulking, brooding, and tantrums are so stressful that they prefer you pacified that everyone "believes" you, than to constantly fight you to see reality.
The hardest thing to try to engage with is someone who clings to a false diagnosis when they aren't clinically delusional. Delusions, at least the actual traditional kind suffered from by those with psychotic disorders, can be treated with medication and therapy.
You are your ilk just have a pathological need for the attention of your preference. And your insane stamina for that incessant crave outlasts any normal person's desire to try to correct that pathological urge.
See, you can't even be medicated, because it's a personality disorder and not a traditional mental illness. You can't even treated unless you're actually interested in recovering from the disgusting behavior you enjoy in engaging.
So yeah. You're not sick, in so many levels. You're just the human equivalent of a black hole, ripping through other people's lives and swallowing their light, until you eventually snuff them out.
Nicole, Robyn, you and whatever other cow absolutely deserve to be publically shamed on this forum. Here's an informative webpage so that you'll stop your fucking hair-splitting.http://www.merckmanuals.com/professional/psychiatric-disorders/somatic-symptom-and-related-disorders/factitious-disorder-imposed-on-self
"Factitious Disorders imposed on self." Which is a somatoform disorder, just as Nicole keeps blubbering about.
>>>Factitious disorder is falsification of physical or psychologic symptoms without an obvious external incentive; the motivation for this behavior is to assume the sick role. Symptoms can be acute, dramatic, and convincing. Patients often wander from one physician or hospital to another for treatment. The cause is unknown, although stress and a severe personality disorder, most often borderline personality disorder, are often implicated. Diagnosis is clinical. There are no clearly effective treatments.
>>>There are no clearly effective treatments.
>>>There are no clearly effective treatments.
So yeah! You're clearly a terminal case. Do us all a favor, live up to your fucking prognosis, and stop draining other people's medical resources to itch that scratch in your diseased little mind.
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I don't know if you're illiterate, lazy, or just too fucking stupid to comprehend the link previously posted, so look at the little picture in this post.
The Merck Manuals consider "factitious" (not fictitious) disorder is a somatoform illness.
And if you bother to check out the grand total of five different subpages in that menu, none of the diagnoses section seem to specify that you need some bizarre hodge-podge of expressed symptoms.
Basically all you have to have is no actual physical problems, and a high rate of expressed concern for your perceived, but clinically unfounded, problems. You fucking dunce.
Psych and MBI anon here.
For the record, there's a couple of points you're confused or misinformed about. In the DSM 5, the diagnostic manual for the US, factitious disorder is listed under "somatic symptom and related disorders", but is not actually called a somatic disorder. It would be classified under the "related" section because of the fact that there is either no medical cause for the symptoms or because they are deliberately exaggerated to an unrealistic degree for attention. For somatoform disorder (now called somatic symptom disorder), the symptoms are not caused deliberately but rather an unconscious reaction of the mind to anxiety. When diagnosing factitious disorder, somatic symptom disorder is considered a differential diagnosis - the professional has to make sure that the symptoms are deliberately induced or exaggerated, not a consequence of anxiety resulting in attention seeking behavior. It is technically possible to have both from my understanding, but they are not the same thing. JBN is right about that specific detail.
However. To be clear, I don't like JBN. I argued with her the first time she wked Robyn, and just last night when I helped reveal she was wking herself. I do believe she's attention seeking and purposefully derailing threads or tipping cows in order to lavish in attention if she isn't getting enough on her own. But attention seeking behavior like that can be a component of somatic symptom disorder, as is the obsession with the severity of her symptoms or attempting to emphasize that they are genuine instead of somatic (yet still managing to argue that they're somatic…). That behavior lines up with the current diagnosis.
Either way, the best way to respond to her is to ignore her. Don't take the bait. She needs to deal with her issues with her actual professionals, and all we're doing by continuing to respond to her is feeding her need for attention. It reinforces the behavior. Let the thread go back to Robyn's bullshit. Continuing to argue this point will further derail the thread, which is exactly what JBN wants. Don't give it to her. Let it go after this and let's go back to bitching about Robyn. I'll even work on the EDS saga some more if that helps bring the topic back to its original point.
>>>I'll even work on the EDS saga some more if that helps bring the topic back to its original point.
I'll definitely agree to this.
(To be clear, my harping on the factitious illness stuff was mostly to shut Nicole and her wking up. I do realize somatic and factitious illnesses are clinically different, but it's very helpful that they are considered broadly under the same umbrella.)
Why the fuck are you even here? Why do you care so much about random anon strangers and what they disucss?
See, I know the answer but you have yet to catch up.
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Okay! So for the EDS saga, we left off on part 64 from the last thread.>>201344
With Robyn wiping most of her old IG accounts, she's gone and made my job a bit harder. Not impossible, I still have stuff to work with, but it does mean that I'll likely have to start referencing other sagas for the missing data such as the Appy Saga. There's actually a fair bit of relevant data in that one. For now though, let's continue!
Pt 65. January 26 2015. She’s at the doctor’s office to get a referral for her diagnosis, notes in hand. Note that only four people have liked the post. This becomes relevant later, when she jumps accounts and basks in the attention she craves. Comments that she’s so nervous her hands are shaking, but seems calm enough to be ranting on IG. Image quality is the same as usual too, suggesting that she wasn’t struggling to focus the image because of her shaking hands. Hm.
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Pt 66. January 26 2015. She gets blood work done to rule out rheumatoid arthritis, and a possible referral to an orthopedic specialist regarding EDS. Says the doctor knew about EDS/HMS, but doesn’t want to send her to a rheumatologist. Rheumatologists are hit or miss here in the US, but my understanding of the UK system is that they’re pretty much the ones to go to for an EDS diagnosis since there are so few geneticists and the wait times to see them are ridiculously long. There are three important things to note here: the number of likes, the date she mentioned (February 4th) and the fact that she’s seeing an orthopedic specialist. Why? Because she goes prop shopping again, this time for a wheelchair, and makes sure to order shipping fast enough for it to arrive before the appointment. The specialist doesn’t bite. Buying a wheelchair as a prop to see an orthopedic specialist of all people was a really, really stupid move.
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Pt 67. January 30 2015. Another intro post in the middle of the account. Strange to be doing it there when she’s going to jump accounts soon. Starts counting off the number of hospitals she has gone to, number of surgeries, number of dislocations, how many of each specific test she’s had, and a plethora of hashtag abuse. Is careful not to include certain things she’s already dropped like her chronic migraines, the allergies, or microtia. Claims it’s because she has more followers. I find this unlikely. Between parts 65 and 66, the more hashtags she adds, the more likes she gets. Now with all of these, she is up to 27. Needs to fish for that attention yo. It starts going down again later when she focuses on her super special EDS again.
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Pt 68. February 1 2015. Split into multiple posts due to the length of the comments. Just a few days to go before the appointment, so quick, she needs another medical crisis to be taken seriously! Is back in the hospital claiming to be tachycardic and is attempting to blame it on EDS or epilepsy. Considering the appointment she’s gearing up for, she’s probably angling for EDS due to its correlations with dysautonomia.
For the record, there’s a lot of things that can cause an increased heart rate. Some easy to induce ones include low blood sugar and popping a cocktail of her plethora of pills. Her post just two days ago (pt 67, >>239291
) suggests that she’s on a “weight loss journey”, so she may have skipped meals for once and induced it that way considering her body wouldn’t be used to it. Sadly we’ll likely never know what she did specifically. Either way, the timing of this and the wheelchair purchase is incredibly suspect.
Some interesting things to note:
• She starts bitching about the overnight staff again. Somehow I doubt she was left sitting around for 3 hours without so much as her vitals being taken. We also have no way of knowing if the staff was extremely busy that night dealing with actual medical crises.
• She starts mentioning her dad’s BPM and ECG results. Attempting to tie in family history and could be where she gets some of her knowledge about how ECGs work. Could also explain some of the drive she has for being a munchie – the combination of her experience with microtia plus the attention her dad gets and craving it for herself. Either of those are part of the typical histories for munchies, let alone combined.
• More games of “who can have it worse” with the sole commenter. One mentions something about their experience, the other escalates. Rinse and repeat.
• Both the commenter and Robyn insist that the tachycardia must be related to EDS/HMS. Points toward her using this new hospitalization to “prove” to the orthopedic specialist that she has EDS. More fabricating of targeted proof in order to achieve a specific diagnosis in classic munchie style.
• Blames the staff for a blown vein. Even though they can’t help the fact that she has tiny veins and have to use something else. Switching to a vein that’s easier to access is SOP and saves the patient a ton of needle sticks.
• “Think I’ll try and avoid the emergency department as much as possible” For how long? Because the Appy saga seems to prove this fact wrong, considering that happened just a couple months later.
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Pt 68.2, second portion of the comments.
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Pt 68.3, last portion of the comments.
>>239291>I live my life hiding the #chronicpain I feel on a daily basis, and I try not to let on how much I struggle.
Says the woman who has had multiple accounts dedicated to detailing every aspect of her #spoonielife, takes selfies during doctors' visits, lies in order to get more severe diagnoses, treats medical alert bracelets like fashion accessories, etc.
>I've had 4 lots of #surgery, 100's of #dislocations, 2 #broken bones, 3 #mriscans, 1 #ctscan, 2 #ecgs and been treated in 9 different #hostpitals all because of my poor health.
1. Who even keeps track of those things??
2. 2 or 3 of those surgeries were to make her ear look less fucked up. Ugly ear ≠ poor health.
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Pt 69.1, February 2 2015, broken up into multiple parts again. Two days to go before the appointment with the orthopedic specialist. So how can she prove that she has EDS? By buying a wheelchair. Let us recall pt 44, where she tells a commenter (who is a wheelchair user and makes an appearance here too, they’re the black censored commenter) “I need to be more like you”.>>200533
Something really, really important to note: if she actually needed a chair, the orthopedic specialist would refer her to an occupational therapist or rehabilitation engineer and she could get one that is properly fitted. It would have been covered by the NHS as a medically necessary assistive device, either provided by them or given a voucher to purchase it. She would not need to buy it from Amazon days before the appointment. Instead of waiting to see if it was truly necessary, she ordered one just days before her appointment and got it shipped priority mail. After the appointment, it mysteriously disappears for daily use except for when she needs a dramatic picture, such as here >>187056
Purchase and use of props that are discarded when no longer needed, or that are only used in certain situations, is evidence of Munchausen’s or active malingering. It’s a major problem because it impacts how specialists perceive other patients that use those same assistive devices. When someone comes in with a medical device they obviously don’t need, it can further contribute to the professional’s perception of other patients that they think do not genuinely need the devices. This in turn makes it harder for people to get diagnosed and gain access to crutches or wheelchairs when they need them to function in society. As such, people that are legitimately ill and who use assistive devices frequently have to weigh the pros and cons of using them during critical appointments, since they don’t want to run the risk of being perceived as using it as a prop. On the other hand, not using them can also be used as evidence that they don’t actually need it. It’s a lose-lose situation and people like Robyn is exactly why it’s a problem. Thankfully, the orthopedic specialist appears to have seen through her ruse since she had to go fishing for a diagnosis elsewhere, but who knows how it’s impacted their perception of other patients.
The chair in question: https://www.amazon.co.uk/FoxHunter-Propelled-Lightweight-Wheelchair-Footrest/dp/B00JVSMGH2/ref=sr_1_43_a_it?srs=4161403031&ie=UTF8&qid=1485296901&sr=8-43
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Pt 69.2, second portion of the comments.
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Pt 69.3, final portion of the comments.
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I got my time line mixed up slightly when I was originally doing this. Pt 59, where she bitches about the snow, is actually best placed here.
February 2nd again. In her notes, she tries to claim that she experiences panic attacks when faced with slippery floors. She's also complained in the past about the hazards of walking around outdoors, whether because of mud or because people are parked in the wrong place. But instead of getting a ride or taking the bus to work, so as to avoid the risk of slipping in the snow, she walks there with the same stupid grin. While complaining about the danger of the snow. Doesn't even bother waiting for her chair. If it's that necessary to prevent dislocations and if slippery floors give her panic attacks, how the hell can she walk to work in the snow with no visible sign of distress whatsoever?
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No worries. Her use of so many different accounts, including multiple accounts at the same time, makes sorting out the timeline of events a pain in the ass. It's no wonder people get confused and I wound up getting confused in some areas too. For example, her wording in the recent parts suggested that the upcoming appointment was the orthopedic specialist appointment and that she already had the bloodwork done on Jan 26 2015. Turns out the upcoming appointment is for the bloodwork. The orthopedic specialist appointment date is unclear - I'm not sure if it was ever actually discussed directly.
Pt 70. February 4 2015. Day before her appointment. Her wheelchair has arrived, she acts surprised and claims it arrived sooner than she expected. I guarantee you she dropped money for priority mail. The appointment she’s been gearing up for is the blood work appointment, the one with the orthopedic specialist comes later. Makes some comment about how it's bigger than she is. Kind of a useless thing to get impressed by… wheels tend to be big.
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Pt 71. Same day. She takes the chair out for a test drive, realizes that it’s more hassle than she anticipated. Much like the super necessary knee braces she stopped using shortly after purchasing. What, did she think being a wheelchair user was going to be easy? Obvious prop is obvious. When the larger props are too much of a hassle and it outweighs the benefits, she moves on to smaller props that are easier to manage like the finger splints.
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Pt 72. February 5 2015. Day of the appointment, where she specifies that it’s for the blood work to rule out rheumatoid arthritis and hopefully get a referral for an EDS diagnosis. She jumps accounts shortly after this under the guise of getting away from "bullies". Pay close attention to the number of likes. No comments and only 12 likes here, but the number quickly escalates on the new account.
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Pt 73. February 9 2015, youdontlookthatdisabled account. Talks about pursuing a diagnosis for EDS on it, but the account is primarily about her burn saga. Which she literally calls her burn saga. Note the increased like count as well as using old photos that make her look more sick than she actually is. Other interesting things include the fact that her number of reported dislocations has changed (she’s now emphasizing a much lower number of “major” dislocations instead of the 100s), the claim of being a 9/9 on the Beighton scale (yet not using any of this as proof of her hypermobility in pt 14 >>199521
), and that people have been calling her a liar. In a later post she clarifies that the people calling her a liar were her friends, though the wording here implies it was her doctors.
File: 1485382809067.png (1.02 MB, 1559x598, EDS saga pt 74.png)
Pt 74. Same day. Talks about how she’s been ill since 13, and how she made the account to document her journey and bitch about her friends not taking her seriously. Something to note: now that she has jumped accounts and she is spamming hashtags, the number of likes on the posts have gone up dramatically. Before, she was only getting a handful. These two posts have over 40. Here she claims that she moved accounts because people in real life were doubting her. Good for them, honestly. I hope they were able to get away from her. Gives advice to a new commenter about how to get financial assistance with a comment about PIP being easier to obtain than disability (probably because she knows her claims wouldn’t stand up under scrutiny), and how it’s easier to access than in the US. I guess as a malingerer, she'd certainly know wouldn't she? After this point, the account focuses on her burn saga, which she was posting at the same time as another medical crisis. So milking attention from two entirely different crises at the same time. She abandons this account after the burn saga concludes.
Also, side note regarding this part. This is one of those rare instances where you can see her earlobes to counter the whole "my earlobes are small because EDS" bullshit from earlier (at >>231576
). You can clearly see the reconstruction she had done.
For pt 75, I’m going to do something a little different. Instead of reposting the images from the burn saga, I’m going to link to the previous relevant posts and point out what aspect of them are relevant to the EDS saga. This is a trial run for formatting, so I can feel out how to handle references to the Appy Saga. The relevant areas are primarily surrounding her claims of poor healing and the attention seeking behavior that lines up with MBI. Because of the level of detail, I'll wait a bit before moving on to analyzing the appy saga so people can discuss it first.
>TL;DR version: Robyn posts information that proves she did not start as an MBI case, but rather a real life Munchausen case that escalated to the internet the longer she was on Instagram. This is rare for MBI. She jumps from diagnosis to diagnosis in her tags, ignoring key symptoms that would have been relevant, only to add them again in a later saga. The burn saga was a repost with notable behavior differences between the original posting and the new account, giving us a unique glimpse into the insanity of her escalations.
Interesting thing to note: the start date of the chemical burn saga is a couple days before the intro post on the hypermobilegeek account, where we started the EDS saga. The chemical burn saga starts on June 26 2014 ( >>201905
). The EDS saga starts on June 29 2014 ( >>199468
). She had been cataloging a dated timeline of photos for the burn saga even before escalating into the Munchie Queen we all know well, suggesting that her MBI attention seeking behavior dates back further than any of us anticipated.
• In part 4 of the burn saga ( >>202129
), she starts tagging POTS. This supports the theory that the medical crisis in pt 68 ( >>239297
) was an attempt to “confirm” a comorbid disorder that supports an EDS diagnosis. She also avoids tagging a large number of the conditions she’s claiming, focusing instead on POTS, chronic migraines and colitis.
• In later posts such as parts 8 and 9 of the burn saga ( >>202550
), she starts tagging fibromyalgia, migraine and tachycardia. EDS isn’t mentioned in the tags at all. This despite the fact that EDS would actually be relevant because of the impact on healing, a claim she has made before in pt 27 ( >>199846
• In part 13 of the burn saga ( >>203416
), the anon helpfully shows us the two accounts side by side. You can see how the wording is very different between the two, suggesting that the description for the burn saga was written long after the incident. It’s even more obvious in part 14 ( >>203748
). She didn’t get enough attention the first time around when she was posting about it and revised her game, instead creating her own sagas. Considering the descriptions would have been written /after/ she started claiming poor wound healing due to EDS, I wonder why she left that detail off so frequently. This would have been an excellent time to make use of it. She eventually figures that out when she starts going on about it in the Appy saga a few months later.
• In part 15 of the burn saga ( >>203765
), she hints at poor wound healing due to EDS but doesn’t state it directly. In actuality, as the anon stated, that is definitely self-inflicted. I have dermatillomania and have dealt with burns, that’s exactly how it looks.
• The only reasons she ever had to see a specialist was because it was a chemical burn and it was on her dominant hand. That’s it. Like people pointed out during the burn saga, she had a superficial burn that in any other situation could have been treated at home. Many first aid sites will tell you this, and that certain burns have to be seen because of their location, the cause of the burn, or the size. So the munchie queen made sure to choose a method that had to be seen by a professional and by default would have been seen as significant. This is important because it means my original assessment of her starting as a somewhat “sane” Spoonie Warrior Luls and escalating to MBI was wrong. She’s been a Munchie for years and it started offline. She’s one of those rare instances where a Munchausen case starts offline and then escalates online in social media, instead of being isolated to social media and support groups. Typically in MBI the behavior is fairly isolated to the internet and their stomping grounds of choice. Then they may escalate and move offline. Robyn, in contrast, started offline and moved to specific support groups online for who knows what reason. This is one of the few things about her case that does not fit the typical MBI profile.
• Personal nitpick: It drives me nuts how often she posts “food porn” with a thumbs up sign showing off her bandage, with the burned hand so close in proximity to greasy, goopy food that would dirty the bandage. Including food that is supposed to be eaten by hand. For someone proclaiming she ~just wants it to heal~, that’s a shit way to do it. Of course shit will get infected if you stuff your hand in your greasy takeout all the time. It has nothing to do with poor wound healing and everything to do with how she handles it.
I'm not sure if she paid or not. But the way things were worded, it sounds like she may have benefited from a major problem that a lot of specialists face - seeing the disease they specialize in every possibility.
It's one of the things that anyone looking to specialize in a medical field has to check on a regular basis, especially if they're specializing in a specific collection of diseases. It's kind of like those people that see the Virgin Mary in peeling paint or on toast. They see a collection of symptoms that correlate with the disease of their specialty and zero in on that while ignoring other possibilities. This is both a pro and a con. On the one hand, it means that they're more likely to pick up on the subtle things that other doctors will miss for that condition, making it easier for genuine cases to get diagnosed if they manage to get to the office. On the other hand, it means that they can get fooled by munchies that tailor their cases to suit a particular profile.
Though we don't know if Robyn is really telling the truth about the professional's reaction. Like with the epilepsy saga, it may have started as a tentative diagnosis and she rolled with it online. So said professional could very well be keeping that tendency in check, but she's managed to twist it for asspats online yet again. With her tendency to lie it's impossible to call at this point.
The ring splints she has are the cheap plastic ones. The whole budget munchie thing. She can get a pack of 5 for ~£50. The silver variety, which a lot of people with EDS invest in because of the durability, being better fitting and looking less tacky, cost significantly more for just one splint. Considering she would only need them for photos and not daily use (the latter of which runs the risk of losing them if they fall off), a full set can last her a long time for a fraction of the cost.https://www.amazon.co.uk/Oval-Finger-Splints-Size-Pack/dp/B00MENDCS8/ref=sr_1_21_s_it?s=drugstore&ie=UTF8&qid=1485561336&sr=1-21&keywords=oval+8http://www.silverringsplint.com/our-splints/siris-swan-neck-splint/
And that's not even going into her talking about seeing an occupational therapist to get fitted, so they may have been funded by the NHS anyway if she talked them into it around the same time as the purple splint. They're more likely to pay for the plastic ones than the silver variety.
Fear not dear anons, I still have lots of archived material to share. Sorry for the delay. Things have been busy for me IRL.
EDS Anon, I am sorry you were injured. Glad you're back! :)
Thanks! And awesome, may need to hit you up for some of those archives. After reviewing the Appy Saga for the EDS Saga I'll have a huge blank spot in my data, your archives could save us all.
Next part is in the works, guys. The test format from before doesn't seem to get much interest, so I'll revert back to images and just repost the relevant parts from the Appy Saga.
I think the pic format is better even if it's repeat pics. Not everyone who comes in here has been here from the earlier Sagas.
Thank you for your work, definitely interested!
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Epilepsy Saga Part 50: December 13, 2014.
Success! Robyn receives an appointment summary letter from her neuro consult regarding a possible epilepsy diagnosis. The letter indicates the fervor with which she insisted on some form of treatment, typical of munchies:
>she was very keen for something to be done
>I have therefore given her a prescription
Treatment = totez lejit illnus!
Of course, she interprets this letter to be as good as a definitive diagnosis:
>It feels good to have a diagnosis.
The problem with this is that the consultant has only subjective (patient-and-doormat-provided) information. The alleged febrile seizures she references from infancy have not caused any cerebral pathology whatsoever, as is revealed later via her clinical workup (scans, etc.), but it is the consultation itself that matters most to Munchies. If you see a specialist about a given illness, BOOM! You can prove you went, and then claim you were diagnosed. For MBI, of course, you can just outright claim "I saw a specialist! I have [insert sought-after diagnosis here!]. I suspect that she did this with EDS, as have a litany of other IG accounts who have jumped on the ~*en vogue*~ EDS III bandwagon, posting merely that "genetic testing proved I really do have EDS!" We never see receipts from that alleged diagnosis and we all know damn well, if Robyn had that shit in writing, she would have spammed pics ad nauseum all over her social media accounts.
No you crazy bitch that isn't a diagnosis.
I wonder where she is these days. She's pulling this same shit, somewhere, guaranteed.
I'd pay to see a DR confront her!
Did she ever show a letter with an actual concrete diagnosis of epilepsy? I don't remember seeing anything other than this "tentative" diagnosis.
I wish she'd come out of hiding!
It's on her thread, which is on the front page anon.>>247979
That's disappointing. You made some of the best contributions. I hope you decide to continue.
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Strange how people pop up without meaning to!!
I was doing so research as I dislocated my ankle today (horrible freak accident) and guess who happens to pop up!!
Hey Robyn! It's an old post but I just found it weird how I was innocently googling my rehab options and she pops up
We have a few medications in common, and I cannot believe that she would intentionally do that to herself. What an infuriating, resource-leeching butthole.
Robyn, if you're reading this, and I believe you are, add magnesium to your pill horde. You're at serious risk of actual seizures and cardiac arrest, and no, there's no way to orchestrate or plan for that, once you're gone you're gone. I had to be revived twice and I'm still trying to learn what parts of my brain got all retardeded, I can't use a smartphone or write by hand, and I had to relearn simple tasks such as fucking swallowing. If, by some freak miracle, you had this random event occur while around a defibulator and someone who knows how to use it, that means no more social media, no more attention, no more #spoonielife, no more access to pills and doctors who don't know what you're doing. Believe you me, they will see right through it and at the first sign of intentional medical self-harm, they will force you into getting clean from pain pills and probably have you committed for having obviously caused yourself to go through such an idiot endeavor. The chances your ridiculous malingering compell you to take are not in your favor.
Jesus, watch her walk around with a defib now. ~*cardiac patient medical bracelets y'all*~
Apologies for the blog. I'm another seizure disorderchan who is just infuriated by all this.
Won't that make her shit her brains out?
At least her "bloating" will be cured.
Nothing new that I can find
Did find this gem though not sure if it's old milk but still https://youtu.be/EtsaVRcPL4o
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I can't help thinking of this when I see her bowlcut.
The new criteria separates hEDS and HMS (which is now HSD, hypermobility spectrum disorder).
It's HSD if there's only muscoskeletal involvement, and hEDS if there's multi system involvement.
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OkCupid pt 1:
So I came across this last night, fully thinking that MAYBE DOORMAT GOT AWAY- no. shudders. they're in an open relationship.
And for someone not good at summaries she put a shit ton of info on this page, thus multiple screenshots.
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OkCupid pt 2:
Looking for casual sex..NOPE.
Btw: she gets into her 'diagnoses' later in her profile. of fucking course. why wouldn't she?
As a wheelchair user,
I was provided a manual wheelchair by the NHS, provideded through my occupational therapists, I was told that it'd take 12 weeks for the wheelchair to arrive, they measured me up there and then in the office and put in the order in front of me.
I was then later told by the Occupational Therapy dept, that if I wanted an electric wheelchair, since I can't push myself without my shoulders dislocating, (I'm and EDS sufferer) I'd have to wait for 3 years to get the wheelchair through the social services, providing I met their strict criteria.
it was then, and only then, my parents took the decision of buying an electric wheelchair, second hand, for the time being, because I felt degraded being pushed around, with my father being my registered full time carer, it was his decision to get me an electric wheelchair.
This girl actually makes me feel sick to my stomach.
You're partially wrong there, my occupational therapist ordered a wheelchair as soon as she saw my hips when I was walking, every step I take they come in and out of their sockets and my crutches weren't helping, they were actually doing more long term damage to my shoulders.
They won't provide you with an electric wheelchair unless you meet the strict criteria and even if you do get onto said waiting list, it's a 3 year wait.
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OkCupid pt 3:
>from checking social media
Where is she posting, I wonder? Seriously I kinda wanna know.
>I love to write stories
is that why you like faking serious illnesses? i wonder if it's all just a fun story to live out or some shit. ugh.
don't even get me started on #6, 'my medication is vital'..mhmmmmm.
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I'm also just going to leave this here.
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OkCupid pt 5:
>I really do lead an exciting life! But you can be gaurenteed that my lack of a social life means most the time I'll reply very quickly to messages!
she contradicts herself even on her profile.
"I really do lead an exciting life!"
"my lack of a social life means most the time I'll reply very quickly to messages!"
I guess her 'exciting life' consists of her munchie behaviors rather than a social life.
Yes. so exciting she brags about being chronically sick.
She was being sarcastic.
This is sad, I'm guessing doormat wouldn't be searching for someone else. I feel a bit bad for him sometimes, he probably does love her but she keeps throwing him curveballs like this
She listed her pets on top six things she can't live without but not her boyfriend. Damn
That reads like a description of what may well be the most boring 'love story' of all time…. Jesus Christ most people at least try and make it sound somewhat enchanting on those things. But I guess you can't make chicken salad out of chicken shit.
On another note, Burghley House is a stunning and I imagine expensive venue for the reception. A very historical building and popular tourist place in the P'Boro area.
The strict criteria excluded me from getting a powerchair on the NHS, and the prospect of waiting 3 years to be denied was gutting. I spent my PIP backpayment on my chair, and it was so worth it.
Thanks to everyone who documented the Robyn sagas. This has been an interesting and horrifying read. I hope it's also given her motive to think about her behaviours.
it' a rule to sage if you are not adding to the convo (especially as this thread's been inactive for a while). see Rule 3.6 at https://lolcow.farm/rules
and also https://lolcow.farm/info
for how to.
Yo my apologies for necroing this, but I didn't see anyone in the replies call this particular shit out. Btw fantastic job on the chronicles, Saga anons!
In this post she says a few things that made me giggle. >1) I've not been diagnosed witg EDS but trying to get a diagnosis
(Sorry, how many fucking times has she said definitively or acted like she for sure
has EDS?)>2) I've had 8 grand mal and 8 partial since 2009
(Up until now she's never mentioned "grand mal" or "partial" just that she'd had 9 (?) seizures since 2009, now it's 16 and she can differentiate the types magically?)>3) 3 seizures recently - one in front of dad, one in front of doormat, and the last one (????) after which she went to hospital
(But this story has changed heaps of times, she said before that the first seizure was at dinner with her dad and doormat iirc, and how would she know she had a third if she had no witness? She hasn't even been confirmed for seizures yet so wtf)
Loling at the tool in her comments too. In their first comment they say "had my first seizure in September!" then two comments later "I had my first seizure in February then didn't have no more until September"
Are all these people as fucking spoonie and ridiculous as each other??>>227871
Also lol she didn't blur out her deets very well. She was just
saying a few posts ago that dw nobody can fuck with her medical stuff without her NHS number, then posts her NHS number visibly. >>228404
Oh, and her address in this one.
God bless you Robyn, munchies are so hilariously stupid.
Sorry again to necro but I'm a newfag who's been lurking and reading these Munchie/Spoonie threads for the past week and this is the first that's still recently active to vent my frustrations in. This Robyn/Not-Robyn stuff has been beyond riveting! Hope she comes back soon. #missyou #Robyn
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I actually found an old account that hasn't been posted here and she hadn't purged yet, mostly it's full of cringe Sherlock roleplays and pictures of her cats, but it does showcase a beautiful time when all she had to complain about was her microtia (no mention of literally any other health problems) - a far cry from the Robyn we came to know. I almost feel sorry for her, it seems that not long after she realised that medical shit could get her attention - re: her appearance in a magazine for her microtia circa 2013, she wanted to reclaim that attention. Perhaps hoping to get more features in magazines or newspapers, if only she was super speshul and spoonie enough.
Anyway, here's the cringey tumblr.http://deductionthescience.tumblr.comhttp://deductionthescience.tumblr.com/tagged/roleplay
There's another blog called nybieexplainsitall-blog-blog which she also forgot to purge (probably too many accounts to even remember these few hey Robyn?)http://nybieexplainsitall-blog-blog.tumblr.com/tagged/blog
Has some pretty funny pictures on ithttp://nybieexplainsitall-blog-blog.tumblr.com/post/17552638567/i-sure-was-a-classy-bird-this-christmas-p-2011
I archived all of these links on archive.org (sorry Robyn) so if she decides to purge, just put them through the wayback machine and presto!
Come back to us, Robyn. We miss you.
THANK YOU, thank you, THANK YOU for fucking saving shit before posting it! I am so frustrated when farmers post shit without archiving first and then it's gone. Case in recent point, Kelly's video on YT detailing stuff from her psych ward past.
Good finds on dear Robyn btw. I know she's out there somewhere, munchie-ing away. I hope we find her again. She will not have been able to stay away from dat sweet sweet #spoonie dramu, these MBI'ers never can.
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Still no sign on her online (she's doing a really good job of hiding) but I did stumble across these photos from her wedding.
This! She and Zak are huge Harry Potter fans so this is possibly intentional. I had the same feeling from it.
I think she looks pretty though, for once she doesn't look OTT.
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Okay, gotta say, I love her mom's look. Kooky, but cuuute. Much cuter than her daughter. And also have to add, Zach's dad's Lloyd-style blue suit is AMAZING.>>360640
This made me lel.
Sage no contribution