/g/ - girl talk

A traumatic event left me with chronic pain. For two years I’m trying to make it better. Try vagus nerve massages you can find it all over YT. Also vidrel I find effective. My vagus nerve is fucked up idk if your plays a role in it you can google how to check that. Other than that relaxation. Body awareness meditations for example yoga nidra. Breathing exercises. Fight the stress. Make your life as comfy as possible. Believe in recovery. You are not alone I’m here suffering too. I believe in us

>>303497
My sister has similar issues. However, many people think that fibromyalgia, chronic pain, inability to walk without pain, etc is fake. Do you know why people think it's fake? Is it because there are a lot of fakers out there? Are there even a lot of fakers?

>>303507
yeah i think that's why, lots of ppl that are chronically ill are vocal about it and very fat, so most ppl will assume their fatness is causing the problems
i'm in a 5 week pain therapy atm and it's great at letting me understand my own pain better
i may have eds but i'll go get genetically tested to make sure cus i don't want to sound like a spoonie

I honestly think people in general just aren’t very empathetic if they can’t see visual proof of something they don’t believe it’s real. I can’t show people my pain and I’m skinny and healthy looking so they assume I must be healthy and if I try to explain it I come off as a snowflake.

I think I have EDS— I had a PT who said she was certain of it— but every doctor I’ve ever brought it up to has done the “well we don’t have a means of testing for it or curing it so Idk what you want from me” script which is so fuckijg annoying

Some times it’s randomly way worse than other time. Some days punching the buttons on my microwave hurts my fingers or I can injure my wrist trying to open a fucking jar or my knee randomly can’t support my weight and other times I’m just an average bendy bitch

OP do you think you might have CRPS?

>>311418
I have hypermobile EDS. your doctor is right in that getting a diagnosis won't do much, it's really only to rule things out for yourself. otherwise physiotherapy is the best thing. it makes a big difference but takes at least a few months and a lot of effort to get stronger in the right way and re-learn movements etc. to feel the benefits.

Have you done the beighton test before? You can do it on yourself. There is also a checklist of other symptoms and if you check a certain amount, then it's fairly likely you have it but there is no definitive test to check for the hypermobile type currently, only the more serious kinds.

My pain comes and goes, it's usually a constant background pain with intermittent bouts of extreme pain but the thing I suffer most with is fatigue from hypermobility. And it's not even the kind of fatigue that comes with depression, it's the kind that worsens on exertion. Plus the cognitive issues and brain fog. It just makes it really hard to function.

Also I really hear you on the lack of visual symptoms making your illness invisible to others. It makes you have to be extra resilient when you really don't have the strength or energy to do so.

>>303497
sorry nona that sounds fucking awful. can you get medical marijuana where you are? or just get hold of some weed?

and have you been to a physio at all? mine has really helped me with my sciatic nerve issues but it wasn't a quick fix unfortunately. also hot and cold therapy can be food for temporary relief.

Im so tired of migraines that last 12-48 hours.
Sometimes the pain makes me desperate. I even tried shrooms and it didnt help at all. Docs say theres no “exact way to pinpoint the cause”. I drink alot of water, I workout, and i eat moderately well. The only proven treatment (for me) is a joint and excedrin.

I just started LDN to see if it helps with pain and some other symptoms. curious if anyone else has tried it? so far i feel no difference but am still titrating and working my way up to the recommended dose.

i really need something to work because I don't feel I can go on like this. i worry about the future and how i'm only going to get older and experience more pain. tired of it nonas.